11:30

Legal Aspects of Race and Ethnicity Data Collection (Including Privacy Issues)

Session Chair: William Kalsbeek, University of North Carolina, Chapel Hill (Panel Member)

11:30

Legal Framework: Mara Youdelman, National Health Law Program

12:00

Privacy Issues: Moya Gray, Director, Hawaii Office of Information Practices

12:30

Open Discussion

1:45

Race and Ethnicity Data Collection by Private Organizations

Session Chair: L. Carl Volpe, WellPoint Health Networks Inc. (Panel Member)

1:45

General Overview—Collection of Data on Race/Ethnicity of Patients by Hospitals, Medical Groups, and Health Plans

Author: David Nerenz, Michigan State University

2:15

The Collection of Race and Ethnicity Data by Health Plans

Author: Carmella Bocchino, American Association of Health Plans

3:00

Discussants:

Eileen Peterson, United Health Group

Romana Hasnain-Wynia, Health Research and Education Trust

Andrew Webber, National Committee for Quality Assurance

4:00

Open Discussion

Moderator: Edward Perrin, University of Washington (Panel Chair)

Friday, December 13

8:30

Race and Ethnicity Data Collection by States

Session Chair: Denise Love, National Association of Health Data Organizations (Panel Member)

Authors: Sara Singer and Jeff Geppert, Stanford University; Jay Buechner, Rhode Island; Wu Xu, Utah; Walter Suarez, Minnesota; and Lorin Ranbom, Ohio

9:00

Discussants:

Dan Friedman, Massachusetts Department of Public Health

Carla Edwards, Florida Agency for Health Care Administration

David Solet, Public Health, Seattle and King County



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