BOX 3-2
Types of Terminology Development Organizations and Examples of Specific Terminology Developers

  1. International Organizations

    • World Health Organization (WHO)—developed the International Classification of Diseases (ICD)-9; ICD-10; the International Classification of Functioning, Disability, and Health (ICF); and ICD-O for oncology.

    • International Conference on Harmonization (ICH)—developed the Medical Dictionary for Drug Regulatory Affairs (MedDRA).

    • World Organization of National Colleges, Academies and Academic Associations of General Practitioners/Family Physicians (WONCA)—developed the International Classification of Primary Care (ICPC).

  1. Federal Government

    • Department of Health and Human Services (DHHS)

      • Centers for Medicare and Medicaid Services (CMS)—developed the ICD-9 Clinical Modifications (CM) Volume 3 (procedures) and the ICD-10 Procedure Coding System (PCS) and the Healthcare Financing Administration Common Procedure Coding System (HCPCS).

      • National Committee for Health Statistics—developed the ICD-9 CM Volumes 1 and 2 (diagnoses) and ICD-10 CM (diagnoses).

      • Food and Drug Administration (FDA)—responsible for National Drug Codes (NDCs) and developed the Orange Book.

    • Joint effort by the Veterans Health Administration (VHA), National Library of Medicine (NLM), and Health Level Seven (HL7) to develop the clinical drug terminology RxNORM.

  1. Professional Associations/Academic Institutions

    • Nursing groups, including professional associations and academic research

references and literature. Final decisions are made by the director of the National Committee on Health Statistics and the administrator of the Coordination and Maintenance Committee (National Center for Health Statistics and Centers for Disease Control and Prevention, 2003).

The Food and Drug Administration’s (FDA) process for incorporating new National Drug Codes (NDCs) has been highly informal; new codes are

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