responsible for the child’s care should offer to answer a family’s questions and refer them, if appropriate, for counseling.
The next chapter discusses further the role of professionals and health care organizations in providing palliative, end-of-life, and bereavement care for children and families. It considers that care within a broader framework of professional, institutional, and governmental efforts to improve the quality, coordination, and continuity of services for seriously ill or injured children. The chapter concludes with the committee’s recommendations on a number of the issues covered in this and earlier chapters including communication, symptom management and other care processes, bereavement services, and coordination and continuity of care.
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5. Care and Caring From Diagnosis Through Death and Bereavement ."
When Children Die: Improving Palliative and End-of-Life Care for Children and Their Families . Washington, DC: The National Academies Press,
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