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Question #11: Are family physical, emotional and financial resources being heavily depleted by the care of a dying family member? Surveys such as the AHEAD study and the National Long-Term Care Survey have the potential to provide information about the depletion of financial resources at the end of life, but little information is being collected about the physical and emotional burdens of caregiving.
Question #12: Are loved ones supported through the grieving process? No population-based information appears to be available about the availability or utilization of bereavement services.
The recommendations in this report are intended to provide initial direction concerning how we might improve the availability and quality of data to better answer these questions.
