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Improving Palliative Care for Cancer: Summary and Recommendations (2001)

Chapter: Appendix A: Tables A-1 and A-2

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Suggested Citation:"Appendix A: Tables A-1 and A-2." Institute of Medicine and National Research Council. 2001. Improving Palliative Care for Cancer: Summary and Recommendations. Washington, DC: The National Academies Press. doi: 10.17226/10147.
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Page 51

APPENDIX

A

Suggested Citation:"Appendix A: Tables A-1 and A-2." Institute of Medicine and National Research Council. 2001. Improving Palliative Care for Cancer: Summary and Recommendations. Washington, DC: The National Academies Press. doi: 10.17226/10147.
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Page 52

TABLE A-1 NCI Funding for Palliative Care Research: Specific Projects Fiscal Year 1999

Total Project $

Percent a

$ Relevant to Palliative Care

Project Title b

603,532

100

603,532

Inhibition of Postoperative Gynecological Adhesions

364,549

100

364,549

Intelligent Knowledge Base for Cancer Pain Treatment

367,610

100

367,610

Diana2 Computer-Based Teaching of Elder Care

153,918

100

153,918

Palliative Training for Caregivers of Cancer Patients

133,702

100

133,702

Patterns Care for Cancer Patients at End of Life

103,382

100

103,382

Home Based Moderate Exercise for Breast Cancer Patients

117,792

100

117,792

Stress of Cancer Caregiving—Analysis and Intervention

602,537

100

602,537

Family Home Care for Cancer—A Community Based Model

70,464

100

70,464

Clinical Management of Cancer Pain in US Nursing Homes

500,685

100

500,685

Pain Measurement in Bone Marrow Transplantation

162,671

100

162,671

Method for the Analysis of Pain Clinical Trials

413,030

100

413,030

Laboratory Studies of Pain Control Methods

292,011

100

292,011

Cost Effectiveness of Lung Cancer Chemotherapy

360,637

100

360,637

Comparison of Psychosocial Intervention in Breast Cancer

498,233

100

498,233

Self Care Intervention to Control Cancer Pain

540,262

100

540,262

Breast Cancer—Preparing for Survivorship

175,615

100

175,615

Recycling of Urea Nitrogen in Cancer Cachexia

203,436

100

203,436

Adjustment to Breast Cancer

248,889

100

248,889

Clinical Investigations in Hodgkin's Disease

588,097

100

588,097

Cancer Pain and Its Management

1,205,625

100

1,205,625

Maximizing the Therapeutic Index of Childhood ALL

1,778,647

100

1,778,647

CCSP in Head and Neck Cancer Rehabilitation

8,747

100

8,747

Feasibility of Physioacoustic Therapy in Cancer Care

405,116

100

405,116

Pain and the Defense Response

79,000

100

79,000

Home Care Training for Younger Breast Cancer Patients

Suggested Citation:"Appendix A: Tables A-1 and A-2." Institute of Medicine and National Research Council. 2001. Improving Palliative Care for Cancer: Summary and Recommendations. Washington, DC: The National Academies Press. doi: 10.17226/10147.
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Page 53

358,290

100

358,290

A Simulator to Teach Therapeutic Communication Skills

412,812

100

412,812

Facilitating Positive Adaptation to Breast Cancer

416,067

100

416,067

Enhancing Recovery from Blood and Marrow Transplantation

451,385

100

451,385

Computerized Pain Report and Nursing Pain Consult Protocol

350,015

100

350,015

Item Banking and Cat for Quality of Life Outcomes

50,000

100

50,000

Menopausal Symptom Relief for Women with Breast Cancer

100,000

100

100,000

Exercise and Quality of Life in Women with Breast Cancer

99,975

100

99,975

Self Advocacy and Empowerment for Cancer Patients

100,000

100

100,000

Apoptosis Inhibitor for Alopecia Due to Cancer Therapy

99,805

100

99,805

Skin Patches for AIDS Patients

12,405

100

12,405

CCG Nursing Workshop—Challenges in CCG Nursing

74,918

100

74,918

Stress Reduction for Women with Breast Cancer

347,423

100

347,423

Gender Differences in Opioid Analgesia and Side Effects

363,294

100

363,294

Exercise—An Intervention for Fatigue in Cancer Patients

280,410

100

280,410

Cognitive Behavioral Aspects of Cancer Related Fatigue

404,999

100

404,999

Computerized Symptom Report Consult for Cancer Patients

328,624

100

328,624

Endothelin 1 Induced Pain and Metastatic Prostate Cancer

270,936

100

270,936

A Caregiver Intervention to Improve Hospice Outcomes

1,999,999

100

1,999,999

Center for Psycho-oncology Research

249,986

30

74,996

Longitudinal Quality of Life After Marrow Transplant

1,645,030

30

493,509

Epithelial Ovarian Cancer Program Project

2,441,974

30

732,592

Fluorescence Spectroscopy for Cervical Neoplasia

10,000

25

2,500

HIV, Leukemia, and Opportunistic Cancers

584,213

20

116,843

New Approaches to Brain Tumor Therapy CNS Consortium

Suggested Citation:"Appendix A: Tables A-1 and A-2." Institute of Medicine and National Research Council. 2001. Improving Palliative Care for Cancer: Summary and Recommendations. Washington, DC: The National Academies Press. doi: 10.17226/10147.
×

