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Unequal Treatment: Confronting Racial and Ethnic Disparities in Health Care (2003)
Board on Health Sciences Policy (HSP)
Institute of Medicine (IOM)

Page
739
bottomleft bottomright
Page
739
Front Matter (R1-R16)
Summary (1-28)
1. Introduction and Literature Review (29-79)
2. The Healthcare Environment and Its Relation to Disparities (80-124)
3. Assessing Potential Sources of Racial and Ethnic Disparities in Care: Patient-and-System-Level Factors (125-159)
4. Assessing Potential Sources of Racial and Ethnic Disparities in Care: The Clinical Encounter (160-179)
5. Interventions: Systemic Strategies (180-198)
6. Interventions: Cross-Cultural Education in the Health Professions (199-214)
7. Data Collection and Monitoring (215-234)
8. Needed Research (235-243)
References (244-268)
Appendix A: Data Sources and Methods (269-284)
Appendix B: Literature Review (285-383)
Appendix C: Federal-Level and Other Initiatives to Address Racial and Ethnic Disparities in Healthcare (384-391)
Appendix D: Racial Disparities in Healthcare: Hightlights from Focus Group Findings (392-405)
Appendix E: Committee and Staff Biographies (406-414)
Racial and Ethnic Disparities in Diagnosis and Treatment: A Review of the Evidence and a Consideration of Causes (415-454)
Racial and Ethnic Disparities in Healthcare: A Background and History (455-527)
The Rationing of Healthcare and Health Disparity for the American Indians/Alaska Natives (528-551)
Patient-Provider Communication: The Effect of Race and Ethnicity on Process and Outcomes of Healthcare (552-593)
The Culture of Medicine and Racial, Ethnic, and Class Disparities in Healthcare (594-625)
The Civil Rights Dimension of Racial and Ethnic Disparities in Health Status (626-663)
Racial and Ethnic Disparities in Healthcare: Issues in the Design, Structure, and Administration of Federal Healthcare Financing Programs Supported through Direct Public Funding (664-698)
The Impact of Cost Containment Efforts on Racial and Ethnic Disparities in Healthcare: A Conceptualization (699-721)
Racial and Ethnic Disparities in Healthcare: An Ethical Analysis of When and How They Matter (722-738)
Index (739-764)

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Index A AAHP. See American Association of Health Plans AAMC. See Association of American Medical Colleges AAPI. See Asian Americans and Pacific Islanders AAPIHF. See Asian American and Pacific Islander Health Forum Aboriginal people (Australia), 441 Access to data sources, 229 to medical treatment, 645-647 to services, 143-144 Acculturation, defined, 464, 475, 521 Acute myocardial infarction (AMI), 44, 46, 426-428, 431 Administrative choices in the design of managed care systems, 691-693 in establishing conditions of participation and quality of care management, 690-691 in separate SCHIP programs, 689-690 African Americans, 2, 34, 84-85, 278, 475- 477. See also Blacks defined, 32n, 34 and the "over-diagnosis" of schizophrenia, 612-613 739 African Moors, 498 Agassiz, Louis, 501 Age-adjusted death rates for all causes of death by race and Hispanic origin, 82 for selected causes of death by race and Hispanic origin, 83 Agency for Healthcare Research and Quality (AHRQJ, 219, 223, 226, 235, 243, 386, 420, 659, 711 Assessment of Quality Improvement Strategies in Health Care, 386 Measures of Quality of Care for Vulnerable Populations, 386 Translating Research into Practice, 386 Understanding and Eliminating Minority Health Disparities Initiative, 386 AHRQ. See Agency for Healthcare Research and Quality Alaska Native Colorectal Cancer Education Project, 387 Alaska Native Tribal Health Consortium, 534n Alaska Natives, 34, 85, 89, 477-478 defined, 34, 522 Albert Einstein School of Medicine, 634 Alexander v. Sandoval, 158, 641-642, 656, 661- 662, 693n Alien, Sedition, and Naturalization Acts, 459

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740 AMA. See American Medical Association American Association of Health Plans (AAHP), 218 American College of Surgeons, 108 American Health Dilemma, An, 489 American Indian and Alaskan Native Planning Grants, 391 American Indians, 34, 85, 89, 477478 defined, 34, 474, 522 American Medical Association (AMA), 107- 108, 273, 419, 503, 505, 507, 659 Council on Medical Education, 107 American Nursing Association, 203 American Public Health Association, 609 American racial and ethnic relations, 458- 460 AMI. See Acute myocardial infarction Amputations, 74 Analgesia, 64-66, 290-295 Analgesic medication, 326-327 differential levels of prescription of, 11 Ancient origins, 497498 Angina, 165 Angiography and angioplasty, 137, 427, 434 Anglo-Protestants, 471, 483 defined, 522 Anglo-Saxon, defined, 522 Antebellum period, 471, 501 Anti-discrimination thesis, 722 Anti-Semitism, 486 API. See Asian Americans and Pacific Islanders Archaic medical system, 498 defined, 522 Argon laser trabeculoplasty surgery, 71 Aristotle, 497498 Art of Care Scale, 613 Asian American and Pacific Islander Health Forum (AAPIHF), 284 Asian Americans and Pacific Islanders (API), 34, 85-86, 89-90, 478-480 defined, 34, 474, 522 Assessment of Quality Improvement Strategies in Health Care, 386 Assimilation, 475, 522 identificational, 523 Association of American Medical Colleges (AAMC), 121, 421 Assumptions about racial and ethnic disparities in healthcare, 3-4, 30- 35 INDEX Asthma, 62-63, 296-297 Attitude of healthcare providers, 400401 Australian Aboriginal, defined, 474 Availability of services, 143-144 Aversive racism, 494, 614-616 Awareness of racial and ethnic differences in healthcare increasing among healthcare providers, 6, 20, 124 increasing among the general public and key stakeholders, 6, 20,124 AZT medication, 436 B Bakke decision, 121 Balanced Budget Act of 1997, 683, 689n Barriers for immigrants, 660 Bayer Institute, 196 Bayesian physicians, 167-168 Becker, Howard, 599 2002 Behavior Risk Factor Surveillance System, 387-388 Bernier, Franc5Ois, 499 BIA. See Bureau of Indian Affairs Bias defined, 522 of efficacy, 603-604 in physician decision-making, 632-637 in social stereotypes and attitudes, 169- 171 Bill of Rights, 459 Biological differences, that may justify differences in receipt of care, 138- 139 Biometric testing, 504 Blacks, 34, 475477. See also African Americans defined, 32n, 34, 474, 522 Blumenbach, Johann Fredreich, 500 Boren Amendment, 675n Boys in White, 599 British Medical Journal, 441 Brown v. Board of Education, 107 Buffon, George-Louis Leclerc, 500 Bureau of Indian Affairs (BIA), 462, 488, 531-532 Bureau of Justice Statistics, 654 Bureau of Primary Health Care, 389 Quality Center, 389 Bureau of Prisons, 530

