analysis. However, our respondent reported that FETPIP did not archive data or provide analyses for the Florida Welfare Leavers Study grantee.

The Chapin Hall Center for Children at the University of Chicago has developed an extensive archive of child welfare and family welfare data. The center uses these data to assess the impacts of welfare reform and other programs on child well-being. Chapin Hall’s archive of data on children’s welfare is called the Integrated Database on Children’s Services in Illinois (IDB). Built from administrative data collected over two decades by Illinois human services programs, the IDB allows researchers to create a comprehensive picture of the interactions children and their families have with social programs offered by the state. One respondent cited this database as an absolutely invaluable resource.

The University of Missouri at Columbia Department of Economics is another example of a center that archives and analyzes data. Here data from multiple state agencies are matched, merged, and analyzed. The archive contains data from five state agencies: the Department of Economic Development, the Department of Social Services, the Department of Labor and Industrial Relations, the Department of Elementary and Secondary Education, and the Department of Higher Education. The staff provide research and analysis for many of the separate agencies on an ad hoc and a contractual basis.

In Washington State, the Institutional Review Board serves a role as a central place to resolve legal issues of data access. The IRB assisted the Welfare Leavers Study grantee in ironing out legal issues. The IRB serves as a human subjects review board and maintains exemplar documents.

Principle 6: Plan for Data Access in the Development of Information Systems

It would be difficult to include all the requirements for the development of information systems in a single principle. The development of information systems requires a set of its own guiding principles, including, but not limited to, adoption of common identifiers and establishment of standardized data definitions.

Rather than try to list all of the relevant principles, we cite the following example from California: The Family Health Outcomes Project (FHOP). It is a joint project of the Department of Family and Community Medicine and the Institute for Health Policy Studies (both at the University of California at San Francisco). Initiated in 1992, FHOP is a planning and training effort to streamline and standardize the administrative aspects of state child and family health programs in California.

FHOP has developed an information structure for an extremely fragmented and difficult-to-access system—health care and health-related services for women and children in California. California has many categorical health and social



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