Page 54

98,456

20

19,691

New Approaches to Brain Tumor Therapy CNS Consortium

290,809

20

58,162

Synthetic Studies on Tumor Promoters and Inhibitors

14,883

20

2,977

Technical Requirements for Image Guided Spine Procedures

1,578,050

15

236,708

National Black Leadership Initiative on Cancer

250,641

15

37,596

Quality of Life of Gynecologic Cancer Survivors

284,633

15

42,695

Prophylactic Mastectomy in Hereditary Breast Cancer

270,273

5

13,514

Depression, HPA Function and Smoking Abstinence in Women

TOTAL

 

$18,331,326

 

NOTE: ALL = acute lymphocytic leukemia; CCG = Cancer Center Grant; CCSP = Cancer Control Science Program; CNS = central nervous system; HPA hypothalamic-pituitary-adrenal.

a NCI estimate of percent of total relevant to palliative care

b Grant numbers, principal investigators, and specific instutions have not been listed in this table.

SOURCE: Colbert, 2000.
Suggested Citation:"Appendix A: Tables A-1 and A-2." Institute of Medicine and National Research Council. 2001. Improving Palliative Care for Cancer: Summary and Recommendations. Washington, DC: The National Academies Press. doi: 10.17226/10147.
×

Page 55

TABLE A-2 NCI Funding for Palliative Care Research: Institutional Grants Fiscal Year 1999

Total Project $

Percent a

$ Relevant to Palliative Care

Project Title b

1,427,579

21.20

302,647

Great Lakes Regional Center for AIDS Research

1,682,639

21.20

356,719

Robert H Lurie Cancer Center

1,451,421

18.02

261,546

Cancer Center and Research Institute

554,090

10.63

58,900

University of Texas MD Anderson CCOP Research Base

781,064

10.37

80,996

Cancer Center Support Grant (CCSG)

2,018,050

10.00

201,805

SPORE in Breast Cancer

2,449,134

10.00

244,913

Bay Area Breast Cancer Translational Research Program

947,107

10.00

94,711

Cooperative Core Lab and Clinical Nutrition Research Unit

2,671,424

10.00

267,142

SPORE in Breast Cancer

409,734

8.23

33,721

Comprehensive Cancer Center—Wake Forest University Research Base Grant

1,182,855

6.11

72,272

ECOG CCOP Research Base

271,255

6.07

16,465

Scottsdale Community Clinical Oncology Program

209,774

6.07

12,733

San Juan Minority-Based Community Oncology Program

212,744

6.07

12,914

Cedar Rapids Oncology Project

199,707

6.07

12,122

Geisinger Clinical Oncology Program

262,463

6.07

15,932

Illinois Oncology Research Association CCOP

252,539

6.06

15,304

CCOP

218,728

6.06

13,255

Oklahoma CCOP

881,850

6.06

53,440

Metro Minnesota CCOP

359,450

6.06

21,783

Kalamazoo CCOP

481,448

6.06

29,176

Northern New Jersey Community Oncology Program

108,209

6.05

6,547

University of Michigan CCOP Research Base

455,553

6.05

27,561

CCOP—Colorado Cancer Research Program

269,121

6.05

16,282

Mainline Health CCOP

350,001

6.05

21,175

Toledo CCOP

424,715

6.05

25,695

Marshfield CCOP

483,525

6.05

29,253

Duluth CCOP

563,042

6.05

34,064

Carle Cancer Center CCOP

397,585

6.05

24,054

Meritcare Hospital CCOP

402,567

6.05

24,355

Sioux Community Cancer Consortium

359,785

6.04

21,731

Missouri Valley Cancer Consortium CCOP

399,670

6.04

24,140

Ann Arbor Regional CCOP

393,221

6.04

23,751

Ochsner CCOP

335,086

6.04

20,239

Iowa Oncology Research Association

Suggested Citation:"Appendix A: Tables A-1 and A-2." Institute of Medicine and National Research Council. 2001. Improving Palliative Care for Cancer: Summary and Recommendations. Washington, DC: The National Academies Press. doi: 10.17226/10147.
×