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INDEX Bureau of the Census. See U.S. Census Bureau Bystanders as interpreters, 143 C CABG. See Coronary artery bypass graft CAMPS. See Consumer Assessment of Health Plans; Consumer Assessment of Health Plans Survey California Children and Families Commission, 226 California Civil Rights Initiative, 122 California Department of Health Services, 225-226 California Endowment, 226 California Health Interview Survey (CHIS), 225-226 California Healthcare Interpreters Association (CHIA), 193 California Public Employees Retirement System (CalPERS), 699n California Regents decision, 122 Calman, Neil, 634 CalPERS. See California Public Employees Retirement System Cambodian language, 89 Cambridge Health Alliance, 391 Camper, Petrus, 500 Cancer, 52-57, 298-305, 431433 racial and ethnic differences in, 5 CAP. See Community Access Program Capitation, and DRGs, 713-715 Carcinoembryonic antigen (CEA) testing, 54 Cardiac medication, 30 Cardiopulmonary resuscitation (CPR), 71 Cardiovascular care, racial and ethnic differences in, 5 Cardiovascular disease, 39, 42-52, 306-325, 328-329 studies of the role of financial and institutional characteristics, 45-48 studies to assess appropriateness of services, 48-49 studies using administrative databases, 4245 Carter, Michael, 646, 663 CASS. See Coronary Artery Surgery Study Catastrophic Health Emergency Funds (CHEF), 541-542, 549 741 Catheterization, 135, 163 Causality, social structural egalitarian views of, 732-734 Cautions, about health systems issues and the complexities of mental health phenomena, 618-619 CCHCP. See Cross Cultural Health Care Program CD-ROM-based instructional material, 18, 196-197, 387 CDC. See Centers for Disease Control and Prevention CEA. See Carcinoembryonic antigen testing Centers for Disease Control and Prevention (CDC), 226, 243, 385-388 Alaska Native Colorectal Cancer Education Project, 387 2002 Behavior Risk Factor Surveillance System, 387-388 Hispanic Colorectal Cancer Outreach and Education Project, 387 National Breast and Cervical Cancer Early Detection Program (NBCCEDP), 387 National Comprehensive Cancer Control (CCC) Program, 387 National Program of Cancer Registries, 387 National Training Center, 387 prostate cancer screening behaviors, 387 Racial and Ethnic Approaches to Community Health, 386-387 Centers for Medicare and Medicaid Services (CMS), 222, 224, 388 Excellence Centers to Eliminate Ethnic / Racial Disparities, 388 Reducing Health Care Disparities National Project, 388 Centers of Excellence, 386, 391 Cerebrovascular disease, 57-58, 328-331 Cesarean deliveries, 67 Changes in concepts of race and ethnicity, 490496 in the ethnicity and race of medical students, physicians, nurses, and healthcare staff, 621 in the healthcare arena, 534-535 CHCs. See Community health centers CHEF. See Catastrophic Health Emergency Funds Chen, Jersey, 633

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742 CHF. See Congestive heart failure CHIA. See California Healthcare Interpreters Association Children's health services, 68-69, 330-335 Chinese Americans, 93-94 Chinese Exclusion Act, 459 Chinese language, 89 CHIS. See California Health Interview Survey CHS. See Contract Health Service Cincinnati Children's Hospital Center, 197 Civil Rights Act, 157, 188, 221, 507, 628-631, 668, 679 Title VI, 157, 159, 188, 192, 221, 628-631, 637-641, 668, 679 Title VII, 631 Civil rights dimension of racial and ethnic disparities in healthcare, 626-663 defining discrimination, 629-632 discrimination as a root cause of disparities, 632-649 using civil rights strategies to assist in eliminating racial and ethnic disparities, 649-663 Civil Rights Division, 654 Civil rights enforcement, 15, 187-188 Civil Rights era in healthcare, 506 Civil Rights Movements, 505 Civil rights strategies developing a comprehensive language access agenda, 657-660 developing capacity and infrastructure to address critical civil rights questions in managed care, 662 fixing the Sandoval decision, 661-662 identifying and eliminating other barriers for immigrants, 660 mandating the collection of data on race, ethnicity, and language of preference, 650-655 performing a civil rights self-assessment, 662-663 preventing discrimination through education of providers and patients, 660-661 strengthening the federal, state, and private healthcare, 655-657 using to assist in eliminating racial and ethnic disparities, 649-663 Civil War, 471, 501-502 discrimination during, 103 INDEX CLAS. See Culturally and linguistically appropriate services, standards for healthcare Class, defined, 522 Clinical caretakers as discretionary actors, 128-130 Clinical decision-making and the roles of stereotyping, uncertainty, and bias, 236-237 Clinical discretion, 125-130 clinical caretakers as discretionary actors, 128-130 patient as discretionary actor, 128 subjectivity and uncertainty, 128-130 subjectivity and variability, 128 utilization managers as discretionary actors, 130 Clinical encounters, 160-179 healthcare provider prejudice or bias, 162-174 medical decisions under time pressure with limited information, 161-162 mistrust and refusal, 174-175 patient response, 174-175 Clinical uncertainty, 9, 167-169 Clinician "bias," 611-616 Clinton, William, 626, 677, 692, 705 "Closing the Health Gap" campaign, 123 CMS. See Centers for Medicare and Medicaid Services Cobb, W. Montague, 505 COGME Reports, 118, 120 Cognitive shortcuts, in physician decision- making, 11, 160-161 Cold War, 506 Collecting data on healthcare access and utilization, by patient race, ethnicity, socioeconomic status, and primary language, 21-22, 233 Colonial period, 501 Columbus, 465 Commercial capitalism and the slave society, 466467 Commissioned papers, 273 Commonwealth Fund, 219, 226, 421, 574 Communication and clinical decision- making, sociocultural differences between patient and provider influencing, 214 Communication style, patient satisfaction and health outcomes, 574-575

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INDEX Community Access Program (CAP), 388-389 Community Action Grant Program, 390 Community and Migrant Health Centers Program, 112 Community health centers (CHCs), 112, 114, 506 743 impact on racial and ethnic disparities in healthcare, 699-721 managed competition, 705-706 racial and ethnic disparities, 706 supply-side approaches, 703-705, 712-718 Cowan v. Myers, 678n impact on healthcare in minority and medically underserved areas, 112, 114 Community Health Representatives, 548 Community health workers, 17-18, 21, 193- 195 increasing racial and ethnic minorities' access to healthcare, 195 Compacting, improvement in quality of care, 543-545 Competitive racism, 493 Concentration of poverty, in 100 largest U.S. cities, 688 Concepts of race and ethnicity, 490496 on ethnic groups, 495496 on racial groups and hierarchies, 490-493 racial models as tools for analysis and understanding, 493-495 Congestive heart failure (CHF), 72 Constructionist thinking, 496 defined, 522 Consumer Assessment of Health Plans Survey (CAMPS), 69, 223, 711 Consumer information, 711-712 Consumer Perspective, Clinical Guidelines for Providers, and Provider and System Competencies for Training, 390 Contract Health Service (CHS), 536, 539, 541-543, 549 Contracting, improvement in quality of care, 543-545 Control, over key clinical characteristics, 380-383 Cook v. Ochsner Foundation Hospital et al., 682n Cooper-Patrick, Lisa, 635 Coronary artery bypass graft (CABG), 30, 4349, 137-140, 149-150, 425, 427- 430 Coronary artery disease, 425-431 Coronary Artery Surgery Study (CASS), 419 Cost containment strategies, 700-706 demand-side approaches, 701-702, 706- 712 (61~1~. see (cardiopulmonary resuscitation Criminal justice, racial discrimination in, 100-101 Criteria for literature review, 4041 ranking of studies, 41 review papers, 41 search keywords, 40 "threshold" criteria, 40 Critical analysis of the culture of medicine, 620-621 Cross-cultural approach, 206-207 Cross-cultural communication, links to racial/ethnic disparities in healthcare, 200-201 Cross-cultural curricula, in undergraduate medical education, 202 Cross-cultural education challenges and opportunities, 211-212 cultural sensitivity/awareness approach, 203-204 developing the field, 211 evaluation, 209-211 focus on attitudes, 203-204 focus on knowledge, 204-206 focus on skills, 206-207 foundation and emergence of, 201-203 in the health professions, 19-20, 199-214 improving healthcare professionals' ability to provide quality care, 214 multicultural/categorical approach, 204- 206 provider perspectives, 211 teaching methods and opportunities, 207-209 in the training of health professionals, 214 Cross Cultural Health Care Program (CCHCP), 385 Cuban Americans, 87 Cultural sensitivity/awareness approach, 203-204 Culturally and linguistically appropriate services (CLAS), standards for healthcare, 181-183, 192

