Combined Model


Patients, Families, and Health Care Providers

Bereaved Family Members from the Current Study

New Proposed Conceptual Model of Patient-Focused, Family-Centered Medical Care

Pain and symptom management

Providing desired physical comfort

Provide desired level of physical comfort and emotional support

Clear decisionmaking

Achieving control over health care decisions and everyday decisions

Promote shared decisionmaking

Preparation for death

Burden of advocating for quality medical care

Focus on the individual. This includes closure, respect, and patient dignity.


Educating on what to expect, and increasing confidence in providing care

Attend to the needs of the family for information, increasing their confidence in helping with patient care and providing emotional support prior to and after the patient’s death.

Contributing to others

Emotional support prior to and after the patient’s death

Coordination and continuity of care

Affirmation of the whole person


Informing and educating

care providers provide conflicting information, and transitions can be fraught with confusion.

Teno and colleagues’ (2001) model of patient-focused, family-centered medical care (Table 3-3) is based on a review of existing professional guidelines and focus groups conducted with family members. For the seriously ill patient, institutions and care providers striving to achieve patient-focused, family-centered medical care should

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