NOTICE: The project that is the subject of this report was approved by the Governing Board of the National Research Council, whose members are drawn from the councils of the National Academy of Sciences, the National Academy of Engineering, and the Institute of Medicine. The members of the committee responsible for the report were chosen for their special competences and with regard for appropriate balance.

This study was supported by the National Cancer Institute; the Centers for Disease Control and Prevention; the American Cancer Society; Abbott Laboratories; the American Society of Clinical Oncology; Amgen, Inc.; Aventis; and the United Health Care Foundation. Any opinions, findings, conclusions, or recommendations expressed in this publication are those of the author(s) and do not necessarily reflect the views of the organizations or agencies that provided support for the project.

Library of Congress Cataloging-in-Publication Data

National Cancer Policy Board (U.S.)

Childhood cancer survivorship : improving care and quality of life / National Cancer Policy Board ; Susan L. Weiner, Joseph V. Simone, and Maria Hewitt, editors ; Institute of Medicine and National Research Council.

p. ; cm.

Includes bibliographical references.

1. Tumors in children—Complications. 2. Tumors in children—Patients—Services for. 3. Tumors in children—Government policy—United States.

[DNLM: 1. Neoplasms—Child. 2. Survivors. 3. Follow-Up Studies. 4. Health Policy. 5. Needs Assessment. QZ 275 N277c 2003] I. Weiner, Susan Lipschitz, 1942- II. Simone, Joseph V. III. Hewitt, Maria Elizabeth. IV. Title.

RC281.C4N367 2003

362.1’9892994—dc21

2003008030

COVER: Candlelighters Childhood Cancer Foundation, National Office; Candlelighters of the El Paso Area Inc., and Sunset Color Graphics, El Paso (photographer).