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744 Culturally appropriate patient education programs, increasing patients' knowledge of accessing care and participating in treatment decisions, 198 Culture defined, 522 expression of mental illness, 614 "Culture, Communication, and Health" course, 209 Culture of medicine, 594-625 addressing healthcare disparities through the training of healthcare professionals, 606-611 African Americans and the "over- diagnosis" of schizophrenia, 612- 613 bias of efficacy, 603-604 case analyses of disparities in mental health services, 611-612 cautions about health systems issues and the complexities of mental health phenomena, 618-619 "clinician bias," "aversive racism," and misdiagnosis, 614-616 culture and the expression of mental illness, 614 disruptions in the medical machine, 600- 603 insights from physicians in academic teaching hospitals, 598-600 needed research, 619-621 political correctness, the medical machine and the meaning of bias 604-606 race, perceptions of violence, involuntary commitment, and diagnosis of schizophrenia, 616- 618 Current Population Survey, 463 Cuvier, Georges, 500-501 D Daniels, Norman, 727 Darwin, Charles, 501 Darwinism, 504 Data collection and monitoring, 21-22, 215- 234 assessment of federal policies and practices, 220-221 INDEX data needs and recommendations, 232- 234 data sources to assess healthcare disparities, 223-226, 271-284 federal role in racial, ethnic, and primary language health data, 219-223 Home Mortgage Disclosure Act (HMDA), 651-653 models of measuring disparities in healthcare, 226-232 in mortgage lending, 651-653 obstacles to racial/ethnic data collection, 217-219 standardizing, 215 Data Council, 221 Data needs and recommendations, 232-234 Data sources to assess healthcare disparities, 223-226, 271-284 California Health Interview Survey (CHIS), 225-226 commissioned papers, 273 Consumer Assessment of Health Plans Survey (CAMPS), 223 focus groups and roundtable discussions, 278, 284 Health Plan Employer Data and Information Set (HEDIS), 220, 225 literature review, 271, 273 Medical Expenditure Panel Survey (MEPS), 223-224 Medicare Current Beneficiary Survey (MCBS), 224-225 Medicare's Enrollment Database, 224 public workshops, 273-277 study committee, 271 study components and timeline, 272 technical liaison panels, 278-283 "De-fragmentation" of healthcare financing and delivery, 13, 182-184 Death Registration Area (DRA) system, 488 Demand-side approaches, 701-702, 706-712 consumer information, 711-712 patient cost sharing, 706-711 Demographics of healthcare providers, 114- 116. See also Patient sociodemographics; Physician sociodemographic characteristics distribution of registered nurse population in geographic areas by racial/ethnic background, 117 nurses, 116 physicians, 114-115

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INDEX Demography, defined, 465, 522 Department for the Diseases of Children, 484 Destabilization, patchy, 508 DHHS. See U.S. Department of Health and Human Services Diabetes, 64, 336-337 Diagnoses cancer, 431433 coronary artery disease, 425431 general medical and surgical care, 422- 425 HIV/AIDS, 437439 implications for change, 442444 improper, 397-398 overall pattern of evidence, 439440 racial and ethnic disparities in care, 441- 442 renal disease and kidney transplantation, 435437 review of the evidence and a consideration of causes, 417454 stroke, 434435 Diagnosis-related groups (DRGs), 703, 713- 715 Differences, defined, 126,159 Directory of Health and Human Services Data Resources, 223 Disadvantaged neighborhoods, 100 Discrimination concerns unique to immigrant populations, 647-649 defined, 4, 159-160, 475, 523, 629-632 explaining racial and ethnic disparities in health, 637 institutional, 95 preventing through education of providers and patients, 660-661 Discrimination as a root cause of disparities, 632-649 literature review, 632-637 Title VI enforcement history, 638-649 Disparities, defined, 34, 32, 126, 159 Disruptions, in the medical machine, 600- 603 Diversity, of U.S. population, growing, 181 Diversity Rx, 123 DoD. See U.S. Department of Defense Dominant group, defined, 458, 523 Dominative racism, 494 DRA. See Death Registration Area system 745 DRGs. See Diagnosis-related groups DSM-III, 615 DSM-IV, 608 Duke University Medical Center, 140, 429 Dyads, race-discordant, 574 E Economics, role of, 395 ED. See Emergency department services EEOC. See Equal Employment Opportunity Commission Egalitarian theories, 726-728 Elder Care Initiative, 389 Emergency department (ED) services, 153 Emergency Detention Order, 546 Emergency Medical Treatment and Active Labor Act (EMTALA), 156-157 Emergency services, 71-74, 336-339 Employment, racial discrimination in, 100 EMTALA. See Emergency Medical Treatment and Active Labor Act Enalapril, racial and ethnic differences in responses to, 7,138 End-stage renal disease (ESRD), 45, 58-60, 68, 435437 English Americans and Anglo-Protestant culture, 483484 English common law, 458 English proficiency, limited, 640-642 Enlightenment principles, 458 Epidemics, 470 Equal Employment Opportunity Commission (EEOC), 650 Equality, 458 Erasistratos, 498 ESRD. See End-stage renal disease Ethical analysis of racial and ethnic disparities in healthcare implications for physicians, nurses, and other providers of health care services, 737 the neutrality thesis and the anti- discrimination thesis, democratic political theory, 728-729 relevance of causal stories, 729-736 when and how they matter, 722-738 Ethnic American, defined, 523 Ethnic categories for federal data Hispanic or Latino ("Spanish origin"), 34 not Hispanic or Latino, 34

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746 Ethnic groups, 495496 defined, 523 Ethnicity, defined, 462, 474, 523 Eugenics, 504 European American, defined, 523 Evidence-based cost control, 15-16,189-190 Evidence-based guidelines, promoting the consistency and equity of care through the use of, 16, 20, 189-190 Evidence of race-concordance consequences for the communication process, 574 Evidence of racial and ethnic disparities in healthcare, 5-6, 38-77 analgesia, 64-66, 290-295, 326-327 asthma, 62-63, 296-297 cancer, 52-57, 298-305 cardiovascular disease, 39, 42-52, 306- 325, 328-329 cerebrovascular disease, 57-58, 328-331 children's health services, 68-69, 330-335 diabetes, 64, 336-337 emergency services, 71-74, 336-339 extent of, 76-77 eye care, 71-74, 338-341 gallbladder disease, 71-74, 340-341 HIV/AIDS, 61-62, 342-343 maternal and infant health, 66-68, 344- 349 mental health services, 69-71, 348-353 needed research, 75-76 other clinical and hospital-based services, 71-74 patient perceptions, 71-74, 358-359 peripheral vascular disease, 71-74, 352- 355 pharmacy services, 71-74, 352-355 physician perceptions, 71-74, 354-359 radiographic services, 71-74, 360-361 rehabilitative services, 66, 360-363 renal transplantation, 58-60, 362-365 use of services and procedures, 71-74, 364-377 vaccination, 71-74, 374-375 women's health services, 376-379 EXCEED. See Excellence Centers to Eliminate Ethnic/Racial Disparities Excellence Centers to Eliminate Ethnic/ Racial Disparities (EXCEED), 388 Exclusion, defined, 475 INDEX Executive Office of the President, 384 Office of Management and Budget, 384 Executive Orders, 657 Eye care, 71-74, 338-341 F Fadiman, Anne, 605 Failed reform and corporate takeover, 508 Fair Housing Act, 98-99 Federal Employees Health Benefits Plan (FEHBP), 699n Federal Financial Institutions Examination Council (FFIEC), 652 Federal healthcare financing programs supported through direct public funding. See also Medicaid; Medicare; State Children's Health Insurance Program (SCHIP) health disparities and Medicare and Medicaid administration, 681-693 health problems and long-term care needs of minority and non- minority individuals, 671 issues in the design, structure, and administration of, 664-698 overview, 667-673 poverty rates among minority and non- minority individuals, 672 racial and ethnic minority Americans as a share of the elderly population, 671 supplemental insurance coverage among minority and non-minority Medicare beneficiaries, 672 Federal-level and other initiatives to address racial and ethnic disparities in healthcare, 235, 384- 391 Cambridge Health Alliance, 391 Department of Health and Human Services (DHHS), 384-391 Department of Veterans Affairs, 391 Executive Office of the President, 384 Federal policies and practices, assessment of, 220-221 Federal Register, 640, 651 Federal role in racial, ethnic, and primary language health data, 219-223 Federally Qualified Health Center, 536 Fee-for-service health systems, 75, 705

