11:30

Legal Aspects of Race and Ethnicity Data Collection (Including Privacy Issues)

Session Chair: William Kalsbeek, University of North Carolina, Chapel Hill (Panel Member)

11:30

Legal Framework: Mara Youdelman, National Health Law Program

12:00

Privacy Issues: Moya Gray, Director, Hawaii Office of Information Practices

12:30

Open Discussion

1:45

Race and Ethnicity Data Collection by Private Organizations

Session Chair: L. Carl Volpe, WellPoint Health Networks Inc. (Panel Member)

1:45

General Overview—Collection of Data on Race/Ethnicity of Patients by Hospitals, Medical Groups, and Health Plans

Author: David Nerenz, Michigan State University

2:15

The Collection of Race and Ethnicity Data by Health Plans

Author: Carmella Bocchino, American Association of Health Plans

3:00

Discussants:

Eileen Peterson, United Health Group

Romana Hasnain-Wynia, Health Research and Education Trust

Andrew Webber, National Committee for Quality Assurance

4:00

Open Discussion

Moderator: Edward Perrin, University of Washington (Panel Chair)

Friday, December 13

8:30

Race and Ethnicity Data Collection by States

Session Chair: Denise Love, National Association of Health Data Organizations (Panel Member)

Authors: Sara Singer and Jeff Geppert, Stanford University; Jay Buechner, Rhode Island; Wu Xu, Utah; Walter Suarez, Minnesota; and Lorin Ranbom, Ohio

9:00

Discussants:

Dan Friedman, Massachusetts Department of Public Health

Carla Edwards, Florida Agency for Health Care Administration

David Solet, Public Health, Seattle and King County



The National Academies of Sciences, Engineering, and Medicine
500 Fifth St. N.W. | Washington, D.C. 20001

Copyright © National Academy of Sciences. All rights reserved.
Terms of Use and Privacy Statement