PAPERBACK
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Combined Model |
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Patients, Families, and Health Care Providers |
Bereaved Family Members from the Current Study |
New Proposed Conceptual Model of Patient-Focused, Family-Centered Medical Care |
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Pain and symptom management |
Providing desired physical comfort |
Provide desired level of physical comfort and emotional support |
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Clear decisionmaking |
Achieving control over health care decisions and everyday decisions |
Promote shared decisionmaking |
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Preparation for death |
Burden of advocating for quality medical care |
Focus on the individual. This includes closure, respect, and patient dignity. |
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Completion |
Educating on what to expect, and increasing confidence in providing care |
Attend to the needs of the family for information, increasing their confidence in helping with patient care and providing emotional support prior to and after the patient’s death. |
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Contributing to others |
Emotional support prior to and after the patient’s death |
Coordination and continuity of care |
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Affirmation of the whole person |
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Informing and educating |
care providers provide conflicting information, and transitions can be fraught with confusion.
Teno and colleagues’ (2001) model of patient-focused, family-centered medical care (Table 3-3) is based on a review of existing professional guidelines and focus groups conducted with family members. For the seriously ill patient, institutions and care providers striving to achieve patient-focused, family-centered medical care should
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