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INDEX FEHBP. See Federal Employees Health Benefits Plan FFIEC. See Federal Financial Institutions Examination Council Financial incentives in healthcare, 16-17, 190-191 Financing challenge, critical, 658-659 Flexner, Abraham, 105, 458 Focus on attitudes, 203-204 on knowledge, 204-206 on skills, 206-207 Focus group findings about racial and ethnic disparities in healthcare, 392405 identifying racial and ethnic discrimination, 398402 inclusion of and respect for culture in healthcare experiences, 403405 institutional discrimination in healthcare, 402403 stories of racial discrimination in healthcare practice, 392-398 Focus groups, roundtable discussions, 278, 284 Folk illnesses and healing practices, 205 Ford Foundation, 421 Fragmentation of healthcare systems, 147- 148 along socioeconomic lines, avoiding, 13, 20,184 Freedmen's Bureau, 502-503 G Galen, 498-499 Gallbladder disease, 71-74, 340-341 Gamble, Vanessa, 634 GAO. See General Accounting Office Geiger, Jack, 627n, 660 General Accounting Office (GAO), 687 General medical and surgical care, 422425 General Social Survey (GSS), 93 Geographic factors, 117, 144, 286, 488n George Washington University Center for Health Services Research and Policy, 690 German Americans, 484 German Dispensary, 484 German hospitals, 484 Glaucoma, 71 747 Glazer, Nathan, 496 Great Chain of Being, 497 Great Depression and World War II, 505 Greco-Roman world, 498 GSS. See General Social Survey Guidance on Aggregation and Allocation of Data on Race for Use in Civil Rights Monitoring and Enforcement, 384 H Hafferty, Fred, 599 Harlem Hospital, 661 Harvard Medical Practice Study, 598 Harvard Medical School, 599, 633 Harvard School of Public Health, 489, 633 HCFA. See Health Care Financing Administration Health, defined, 523 "Health Accountability 36," 226-228 Health Care Divided, Race and Healing a Nation, 638 Health Care Financing Administration (HCFA), 222-223, 389, 418, 420, 436, 536-537 database of, 423 Health deficit, defined, 525 Health disparities and Medicare and Medicaid administration, 548, 681-693 choices in establishing conditions of participation and quality of care management, 690-691 choices in provider payment, 687-689 choices in setting eligibility standards and enrollment arrangements, 685-687 choices in the design of managed care systems, 691-693 concentration of poverty, in 100 largest U.S. cities, 688 conditions of physician participation, 683-684 issues underlying racial disparities, 684- 685 separate SCHIP programs, 689-690 Health insurance coverage. See also Insurance status of racial and ethnic groups among Latino subgroups, 88

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748 by Asian-American and Pacific Islander subgroups vs. whites, 86 by race and ethnicity, 679-680 Health Insurance Portability and Accountability Act (HIPAA), 217, 220, 222, 243 Health maintenance organizations (HMOs), 54, 63, 75, 704-705, 715-716 mandatory enrollment in, 8 staff-model, 115 Health Plan Employer Data and Information Set (HEDIS), 220, 225, 231, 234, 711 Health plan payments to primary care physicians, 704 to specialists, 704 Health plans, disclosing clinical protocols of, 16 Health professionals, increasing the proportion of underrepresented U.S. racial and ethnic minorities among, 14, 20, 186 Health Resources and Services Administration, 385, 388-389 Community Access Program (CAP), 388- 389 Measuring Cultural Competence in Health Care Delivery Settings, 388 Oral Health Initiative, 389 Provider's Guide to Quality and Culture, 389 Health Security Act, 705 Health services, defined, 31 Health status of racial and ethnic minority populations, 81-83 age-adjusted death rates for all causes of death by race and Hispanic origin, 82 age-adjusted death rates for selected causes of death by race and Hispanic origin, 83 Health system interventions, 15-18, 188-196 community health workers, 17-18, 193- 195 evidence-based cost control, 15-16, 189- 190 financial incentives in healthcare, 16-17, 190-191 interpretation services, 17, 191-193 multidisciplinary teams, 195-196 Healthcare, defined, 31, 523 INDEX Healthcare disparities addressing through the training of healthcare professionals, 606-611 among non-African American minority groups, 240 improving research on, 242-243 sources of, 125-130 Healthcare dollars, 536-537 Healthcare environment, 80-124 brief history of legally segregated healthcare facilities, 103-108 contemporary defacto segregation, 103-108 health status of racial and ethnic minority populations, 81-83 healthcare professions workforce in minority and medically underserved communities, 114- 120 historical determinants of contemporary minority health professions workforce, 105-108 historical overview of healthcare delivery for racial and ethnic minority patients, 102-103 insurance status of racial and ethnic minority populations, 83-87 linguistic barriers of racial and ethnic minority populations, 87-90 participation of racial and ethnic minorities in health professions education, 120-123 racial attitudes and relations, 91-95 racial discrimination, 95-101 relationship to broader racial attitudes and discrimination, 6-7, 101-102 settings in which racial and ethnic minorities receive healthcare, 108- 114 Healthcare facilities, producing unique scores for, 229 Healthcare professions workforce in minority and medically underserved communities, 114- 120 demographics of healthcare providers, 114-116 impact of international medical graduates (IMGs) on the workforce in minority communities, 116-120 top 10 countries with highest proportion of medical graduates, 119

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INDEX Healthcare providers, 89-90 biases in social stereotypes and attitudes, 169-171 clinical uncertainty, 167-169 consequences of stereotypes, 171-172 functions of stereotypes and attitudes, 169 prejudice, 10-11, 162-174 provider beliefs and stereotypes, 169 stereotypes and healthcare disparities, 172-174 Healthcare services, defined, 31 Healthcare settings, 400 influence on care for minority patients, 237-239 Healthcare systems-level factors, 8-9 Healthcare systems-level variables, 140-159 availability and access to services, 143- 144 fragmentation of healthcare systems, 147-148 language barriers, 141-143 legal and regulatory policy and healthcare disparities, 155-159 managed care revolution, 150-154 maneuvering through clinical bureaucracies, 144-145 referral patterns and access to specialty care, 145-146 shedding some negative aspects of the past, 508-510 supply-side cost containment and demand for clinical services, 154- 155 U.S. Department of Defense and Veterans Administration healthcare systems, 148-150 Healthcare workforce, 80 "Healthy Families" programs, 90 Healthy People 2000, 226 Healthy People 2010, 37, 385 Heckler, Margaret, 487 HEDIS. See Health Plan Employer Data and Information Set Henry J. Kaiser Family Foundation, The, 123, 421 Herophilos, 498 Herzog, Maximillian, 484 HHS. See U.S. Department of Health and Human Services HHS-wide initiatives, 384-385 Hill-Burton Act, 631, 682n 749 Hip fractures, 66 Hippocratic Oath, 497498 Hispania, 480 Hispanic Americans, 87-88, 480-482 defined, 32n, 34, 463, 523 subgroups, 482 Hispanic Colorectal Cancer Outreach and Education Project, 387 Hispanic Medical Association (HMA), 421 Historical determinants, of contemporary minority health professions workforce, 105-108 Historical perspective, on inequities and bias, 496497 Historical thinking, 496 History of racial and ethnic disparities in healthcare, 102-103, 455-527 American Indians or Alaska Natives, 477-478, 528-534 American racial and ethnic relations, 458460 Asian Americans or Pacific Islanders, 478480 Blacks or African Americans (not of Hispanic origin), 475-477 changing concepts of race and ethnicity, 490496 dynamics of the U.S. racial and ethnic group interaction, 473475 English Americans and Anglo-Protestant culture, 483484 German Americans, 484 Hispanics, 480482 immigration, racial and ethnic groups, health and healthcare, 464465, 470473 Irish Americans, 485 Italian Americans, 485486 Jewish Americans, 486 North American health and health care, 466469 Polish Americans, 486-487 racial and ethnic data collection and definitions, 460464 racial and ethnic health and healthcare disparities and their documentation in the U.S., 487- 489 white non-Hispanic ethnic groups, 482- 483 HIV/AIDS, 61-62, 342-343, 437-439

