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References Anderson, M.J. 1988 The American Census: A SocialHistory. New Haven: Yale University Press. Anderson, M.J., and S.E. Fienberg 2001 Who Counts.: The Politics of Census-Taking in Contemporary America. New York: Russell Sage Foundation. Bocchino, C., and D. Wheeler 2003 Race and Ethnicity Data Collection by Health Plans. Paper prepared for the workshop. Farley, R., and W.R. Allen 1987 The Color Line and the Quality of Life in America. New York: Russell Sage Foundation. Fremont, A., and N. Lurie 2003 The Role of Race and Ethnicity Data Collection in Eliminating Disparities in Health Care. Paper prepared for the workshop. Geppert, J.J., S.J. Singer, J. Bucchner, L. Ranbom, W. Suarez, and W. Xu 2003 State Race and Ethnicity Data Collection. Paper prepared for the workshop. Geronimus, A.T., and J. Bound 1998 Use of census-based aggregate variables to proxy for socioeconomic group: evidence from national samples. American Journal of Epidemiology 148(5):475- 486. Institute of Medicine 2002a Unequal Treatment: Confionting Racial and Ethnic Disparities in Health Care. Washington, DC: The National Academies Press. 2002b Guidance for the National Healthcare Disparities Report. Washington, DC: The National Academies Press. 34

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REFERENCES National Association of Health Data Organizations and the Medstat Group 35 1999 Statewide Encounter-Level Inpatient and Outpatient Data Collection Activities, Agency for Healthcare Research and Quality, Rockville, MD. National Health Law Program no Assessment of State Laws, Regulations and Practices Affecting the Collection and date Reporting of Racial and Ethnic Data by Health Insurers and Managed Care Plans. (Draft). Nerenz, D., and C. Currier 2003 Collection of Data on Race/Ethnicity by Private-Sector Organizations: Hospitals, Health Plans, and Medical Groups. Paper prepared for the workshop. Perot, R.T., and M. Youdelman 2001 Racial, Ethnic, and Primary Language Data Collection in the Health Care System: An Assessment of Federal Policies and Practices. New York: Commonwealth Fund. Petersen, W. 1987 Politics and Measurement of Ethnicity. In The Politics of Admirers, W. Alonso and P. Starr, eds. New York: Russell Sage Foundation. PL 104-191 1996 Health Insurance Portability and Accountability Act of 1996 (HIPAA), Public Law 104-191. PL 106-525 2000 The Minority Health and Disparities Research Education Act of 2000, Public Law 101-525. Smith, D.B. 1999 Health Care Divided: Race and Healing a Nation. Ann Arbor: University of Michigan Press. U.S. Department of Health and Human Services 2000 Tracking Healthy People 2010. Washington, DC: U.S. Government Printing Of lice. 2003 Health Insurance Reform: Modifications to Electronic Data Transaction Standards and Code Sets. Federal Register: February 20, 2003 (Volume 68, Number 34), pp.8381-8399 [DOCID: fr20feO3-5]. U.S. Office of Management and Budget 2000 Guidance on Aggregation and Allocation of Data on Race for Use in Civil Rights Monitoring and Enforcement. OMB Bulletin #00-02. March 9, 2000. http:// www.whitehouse.gov/omb/bulletins/bO0-02.html 1977 Revisions to the Standards for the Classification of Federal Data on Race and Ethnicity. Executive Office of the President, Office of Management and Budget (OMB), Office of Information and Regulatory Affairs Federal Register / Vol. 62, No. 210 / Thursday, October 30, 1997 / pp. 58782-58790. 1999 Draft Provisional Guidance on the Implementation of the 1997 Standards for the Collection of Federal Data on Race and Ethnicity, February 17, 1999.

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I: ~ 5 Perspectives of Data Users Session Chair: Jonathan Skinner, Dartmouth College (Pane] Member) Panelists: Matthew Snipp, Stanford University Rhonda BeLue, Metro Nashville Public Health Department Marian Gornick, Consultant, Health Services Research WORKSHOP PARTICIPANTS LIST Presenters Edward Perrin (Pane! Chair), University of Washington Rhonda BeLue, Metro Nashville Public Health Department lay Buechner, Rhode Islanc! Department of Health CarmelIa Bocchino, American Association of Health Plans Olivia Carter-Pokras, University of Maryland, Baltimore Campus Anthony D'Angelo, Computercraft Gem Daus, Asian and Pacific Islander American Health Forum Carla Denise Edwards, Florida Agency for Health Care Administration Allen Fremont, RAND C-3