Page 56

505,639

6.00

30,338

Clinical Oncology Program

350,433

6.00

21,026

Kansas City CCOP

273,234

6.00

16,394

University of Illinois Minority Based CCOP

445,098

6.00

26,706

Scott and White CCOP

434,322

6.00

26,059

Greenville, South Carolina CCOP

150,185

6.00

9,011

Gynecologic Oncology Group

296,456

6.00

17,787

Montana Cancer Consortium

185,244

6.00

11,115

Santa Rosa Memorial Hospital Regional CCOP

361,602

6.00

21,696

Hawaii Minority Based CCOP

301,593

6.00

18,096

South Texas Pediatric Minority Based CCOP

184,797

6.00

11,088

Minority Based Clinical Oncology Program

1,035,721

6.00

62,143

Southeast Cancer Control Consortium Inc.

500,180

6.00

30,011

Central Illinois CCOP

451,849

6.00

27,111

Mount Sinai CCOP

304,404

6.00

18,264

Tumor Institute CCOP

847,078

6.00

50,825

CCOP Research Base

165,969

6.00

9,958

CCSG Research Base for CCOP

501,148

6.00

30,069

Pediatric Oncology Group as a CCOP Research Base

510,286

6.00

30,617

Community Clinical Oncology Program

460,201

6.00

27,612

Southern Nevada Cancer Research Foundation CCOP

550,206

6.00

33,012

Northwest CCOP

761,255

6.00

45,675

North Shore CCOP

293,899

6.00

17,634

Greater Phoenix CCOP

462,893

6.00

27,774

Columbus CCOP

286,396

6.00

17,184

CCOP

266,547

6.00

15,993

Florida Pediatric CCOP

551,590

6.00

33,095

Upstate Carolina CCOP

3,877,581

6.00

232,655

CCOP—Biostatistical Center

405,949

6.00

24,357

Louisiana State University Medical Center Minority-Based CCOP

368,614

6.00

22,117

Virginia Commonwealth University Minority-Based CCOP

1,134,032

6.00

68,042

Cancer and Leukemia Group B CCOP Research Base

11,242,692

6.00

674,562

Southwest Oncology Group—CCOP Research Base

519,100

6.00

31,146

CCOP Research Base

1,568,634

6.00

94,118

CCOP

9,772,324

6.00

586,339

CCOP

240,240

6.00

14,414

Baptist Cancer Institute CCOP

406,637

6.00

24,398

Ozarks Regional CCOP

481,158

6.00

28,869

Atlanta Regional CCOP

Suggested Citation:"Appendix A: Tables A-1 and A-2." Institute of Medicine and National Research Council. 2001. Improving Palliative Care for Cancer: Summary and Recommendations. Washington, DC: The National Academies Press. doi: 10.17226/10147.
×

Page 57

553,267

6.00

33,196

Christiana Care CCOP

425,939

6.00

25,556

Syracuse Hematology-Oncology CCOP

509,387

6.00

30,563

Columbia River Oncology Program

260,360

6.00

15,622

St Louis/Cape Girardeau CCOP

187,892

6.00

11,274

Green Mountain Oncology Group

400,043

6.00

24,003

Dayton Clinical Oncology Program

3,660,649

5.71

209,023

CCSG

6,026,463

4.63

279,025

Cancer Center Support (Core) Grant

6,756,815

3.34

225,678

Cancer Center Support

3,092,697

3.32

102,678

Cancer Center Core Support Grant

1,256,873

2.84

35,695

Cancer Center Support Grant

854,004

2.23

19,044

Cancer Center of Wake Forest University

5,818,218

1.37

79,710

CCSG

3,194,572

0.60

19,167

Cancer Center

2,056,974

0.44

9,051

CCSG

2,551,080

0.43

10,970

CCSG

2,220,205

0.41

9,103

Yale Comprehensive Cancer Center

4,876,435

0.30

14,629

Regional Oncology Research Center

3,510,542

0.21

7,372

CCSG

202,113

0.11

222

Genetic Markers for Therapy of Colon Cancer

2,640,213

0.11

2,904

ECOG Statistical Center—Data Management Office

2,329,568

0.11

2,563

ECOG Statistical Office

6,944,062

0.11

7,638

ECOG Operations Office

154,596

0.11

170

ECOG Institution Grant

181,018

0.11

199

ECOG

366,391

0.11

403

ECOG

281,735

0.11

310

ECOG

234,810

0.11

258

ECOG

446,441

0.11

491

ECOG

547,877

0.11

603

ECOG —Wisconsin Studies

393,987

0.11

433

ECOG Clinical Trials

286,855

0.11

316

ECOG

391,656

0.11

431

ECOG

170,319

0.11

187

ECOG

335,704

0.11

369

ECOG Studies

206,311

0.11

227

ECOG

426,499

0.11

469

ECOG

345,144

0.11

380

ECOG

742,780

0.11

817

ECOG Chair's Office

146,456

0.11

161

ECOG

3,001,469

0.05

1,501

University of Michigan Cancer Center

Suggested Citation:"Appendix A: Tables A-1 and A-2." Institute of Medicine and National Research Council. 2001. Improving Palliative Care for Cancer: Summary and Recommendations. Washington, DC: The National Academies Press. doi: 10.17226/10147.
×