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754 Meriam Report, 477, 531 Merton, Robert K., 599 Metaracism, 494 Mexican Americans, 87, 614 MI. See Myocardial infarction Middle Ages, 498499 Minority, defined, 524 Minority Health, 528 Minority HIV/AIDS initiative, 384-385 Minority patients mistrust and experiences of discrimination, 135-136 preferences regarding providers and racial concordance, 132-135 Minority stereotype, defined, 524 Minority youth, in the juvenile justice system, 100-101 "Misanthropy Scale," 209 Misdiagnosis, 614-616 Mistrust, 174-175 MMIA. See Massachusetts Medical Interpreter Association Model minority stereotype, defined, 524 Models for measuring disparities in healthcare, 226-232 "Health Accountability 36," 226-228 integrated approaches, 227, 229-231 reporting of racial and ethnic disparities using existing data sets, 231-232 Monitoring healthcare disparities, 241 Monitoring progress, toward elimination of healthcare disparities, 21-22, 234 Moon, Marilyn, 667, 694 Moral foundations, 724-729 Mortgage lending, racial discrimination in, 96 Morton, Samuel George, 501 MOS. See Medical Outcomes Study Mt. Sinai Hospital, 486 Multicultural/categorical approach, 204- 206 Multidisciplinary treatment and preventive care teams, implementing, 18, 21, 195-196 Multinational capitalism, advanced, 468- 469 Muslim culture, 205, 498 Myocardial infarction (MI), 43-45, 59, 71, 134, 137 Myrdal, Gunnar, 417, 444 INDEX N NAACP, 505 NACHM. See National Advisory Commission on Health Manpower NALS. See National Adult Literacy Survey Namias, Barbara, 536 National Adult Literacy Survey (NALS), 571 National Advisory Commission on Health Manpower (NACHM), 118 National Alliance for Hispanic Health, 387 National Board of Medical Examiners, 209 National Breast and Cervical Cancer Early Detection Program (NBCCEDP), 387 National Cancer Institute (NCI), 53, 226 National Center for Vital and Health Statistics, 81 National Center on Minority Health and Health Disparities (NCMHD), 390, 420, 597 National Committee for Quality Assurance (NCQA), 225, 227, 231, 233-234, 711 State of Managed Care Quality report, 231 National Committee on Vital and Health Statistics (NCVHS), 219, 222 National Comprehensive Cancer Control (CCC) Program, 387 National Consumer Assessment of Health Plans (CAMPS), 69 National Council of Urban Indian Health, 536 National Council on Interpretation in Healthcare, 193 National Diabetes Program, 389 National Health Interview Surveys, 429 National Health Law Program (NHeLP), 219-222, 656 National Health Service (NHS), 112, 441 National Hospital Discharge Survey (NHDS), 43 National Indian Council on Aging (NICOA), 537 National Indian Health Board, 531, 534, 537 National Institute of Mental Health (NIMH), 617 Epidemiological Catchment Area studies, 617

OCR for page 755
INDEX National Institutes of Health (NIH), 63, 243, 385, 389-390, 420, 597, 600 National Center on Minority Health and Health Disparities, 390 strategic research agenda on health disparities, 389-390 National League for Nursing, 203 National Medical Association (NMA), 108, 421, 503, 643, 662 National Program of Cancer Registries, 387 National Quality Forum (NQF), 216, 219, 226 National Training Center, 387 National Vital Statistics report system, 226 Native Hawaiian, 34 defined, 34 Naturalization Law of 1790, 459 Navajo language, 89 NBCCEDP. See National Breast and Cervical Cancer Early Detection Program NCI. See National Cancer Institute NCMHD. See National Center on Minority Health and Health Disparities NCQA. See National Committee for Quality Assurance NCVHS. See National Committee on Vital and Health Statistics "Negro medical ghetto," 503, 505 Neighborhood health centers (NHCs), 506 Neighborhoods, systematically disadvantaged, 100 NEJM. See New England Journal of Medicine Neutrality thesis, 722 Neutrality thesis and the anti- discrimination thesis democratic political theory, 728-729 differences between, 723-724 Egalitarian theories, 726-728 Libertarian theories, 725-726 moral foundations for, 724-729 New England Journal of Medicine (NEJM), 419, 594, 606, 632 New Jersey State Police, 654 New York Medical College, 484 Newsday, 646 NHCs. See Neighborhood health centers NHDS. See National Hospital Discharge Survey NHeLP. See National Health Law Program NHS. See National Health Service NICOA. See National Indian Council on Aging 755 NIH. See National Institutes of Health NIMH. See National Institute of Mental Health NMA. See National Medical Association NNRTI. See Nonnucleoside reverse transcriptase inhibitors Noeggerath, Emil, 484 Non-hospital facilities, site of care in, 111 Non-physician health professionals, 239- 240 Nonnucleoside reverse transcriptase inhibitors (NNRTI), 61 NQF. See National Quality Forum Nurses, 116 o Obstacles to racial/ethnic data collection, 217-219 OCR. See Office of Civil Rights OEO. See Office of Economic Opportunity Office for Civil Rights (OCR), 15, 157, 187, 192, 218, 385-386, 630-631, 638- 649, 656 Limited English Proficiency Guidelines, 695 Office of Economic Opportunity (OEO), 531 Office of Indian Affairs, 530 Office of Management and Budget, 32, 227, 234, 384, 461, 463 Guidance on Aggregation and Allocation of Data on Race for Use in Civil Rights Monitoring and Enforcement, 384 Standards for the Classification of Federal Data on Race and Ethnicity, 32 Office of Minority Health (OMH), 181, 192, 218, 385, 420 Resource Center, 385 Office of the Secretary of DHHS, 385-386 Cross Cultural Health Care Program, 385 Healthy People 2010, 37, 385 Office for Civil Rights (OCR), 385-386 Office of Minority Health (OMR), 385 Office on Women's Health, 385 Ohio State University Medical Center, 197 OJJDP. See U.S. Office of Juvenile Justice and Delinquency Prevention OMH. See Office of Minority Health

