through death and bereavement. Priorities for research include but are not limited to the effectiveness of

  • clinical interventions, including symptom management;

  • methods for improving communication and decisionmaking;

  • innovative arrangements for delivering, coordinating, and evaluating care, including interdisciplinary care teams and quality improvement strategies; and

  • different approaches to bereavement care.

This report also suggests more specific directions for research in a number of areas including symptom control, financing, service organization and delivery, perinatal loss, emergency medical services, and education. Some research in these and other areas will focus narrowly on children who have died or who are expected to die. Other research will include children who have survived or may survive life-threatening medical problems. Both kinds of research should provide knowledge that informs and improves the care of children who survive as well as those who do not. It should likewise help every family that suffers with a seriously ill or injured child. Indeed, all of the recommendations in this report, if implemented, should help create a care system that all children and families can trust to provide capable, compassionate, and reliable care when they are in need.



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