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Meeting Psychosocial Needs of Women with Breast Cancer (2004)

Chapter: Appendix A Meeting Psychosocial Needs of Women with Breast Cancer

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Suggested Citation:"Appendix A Meeting Psychosocial Needs of Women with Breast Cancer." Institute of Medicine and National Research Council. 2004. Meeting Psychosocial Needs of Women with Breast Cancer. Washington, DC: The National Academies Press. doi: 10.17226/10909.
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Page 229
Suggested Citation:"Appendix A Meeting Psychosocial Needs of Women with Breast Cancer." Institute of Medicine and National Research Council. 2004. Meeting Psychosocial Needs of Women with Breast Cancer. Washington, DC: The National Academies Press. doi: 10.17226/10909.
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Page 230
Suggested Citation:"Appendix A Meeting Psychosocial Needs of Women with Breast Cancer." Institute of Medicine and National Research Council. 2004. Meeting Psychosocial Needs of Women with Breast Cancer. Washington, DC: The National Academies Press. doi: 10.17226/10909.
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Page 231
Suggested Citation:"Appendix A Meeting Psychosocial Needs of Women with Breast Cancer." Institute of Medicine and National Research Council. 2004. Meeting Psychosocial Needs of Women with Breast Cancer. Washington, DC: The National Academies Press. doi: 10.17226/10909.
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Page 232
Suggested Citation:"Appendix A Meeting Psychosocial Needs of Women with Breast Cancer." Institute of Medicine and National Research Council. 2004. Meeting Psychosocial Needs of Women with Breast Cancer. Washington, DC: The National Academies Press. doi: 10.17226/10909.
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Page 233

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Appendix A Meeting Psychosocial Needs of Women with Breast Cancer National Cancer Policy Board Institute of Medicine/National Research Council Supported by the Longaberger Company Through the American Cancer Society Monday, October 28, 2002 Describing Psychosocial Services 8:00- 8:30 Continental breakfast 8:30-9:30 Welcome and introduction (Jimmie Holland, Ellen Stovall, and Tom Smith) Overview: The status of mental health service delivery in the U.S. • Psychosocial implications of chronic illness • Delivery of psychosocial services in the U.S. Speaker: Howard H. Goldman Overview: Psychosocial interventions for women with breast cancer • Psychosocial issues throughout the breast cancer trajectory • Prevalence of psychosocial distress • Types of interventions and their modes of delivery 229

230 MEETING PSYCHOSOCIAL NEEDS OF WOMEN WITH BREAST CANCER Speaker: Jimmie Holland 9:30-10:30 Identifying women in need of services: The effectiveness of assessment tools • Discussion of commissioned paper Speaker: Patricia Ganz Reactor: Julia Rowland 10:30-10:45 Break 10:45-12:30 The effectiveness of psychosocial interventions • Discussion of commissioned paper Speaker: Pamela Goodwin Reactors: Katherine DuHamel; Gary Morrow 12:30-1:30 Lunch available 1:30-3:15 Research issues: The need for applied research • Status of research and funding opportunities • Methodological research issues • Research priorities Speaker: Barbara Andersen Reactor: Joan Bloom 3:15-3:30 Break 3:30-5:30 Delivering psychosocial interventions (Presentations from selected programs) Introduction: Ellen Stovall • Psychologist in private practice, Helen Coons • Oncologist in community-based practice, Lidia Schapira, Boston—Beth Israel Deaconess • Managed care-based program (Breast Buddy Program), Ann Geiger, Kaiser Permanente, Southern CA • Cancer center-based program, Richard McQuellon, Comprehensive Cancer Center of Wake Forest University

APPENDIX A 231 • American Cancer Society programs (Reach to Recovery, I Can Cope, Look Good . . . Feel Better Program), Bonnie Teschendorf • Community-based program, The Wellness Community, Mitch Golant Discussion Leader: Ellen Stovall Tuesday, October 29, 2002 Overcoming Barriers to Access 8:00-8:30 Continental breakfast 8:30-10:30 Changing provider behavior/practices Introduction: Tom Smith • The structure of breast cancer care • What are the barriers to providing psychosocial services in the current delivery system? • How can care systems be designed to incorporate psychosocial service providers (e.g., multidisciplinary team approaches, links to community-based providers)? Discussion leader: Nina Bickell • The role of guidelines • What is the status of guidelines in the U.S.? • How should they be designed and implemented? • What is the potential for guidelines to change practice? Discussion leader: Roger Winn • Quality assurance • What quality assurance initiatives might be considered to improve the delivery of psychosocial services? • How has measurement of patient satisfaction with breast cancer care within managed care affected practice? • Could indicators of psychosocial care be incorporated into these efforts? • How can national goals for improved psychosocial care be achieved? Discussion leaders: Ann Monroe and Bonnie Teschendorf • Consumer roles and perspectives • How can consumers affect changes in practice? Discussion leader: Christine Brunswick

232 MEETING PSYCHOSOCIAL NEEDS OF WOMEN WITH BREAST CANCER 10:30-10:45 Break 10:45-12:30 Improving professional education/training Panel Discussion with Participants: • Who provides (or should provide) psychosocial interventions? • How adequate is their training? • What new training opportunities are needed? • How can we assess the effectiveness of training? Panel: Roger Winn (physician perspective) Jamie Ostroff (psychologist and research perspective) Betty Ferrell (nursing perspective) Carolyn Messner (social work perspective) Discussion leader: Jimmie Holland 12:30-1:30 Lunch available 1:30-3:00 Reducing individual barriers—social stigma, economic, racial, ethnic, cultural, language, and other barriers Speakers: Alicia Matthews • Reducing stigma Carolina Hinestrosa • Reducing barriers to access in the Latina Community Brian Smedley • Briefing on IOM report, “Unequal Treatment: Confronting Racial and Ethnic Disparities in Health Care” Discussion leader: Jimmie Holland 3:00-3:15 Break 3:15-4:45 Addressing coverage and payment issues • How are psychosocial and mental health services paid for? • How do reimbursement issues limit access to services (e.g., limits set by managed care)? • Are there reimbursement models to emulate? Speaker: Richard Frank (overview)

APPENDIX A 233 Panelists: -Psychiatrist, David Wellisch -American Psychological Association (APA), Rus Newman -Centers for Medicare and Medicaid Services (CMS), Madeline Ulrich and Ken Simon -Health Insurance Association of America (HIAA), Henry Desmarais -American Association of Health Plans (AAHP), Carmella Bocchino Discussion Leader: Ellen Stovall 4:45-5:30 Wrap-up—Future directions, policy options, recommendations Discussion leaders: Tom Smith and Diana Petitti

Next: Appendix B Tables and Boxes Summarizing Evidence from Clinical Trials »
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In Meeting Psychosocial Needs of Women with Breast Cancer, the National Cancer Policy Board of the Institute of Medicine examines the psychosocial consequences of the cancer experience. The book focuses specifically on breast cancer in women because this group has the largest survivor population (over 2 million) and this disease is the most extensively studied cancer from the standpoint of psychosocial effects. The book characterizes the psychosocial consequences of a diagnosis of breast cancer, describes psychosocial services and how they are delivered, and evaluates their effectiveness. It assesses the status of professional education and training and applied clinical and health services research and proposes policies to improve the quality of care and quality of life for women with breast cancer and their families. Because cancer of the breast is likely a good model for cancer at other sites, recommendations for this cancer should be applicable to the psychosocial care provided generally to individuals with cancer. For breast cancer, and indeed probably for any cancer, the report finds that psychosocial services can provide significant benefits in quality of life and success in coping with serious and life-threatening disease for patients and their families.

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