Appendix C List of Registrants

Dr. Bruce Alberts

President

National Academy of Sciences

The National Academies

Washington, D.C.

Mr. Frederick R. Anderson, Jr.

Partner

Cadwalader, Wickersham & Taft

Washington, D.C.

Ms. Jessica Aungst

Research Assistant

Committee on Assessing the System for Protecting Human Research Subjects

Institute of Medicine

The National Academies

Washington, D.C.

Ms. Susie Bachtel

Staff Associate

Science, Technology, and Law Program

The National Academies

Washington, D.C.

Dr. Wendy Baldwin

Deputy Director for Intramural Research

National Institutes of Health

Bethesda, Md.

Dr. Avital Bar-Shalom

Intern

National Cancer Policy Board

Institute of Medicine

The National Academies

Washington, D.C.



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Access to Research Data in the 21st Century: An Ongoing Dialogue Among Interested Parties - Report of a Workshop Appendix C List of Registrants Dr. Bruce Alberts President National Academy of Sciences The National Academies Washington, D.C. Mr. Frederick R. Anderson, Jr. Partner Cadwalader, Wickersham & Taft Washington, D.C. Ms. Jessica Aungst Research Assistant Committee on Assessing the System for Protecting Human Research Subjects Institute of Medicine The National Academies Washington, D.C. Ms. Susie Bachtel Staff Associate Science, Technology, and Law Program The National Academies Washington, D.C. Dr. Wendy Baldwin Deputy Director for Intramural Research National Institutes of Health Bethesda, Md. Dr. Avital Bar-Shalom Intern National Cancer Policy Board Institute of Medicine The National Academies Washington, D.C.

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Access to Research Data in the 21st Century: An Ongoing Dialogue Among Interested Parties - Report of a Workshop Professor Margaret A. Berger Suzanne J. and Norman Miles Professor of Law Brooklyn Law School Brooklyn, N.Y. Dr. Richard E. Bissell Executive Director Policy and Global Affairs Division The National Academies Washington, D.C. Ms. Donna Boswell Partner Hogan & Hartson, LLP Washington, D.C. Ms. Michelle L. Bragg Intern Board on Children, Youth, and Families Commission on Behavioral and Social Sciences and Education The National Academies Washington, D.C. Mr. David E. Broome Senior Associate General Counsel North Carolina State University Raleigh, N.C. Ms. Wanda V. Brownlee William J. Brownlee, MDPC Washington, D.C. Dr. William J. Brownlee, III William J. Brownlee, MDPC Washington, D.C. Ms. Nancy S. Bryson Partner Crowell & Moring, LLP Washington, D.C. Dr. Jane L. Buck President American Association of University Professors Chesapeake City, Md. Mr. Matthew E. Caia Research Assistant Committee on National Statistics The National Academies Washington, D.C. Professor Paul D. Carrington Harry R. Chadwick Senior Professor Duke University Law School Durham, N.C. Dr. Joe S. Cecil, Ph.D., J.D. Project Director Program on Scientific and Technical Evidence The Federal Judicial Center Washington, D.C. Dr. David R. Challoner Professor and Vice President for Health Affairs Emeritus Institute for Health Policy and Epidemiology University of Florida Gainesville, Fla. Mr. Christopher W. Chapman Program Analyst Bureau of Labor Statistics U.S. Department of Labor Washington, D.C.

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Access to Research Data in the 21st Century: An Ongoing Dialogue Among Interested Parties - Report of a Workshop Mr. Frederick J. Charney Policy Analyst Office of Management of Budget Executive Office of the President Washington, D.C. Mr. David P. Clarke Senior Director Regulatory Reinvention & Legal Reform American Chemistry Council Arlington, Va. Mr. Joseph E. Clawson, Jr. Patent Examiner, Retired Great Falls, Va. Ms. Abby Cohen Intern Ocean Studies Board Commission on Geosciences, Environment, and Resources The National Academies Washington, D.C. Professor Joel E. Cohen Abby Rockefeller Mauze Professor and Head, Laboratory of Populations Columbia University and The Rockefeller University New York, N.Y. Mr. Stephen H. Cohen Director Mathematical Statistics Research Center Office of Survey Methods Research Bureau of Labor Statistics U.S. Department of Labor Washington, D.C. Dr. E. William Colglazier Executive Officer National Research Council The National Academies Washington, D.C. Ms. Camille M. Collett Program Associate Board on Science, Technology, and Economic Policy The National Academies Washington, D.C. Mr. Geoff Cooper Attorney/Advisor U.S. Environmental Protection Agency Washington, D.C. Dr. Katie Cottingham Writer, GrantsNet and Science’s Next Wave Science Magazine American Association for the Advancement of Science Washington, D.C. Ms. Nancy A. Crowell Staff Officer Division on Behavioral and Social Science Education The National Academies Washington, D.C. Mr. John C. Crowley Vice President for Federal Relations Massachusetts Institute of Technology Washington, D.C.