OCR for page 756
756 Opioid supplies, availability of, 8 Oral Health Initiative, 389 Other, the, 609 "Overcompensation," 134 Overuse of clinical services, by white patients, 139-140 p Pacific Business Group on Health, 711 Pacific Islander, 34 defined, 34, 522 Page Act of 1875, 459 Paired testing strategies, 188n Pap smears, 194 Paperwork Reduction Act, 217 Participation, of racial and ethnic minorities in health professions education, 120-123 Participatory decision-making (PDM), 132, 559, 572-574 Paternalistic racism, 493 Patient- and system-level factors, 125-159 Patient education programs, implementing, 19, 21, 198 Patient-level variables, 7-8, 131-140, 237 biological differences that may justify differences in receipt of care, 138- 139 minority patient mistrust and experiences of discrimination, 135-136 minority patient preferences regarding providers and racial concordance 132-135 overuse of clinical services by white patients, 139-140 patient refusal of recommended treatment, 136-138 patients' preferences, 131-135 role of preferences, treatment refusal, and the clinical appropriateness of care, 7-8 Patient-provider communication, 552-593 consequence of race concordance on patient reports of physician participatory decision-making (PDM) style and other aspects of communication, 572-574 correlates of communication, 557-558 INDEX evidence of race-concordance consequences for the communication process, 574 implications for physician training and patient activation to improve patient-physician communications within culturally diverse populations, 575-577 nature and consequences of broad normative expectations, bias, and racial stereotyping by providers and patients, 556-557 needed research, 577-579 physician role obligations and medicine's unwritten social contract, 556 relationship between communication style and patient satisfaction and health outcomes, 574-575 role and impact of patient sociodemographics on medical communication, 562-572 role of cross-cultural training for healthcare professionals, 579-580 role of physician sociodemographic characteristics on the medical dialogue, 558-564 scope of topic, 553-555 Patient sociodemographics age, 565-567 gender, 565 health status, 569-570 literacy, 570-572 race and ethnicity, 562-565 social class, 567-569 Patients appearance, 399 cost sharing by, 706-711 as discretionary actors, 128 economic/insurance status, 399-400 education and empowerment, 18-19,196- 198 perceptions, 71-74, 358-359 preferences, 131-135 protecting, 14-15, 186-187 refusal of recommended treatment, 136- 138 response by, 12, 174-175 role and impact on medical communication, 562-572

OCR for page 757
INDEX Patients and Healers in the Context of Culture, 607 PCP. See Pneumocystis carinii pneumonia PDM. See Participatory decision-making Percutaneous transluminal coronary angiography (PTCA), 44-49, 139- 140, 149-150 Peripheral artery disease, 74 Peripheral vascular disease, 71-74, 352-355 Personally mediated racism, defined, 524 Pew Health Professions Commission, 203 Pharmacy services, 71-74, 352-355 PHS. See U.S. Public Health Service Physician "gag" clauses, banning, 14 Physician role obligations, medicine's unwritten social contract, 556 Physician sociodemographic characteristics gender, 559-560 race and ethnicity, 558-559 social class, 560-562 Physicians, 114-115 perceptions by, 71-74, 354-359 role in the medical dialogue, 558-564 Physician's fees, low, 712-713 PI. See Protease inhibitors Pittsburgh Police Department, 654 Plato, 497498 Pneumocystis carinii pneumonia (PCP), 61- 62 Pneumonia, 72 Pocket guide and desk reference, 390 Polish Americans, 486-487 Political correctness, 604-606 Political economy, of cultural practices in medicine, 621 "Polygenism," 501 Populations. See also Current Population Survey; Measures of Quality of Care for Vulnerable Populations defined, 31 elderly, 671 growing diversity of U.S., 181 health status of, 81-83 immigrant, 647-649 insurance status of, 83-87 nurses, 117 with equal access to healthcare, 4, 33 Positron tomography, 129 Postmodernism, 495n Poverty rates, among minority and non- minority individuals, 672 757 Practice arrangements, of minority physicians, 621 Pre-Columbian and North American development, 466-467 Preferences, defined, 4n Prejudice, defined, 524 "Prejudice-related conflict," 616 Prescription services, 73 Prichard, James Cowles, 501 Primary care visits, made to primary care delivery sites by health insurance payer and race/ethnicity, 113 Professional interpretation services, increasing linguistic diversity in the U.S. requires increase in, 193 Proficiency, limited, in English, 640-642 Program successes redressing imbalances in care, assessment of, 621 Prostate cancer screening behaviors, 387 Protease inhibitors (PI), 61 Providers beliefs and stereotypes, 169 perspectives, 211 Provider's Guide to Quality and Culture, 389 PTCA. See Percutaneous transluminal coronary angiography Public Health Institute, 225 Public Health Service Act, 680 Public workshops, 273-277 PUBMED database, 285 Puerto Rican Americans, 87 Q Quality Compass database, 231 Quality of care defined, 31 received by tribal communities, 539-543 R Race defined, 490, 524-525 ethnicity and immigration advanced industrial (multinational) capitalism, 468469 commercial capitalism and the slave society, 466467 industrial capitalism, 466469

OCR for page 758
758 North American health and health care, 466469 pre-Columbian and North American development, 466-467 perceptions of violence, involuntary commitment, and diagnosis of schizophrenia, 616-618 Race-discordant dyads, 574 Racial and Ethnic Approaches to Community Health (REACH), 386-387 Racial and ethnic disparities in healthcare assessing potential sources of, 7-12 assumptions, 34, 30-35 background and history, 455-527 bias, stereotyping, prejudice, and clinical uncertainty on part of healthcare providers contributing to, 12, 19, 178 civil rights dimension of, 626-663 culture of medicine and, 594-625 data collection and monitoring, 21-22, 215-234, 460-464 defining, 34 diagnosis and treatment of, 417-454 ethical analysis of when and how they matter, 722-738 evidence of, 5-6, 38-77 existence and unacceptability of, 6, 19, 79 federal-level and other initiatives to address, 235, 384-391 focus group findings, 392405 global problem, 441442 health disparities and Medicare and Medicaid administration, 681-693 healthcare environment and its relation to, 80-124 impact of cost containment efforts on, 699-721 importance of, 36-38 interventions to eliminate, 13-20 many sources contributing to, 12, 19, 159 minority patients more likely than white patients to refuse treatment, 8, 19, 179 occurring in the context of broader historic and contemporary social and economic inequality, 6-7, 19, 123 patient-provider communication, 552- 593 INDEX populations with equal access to he althc are, 4 , 33 relationship of health status to, 35-36 relationship to broader racial attitudes and discrimination, 101-102 revised standards for the classification of federal data on race and ethnicity, 34 their documentation in the U.S., 487-489 Racial and ethnic minority groups defined, 32-33 share of the elderly population, 671 Racial attitudes discrimination in the United States, 6-7 relations, 91-95 Racial categories for federal data American Indian or Alaska Native, 34 Asian, 34 Black or African American, 34 Native Hawaiian or other Pacific Islander, 34 White, 34 Racial discrimination, 95-101 in criminal justice, 100-101 minority youth in the juvenile justice system, 100-101 defined, 95-96 in employment, 100 in housing, 96-100 in mortgage lending, 96 Racial groups defined, 525 hierarchies, 490493 Racial models, as tools for analysis and understanding, 493-495 Racial profiling, the importance of data collection, 654-655 Racism, 491 aversive, 494 competitive, 493 dominative, 494 ideological, 523 individual, 493 institutionalized, 494 internalized, 494, 524 paternalistic, 493 personally mediated, 494, 524 scientific, 501, 504, 525 societal, 493 Racism in Medicine: An Agenda for Change, 441

