Appendix B
Workshop Agendas and Presenters

Workshop on Functional Capacity and Work Requirements as It Relates to SSA’s Disability Decision Process Research

June 4–5, 1998

Committee to Review SSA’s Disability Decision Process Research

National Academy of Sciences/Institute of Medicine

Cecil and Ida Green Building, Conference Room 104

2001 Wisconsin Avenue, N.W., Washington, D.C.

FINAL AGENDA

Thursday, June 4

8:30–9:00 a.m.

Continental Breakfast

9:00–9:15 a.m.

Welcome and Introduction

Dorothy Rice, Chair

9:15–9:25 a.m.

Purpose and Goals of the Workshop

Dorothy Rice



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The Dynamics of Disability: Measuring and Monitoring Disability for Social Security Programs Appendix B Workshop Agendas and Presenters Workshop on Functional Capacity and Work Requirements as It Relates to SSA’s Disability Decision Process Research June 4–5, 1998 Committee to Review SSA’s Disability Decision Process Research National Academy of Sciences/Institute of Medicine Cecil and Ida Green Building, Conference Room 104 2001 Wisconsin Avenue, N.W., Washington, D.C. FINAL AGENDA Thursday, June 4 8:30–9:00 a.m. Continental Breakfast 9:00–9:15 a.m. Welcome and Introduction Dorothy Rice, Chair 9:15–9:25 a.m. Purpose and Goals of the Workshop Dorothy Rice

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The Dynamics of Disability: Measuring and Monitoring Disability for Social Security Programs OPENING SESSION 9:25–10:30 a.m. Measuring Functional Capacity of Persons with Disabilities in Light of Emerging Demands in the Workplace (Commentary and discussion will follow) Paper Presented By: Edward Yelin Discussant: Janet Norwood 10:30–10:45 a.m. Coffee Break SESSION ONE 10:45–12:30 p.m. Linking Components of Functional Capacity Domains (Cognitive, Psychosocial, Motor and Sensory/Perceptual) with Work Requirements What are the specific components of the functional capacity domains? How are the specific components linked to demands of work? Is it possible to develop a baseline of work requirements? Can O*NET be used or adapted to meet SSA’s need for an occupational classification system? Discussion Leader: Howard Goldman Discussants: Edwin Fleishman Cille Kennedy 12:30–1:30 p.m. Lunch in Refectory SESSION TWO 1:30–3:30 p.m. Desired Characteristics of Instruments to Measure Functional Capacity to Work What are the strengths and limitations of self-reports, proxy reports, performance testing, and clinical observation?

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The Dynamics of Disability: Measuring and Monitoring Disability for Social Security Programs   How do the strengths and weaknesses of different measurement approaches vary across the different domains of functioning? To what extent should assistive devices be considered in measuring functional capacity? Do different populations have different measurement requirements (e.g., schizophrenia vs. arthritis vs. spinal injury vs. Alzheimer’s disease)? Discussion Leader: Alan Jette Discussants: Allen Heinemann Constantine Lyketsos 3:30–3:45 p.m. Coffee Break SESSION THREE 3:45–4:45 p.m. The Use of Functional Capacity Measures in Public and Private Programs in the United States and in Other Countries What has been their experience in the use of functional capacity measures in determining disability? What aspects of their measurement of functional capacity might be relevant for SSA’s needs? Discussion Leader: Patricia Owens Discussants: Richard Burkhauser Ian Basnett 4:45–5:30 p.m. General Discussion 5:30 p.m. Adjourn—Reception 6:30 p.m. Dinner for Committee Members and Invited Guests

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The Dynamics of Disability: Measuring and Monitoring Disability for Social Security Programs Friday, June 5 SESSION FOUR 8:30–9:00 a.m. Continental Breakfast 9:00–10:15 a.m. Adapting Measurement of Functional Capacity to Work to SSA’s Disability Decision Process What are the criteria for a “successful” measurement of functional capacity to work? Feasibility and practicality of designing and administering (i.e., safety, cost, etc.) measures of functional capacity to work. Technical issues of incorporating reliability, validity, sensitivity, and specificity in the context of SSA’s disability decision process. How can these measurement approaches be linked to work requirements in the context of SSA’s disability decision process? Discussion Leader: Virginia Reno Discussants: Lisa Iezzoni David Stapleton 10:15–10:30 a.m. Coffee Break 10:30–11:00 a.m. Rapporteur’s Review of Major Issues Identified Jane West Kristen Robinson 11:00–12:00 p.m. General Discussion 12:00–12:15 p.m. Concluding Remarks Dorothy Rice 12:15 p.m. Adjourn

