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Agenda for Panel's First Meeting AGENDA OF OPEN MEETING June20-21,2001 1 1:15 a.m. Welcome and Introduction Cora Marrett, Chair Andrew White, Director, Committee on National Statistics Christine Hartel, Director, Board on Behavioral, Cog- nitive, and Sensory Sciences Institute of Medicine (IOM), Board on Health Sciences Policy, Com- mittee on Assessing the System for the Protection of Human Re- search Participants, and its Sponsors 11:30 a.m. IOM's Committee on Assessing the System for the Pro- tection of Human Research Participants Roderick J.A. Little, Member, IOM Committee; Chair, Department of Biostatistics, School of Public Health, University of Michigan 1 1:45 a.m. U.S. Department of Health and EIuman Services, Office for Human Research Protections (OHRP) Jeffrey M. Cohen, Director, Division of Education and Development, OHRP 12:00p.m. U.S. Department of Health and Human Services, Na- tional Institutes of Health (NIH) Belinda Seto, Deputy Director, Office of Extramural Research, NIH 12:15 p.m. Discussion 12:30 p.m. Lunch Focus on Federal Statistical and Survey Organizations 1:30 p.m. U.S. Census Bureau Gerald Gates, Chief; Policy Office, Census Bureau 221

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222 PROTECTING PARTICIP~TS ED FACILITATING SOCIAL ED BEHAVIOR SCIENCES SEARCH 1:45 p.m. National Center for Education Statistics (NCES) Jerry West, Director, Early Childhood Studies Pro- gram, NCES 2:00 p.m. National Cancer Institute (NCI) Gordon Willis, Cognitive Psychologist, Applied Re- search Program, Division of Cancer Control and Population Sciences, NCI 2:15 p.m. Discussion Focus on Professional Associations 2:30 p.m. American Psychology Society (APS) Barbara A. Spellman, Associate Professor of Psychol- ogy, University of Virginia; Secretary, APS, and Co-Chair, APS Committee on Human Subject Pro- tection 2:45 p.m. American Anthropological Association (AAA) Mary Margaret Overbey, Director of Government Rela- tions, AAA, and David Guillet, Professor of Anthro- pology, Catholic University of America 3:00 p.m. American Political Science Association (APSA) Robert J.P. Hauck, Deputy Executive Director, APSA 3:15 p.m. American Psychological Association (APA) Merry Bullock, Associate Director for Science, APA, and Sangeeta Panicicer, Research Ethics Officer, APA Discussion 3:30 p.m. 3:45 p.m. Break Focus on National Advisor, Committees 4:15 p.m. National Human Research Protections Advisory Commit- tee (NHRPAC) Overview of NHRPAC Kate-Louise Gottfried, Executive Director Overview of NHRPAC's Social and Behavioral Science Working Group Felice Levine, Cochair, Working Group (The second part of Dr. Levine's presentation will focus on the views of the American Sociological Association, where she serves as the Executive Director.J 4:45 p.m. National Bioethics Advisory Commission (NBAC) Ellen Gadbois, Senior Policy Analyst, NBAC

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AGENDA FOR PANEL'S FIRST MEETING 223 5:00 p.m. National Science Foundation, Advisory Committee for Social, Behavioral, and Economic Sciences (SBE) Sub- committee for Human Subjects Norman Bradburn, Assistant Director, SBE Direc- torate 5:10 p.m. Open Discussion and Audience Comments 5:30 p.m. Reception SPEAKERS Norman Bradburn, National Science Foundation Mary Bullock, Associate Director for Science, Science Directorate, American Psychological Association Jeffrey Cohen, Director, Division of Education and Development, Office for Human Research Protections Ellen Gadbois, Senior Policy Analyst, National Bioethics Advisory ~ . Commission Gerald W. Gates, Chief, Policy Office, U.S. Census Bureau Kate-Louise Gottfried, Executive Director, National Human Research Protections Advisory Committee David Guillet, Department of Anthropology, The Catholic University of America Christine Hartel, Director, Board on Behavioral, Cognitive, and Sensory Sciences, Division of Behavioral and Social Sciences and Education, National Research Council Robert J.P. Hauck, Deputy Director, America Political Science Association Felice Levine, Executive Director, American Sociological Association Roderick J.A. Little, School of Public Health, University of Michigan Mary Margaret Overbey, Director of Government Relations, American Anthropological Association Sangeeta Panicker, Research Ethics Officer, Science Directorate, American Psychological Association Belinda Seto, Deputy Director, Office of Extramural Research, National Institutes of Health Barbara A. Spellman, Department of Psychology, University of Virginia Jerry West, Director, Early Childhood Studies Program, National Center for Education Statistics Gordon Willis, Cognitive Psychologist, Applied Research Program, Division of Cancer Control and Population Sciences, National Cancer Institute

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224 PROTECTING PARTICIPANTS AND FACILITATING SOCIAL AND BEHAVIORAL SCIENCES RESEARCH Andrew White, Director, Committee on National Statistics, Division of Behavioral and Social Sciences and Education, National Research Council INVITED GUESTS Irma Arispe, National Center for Health Statistics Nancy Bates, U.S. Census Bureau Virginia S. Cain, National Institutes of Health Lynda Carlson, National Science Foundation Marcie Cynamon, National Center for Health Statistics Anne Dierler, U.S. General Accounting Office Nancy Donovan, U.S. General Accounting Office John P. [Fanning, U.S. Department of Health and Human Services Brian Greenberg, Social Security Administration Diane Hopkins, Westat, Rockville, MD John Iceland, U.S. Census Bureau Andrew Kessler, American Psychological Society Dave Kleffman, National Institute of Justice Jonathan Knight, American Association of University Professors Alan Kraut, American Psychological Society Dewey La Rochelle, Centers for Disease Control Dev Mani, National Research Council Tom McKenna, Westat, Rockville, MD Caroline Miner, National Institute of Justice Deborah Olster, National Science Foundation Stuart Plattner, National Science Foundation Michael Rand, U.S. Bureau of Justice Statistics Holly Reed, National Research Council Angela Sharpe, Consortium of Social Science Associations Scott Spaulding, National Research Council James Taggart, National Human Research Protections Advisory Committee; Johns Hopkins University Ashley Trimmer, Social Science Research Council Stanley Zimmerman, Westat, Rockville, MD