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Access to Research Data in the 21st Century: An Ongoing Dialogue Among Interested Parties - Report of a Workshop Dr. Susan A. Daniels Intern Board on Biology The National Academies Washington, D.C. Mr. Martin H. David Consultant Joint Program in Survey Methodology University of Maryland College Park, Md. Ms. Virginia A. de Wolf Senior Project Officer CNSTAT The National Academies Washington, D.C. J. Michael Dean, M.D. Professor and Vice Chairman Department of Pediatrics Division of Critical Care Primary Children’s Medical Center University of Utah Salt Lake City, Utah Dr. Douglas W. Dockery Professor of Environmental Epidemiology Medicine Department of Environmental Health Harvard School of Public Health Boston, Mass. Dr. Gregory Downing Health Science Policy Analyst Office of the Director National Institutes of Health Bethesda, Md. Dr. Sidney Draggan Senior Science and Science Policy Advisor U.S. Environmental Protection Agency Washington, D.C. Mr. Alan M. Ehrlich Patent Counsel U.S. Environmental Protection Agency Washington, D.C. Mr. George C. Elliott Fellow Science, Technology, and Economic Policy Program The National Academies Washington, D.C. Ms. Julie M. Esanu Program Officer International Organizations Board The National Academies Washington, D.C. Dr. William H. Farland Acting Deputy Assistant Administrator Office of Research and Development U.S. Environmental Protection Agency Washington, D.C. Ms. Jean Feldman Head, Policy Office National Science Foundation Arlington, Va.

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Access to Research Data in the 21st Century: An Ongoing Dialogue Among Interested Parties - Report of a Workshop Mr. Kevin Finneran Editor-in-Chief Issues in Science and Technology The National Academies Washington, D.C. Dr. Eric A. Fischer Senior Specialist Science and Technology Congressional Research Service The Library of Congress Washington, D.C. Mr. Peter F. Folger Public Affairs Manager American Geophysical Union Washington, D.C. Mr. Forrest R. Frank Research Staff Member Science and Technology Division Institute for Defense Analyses Alexandria, Va. Dr. Mark S. Frankel Director Program on Scientific Freedom, Responsibility, and Law American Association for the Advancement of Science Washington, D.C. Dr. Carole Ganz-Brown Senior Associate for Digital Information International Division National Science Foundation Arlington, Va. Professor Joseph L. Gastwirth Department of Statistics The George Washington University Washington, D.C. Dr. J. Paul Gilman Vice President and Director of Public Planning Celera Genomics, Inc. Rockville, Md. Mr. Morton David Goldberg Partner Cowan, Liebowitz & Latman, P.C. New York, N.Y. Dr. Karen A. Goldman Extramural Technology Transfer Policy Specialist Office of Science Policy, Director’s Office National Institutes of Health Rockville, Md. Dr. Steven Goodman Associate Professor Department of Biostatistics The Johns Hopkins School of Public Health Baltimore, Md. Ms. Susan Goodman Director of Stewardship Development Office The National Academies Washington, D.C. Professor David L. Goodstein Vice Provost and Professor of Physics and Applied Physics Frank J. Gilloon Distinguished Teaching and Service Professor Department of Physics California Institute of Technology Pasadena, Calif.

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Access to Research Data in the 21st Century: An Ongoing Dialogue Among Interested Parties - Report of a Workshop Ms. Jane Bortnick Griffith Assistant Director for Policy and Legislative Development National Library of Medicine Bethesda, Md. Ms. Elizabeth R. Groff Social Science Analyst National Institute of Justice Washington, D.C. Mr. Kenneth W. Harris Acting Director Research Data Center National Center for Health Statistics Hyattsville, Md. Ms. Patricia Harsche Vice President Business Development Planning and Regulatory Affairs Fox Chase Cancer Center Philadelphia, Pa. Mr. David G. Hawkins Director, Air and Energy Program Natural Resources Defense Council Washington, D.C. Mr. Stephen J. Heinig Senior Staff Associate Association of American Medical Colleges Washington, D.C. Dr. Rouget F. Henschel Associate Lyon & Lyon, LLP Washington, D.C. Ms. Lauren R. Hersh Legislative Correspondent Office of the Honorable Steven Rothman U.S. House of Representatives Washington, D.C. Mr. Henry R. Hertzfeld Senior Research Scientist Center for International Science and Technology Policy The George Washington University Washington, D.C. Ms. Patricia K. Hirsch Assistant General Counsel for Information Office of the General Counsel U.S. Environmental Protection Agency Washington, D.C. Professor Barbara S. Hulka Kenan Professor Department of Epidemiology School of Public Health University of North Carolina Chapel Hill, N.C. Ms. Ann C. Hurley Trial Attorney Environment and Natural Resources Divisions U.S. Department of Justice Washington, D.C. Mr. William E. Hurt International Trade Specialist U.S. Department of Commerce Washington, D.C.

