Where are people dying and how much of the end of their lives is spent in those settings?

Who is providing care for them as they die? Do institutional settings support family presence at the end of life?

Are physical and psychological symptoms being identified and treated (including but not limited to pain)?

How many persons experience impaired cognitive function before death, to what degree, and for what period of time?

How many persons experience physical disability or social isolation before death, to what degree, and for what period of time?

How do patients and loved ones perceive their quality of life at various time points prior to death?

Are patients and loved ones achieving a sense of life closure?

Are patients and loved ones involved in decision making about treatment and care options?

Do dying persons have adequate access to supportive end-of-life care?

What forms of health care delivery are most helpful in promoting end-of-life care goals?

Are patients and loved ones able to make informed decisions based on timely and adequate information about what to expect, treatment options, services, and resources?

Are patients and loved ones receiving supportive services from chaplains, therapists, health aides, and other providers?

Are family physical, emotional, and financial resources being heavily depleted by the care of a dying family member? Are burdens spread across many or borne by a few?

Are loved ones supported through the grieving process?