ent outcomes such as the parent’s decision making about the child’s terminal treatment, timely information, and the use of psychosocial support services?

  1. How do health professionals differ in their responses to parents during the child’s terminal illness from their responses to parents whose children are not terminally ill?

  2. Does professional training and skill development in working with bereaved parents and siblings affect outcomes of the experience?

  3. Can studies move beyond outcomes such as grief symptoms, depression, and social support to include broader variables of self-esteem, personal growth, and flexibility [4, 105]?

  4. What are the barriers to recruitment of research samples in this area and how can they overcome?


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12.Wolfe, J.et al., Understanding of prognosis among parents of children who died of cancer: Impact on treatment goals and integration of palliative care. Journal of the American Medical Association , 2000. 284(19):2469–2475.

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