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Public Financing and Delivery of HIV/AIDS Care: Securing the Legacy of Ryan White (2005)

Chapter: Appendix F: Committee on the Public Financing and Delivery of HIV Care

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Suggested Citation:"Appendix F: Committee on the Public Financing and Delivery of HIV Care." Institute of Medicine. 2005. Public Financing and Delivery of HIV/AIDS Care: Securing the Legacy of Ryan White. Washington, DC: The National Academies Press. doi: 10.17226/10995.
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Appendix F
Committee on Public Financing and Delivery of HIV Care

Lauren LeRoy, Ph.D. (chair) is President and CEO of Grantmakers In Health, a non-profit education organization serving trustees and staff of foundations and corporate giving programs working in the health field. Previously, Dr. LeRoy served as Executive Director of the Medicare Payment Advisory Commission (MedPAC) and Executive Director of the Physician Payment Review Commission (PPRC). Dr. LeRoy’s research interests include Medicare reform, the health workforce, health care for the elderly, reproductive health, and health philanthropy. Dr. LeRoy chaired the Institute of Medicine (IOM’s) committee on Medicare payment methodology for clinical laboratory services. Dr. LeRoy received her Ph.D. in Social Policy Planning from the University of California, Berkeley.


David Holtgrave, Ph.D. is a Professor in the Department of Behavioral Sciences and Health Education at the Rollins School of Public Health of Emory University, and the Director of the Behavioral and Social Sciences Core in the Emory Center for AIDS Research. Dr. Holtgrave’s interests include cost-effectiveness analysis methods and applications, HIV prevention intervention research, and the uses of prevention science in public health policy making. He formerly served as Director of the Division of HIV/AIDS Prevention-Intervention Research and Support at the Centers for Disease Control and Prevention. He received his Ph.D. from the University of Illinois in 1988, and was a member of the Wisconsin HIV Prevention Community Planning Council from 1996-–1997.

Suggested Citation:"Appendix F: Committee on the Public Financing and Delivery of HIV Care." Institute of Medicine. 2005. Public Financing and Delivery of HIV/AIDS Care: Securing the Legacy of Ryan White. Washington, DC: The National Academies Press. doi: 10.17226/10995.
×

James G. Kahn, M.D., M.P.H. is a Professor at the University of California, San Francisco, in the Institute for Health Policy Studies, the Department of Epidemiology and Biostatistics, and the AIDS Research Institute. His major research interests are the HIV/AIDS treatment costs and the cost effectiveness of prevention and treatment, health care financing and reform, and international health. Dr. Kahn recently studied racial disparities in access to antiretroviral therapy in Medicaid and AIDS Drug Assistance Programs in four states; the health and financial implications of expanding national Medicaid to cover individuals with HIV; and techniques to measure unmet need for HIV primary care. Dr. Kahn received his M.D. at Albert Einstein College of Medicine and his M.P.H. in Epidemiology from the University of California, Berkeley.


Margaret A. Murray, M.P.A., is the Executive Director of the Association of Health Center Affiliated Health Plans. Her previous experience with healthcare finance includes serving as the Medicaid Director for the New Jersey Department of Human Services, as a Senior Program Examiner for the Office of Management and Budget, and as a Senior Associate at the Alpha Center. She has also held finance positions including Tax Legislative Analyst for Senator Bill Bradley, Revenue Director and Revenue Analyst for the Massachusetts House of Representatives Ways and Means Committee, and Financial Research Assistant for Cambridge Associates. She received her M.P.A. from the Woodrow Wilson School of Public and International Affairs.


David R. Nerenz, Ph.D. is a Senior Staff Investigator in the Center for Health Services Research at Henry Ford Health System in Detroit. Most of his current work is focused on the issue of racial and ethnic disparities in quality of care, and on the ways in which health care organizations can reduce or eliminate disparities. He is also Director of Outcomes Research for the Department of Neurosurgery and the Neuroscience Institute at Henry Ford, and is the site Principal Investigator for a national study of patterns and outcomes of care for patients with lung or colorectal cancer. Dr. Nerenz received his Ph.D. in Social Psychology from the University of Wisconsin-Madison in 1979.


