Bloom BS, Knorr RS, Evans AE. 1985. The epidemiology of disease expenses. The costs of caring for children with cancer. JAMA 253(16):2393-7.
Children’s Oncology Group. 2001. Requirements for Institutional Membership. Arcadia, CA: COG.
Children’s Oncology Group. 2002. Public Presentation Graphic. Bethesda, MD. Cystic Fibrosis Foundation. Patient Registry 2001 Annual Report. Bethesda, MD: 2002.
Dreyer ZE, Blatt J, Bleyer A. 2002. Late Effects of Childhood Cancer and Its Treatment. Pizzo PA, Poplack DG, Eds. Principles and Practice of Pediatric Oncology. 4th ed. Philadelphia: Lippincott Williams & Wilkins.
Erenberg A, Lemons J, Sia C, Trunkel D, Ziring P. 1999. Newborn and infant hearing loss: detection and intervention. American Academy of Pediatrics, task Force on newborn and Infant hearing, 1998-1999. Pediatrics, Feb, 103(2):527-30.
Ettinger A. 2002. Long-Term Survivor Programs: A Paradigm for the Advanced Practice Nurse. NCPB Commissioned Paper (www.iom.edu/ncpb).
Greenberg M. 2002. The Ontario Aftercare Program: Dawn of a New Era. National Cancer Policy Board Meeting. Washington, DC.
Harvey J, Hobbie WL, Shaw S, Bottomley S. 1999. Providing quality care in childhood cancer survivorship: learning from the past, looking to the future. J Pediatr Oncol Nurs 16(3):117-25.
Hobbie WL, Hollen PJ. 1993. Pediatric nurse practitioners specializing with survivors of childhood cancer. J Pediatr Health Care 7(1):24-30.
Hollen PJ, Hobbie WL. 1995. Establishing comprehensive specialty follow-up clinics for long-term survivors of cancer. Providing systematic physiological and psychosocial support. Support Care Cancer 3(1):40-4.
Kadan-Lottick NS, Robison LL, Gurney JG, Neglia JP, Yasui Y, Hayashi R, Hudson M, Greenberg M, Mertens AC. 2002. Childhood cancer survivors’ knowledge about their past diagnosis and treatment: Childhood Cancer Survivor Study. JAMA 287(14):1832-9.
Keene N. 2002. Solicitation of concerns of cancer survivors and their family through survivorship listserv and provided to the National Cancer Policy Board.
Keene N, Hobbie W, Ruccione K. 2000. Childhood Cancer Survivors: A Practical Guide to Your Future. Sebastopol, CA: O’Reilly and Associates, Inc.
MacLean WE Jr, Foley GV, Ruccione K, Sklar C. 1996. Transitions in the care of adolescent and young adult survivors of childhood cancer. Cancer 78(6):1340-4.
Masera G, Chesler M, Jankovic M, Eden T, Nesbit ME, Van Dongen-Melman J, Epelman C, Ben Arush MW, Schuler D, Mulhern R. 1996. SIOP Working Committee on Psychosocial issues in pediatric oncology: guidelines for care of long-term survivors. Med Pediatr Oncol 27(1):1-2.
Mullen CA, Petropoulos D, Roberts WM, Rytting M, Zipf T, Chan KW, Culbert SJ, Danielson M, Jeha SS, Kuttesch JF, Rolston KV. 1999. Outpatient treatment of fever and neutropenia for low risk pediatric cancer patients. Cancer 86(1):126-34.
Murphy S. 2002. Clinical Trials: Issues Impacting Design and Conduct of Clinical Trials, NCPB Commissioned Paper. (www.iom.edu/ncpb).
National Ambulatory Medical Care Survey and National Hospital Ambulatory Medical Care Survey, 1995-1999; Healthcare Cost and Utilization Project, 1997; special tabulations NCPB staff, 2003.
Newacheck PW, Strickland B, Shonkoff JP, Perrin JM, McPherson M, McManus M, Lauver C, Fox H, Arango P. 1998. An epidemiologic profile of children with special health care needs. Pediatrics 102(1 Pt 1):117-23.
Oeffinger KC. 2002. Longitudinal Cancer-related Health Care for Adult Survivors of Childhood Cancer (IOM commissioned background paper) (www.iom.edu/ncpb).
Oeffinger KC, Eshelman DA, Tomlinson GE, Buchanan GR. 1998. Programs for adult survivors of childhood cancer. J Clin Oncol 16(8):2864-7.