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The Dynamics of Disability: Measuring and Monitoring Disability for Social Security Programs Workshop on Survey Measurement of Work Disability: Challenges for Survey Design and Method May 27–28, 1999 Committee to Review SSA’s Disability Decision Process Research National Academy of Sciences/Institute of Medicine Holiday Inn-Georgetown, Mirage I 2101 Wisconsin Avenue, N.W., Washington, D.C. AGENDA Thursday, May 27 8:30–9:00 a.m. Continental Breakfast 9:00–9:15 a.m. Welcome and Introduction Dorothy Rice, Chair 9:15–9:30 a.m. Welcoming Remarks Jane Ross, Deputy Commissioner, SSA SESSION ONE 9:30–10:30 a.m. Overview of the Two Background Papers: Opportunities for Methodological Research on Survey Measures Related to Disability An examination of the various conceptual models of disability and the disablement process and their ability to address SSA’s disability program requirements. The challenges related to the translation of conceptual models to valid and reliable questions that can be administered to the general population. The identification of the coverage, nonresponse, and measurement error properties of current measures of work disability. Potential problems in cross-walking among measures of disability collected in a variety of settings and under varying survey conditions.

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The Dynamics of Disability: Measuring and Monitoring Disability for Social Security Programs   Elizabeth Badley Alan Jette Nancy Mathiowetz Contributors: Allan Sampson 10:30–10:45 a.m. Coffee Break SESSION TWO 10:45 a.m.–12:00 noon Implications of Different Concepts for Survey Measurement Problems How do the various conceptual models address the dynamic nature of disability and how do these models address SSA’s disability program requirements? How do the various conceptual models address the role of environment, adaptation, expectations, and perceptions? What measurement gaps exist between the various conceptual models of disability and the current set of disability measures used in federal surveys? Discussion Leader: Robert Groves Contributors: Ellen MacKenzie Allan Hunt 12:00 noon–1:00 p.m. Lunch in Kaleidoscope Room (Committee members and invited guests) SESSION THREE 1:00–2:00 p.m. Sampling, Accessing, and Measuring People with Disabilities To what extent do varying modes and methods of data collection facilitate participation among persons with disabilities? If access to a person with a work disability is limited (due to the interface between the survey design and the nature of the disability), how is the measurement of disability affected by the role

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The Dynamics of Disability: Measuring and Monitoring Disability for Social Security Programs   of the proxy respondent—caregiver as respondent, other proxy respondent? Can trade-offs be assessed between nonresponse and measurement errors? What gaps exist in our knowledge of the relative impact of coverage, nonresponse, and measurement error on estimates of disability? Discussion Leader: Colm O’Muircheartaigh Contributors: Lawrence Branch Ronald Kessler SESSION FOUR 2:00–3:00 p.m. Questionnaire Development Issues for Measures of Work Disability In light of developments related to the integration of cognitive theory and survey methodology, how should measures of work disability be evaluated? How does the dynamic nature of disability and the disablement process impact the measurement of work disability? How is measurement affected by the role of the person providing the information—self-respondent, caregiver as respondent, or other proxy reporters? To what extent should we look to statistical modeling related to scale reduction as a means for reducing the effects of measurement error? How will the measurement of work disability in a variety of settings (the DES and other ongoing federal data collection efforts) impact SSA’s ability to monitor the pool of people potentially eligible for disability benefits? What research needs to be conducted to develop robust measures of work disability and to address the gaps in our knowledge about the measurement error properties of current measures? Discussion Leader: Seymour Sudman

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The Dynamics of Disability: Measuring and Monitoring Disability for Social Security Programs   Contributors: Roger Tourangeau Jack McNeil 3:00–3:30 p.m. Coffee Break SESSION FIVE 3:30–5:00 p.m. Role of Environment in Survey Measurement of Disability How is the measurement of work disability affected by environment, perceptions, and expectations? Is there a differential impact of environment on the reporting of disability as a function of the role of the person providing the information—self-respondent, caregiver, or other proxy respondent? What do we know about the measurement of the role of environment, expectations, and perceptions with respect to the various sources of survey error, specifically, nonresponse and measurement error? What gaps exist in our knowledge of how to adequately measure environment and its impact on the measurement of work disability? What research needs to be conducted to address these gaps? Discussion Leader: David Gray Contributors: Sandra Berry Lois Verbrugge 5:00–5:30 p.m. General Discussion 5:40–6:40 p.m. Adjourn—Reception for all attendees 6:45 p.m. Dinner in Kaleidoscope Room (Committee members and invited guests)

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The Dynamics of Disability: Measuring and Monitoring Disability for Social Security Programs Friday, May 28 SESSION SIX 8:30–9:00 a.m. Continental Breakfast 9:00–10:30 a.m. Defining a Research Agenda What are the criteria for a “successful” measurement of functional capacity to work? Feasibility and practicality of designing and administering (i.e., safety, cost, etc.) measures of functional capacity to work. Technical issues of incorporating reliability, validity, sensitivity, and specificity in the context of SSA’s disability decision process. How can these measurement approaches be linked to work requirements in the context of SSA’s disability decision process? Discussion Chair: Dorothy Rice 10:30–10:45 a.m. Break 10:45 a.m.–12:00 noon General Discussion Moderator: Robert Groves 12:00–12:15 p.m Concluding Remarks Dorothy Rice 12:15 p.m. Adjourn