Andy Schneider, J.D. is Principal of Medicaid Policy, LLC, a consulting firm he founded in Washington, D.C. that specializes in issues relating to Medicaid eligibility, benefits, and financing. His former positions include Counsel to the Subcommittee on Health and Environment of the House Energy and Commerce Committee, then chaired by Representative Henry A. Waxman (D-CA); Health Counsel to the Center on Budget Policy and Priorities in Washington, D.C.; and Staff Attorney to the National Health

Suggested Citation:"Appendix F: Committee on the Public Financing and Delivery of HIV Care." Institute of Medicine. 2005. Public Financing and Delivery of HIV/AIDS Care: Securing the Legacy of Ryan White. Washington, DC: The National Academies Press. doi: 10.17226/10995.
×

Law Program in Los Angeles, California. Mr. Schneider received his J.D. from the University of Pennsylvania, School of Law.


Martin F. Shapiro, M.D. practices general internal medicine at the UCLA Medical Center. Dr. Shapiro obtained his undergraduate and medical education at McGill University. Subsequent to that he completed a residency in internal medicine at the Royal Victoria Hospital in Montreal and at UCLA, spent one year engaged in research in the Department of Epidemiology and Health at McGill, and completed a fellowship at UCLA as a Robert Wood Johnson Clinical Scholar. Dr. Shapiro received an M.P.H. in Health Services from UCLA, then a Ph.D. in history also from UCLA, conducting a dissertation on health care services in Portuguese Africa. Dr. Shapiro joined the UCLA faculty in the Division of General Internal Medicine and Health Services Research in 1980 and joined the Department of Health Services in 2000. He is Professor and Chief of the Division of General Internal Medicine and Health Services Research in the Department of Medicine. In 1988, he established the Primary Care Research Fellowship Program at UCLA, which he directed until 2003. He is Associate Director of the UCLA Clinical Scholars Program. Dr. Shapiro’s scholarship has focused on the general theme of assuring that medical care is applied equitably and appropriately to the population and on health services research in the area of HIV disease. He has been the principal investigator on the HIV Costs and Services Utilization Study (HCSUS), a national study of AIDS costs and AIDS patients’ access to and quality of care. Dr. Shapiro served on the Institute of Medicine’s Committee on the Responsible Conduct of Research. He was President of the Society of General Internal Medicine from 2002–2003 and is an elected member of The American Society of Clinical Investigation and of the Association of American Physicians.


Janet L. Shikles, M.A., M.S.W. is a health care consultant who works with government agencies, associations, and foundations on projects involving health insurance, Medicare, Medicaid, and public health. She also chairs a multi-year project for the Robert Wood Johnson Foundation, which is designed to ensure the health and income of the older workforce. Previously, Ms. Shikles was a Vice President for Health Care Research and Consulting for Abt Associates Inc., a firm specializing in research and evaluation for government agencies and private center health care clients. She also served as the Executive Director of the Commonwealth Fund’s Taskforce on the Future of Health Insurance. The goal of this taskforce was to conduct research and evaluations of different approaches to expand insurance coverage to the uninsured. Prior to this she was the Director of Public Policy and Government Relations for the firm Powers, Pyles, Sutter & Verville. Ms. Shikles also served as Assistant Comptroller General in

Suggested Citation:"Appendix F: Committee on the Public Financing and Delivery of HIV Care." Institute of Medicine. 2005. Public Financing and Delivery of HIV/AIDS Care: Securing the Legacy of Ryan White. Washington, DC: The National Academies Press. doi: 10.17226/10995.
×

charge of the Health Education and Human Services Division of the U.S. General Accounting Office (GAO), where she was responsible for GAO’s work relating to health, education, labor, social security, veterans affairs and welfare programs. She was also the Director of Health Financing and Policy Issues at GAO. Prior to joining GAO, Ms. Shikles was an associate with Booz, Allen and Hamilton. She was also a senior analyst in health research with the Department of Health and Human Services. Ms. Shikles received a bachelor’s degree in Government and holds an M.A. in Political Science from George Washington University and an M.S.W. in Research and Planning from Howard University.