Page 58

2,865,494

0.02

573

American College of Surgeons Oncology Trials Group

824,877

0.02

165

Quality Assurance Review Center (QARC)

401,529

0.02

80

EORTC Data Center

735,000

0.02

147

Radiological Physics Center

2,803,329

0.02

561

CCSG

TOTAL

 

6,148,591

 

NOTE: CCOP = Community Clinical Oncology Program; CCSG = Cancer Center Support Grant; ECOG = Eastern Cooperative Oncology Group; EORTC = European Organization for Research and Treatment of Cancer; SPORE = Specialized Program of Research Excellence.

a NCI estimate of percent of total relevant to palliative care

b Grant numbers, principal investigators, and specific instutions have not been listed in this table.

SOURCE: Colbert, 2000.
Suggested Citation:"Appendix A: Tables A-1 and A-2." Institute of Medicine and National Research Council. 2001. Improving Palliative Care for Cancer: Summary and Recommendations. Washington, DC: The National Academies Press. doi: 10.17226/10147.
×
Page 51
Suggested Citation:"Appendix A: Tables A-1 and A-2." Institute of Medicine and National Research Council. 2001. Improving Palliative Care for Cancer: Summary and Recommendations. Washington, DC: The National Academies Press. doi: 10.17226/10147.
×
Page 52
Suggested Citation:"Appendix A: Tables A-1 and A-2." Institute of Medicine and National Research Council. 2001. Improving Palliative Care for Cancer: Summary and Recommendations. Washington, DC: The National Academies Press. doi: 10.17226/10147.
×
Page 53
Suggested Citation:"Appendix A: Tables A-1 and A-2." Institute of Medicine and National Research Council. 2001. Improving Palliative Care for Cancer: Summary and Recommendations. Washington, DC: The National Academies Press. doi: 10.17226/10147.
×
Page 54
Suggested Citation:"Appendix A: Tables A-1 and A-2." Institute of Medicine and National Research Council. 2001. Improving Palliative Care for Cancer: Summary and Recommendations. Washington, DC: The National Academies Press. doi: 10.17226/10147.
×
Page 55
Suggested Citation:"Appendix A: Tables A-1 and A-2." Institute of Medicine and National Research Council. 2001. Improving Palliative Care for Cancer: Summary and Recommendations. Washington, DC: The National Academies Press. doi: 10.17226/10147.
×
Page 56
Suggested Citation:"Appendix A: Tables A-1 and A-2." Institute of Medicine and National Research Council. 2001. Improving Palliative Care for Cancer: Summary and Recommendations. Washington, DC: The National Academies Press. doi: 10.17226/10147.
×
Page 57
Suggested Citation:"Appendix A: Tables A-1 and A-2." Institute of Medicine and National Research Council. 2001. Improving Palliative Care for Cancer: Summary and Recommendations. Washington, DC: The National Academies Press. doi: 10.17226/10147.
×
Page 58
Next: Appendix B: Recommendations from Enhancing Data Systems to Improve the Quality of Cancer Care(IOM, 2000) »
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It is innately human to comfort and provide care to those suffering from cancer, particularly those close to death. Yet what seems self-evident at an individual, personal level has, by and large, not guided policy at the level of institutions in this country. There is no argument that palliative care should be integrated into cancer care from diagnosis to death. But significant barriers-attitudinal, behavioral, economic, educational, and legal-still limit access to care for a large proportion of those dying from cancer, and in spite of tremendous scientific opportunities for medical progress against all the major symptoms associated with cancer and cancer death, public research institutions have not responded. In accepting a single-minded focus on research toward cure, we have inadvertently devalued the critical need to care for and support patients with advanced disease, and their families.

This report builds on and takes forward an agenda set out by the 1997 IOM report Approaching Death: Improving Care at the End of Life, which came at a time when leaders in palliative care and related fields had already begun to air issues surrounding care of the dying. That report identified significant gaps in knowledge about care at the end of life and the need for serious attention from biomedical, social science, and health services researchers. Most importantly, it recognized that the impediments to good care could be identified and potentially remedied. The report itself catalyzed further public involvement in specific initiatives-mostly pilot and demonstration projects and programs funded by the nonprofit foundation community, which are now coming to fruition.

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