• clinical, organizational, and other guides and information resources to help families to advocate for appropriate care for their children and themselves; and

  • professional education and other programs to support palliative, end-of-life, and bereavement care that is competent, continuous, and coordinated across settings, among providers, and over time (regardless of duration of illness).

Neither regional support services nor actions to improve the coordination and continuity of care are free. In some cases, these activities and others recommended here may promise and produce savings (e.g., from avoided hospitalizations or transfers) that cover or exceed their costs. The costs and savings may, however, sometimes accrue to different parties (e.g., program costs for hospitals and savings for insurers or families). State and local governments and philanthropic and other organizations may provide funds or services in kind to help establish telemedicine and other supportive programs. If, however, the system for financing the provision of services to individual patients and families fails to cover the kinds of palliative, end-of-life, and bereavement services advised in this report, professionals and organizations may struggle merely to provide basic services much less coordinate them and support them regionally. Chapter 7 examines this country’s system for financing health care as it relates to pediatric care and palliative care generally and to pediatric palliative, end-of-life, and bereavement care specifically.

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