Julie Sochalski, Ph.D., F.A.A.N, R.N. is an Associate Professor at the University of Pennsylvania, School of Nursing, where she teaches interdisciplinary courses in health policy and health services and outcomes research. She has held senior policy positions at the United Hospital Fund of New York and the Medicare Prospective Payment Assessment Commission in Washington, D.C., and was a 1992–1993 Robert Wood Johnson Health Policy Fellow. Her health services research portfolio includes strategies exploring quality of care and patient outcomes in hospital and community-based settings, Medicare payment policy and its impact on service use, and domestic and international trends in the health care workforce and their implications for public policy. She received her Ph.D. from the University of Michigan in 1988.


David Vlahov, Ph.D. is Director for the Center for Urban Epidemiologic Studies at the New York Academy of Medicine, Professor of Clinical Epidemiology Mailman School of Public Health at Columbia University, and Adjunct Processor in Epidemiology at the Johns Hopkins Bloomberg School of Public Health. Dr. Vlahov completed his BSN and M.S. in Nursing at the University of Maryland and a Ph.D. in epidemiology at the Johns Hopkins School of Public Health. He has developed extensive experience in the design, conduct, and analysis of infectious disease epidemiological studies. He has been Principal Investigator of the Natural History of HIV Infection among Injection Drug Users (the ALIVE study). Key collaborations have included joint investigations with the Multi-center AIDS Cohort Study, and internationally with cohort studies in Italy, France, and the Netherlands. For ALIVE, funded by the National Institute of Drug Abuse, the National Institues of Health recognized Dr. Vlahov with the MERIT Award. Dr. Vlahov was also a Principal Investigator of the CDC-funded HERS study to investigate gender specific factors associated with HIV progression in women. In addition, Dr. Vlahov has been involved with the evaluation of HIV prevention activities, including the Needle Exchange Programs in Washington, D.C., and Baltimore, Maryland. Dr. Vlahov has over 370

Suggested Citation:"Appendix F: Committee on the Public Financing and Delivery of HIV Care." Institute of Medicine. 2005. Public Financing and Delivery of HIV/AIDS Care: Securing the Legacy of Ryan White. Washington, DC: The National Academies Press. doi: 10.17226/10995.
×

publications in peer-reviewed journals. Dr. Vlahov has been the primary advisor for twenty doctoral and post-doctoral students. He is the editor-in-chief of the Journal of Urban health and one of the founders of the International Society for Urban Health.


Paul A. Volberding, M.D. is a Professor and Vice-Chair in the Department of Medicine and the Co-Director of the Center for AIDS Research at the University of California, San Francisco (UCSF). He is the Chief of the Medical Service at the San Francisco Veterans Affairs Medical Center. He received his medical degree from the University of Minnesota and finished training at University of Utah and UCSF, where he studied for two years as a research fellow in the virology laboratory of Dr. Jay Levy, later a co-discoverer of HIV. Dr. Volberding’s professional activities initially centered at San Francisco General Hospital, where he established a model program of AIDS patient care, research, and professional education. His research career began with investigations of HIV-related malignancies, especially Kaposi’s Sarcoma. His primary research focus, however, shifted to clinical trials of antiretroviral drugs. He has been instrumental in testing many compounds, but is best known for groundbreaking trials establishing the benefits of treatment with antiretroviral drugs in asymptomatic HIV infection. Dr. Volberding has written many research and review articles. He is the Co-editor in Chief of the Journal of Acquired Immune Deficiency Syndromes, and is the founder and Chair of the Board of the International AIDS Society-USA and is a Past President of the International AIDS Society. He is the Vice President and President elect of the HIV Medicine Association of the Infectious Disease Society of America. He is a member of the IOM and has served on several committees addressing the HIV epidemic.


