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Meeting Psychosocial Needs of Women with Breast Cancer
Appendix A
Meeting Psychosocial Needs of Women with Breast Cancer
National Cancer Policy Board
Institute of Medicine/National Research Council
Supported by the Longaberger Company Through the American Cancer Society
Monday, October 28, 2002
Describing Psychosocial Services
8:00- 8:30
Continental breakfast
8:30-9:30
Welcome and introduction (Jimmie Holland, Ellen Stovall, and Tom Smith)
Overview: The status of mental health service delivery in the U.S.
• Psychosocial implications of chronic illness
• Delivery of psychosocial services in the U.S.
Speaker: Howard H. Goldman
Overview: Psychosocial interventions for women with breast cancer
• Psychosocial issues throughout the breast cancer trajectory
• Prevalence of psychosocial distress
• Types of interventions and their modes of delivery
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Meeting Psychosocial Needs of Women with Breast Cancer
Appendix A
Meeting Psychosocial Needs of Women with Breast Cancer
National Cancer Policy Board
Institute of Medicine/National Research Council
Supported by the Longaberger Company Through the American Cancer Society
Monday, October 28, 2002
Describing Psychosocial Services
8:00- 8:30
Continental breakfast
8:30-9:30
Welcome and introduction (Jimmie Holland, Ellen Stovall, and Tom Smith)
Overview: The status of mental health service delivery in the U.S.
• Psychosocial implications of chronic illness
• Delivery of psychosocial services in the U.S.
Speaker: Howard H. Goldman
Overview: Psychosocial interventions for women with breast cancer
• Psychosocial issues throughout the breast cancer trajectory
• Prevalence of psychosocial distress
• Types of interventions and their modes of delivery
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Meeting Psychosocial Needs of Women with Breast Cancer
Speaker: Jimmie Holland
9:30-10:30
Identifying women in need of services: The effectiveness of assessment tools
• Discussion of commissioned paper
Speaker: Patricia Ganz
Reactor: Julia Rowland
10:30-10:45
Break
10:45-12:30
The effectiveness of psychosocial interventions
• Discussion of commissioned paper
Speaker: Pamela Goodwin
Reactors: Katherine DuHamel; Gary Morrow
12:30-1:30
Lunch available
1:30-3:15
Research issues: The need for applied research
• Status of research and funding opportunities
• Methodological research issues
• Research priorities
Speaker: Barbara Andersen
Reactor: Joan Bloom
3:15-3:30
Break
3:30-5:30
Delivering psychosocial interventions (Presentations from selected programs)
Introduction: Ellen Stovall
• Psychologist in private practice, Helen Coons
• Oncologist in community-based practice, Lidia Schapira, Boston—Beth Israel Deaconess
• Managed care-based program (Breast Buddy Program), Ann Geiger, Kaiser Permanente, Southern CA
• Cancer center-based program, Richard McQuellon, Comprehensive Cancer Center of Wake Forest University
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Meeting Psychosocial Needs of Women with Breast Cancer
• American Cancer Society programs (Reach to Recovery, I Can Cope, Look Good … Feel Better Program), Bonnie Teschendorf
• Community-based program, The Wellness Community, Mitch Golant
Discussion Leader: Ellen Stovall
Tuesday, October 29, 2002
Overcoming Barriers to Access
8:00-8:30
Continental breakfast
8:30-10:30
Changing provider behavior/practices
Introduction: Tom Smith
• The structure of breast cancer care
• What are the barriers to providing psychosocial services in the current delivery system?
• How can care systems be designed to incorporate psychosocial service providers (e.g., multidisciplinary team approaches, links to community-based providers)?
Discussion leader: Nina Bickell
• The role of guidelines
• What is the status of guidelines in the U.S.?
• How should they be designed and implemented?
• What is the potential for guidelines to change practice?
Discussion leader: Roger Winn
• Quality assurance
• What quality assurance initiatives might be considered to improve the delivery of psychosocial services?
• How has measurement of patient satisfaction with breast cancer care within managed care affected practice?
• Could indicators of psychosocial care be incorporated into these efforts?
• How can national goals for improved psychosocial care be achieved?
Discussion leaders: Ann Monroe and Bonnie Teschendorf
• Consumer roles and perspectives
• How can consumers affect changes in practice?
Discussion leader: Christine Brunswick
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Meeting Psychosocial Needs of Women with Breast Cancer
10:30-10:45
Break
10:45-12:30
Improving professional education/training
Panel Discussion with Participants:
• Who provides (or should provide) psychosocial interventions?
• How adequate is their training?
• What new training opportunities are needed?
• How can we assess the effectiveness of training?
Panel: Roger Winn (physician perspective)
Jamie Ostroff (psychologist and research perspective)
Betty Ferrell (nursing perspective)
Carolyn Messner (social work perspective)
Discussion leader: Jimmie Holland
12:30-1:30
Lunch available
1:30-3:00
Reducing individual barriers—social stigma, economic, racial, ethnic, cultural, language, and other barriers
Speakers: Alicia Matthews
• Reducing stigma
Carolina Hinestrosa
• Reducing barriers to access in the Latina Community
Brian Smedley
• Briefing on IOM report, “Unequal Treatment: Confronting Racial and Ethnic Disparities in Health Care”
Discussion leader: Jimmie Holland
3:00-3:15
Break
3:15-4:45
Addressing coverage and payment issues
• How are psychosocial and mental health services paid for?
• How do reimbursement issues limit access to services (e.g., limits set by managed care)?
• Are there reimbursement models to emulate?
Speaker: Richard Frank (overview)
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Meeting Psychosocial Needs of Women with Breast Cancer
Panelists:
-Psychiatrist, David Wellisch
-American Psychological Association (APA), Rus Newman
-Centers for Medicare and Medicaid Services (CMS), Madeline Ulrich and Ken Simon
-Health Insurance Association of America (HIAA), Henry Desmarais
-American Association of Health Plans (AAHP), Carmella Bocchino
Discussion Leader: Ellen Stovall
4:45-5:30
Wrap-up—Future directions, policy options, recommendations
Discussion leaders: Tom Smith and Diana Petitti
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