OCR for page 759
INDEX Radiographic services, 71-74, 129, 360-361 RAND criteria, 45, 48, 57, 139, 143, 149 RAND Health Insurance Survey, 702, 707, 709-710 Rationing of healthcare for American Indians/Alaska Natives, 528-551 addressing health disparities, 548 changes in the healthcare arena, 534-535 compacting/contracting and improvement in quality of care, 543-545 effect of discrimination on quality of care for tribal members, 545-548 healthcare dollars, 536-537 history of health disparities among American Indians/Alaska Natives, 528-534 interviews, 539 quality of healthcare received by tribal communities, 539-543 tribal/consumer perspectives, 537-539 Rawls, John, 726-728 REACH 2010. See Racial and Ethnic Approaches to Community Health Recommendations applying same managed care protections to publicly funded HMO enrollees, 15, 20, 187 avoiding fragmentation of health plans along socioeconomic lines, 13, 20, 184 collecting and reporting data on healthcare access and utilization by patient race, ethnicity, socioeconomic status, and primary language, 21-22, 233 conducting further research to identify sources of radial and ethnic disparities and assessing promising intervention strategies, 23, 242-243 conducting research on ethical issues and other barriers to eliminating disparities, 23, 243 enhancing patient-provider communication and trust by providing financial incentives for practices that reduce barriers, 17, 20, 191 759 implementing multidisciplinary treatment and preventive care teams, 18, 21, 196 implementing patient education programs to increase patients' knowledge of how to best access care and participate in treatment decisions, 19, 21, 198 including measures of racial and ethnic disparities in performance measurement, 21-22, 233-234 increasing awareness of racial and ethnic differences in healthcare among healthcare providers, 6, 20, 124 increasing awareness of racial and ethnic differences in healthcare among the general public and key stakeholders, 6, 20, 124 increasing the proportion of underrepresented U.S. racial and ethnic minorities among health professionals, 14, 20, 186 integrating cross-cultural education into training of all current and future health professionals, 20-21, 214 monitoring progress toward elimination of healthcare disparities, 21-22, 234 promoting the consistency and equity of care through the use of evidence- based guidelines, 16, 20, 189-190 providing greater resources to the U.S. DHHS Office for Civil Rights to enforce civil rights laws, 15, 20, 188 reporting racial and ethnic data by federally defined categories, 21- 22, 234 strengthening the stability of patient- provider relationships in publicly funded health plans, 14, 20, 185 structuring payment systems to ensure an adequate supply of services to minority patients, 17, 20, 190-191 supporting the use of community health workers, 18, 21, 195 supporting the use of interpretation services where community need exists, 17, 20, 193 Reconstruction, in Black health, 509

OCR for page 760
760 Redlining, 642-643 Reducing Health Care Disparities National Project, 388 Reductionism, defined, 525 Reductionist thinking, 496 Referral patterns, access to specialty care, 145-146 Refusal of service, 174-175 Registered nurse population, distribution in geographic areas by racial/ ethnic background, 117 Rehabilitative services, 66, 360-363 Relevance of causal stories, 729-736 brute luck and social structural Egalitarian views of causality, 732-734 Libertarian views of the relevance of causal explanations, 730-732 relevance of individual causal responsibility, 734-736 Renaissance, 499 Renal disease, 30, 435437 Renal transplantation, 58-60, 362-365, 435- 437 Reporting data on healthcare access and utilization, by patient race, ethnicity, socioeconomic status, and primary language, 21-22, 233 Reporting racial and ethnic data by federally defined categories, 21- 22, 234 Reporting racial and ethnic disparities using existing data sets, 231-232 Republican period, 501 Research needed, 22-23, 235-243, 619-621 assessment of program successes redressing imbalances in care, 621 changes in the ethnicity and race of medical students, physicians, nurses, and healthcare staff, 621 clinical decision-making and the roles of stereotyping, uncertainty, and bias, 236-237 contribution of healthcare to health outcomes and the health gap between minority and non- minority Americans, 241-242 critical analysis of the culture of medicine, 620-621 effectiveness of intervention strategies, 240-241 INDEX healthcare disparities among non- African American minority groups, 240 identification of successful interventions and programs in medical and nursing education, 621 improving research on healthcare disparities, 242-243 influence of healthcare systems and settings on care for minority patients, 237-239 monitoring healthcare disparities, 241 patient-level influences on care, 237 political economy of cultural practices in medicine, 621 practice arrangements of minority physicians, 621 roles of non-physician health professionals, 239-240 studies of DoD and VA systems, 238 studies within healthcare plans, 237-238 types of hospital or clinic and racial and ethnic disparities in care, 238-239 Respect, lack of, 396-397 Retrenchment era in healthcare, 507-508 Revascularization, 74, 427 Revised standards for the classification of federal data on race and ethnicity, 34 Revolutionary War, 470, 489 Robert Wood Johnson Foundation, 421, 620 Roman Empire, 498 S Sacher, David, 611, 620 St. Francis Hospital, 485 St. Vincent's Hospital, 485 SAMHSA. See Substance Abuse and Mental Health Services Administration San Diego County Sheriff's Department, 655 Sandoval decision. See Alexander v. Sandoval Sanitary Commission Anthropometric Study, 502 Scala nature, 497 SCHIP. See State Children's Health Insurance Program Schizophrenia, African Americans and the "over-diagnosis" of, 612-613 Schulman, Kevin, 635

OCR for page 761
INDEX Scientific racism, 501, 504 defined, 525 Search keywords, 40 Segregation, contemporary de facto, 103-108 Sen, Amartya, 728 Service use, 71-74, 364-377 SES. See Socioeconomic status Settings in which racial and ethnic minorities receive healthcare, 108- 114 impact of community health centers on healthcare in minority and medically underserved areas, 112, 114 primary care visits made to primary care delivery sites by health insurance payer and race/ethnicity, 113 site of care in hospital settings, 110 site of care in non-hospital facilities, 111 site of usual source of care, by health insurance payer and race/ ethnicity, 111 those having no usual source of medical care, 109 Shalala, Donna, 626, 657, 659 SHIRE. See Summit Health Institute for Research and Education, Inc. Site of usual source of care, by insurance and race/ethnicity, 111 Slave health deficit, defined, 525 Slave health subsystem, 470-471 defined, 525 Slave trade, 499-500 Slavery, 458 Smedley, Audrey, 490 Smith, Charles Hamilton, 501 Smith, David Barton, 638 Smith, Sally, 531 Snyder Act of 1921, 532-533 Social Security Act, Title XXI, 680-681 Social Security Administration (SSA), 220, 223, 649, 668 "Enumeration at Birth" program, 649 Master Beneficiary Record database, 224 Social structural Egalitarian views of causality, brute luck and, 732-734 Societal racism, 493 Sociocultural thinking, 496 Socioeconomic status (SES), 68, 75, 166-167, 286, 557-558, 595, 635 Sources of health insurance by race and ethnicity, 84 761 Sources of medical care, those having no usual, 109 Sources of racial and ethnic disparities in healthcare assessing potential, 7-12 clinical encounter, 160-179 clinical uncertainty, 9 healthcare provider prejudice or bias, 10- 11 healthcare systems-level factors, 8-9 implicit nature of stereotypes, 10 medical decisions under time pressure with limited information, 11-12 patient- and system-level factors, 125-159 patient-level variables, 7-8 patient response, 12 role of bias, stereotyping, and uncertainty, 9-12 Southwest Native American Cardiology Program, 389 Sowell, Thomas, 496 Spanish heritage, 480-481, 564 "Spanish Language and Cultural Competence Curriculum," 209 Special Programs Development Branch, 391 Specialized HIV/AIDS outreach and substance abuse treatment, 390 Spirit Catches You and You Fall Down, The, 605 SSA. See Social Security Administration Staff-model HMOs, 115 Standardizing data collection, 215 Standards, Training and Certification (STC) Committee, 193 Standards for the classification of federal data on race and ethnicity, 34 American Indian or Alaska Native, 34 Asian, 34 Black or African American, 34 Hispanic or Latino ("Spanish origin"), 34 Native Hawaiian or other Pacific Islander, 34 not Hispanic or Latino, 34 White, 34 Standards of mental healthcare, for Latinos, 390 Standards on Cultural and Linguistic Competence in 2000, 660 State Children's Health Insurance Program (SCHIP), 68, 220, 222, 629, 651, 659-660, 673-681 applying for, 637, 648