William E. Welton, Dr.P.H., M.H.A. is currently Senior Lecturer and M.H.A. Program Director in the Department of Health services at the University of Washington, Seattle. From 1994–1998, Dr. Welton served as Founding Dean of the newly developing School of Public Health within MCP Hahnemann University (Philadelphia, PA). In the capacity he led the planning and development of the school, including its innovative and highly successful problem-based learning (PHL) curriculum in public health—the first of its kind in the nation. In 1998, he was awarded the university’s prestigious Founder’s Award for his leadership role in the school’s development. From 1996–2001, he served as Director of the MCP Hahnemann University School of Public Health’s Center for Health Management and Policy and as Program Director of the school’s part-time M.P.H. Program. Dr. Welton served as a Pew Health Policy Fellow (1994–1999) within the University of Michigan’s Department of Health management and Policy, receiving his Dr. P.H. degree through its Pew Health Policy Program in1999.

Suggested Citation:"Appendix F: Committee on the Public Financing and Delivery of HIV Care." Institute of Medicine. 2005. Public Financing and Delivery of HIV/AIDS Care: Securing the Legacy of Ryan White. Washington, DC: The National Academies Press. doi: 10.17226/10995.
×

From 1972–1994 Dr. Weldon served as a senior executive manager and governing board member within a variety of academic health systems and managed care organizations. From 1991–1994 he also served as Chairman Officer of the American Hospital Association’s Health Care Systems Section Governing Council. Dr. Welton’s academic and research interests focus on health policy and health services research with an emphasis on health economics, organizational strategy, and strategic and policy-oriented decision analysis.

Health Promotion and Disease Prevention Board Liaison

Joyce Seiko Kobayashi, M.D., is currently an Associate Professor in the Department of Psychiatry at the University of Colorado Health Sciences Center, and Associate Faculty Member of the Department of Healthcare Ethics, Humanities and the Law. Dr. Kobayashi received her undergraduate training at Stanford University, her M.D. from the University of Rochester School of Medicine, and completed her psychiatric training at Albert Einstein College of Medicine. She completed a subspecialty fellowship in Consultation/Liaison Psychiatry through Mt. Sinai College of Medicine, and has since specialized in the psychiatric treatment of people with HIV/AIDS. She was an American Psychiatric Association/National Institute of Mental Health (APA/NIMH) Minority Fellow and has served on a number of national Committees and Councils of the APA. During her tenure as Chairperson of the APA Committee of Asian American Psychiatrists, she organized the first International Symposium on Psychiatric Research in Asia. She has served for many years as a member of the National Commission on AIDS of the APA, where she was one of the authors of the needle exchange policy for the association. She served as a National Examiner for the Board of Psychiatry and Neurology. She has been the recipient of several awards, including the Dinkelspiel Award at Stanford, Colorado Woman of the Year in Health and Human Services from the Colorado Asian Pacific Women’s Network, and Rocky Mountain Regional AIDS Conference Award for Service to People with AIDS. Dr. Kobayashi has published a variety of articles and chapters on HIV/AIDS, biomedical ethics, women’s issues, and transcultural psychiatry and has given invited lectures at regional and national AIDS meetings.

