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References
Anderson, M.J.
1988 The American Census: A SocialHistory. New Haven: Yale University Press.
Anderson, M.J., and S.E. Fienberg
2001 Who Counts.: The Politics of Census-Taking in Contemporary America. New York:
Russell Sage Foundation.
Bocchino, C., and D. Wheeler
2003 Race and Ethnicity Data Collection by Health Plans. Paper prepared for the
workshop.
Farley, R., and W.R. Allen
1987 The Color Line and the Quality of Life in America. New York: Russell Sage
Foundation.
Fremont, A., and N. Lurie
2003 The Role of Race and Ethnicity Data Collection in Eliminating Disparities in
Health Care. Paper prepared for the workshop.
Geppert, J.J., S.J. Singer, J. Bucchner, L. Ranbom, W. Suarez, and W. Xu
2003 State Race and Ethnicity Data Collection. Paper prepared for the workshop.
Geronimus, A.T., and J. Bound
1998 Use of census-based aggregate variables to proxy for socioeconomic group:
evidence from national samples. American Journal of Epidemiology 148(5):475-
486.
Institute of Medicine
2002a Unequal Treatment: Confionting Racial and Ethnic Disparities in Health Care.
Washington, DC: The National Academies Press.
2002b Guidance for the National Healthcare Disparities Report. Washington, DC: The
National Academies Press.
34
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REFERENCES
National Association of Health Data Organizations and the Medstat Group
35
1999 Statewide Encounter-Level Inpatient and Outpatient Data Collection Activities,
Agency for Healthcare Research and Quality, Rockville, MD.
National Health Law Program
no Assessment of State Laws, Regulations and Practices Affecting the Collection and
date Reporting of Racial and Ethnic Data by Health Insurers and Managed Care Plans.
(Draft).
Nerenz, D., and C. Currier
2003 Collection of Data on Race/Ethnicity by Private-Sector Organizations: Hospitals,
Health Plans, and Medical Groups. Paper prepared for the workshop.
Perot, R.T., and M. Youdelman
2001 Racial, Ethnic, and Primary Language Data Collection in the Health Care System:
An Assessment of Federal Policies and Practices. New York: Commonwealth Fund.
Petersen, W.
1987 Politics and Measurement of Ethnicity. In The Politics of Admirers, W. Alonso and P.
Starr, eds. New York: Russell Sage Foundation.
PL 104-191
1996 Health Insurance Portability and Accountability Act of 1996 (HIPAA), Public
Law 104-191.
PL 106-525
2000 The Minority Health and Disparities Research Education Act of 2000, Public
Law 101-525.
Smith, D.B.
1999 Health Care Divided: Race and Healing a Nation. Ann Arbor: University of
Michigan Press.
U.S. Department of Health and Human Services
2000 Tracking Healthy People 2010. Washington, DC: U.S. Government Printing
Of lice.
2003 Health Insurance Reform: Modifications to Electronic Data Transaction Standards
and Code Sets. Federal Register: February 20, 2003 (Volume 68, Number 34),
pp.8381-8399 [DOCID: fr20feO3-5].
U.S. Office of Management and Budget
2000 Guidance on Aggregation and Allocation of Data on Race for Use in Civil Rights
Monitoring and Enforcement. OMB Bulletin #00-02. March 9, 2000. http://
www.whitehouse.gov/omb/bulletins/bO0-02.html
1977 Revisions to the Standards for the Classification of Federal Data on Race and
Ethnicity. Executive Office of the President, Office of Management and Budget
(OMB), Office of Information and Regulatory Affairs Federal Register / Vol. 62,
No. 210 / Thursday, October 30, 1997 / pp. 58782-58790.
1999 Draft Provisional Guidance on the Implementation of the 1997 Standards for the
Collection of Federal Data on Race and Ethnicity, February 17, 1999.
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I: ~ 5 Perspectives of Data Users
Session Chair: Jonathan Skinner, Dartmouth College (Pane] Member)
Panelists: Matthew Snipp, Stanford University
Rhonda BeLue, Metro Nashville Public Health Department
Marian Gornick, Consultant, Health Services Research
WORKSHOP PARTICIPANTS LIST
Presenters
Edward Perrin (Pane! Chair), University of Washington
Rhonda BeLue, Metro Nashville Public Health Department
lay Buechner, Rhode Islanc! Department of Health
CarmelIa Bocchino, American Association of Health Plans
Olivia Carter-Pokras, University of Maryland, Baltimore Campus
Anthony D'Angelo, Computercraft
Gem Daus, Asian and Pacific Islander American Health Forum
Carla Denise Edwards, Florida Agency for Health Care Administration
Allen Fremont, RAND
C-3
Representative terms from entire chapter:
metro nashville