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Access to Research Data in the 21st Century: An Ongoing Dialogue Among Interested Parties - Report of a Workshop Ms. Kathleen S. Irwin Senior University Legal Counsel University of Wisconsin-Madison Madison, Wisc. Mr. Brian A. Jackson Associate Physical Scientist Science and Technology Policy Institute RAND Arlington, Va. Professor Sheila Jasanoff Professor of Science and Public Policy JFK School of Government Harvard University Cambridge, Mass. Mr. James E. Jensen Director Office of Congressional and Government Affairs The National Academies Washington, D.C. Ms. Sabrina R. Johnson Policy Analyst Office of Policy Analysis and Review Office of Air and Radiation U.S. Environmental Protection Agency Washington, D.C. Mr. William L. Jordan Science Advisor Office of Pesticides Programs U.S. Environmental Protection Agency Washington, D.C. Dr. Robert E. Kahn Chairman, CEO, and President Corporation for National Research Initiatives Reston, Va. Mr. Lars B. Karle Vice President Fraunhofer Center for Research in Computer Graphics Providence, R.I. Professor Donald Kennedy Bing Professor of Environmental Studies President Emeritus, Stanford University, and Editor-in-Chief, Science Magazine Stanford, Calif. Ms. Kay K.A. Kim Director Office of Patent Quality Review U.S. Patent and Trademark Office Arlington, Va. Mr. David Kleffman Human Subjects Protection Officer National Institutes of Justice Washington, D.C. Ms. Bonnie G. Klein Program Manager for Copyrighted Information Defense Technical Information Fort Belvoir, Va.

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Access to Research Data in the 21st Century: An Ongoing Dialogue Among Interested Parties - Report of a Workshop Ms. Genevieve Knezo Specialist, Science and Technology Resources, Science, and Industry Division Congressional Research Service The Library of Congress Washington, D.C. Dr. Andrea F. Kollath Manager Merck Research Laboratories Public Affairs Merck & Company, Inc. Whitehouse Station, N.J. Dr. David Korn Senior Vice President for Biomedical and Health Sciences Research Association of American Medical Colleges Washington, D.C. Mr. William L. Kovacs Vice President Environment, Technology, and Regulatory Affairs U.S. Chamber of Commerce Washington, D.C. Dr. Sylvia K. Kraemer Visiting Professor School of Public Policy George Mason University Arlington, Va. Dr. Barnett S. Kramer Director Office of Medical Applications of Research National Institutes of Health Bethesda, Md. Dr. John W. Krueger Scientist-Investigator Office of Research Integrity U.S. Department of Health and Human Services Bethesda, Md. Dr. Howard S. Kurtzman Chief, Cognitive Science Program National Institute of Mental Health Bethesda, Md. Mr. Richard A. Lambert Counsel for Intellectual Property National Institutes of Health Bethesda, Md. Professor Eric S. Lander Professor of Biology and Director Whitehead Institute/MIT Center for Genome Research Cambridge, Mass. Mr. Rolf Lehming Acting Director Science & Engineering Indicators National Science Foundation Arlington, Va. The Honorable Richard A. Levie (Ret.) Principal ADR Associates, L.L.C. Washington, D.C. Ms. Rachel E. Levinson Assistant Director for Life Sciences Office of Science and Technology Policy Executive Office of the President Washington, D.C.

