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Childhood Cancer Survivorship: Improving Care and Quality of Life (2003)
National Cancer Policy Board (NCPB)
Institute of Medicine (IOM)

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. "1. Introduction." Childhood Cancer Survivorship: Improving Care and Quality of Life. Washington, DC: The National Academies Press, 2003.

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  • Pediatric Cancer Survivors: Past History and Future Challenges, Anna T. Meadows

  • Late Effects of Treatment for Cancer During Childhood and Adolescence, Daniel Green

  • Neurocognitive Late Effects in Pediatric Cancer, Raymond Mulhern

  • Quality of Life Issues and Cancer Survivorship, Brad Zebrack and Lonnie Zeltzer

  • Research Involving Long Term Survivors of Childhood and Adolescent Cancer: Methodologic Considerations, Leslie Robison

  • Cancer Survivorship: Issues Impacting Design and Conduct of Clinical Trials, Sharon Murphy

  • Longitudinal Cancer-Related Health Care for Adult Survivors of Childhood Cancer, Kevin Oeffinger

  • Cognitive Late Effects of Childhood Cancer and Treatment: Issues for Survivors, F. Daniel Armstrong,

  • Long-term Survivor Programs: A Paradigm for the Advanced Practice Nurse, Alice G. Ettinger

The Board heard from the following cancer survivorship specialists and representatives of federal agencies at the Board’s quarterly meeting in July 2001:

  • Anna T. Meadows, MD, The Children’s Hospital of Philadelphia, provided an overview of childhood cancer survival;

  • Daniel Green, MD, Roswell Park Cancer Institute, discussed late effects of treatment for childhood cancer;

  • Raymond Mulhern, PhD, St. Jude Children’s Research Hospital, described neurocognitive late effects in pediatric cancer;

  • Leslie Robison, PhD, University of Minnesota Cancer Center, described epidemiologic and research issues;

  • Sharon Murphy, MD, Children’s Memorial Hospital, Chicago, reviewed clinical trial issues in survivorship research;

  • Lonnie Zeltzer, MD, David Geffen School of Medicine at UCLA discussed psychosocial and behavioral outcomes in childhood cancer; and

  • Julia Rowland, PhD, Director of the National Cancer Institute Office of Cancer Survivorship discussed federal research initiatives in childhood survivorship.

Perspectives on health care delivery were discussed at the January 2002 meeting where the Board heard from:

  • Kathy Ruble, RN, and Cindy Schwartz, MD, of the Johns Hopkins Pediatric Oncology Program;

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