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Describing Death in America: What We Need to Know (2003)
National Cancer Policy Board (NCPB)
Institute of Medicine (IOM)

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. "Appendix B: Information on Selected Variables." Describing Death in America: What We Need to Know. Washington, DC: The National Academies Press, 2003.

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family care:

many details about who helps with ADLs and IADLs

out-of-pocket costs:

who pays for help with ADLs/IADLs; payment for nursing home, homecare

INFORMATION ON SELECTED VARIABLES

dataset:

AHEAD

site of death:

cause of death:

demographics:

SES

household:

spouse, children, other

social supports:

asked in HRS 1994 module

illnesses:

major illnesses; severity reflected in type and intensity of care

physical symptoms:

pain, shortness of breath, fatigue

physical function:

difficulty with 12 physical tasks; if + then asked difficulty with 6 personal care activities

psychological symptoms:

CESD used in HRS 1994

quality of life:

14 questions on AHEAD Wave 1

cognition:

dementia screening instrument, memory, reasoning

health services utilization support services:

satisfaction with care:

family care :

living with, assisting ADLS

out-of-pocket costs:

nursing home, prescriptions, in-home medical care, assistance with ADLs and IADLS

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106