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Access to Research Data in the 21st Century: An Ongoing Dialogue Among Interested Parties - Report of a Workshop Ms. Catherine Liebowitz Project Associate II Survey Research Center University of Michigan Ann Arbor, Mich. Dr. Stephen Lingle Director Environmental Engineering Research Division U.S. Environmental Protection Agency Washington, D.C. Mr. Terry J. Lynch Senior Licensing Officer National Institute of Science and Technology U.S. Department of Commerce Gaithersburg, Md. Mr. Christopher D. Mackie Program Officer/Study Director Committee on National Statistics Commission on Behavioral and Social Sciences and Education The National Academies Washington, D.C. Ms. Ekaterini K. Malliou Public Health Advisor U.S. Department of Health and Human Services Washington, D.C. Mr. Patrick A. Malone Partner Stein, Mitchell & Mezines Washington, D.C. Ms. Diane Maloney Associate Director for Policy Center for Biologics Evaluation and Research U.S. Food and Drug Administration Rockville, Md. Ms. Kelli Marciel Presidential Management Intern Medical Applications of Research National Institutes of Health Bethesda, Md. Mr. Alan D. Margolis Attorney-Advisor U.S. Environmental Protection Agency Washington, D.C. Mr. Jeffrey P. Marks Director, Air Quality National Association of Manufacturers Washington, D.C. Ms. Jennifer E. Marsh Research Associate The Federal Judical Center Washington, D.C. Ms. Lisa S. Matthews Special Assistant for Science Office of the Administrator U.S. Environmental Protection Agency Washington, D.C.

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Access to Research Data in the 21st Century: An Ongoing Dialogue Among Interested Parties - Report of a Workshop Dr. Thomas S. Mayer Research Psychologist Center for Survey Methods Research Statistical Research Division U.S. Bureau of the Census Washington, D.C. Dr. Anne-Marie Mazza Director Science, Technology, and Law Program The National Academies Washington, D.C. Ms. Barbara M. McGarey General Counsel NIH Foundation Bethesda, Md. Dr. Marilyn M. McMillen Chief Statistician National Center for Education Statistics Washington, D.C. Ms. Susan G. Merewitz Senior Attorney Office of the General Counsel/ Public Health U.S. Department of Health and Human Resources Washington, D.C. Professor Richard A. Merrill Daniel Caplin Professor of Law University of Virginia Law School Charlottesville, Va. Dr. Steve Merrill Director Science, Technology, and Economic Policy Program The National Academies Washington, D.C. The Honorable Richard A. Meserve Chairman and Commissioner U.S. Nuclear Regulatory Commission Rockville, Md. Ms. Alexandria L. Mincey Grants Policy Specialist Office of Grants and Debarment U.S. Environmental Protection Agency Washington, D.C. Dr. Kirsten A. Moffatt Intern Science, Technology, and Law Program The National Academies Washington, D.C. Mr. Alan B. Morrison Director Public Citizen Legislation Group Washington, D.C. Dr. Tamara J. Nameroff Department Head Policy Affairs Office of Legislative and Government Affairs American Chemical Society Washington, D.C.

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Access to Research Data in the 21st Century: An Ongoing Dialogue Among Interested Parties - Report of a Workshop The Honorable Pauline Newman Circuit Judge U.S. Court of Appeals for the Federal Circuit Washington, D.C. Ms. Patricia M. O’Connell Counsel, Research Team American Chemistry Council Arlington, Va. Dr. Linda E. O’Donnell Research Professor Center for Research on Learning Dole Human Development Center University of Kansas Lawrence, Kan. Dr. Robert M. O’Keefe Vice President The Health Effects Institute Cambridge, Mass. Dr. Aristides Patrinos Associate Director of Science for Biologic Environmental Research Office of Biological Research U.S. Department of Energy Germantown, Md. Ms. Ellen Paul Public Policy Representative American Institute for Biological Sciences Washington, D.C. Dr. Carol V. Petrie Director Committee on Law and Justice Commission on Behavioral and Social Sciences and Education The National Academies Washington, D.C. Dr. Henry Petroski Professor Department of Civil & Environmental Engineering Duke University Durham, N.C. Mr. Frank J. Pita Director of Corporate Legal Affairs Semiconductor Research Corporation Research Triangle Park, N.C. Mr. Dean Matthew Powell Assistant General Counsel National Science Foundation Arlington, Va. Dr. Donald Prosnitz Chief Science and Technology Advisor U.S. Department of Justice Washington, D.C. Dr. Thomas P. Ratchford Distinguished Visiting Professor National Center for Technology and Law George Mason University School of Law Arlington, Va. Mr. Richard M. Rau Senior Forensic Program Manager National Institute of Justice Washington, D.C. Mr. John H. Raubitschek Patent Counsel U.S. Department of Commerce Washington, D.C.

