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Appendix Workshop Agenda and Participants October 18, 2001

AGENDA

Welcome and Introductions

Barney Cohen, National Research Council

Charles Keely (Chair), Georgetown University

Session 1: Ethical Approaches to Research in Emergencies

Presenter: Judith Lichtenberg, University of Maryland

Comments: Jonathan Shay, Tufts University and Department of Veterans Affairs Outpatient Clinic, Boston

Session 2: Research Ethics in Practice: Case Study of Liberia

Presenter: Richard Black, University of Sussex

Comments: Frederick Ahearn, Catholic University of America

Session 3: Issues Related to Ethical Norms in Biomedical and Social Research

Biomedical Sciences: Kate MacQueen, Family Health International

Social Sciences: William Seltzer, Fordham University

Comments: Felice Levine, American Sociological Association



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OCR for page 13
Research Ethics in Complex Humanitarian Emergencies: Summary of a Workshop Appendix Workshop Agenda and Participants October 18, 2001 AGENDA Welcome and Introductions Barney Cohen, National Research Council Charles Keely (Chair), Georgetown University Session 1: Ethical Approaches to Research in Emergencies Presenter: Judith Lichtenberg, University of Maryland Comments: Jonathan Shay, Tufts University and Department of Veterans Affairs Outpatient Clinic, Boston Session 2: Research Ethics in Practice: Case Study of Liberia Presenter: Richard Black, University of Sussex Comments: Frederick Ahearn, Catholic University of America Session 3: Issues Related to Ethical Norms in Biomedical and Social Research Biomedical Sciences: Kate MacQueen, Family Health International Social Sciences: William Seltzer, Fordham University Comments: Felice Levine, American Sociological Association

OCR for page 13
Research Ethics in Complex Humanitarian Emergencies: Summary of a Workshop Session 4: Social & Demographic Categories in Research in Emergencies Race, Ethnicity, and Gender: Ruth Krulfeld, George Washington University Children: Kirk Felsman, Duke University Session 5: Informed Consent Issues for Conflict-Affected Populations Presenter: Phillip Nieburg, Centers for Disease Control and Prevention Comments: Ron Bayer, Columbia University Session 6: Potential Long- and Short-Term Risks and Benefits of Research in Emergencies Presenter: Ronald Waldman, Columbia University Presenter: Jennifer Leaning, Harvard University Final Discussion and Wrap-up PARTICIPANTS Presenters CHARLES B. KEELY (Chair), Institute for the Study of International Migration, Georgetown University FREDERICK AHEARN, National Catholic School of Social Service, The Catholic University of America RONALD BAYER, Joseph L. Mailman School of Public Health, Columbia University RICHARD BLACK, Center for Development and Environment, University of Sussex J. KIRK FELSMAN, Center for Documentary Studies, Duke University RUTH KRULFELD, Department of Anthropology and School of International Affairs, George Washington University JENNIFER LEANING, School of Public Health, Harvard University FELICE LEVINE, American Sociological Association, Washington, DC JUDITH LICHTENBERG, Department of Philosophy, University of Maryland, College Park KATE MACQUEEN, Family Health International, Research Triangle Park, NC

OCR for page 13
Research Ethics in Complex Humanitarian Emergencies: Summary of a Workshop PHILLIP NIEBURG, U.S. Centers for Disease Control and Prevention, Atlanta WILLIAM SELTZER, Department of Sociology and Anthropology, Fordham University JONATHAN SHAY, Tufts University Medical School and Department of Veterans Affairs Outpatient Clinic, Boston RONALD WALDMAN, Joseph L. Mailman School of Public Health, Columbia University Other Participants LINDA BARTLETT, Division of Reproductive Health, Centers for Disease Control and Prevention, Atlanta BEVERLEE BRUCE, Social Science Research Council, New York MERRY BULLOCK, American Psychological Association, Washington, DC RICHARD CASH, School of Public Health, Harvard University MICHELLE DETWILER, American Association for the Advancement of Science, Washington, DC JOSH DEWIND, Social Science Research Council, New York VIRGINIA DE WOLF, Committee on National Statistics, National Research Council VALERIE DURRANT, Committee on Population, National Research Council KATHLEEN FRYDL, Committee on Law and Justice, National Research Council ANDRE GRIEKSPOOR, Emergency and Humanitarian Action Department, World Health Organization, Geneva UNNI KARUNAKARA, Johns Hopkins University and Médecins Sans Frontières KIRSTI LATTU, U.S. Agency for International Development, Washington, DC JIM LAVRY, Fogarty International Center, National Institutes for Health, Bethesda, Maryland MARYANNE LOUGHRY, Refugee Studies Centre, University of Oxford PAULA REED LYNCH, Bureau of Population, Refugees, and Migration, U.S. Department of State, Washington, DC CAROLYN MAKINSON, The Andrew W. Mellon Foundation, New York

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Research Ethics in Complex Humanitarian Emergencies: Summary of a Workshop SUSAN F. MARTIN, Institute for the Study of International Migration, Georgetown University MICHAEL McCLINTOCK, Human Rights Watch, New York JEAN-PAUL MENU, International Centre for Migration and Health, Geneva SUSAN PURDIN, Joseph L. Mailman School of Public Health, Columbia University TRACY RABIN, School of Public Health, Harvard University W. COURTLAND ROBINSON, Center for Refugee and Disaster Studies, Johns Hopkins University JANE L. ROSS, Center for Social and Economic Studies, National Research Council SHARON STANTON RUSSELL, Center for International Studies, Massachusetts Institute of Technology ANGELA SHARPE, Consortium of Social Science Associations, Washington, DC PAUL SPIEGEL, International Emergency and Refugee Health Branch, Centers for Disease Control and Prevention, Atlanta MARK WALKUP, Bureau of Population, Refugees, and Migration, U.S. Department of State, Washington, DC Workshop Staff BARNEY COHEN, Director, Committee on Population HOLLY REED, Program Officer, Committee on Population CHRISTINE CHEN, Project Assistant, Committee on Population ANA-MARIA IGNAT, Senior Project Assistant, Committee on Population