The Individuals with Disabilities Education Act (IDEA) contains the necessary provisions for ensuring rights to appropriate education for children with autistic spectrum disorders. However, the implementation and specification of these services are variable. Early intervention for young children with autistic spectrum disorders is expensive, and most local schools need financial help from the state and federal programs to provide appropriate services.
The large number of court cases is a symptom of the tension between families and school systems. Case law has yielded an inconsistent pattern of findings that vary according to the characteristics of the individual cases. The number of challenges to decision-making for programming within school systems reflects parents’ concerns about the adequacy of knowledge and the expertise of school systems in determining their children’s education and implementing appropriate techniques.
The treatment of autistic spectrum disorders often involves many disciplines and agencies. This confuses lines of financial and intellectual responsibility and complicates assessment and educational planning. When communication between families and school systems goes awry, it can directly affect children’s programming and the energy and financial resources that are put into education rather than litigation. Support systems are not generally adequate in undergirding local service delivery programs and maximizing the usefulness of different disciplines and agencies, and transitions between service delivery agencies are often problematic.
A number of states have successful models for providing services to children with autism, and mechanisms are becoming increasingly efficient and flexible in some states. In most cases, existing agencies at state and federal levels can develop appropriate programs without restructuring—with the possible addition of special task forces or committees designed to deal with issues particular to children with autistic spectrum disorders.
The committee recommends that a variety of steps be taken to ensure that policies are effectively carried out at the state and local levels.
At the federal level, the National Institutes of Health’s Autism Coordinating Committee and the Federal Interagency Coordinating Council should jointly appoint a clinical research oversight