OCR for page 762
762 STC. See Standards, Training and Certification Committee Stereotypes defined, 475, 525 effect of, 392-393 healthcare disparities, 172-174 implicit nature of, 10 minority, defined, 524 Stinson, Nathan, 528 Stories about misdiagnosis or improper treatment, 401402 Stories of racial discrimination in healthcare practice, 392-398 effect of stereotyping, 392-393 improper diagnosis or treatment, 397- 398 lack of respect, 396-397 language barriers, 393-395 role of economics, 395 Strategic Research Agenda, 390 Strengthening doctor-patient relationships, 13-14,184- 186 federal, state, and private healthcare, 655-657 stability of patient-provider relationships in publicly funded health plans, 14, 20, 185 Stroke, 434-435 Structural thinking, 496 Structuring payment systems to ensure an adequate supply of services to minority patients, 17, 20, 190-191 Student Physician, 599 Studies assess appropriateness of services, 48-49 DoD and VA systems, 238 healthcare plans, 237-238 role of financial and institutional characteristics, 4548 using administrative databases, 4245 Subculture, defined, 525-526 Subjectivity uncertainty, 128-130 variability, 128 Subordinate group, defined, 458, 526 Substance Abuse and Mental Health Services Administration (SAMHSA), 385, 390-391 American Indian and Alaskan Native Planning Grants, 391 INDEX Community Action Grant Program, 390 pocket guide and desk reference, 390 Special Programs Development Branch, 391 specialized HIV/AIDS outreach and substance abuse treatment, 390 standards of mental healthcare for Latinos, 390 Summit Health Institute for Research and Education, Inc. (SHIRE), 219-222 Sunshine Amendment, 654 Supplemental insurance coverage, among minority and non-minority Medicare beneficiaries, 672 Supplemental Security Income, 675 Supply-side approaches, 703-705, 712-718 capitation and DRGs, 713-715 cost containment and demand for clinical services, 154-155 health plan payments to primary care physicians, 704 health plan payments to specialists, 704 low physician fees, 712-713 supply, technology, and expenditure controls, 717-718 utilization review and practice guidelines, 716-717 Supreme Court. See U.S. Supreme Court . . . Recisions Surgeon General, 611, 614 System strategies, 180-198 Systema Naturae, 499 Systematically disadvantaged neighborhoods, 100 T Task Force on Black and Minority Health, 417 Teaching methods and opportunities, 207- 209 Technical liaison panels, 278-283 Terry, Robert W., 493 Test of Functional Health Literacy Assessment (TOFHLA), 570-571 Thai language, 89 Therapeutic cardiac procedures, 149 "Therapeutic social control," 616 Third World IMGs, 116-120 TIA. See Transient ischemic attack

OCR for page 763
INDEX Title VI, 157, 159, 188, 192, 221, 628-631, 637-641, 668, 679. See also Civil Rights Act access to medical treatment, 645-647 .. . . . . a~scr~m~nahon concerns unique to immigrant populations, 647-649 enforcement history and the types of discrimination, 638-649 intentional discrimination, 639-640 limited English proficiency, 640-642 managed care, 643-645 redlining, 642-643 Title VII, 631 TOFHLA. See Test of Functional Health Literacy Assessment Tools, Robert, 2 Transient ischemic attack (TIA), 57, 434435 Translating Research into Practice (TRIP), 386 Treatment cancer, 431433 coronary artery disease, 425431 general medical and surgical care, 422- 425 HIV/AIDS, 437439 implications for change, 442444 improper, 397-398 overall pattern of evidence, 439440 racial and ethnic disparities in care, 441- 442 renal disease and kidney transplantation, 435437 review of the evidence and a consideration of causes, 417454 stroke, 434435 Triage scoring, 153 Tribal/consumer perspectives, 537-539 TRIP. See Translating Research into Practice Trujillo, Michael, 530 Tuskeegee Syphilis Study, 131, 205 U UCLA Center for Health Policy Research, 225 UCLA criteria, 48, 139 UCLA Medical Center, emergency department, 65 Underrepresented minority (URM) students, 121-122 763 Understanding and Eliminating Minority Health Disparities Initiative, 386 Unfulfilled potential of Title VI, 157-159 United Hospital Fund, 658 United Network for Organ Sharing, 436 United States-United Kingdom Collaborative Initiative on Racial and Ethnic Health, 441 United States v. Albank, 653 United States v. Decatur Federal Savings and Loan, 653 University of California at Davis, 596 University of New Mexico School of Medicine, 597 University of Southern California Medical School, 634 Urban Institute, 96 URM. See Underrepresented minority students U.S. Census Bureau, 81, 199, 461-463, 475, 479, 481, 488 U.S. Civil Rights Commission, 684 U.S. Constitution, 459 U.S. Department of Agriculture, 648 U.S. Department of Defense (DoD), healthcare systems, 51, 148-150, 431, 433 U.S. Department of Education, 571, 650 National Adult Literacy Survey (NALS), 571 U.S. Department of Health, Education, and Welfare, 531. See also U.S. Department of Health and Human Services U.S. Department of Health and Human Services (DHHS), 15, 123, 157, 159, 187, 192-193, 216-224, 226, 227n, 232, 234, 384-391, 487-488, 630, 650, 657-660 Agency for Healthcare Research and Quality (AHRQJ, 386 Centers for Disease Control and Prevention (CDC), 386-388 Centers for Medicare and Medicaid Services (CMS), 388 "Closing the Health Gap" campaign, 123 Data Council, 221 Directory of Health and Human Services Data Resources, 223 Health Resources and Services Administration, 388-389

OCR for page 764
764 Healthy People 2000, 226 HHS-wide initiatives, 384-385 Indian Health Service (IHS), 389 Minority HIV/AIDS initiative, 384-385 monitoring by, 158 National Institutes of Health (NIH), 389- 390 Office for Civil Rights (OCR), 15, 157, 187, 192, 218, 630-631, 638-649 Office of Minority Health (OMH), 181, 192, 218, 420 Office of the Secretary, 385-386 standards for culturally and linguistically appropriate services, 182-183 Substance Abuse and Mental Health Services Administration (SAMHSA), 390-391 U.S. Department of Housing and Urban Development (HUD), 99 Housing Discrimination Study, 99 U.S. Department of Justice, 653-654 Bureau of Justice Statistics, 654 Civil Rights Division, 654 Office for Civil Rights (OCR), 656 U.S. Department of the Interior, 530-531 U.S. Department of Veterans Affairs, 391, 418. See also Veterans Administration (VA) health system Centers for Excellence, 391 U.S. Department of War, 530 U.S. Office of Juvenile Justice and Delinquency Prevention (OJJDP), 101 U.S. population, growing diversity of, 181 U.S. Public Health Service (PHS), 531 U.S. Supreme Court decisions, 107,121, 158-159, 693 Utilization managers, as discretionary actors, 130 Utilization review and practice guidelines, 716-717 INDEX V Vaccination, 71-74, 374-375 Van Ryn, Michelle, 635 Veterans Administration (VA) health system, 56-57, 71, 79, 85,136-137, 148-150, 430, 438, 530 Vietnamese Americans, 194, 479 Vietnamese language, 90 W War on Poverty, 531 Washington Civil Rights Initiative, 122 WASP. See White Anglo-Saxon Protestant Westat Corporation, 278 White, Charles, 501 White Anglo-Saxon Protestant (WASP), 483 White Christians, 498 White non-Hispanic ethnic groups, 482483 Whites, 34 defined, 34, 474, 526 Wickline v. State of California, 684n Williams, David, 621 W.K. Kellogg Foundation, 421 Women's health services, 376-379 World Health Organization, 464 World War I, 504 World War II, 474, 486, 495, 506 Worldview, defined, 490, 526 X X-ray tomography, 129

Representative terms from entire chapter:

ethnic disparities