Health Promotion and Disease Prevention Board Director

Rose Marie Martinez, Sc.D., is the Director of the Institute of Medicine’s Board on Health Promotion and Disease Prevention. She has been with the IOM since November 1999. Prior to joining the IOM, Dr. Martinez was a Senior Health Researcher at Mathematica Policy Research, where she con-

Suggested Citation:"Appendix F: Committee on the Public Financing and Delivery of HIV Care." Institute of Medicine. 2005. Public Financing and Delivery of HIV/AIDS Care: Securing the Legacy of Ryan White. Washington, DC: The National Academies Press. doi: 10.17226/10995.
×

ducted research on the impact of health system change on the public health infrastructure, access to care for vulnerable populations, managed care, and the health care workforce. She is a former Assistant Director for Health Financing and Policy with the U.S. General Accounting Office, where she directed evaluations and policy analysis in the area of national and public health issues. From 1982 through 1988, she was Chief of Health Studies at the Regional Institute for Health and Social Welfare, the research arm of the Regional Ministry of Health in Madrid, Spain. Dr. Martinez received her B.A. from the University of Southern California and her Doctor of Science from the Johns Hopkins School of Hygiene and Public Health.

Suggested Citation:"Appendix F: Committee on the Public Financing and Delivery of HIV Care." Institute of Medicine. 2005. Public Financing and Delivery of HIV/AIDS Care: Securing the Legacy of Ryan White. Washington, DC: The National Academies Press. doi: 10.17226/10995.
×
Page 340
Suggested Citation:"Appendix F: Committee on the Public Financing and Delivery of HIV Care." Institute of Medicine. 2005. Public Financing and Delivery of HIV/AIDS Care: Securing the Legacy of Ryan White. Washington, DC: The National Academies Press. doi: 10.17226/10995.
×
Page 341
Suggested Citation:"Appendix F: Committee on the Public Financing and Delivery of HIV Care." Institute of Medicine. 2005. Public Financing and Delivery of HIV/AIDS Care: Securing the Legacy of Ryan White. Washington, DC: The National Academies Press. doi: 10.17226/10995.
×
Page 342
Suggested Citation:"Appendix F: Committee on the Public Financing and Delivery of HIV Care." Institute of Medicine. 2005. Public Financing and Delivery of HIV/AIDS Care: Securing the Legacy of Ryan White. Washington, DC: The National Academies Press. doi: 10.17226/10995.
×
Page 343
Suggested Citation:"Appendix F: Committee on the Public Financing and Delivery of HIV Care." Institute of Medicine. 2005. Public Financing and Delivery of HIV/AIDS Care: Securing the Legacy of Ryan White. Washington, DC: The National Academies Press. doi: 10.17226/10995.
×
Page 344
Suggested Citation:"Appendix F: Committee on the Public Financing and Delivery of HIV Care." Institute of Medicine. 2005. Public Financing and Delivery of HIV/AIDS Care: Securing the Legacy of Ryan White. Washington, DC: The National Academies Press. doi: 10.17226/10995.
×
Page 345
Suggested Citation:"Appendix F: Committee on the Public Financing and Delivery of HIV Care." Institute of Medicine. 2005. Public Financing and Delivery of HIV/AIDS Care: Securing the Legacy of Ryan White. Washington, DC: The National Academies Press. doi: 10.17226/10995.
×
Page 346
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Each year it is estimated that approximately 40,000 people in the U.S. are newly infected with HIV. In the late 1990s, the number of deaths from AIDS dropped 43% as a result of highly active antiretroviral therapy. Unfortunately, the complex system currently in place for financing and delivering publicly financed HIV care undermines the significant advances that have been made in the development of new technologies to treat it. Many HIV patients experience delays in access to other services that would support adhering to treatment. As a result, each year opportunities are missed that could reduce the mortality, morbidity, and disability suffered by individuals with HIV infections.

Public Financing and Delivery of HIV/AIDS Care examines the current standard of care for HIV patients and assesses the extent the system currently used for financing and delivering care allows individuals with HIV to actually receive it. The book recommends an expanded federal program for the treatment of individuals with HIV, administered at the state level. This program would provide timely access and consistent benefits with a strong focus on comprehensive and continuous care and access to antiretroviral therapy. It could help improve the quality of life of HIV/AIDS patients, as well as reduce the number of deaths among those infected.

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