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Access to Research Data in the 21st Century: An Ongoing Dialogue Among Interested Parties - Report of a Workshop Ms. Holly E. Reed Research Associate Committee on Population The National Academies Washington, D.C. Mr. Jerome H. Reichman Bunyan S. Womble Professor of Law Duke University School of Law Durham, N.C. Mr. Lawrence J. Rhodes Director, Division of Education and Integrity, Office of Research Integrity U.S. Department of Health and Human Services Rockville, Md. Professor Edward P. Richards III Professor of Law Kansas City School of Law University of Missouri Kansas City, Mo. Professor Channing R. Robertson Ruth G. and William K. Bowes Professor Department of Engineering Stanford University Stanford, Calif. Mr. Theodore Rockwell Founding Officer and Director Radiation, Science & Health, Inc. Chevy Chase, Md. Ms. Sally A. Rood Washington Representative Federal Laboratory Consortium Arlington, Va. Dr. Susan Rossi Deputy Director Medical Applications of Research National Institutes of Health Bethesda, Md. Mr. Craig M. Schultz Research Associate Science, Technology, and Economic Policy Program The National Academies Washington, D.C. Mr. William B. Schultz Deputy Assistant Attorney General Civil Division U.S. Department of Justice Washington, D.C. Dr. Frances E. Sharples Director Board on Life Sciences The National Academies Washington, D.C. Mr. Brendan R. Sheehan Corporate Counsel Pfizer, Inc. New York, N.Y. Mr. John F. Shenk Program Analyst U.S. Bureau of the Census Washington, D.C. Ms. Stephanie Shipp Director Economic Assessment Office Advanced Technology Program National Institute of Standards and Technology Gaithersburg, Md.

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Access to Research Data in the 21st Century: An Ongoing Dialogue Among Interested Parties - Report of a Workshop Mr. Ronald Simon Attorney Simon & Associates Washington, D.C. Dr. Daljit Singh Counsellor, Science and Technology Embassy of India Washington, D.C. Mr. Mark F. Smith Associate Director of Government Relations American Association of University Professors Washington, D.C. Mr. James M. Solyst Team Leader American Chemistry Council Arlington, Va. Mr. Philip M. Steel Mathematical Statistician Staff Disclosure Limitation U.S. Bureau of the Census Washington, D.C. Dr. Kathryn E. Stein Director Division of Monoclonal Antibodies Center for Biologics Evaluation and Research U.S. Food and Drug Administration Bethesda, Md. Mr. Lester K. Su Science Fellow Office of The Honorable Vernon Ehlers U.S. House of Representatives Washington, D.C. Ms. Margaret A. Thomson Attorney Office of the General Counsel U.S. Department of Energy Washington, D.C. Professor Jerry G. Thursby Professor of Economics Purdue University West Lafayette, Ind. Professor Marie C. Thursby Executive Director Technology Transfer Initiative, and Professor of Economics Purdue Unniversity West Lafayette, Ind. Ms. Syntrina Toon Program Analyst Bureau of Labor Statistics U.S. Department of Labor Washington, D.C. Dr. Jim J. Tozzi Member of the Advisory Board The Center for Regulatory Effectiveness Washington, D.C. Dr. Sheldon L. Trubatch Attorney Foley & Lardner Washington, D.C.

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Access to Research Data in the 21st Century: An Ongoing Dialogue Among Interested Parties - Report of a Workshop Ms. Lois A. Tully Program Manager National Institute of Justice Washington, D.C. Dr. Myron F. Uman Associate Executive Officer National Research Council The National Academies Washington, D.C. Mr. Steven I. Wallach Partner Pennie & Edmonds, LLP New York, N.Y. The Honorable Jack B. Weinstein Senior Judge U.S. District Judge for the Eastern District of New York Brooklyn, N.Y. Ms. Mary J. Weiss Program Analyst Defense Technical Information Center U.S. Department of Defense Fort Belvoir, Va. Dr. Elora J. Weringer Technical Advisor, Bioethics Pfizer Global Research and Development Groton, Conn. Mr. John A. Wertman Assistant Director for Government Relations Consortium of Social Science Associations Washington, D.C. Mr. Andrew A. White Director Committee on National Statistics Commission on Behavioral and Social Sciences and Education The National Academies Washington, D.C. Dr. Valerie L. Williams Policy Analyst Science and Technology Policy Institute RAND Arlington, Va. Mr. J. Warren Wood III Vice President, General Counsel, and Secretary The Robert Wood Johnson Foundation Princeton, N.J. Dr. Karen Woodrow-Lafield Associate Professor Department of Sociology, Anthropology, and Work Mississippi State University Mississippi State, Miss. Dr. Gillian R. Woollett Associate Vice President Biologics and Biotechnology PhRMA Washington, D.C. Dr. Catherine Woytowicz Science Policy Fellow American Chemical Society Washington, D.C.