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Assessing the Quality of Cancer Care: An Approach to Measurement in Georgia (2005)

Chapter: APPENDIX B Sources of Data: Surveys and Datasets

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Suggested Citation:"APPENDIX B Sources of Data: Surveys and Datasets." Institute of Medicine and National Research Council. 2005. Assessing the Quality of Cancer Care: An Approach to Measurement in Georgia. Washington, DC: The National Academies Press. doi: 10.17226/11244.
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APPENDIX B
Sources of Data: Surveys and Datasets

The data sources for the measures recommended in this report include a variety of established surveys and datasets. This appendix describes the following:

  • Behavioral Risk Factor Surveillance System;

  • Consumer Assessment of Health Plans Study;

  • Health Plan Employer Data and Information Set;

  • National Home and Hospice Care Survey;

  • National Vital Statistics System—Mortality; and

  • Youth Risk Behavior Survey.

Suggested Citation:"APPENDIX B Sources of Data: Surveys and Datasets." Institute of Medicine and National Research Council. 2005. Assessing the Quality of Cancer Care: An Approach to Measurement in Georgia. Washington, DC: The National Academies Press. doi: 10.17226/11244.
×

Behavioral Risk Factor Surveillance System (BRFSS)

Sponsor

U.S. Department of Health and Human Services, Centers for Disease Control and Prevention, National Center for Chronic Disease Prevention and Health Promotio

Description

Population-based survey. Objective is to collect uniform, state-specific, data on preventive health practices and risk behaviors that are linked to chronic diseases (including cancer), injuries, and preventable infectious diseases in the adult population

Mode of administration/data collection

Telephone interview. Data are collected separately by each state.

Sample design

State-level, random-digit-dialed probability samples

Primary survey content

A rotating core of questions asked every other year in all states, standardized optional questions on selected topics that are administered at the state’s discretion, and state-added questions developed to address state-specific needs. Questions cover behavioral risk factors (e.g., alcohol and tobacco use), preventive health measures including cancer screening, health status, limitation of activity, and health care access and utilization.

Population targeted

U.S. civilian, noninstitutionalized population 18 years of age and older in households with telephones

Demographic data

Gender, age, education, race/ethnicity, household income, employment status, and marital status

Years

Since 1984

Schedule

Annual

Geographic estimates

National; state; smaller area estimates possible in some states

Contact information

http://www.cdc.gov/brfss

Suggested Citation:"APPENDIX B Sources of Data: Surveys and Datasets." Institute of Medicine and National Research Council. 2005. Assessing the Quality of Cancer Care: An Approach to Measurement in Georgia. Washington, DC: The National Academies Press. doi: 10.17226/11244.
×

Consumer Assessment of Health Plans Study (CAHPS)

Sponsors

U.S. Department of Health and Human Services, including the Agency for Healthcare Research and Quality; Center for Medicare and Medicaid programs, State Medicaid agencies, and State Children’s Health Insurance Programs; public and private employers, individual health plans, and the U.S. Department of Defense

Description

Survey designed to develop and test questionnaires that assess health plans and services, to produce easily understandable reports for communicating survey information to consumers, and to evaluate the usefulness of these reports for consumers in selecting health care plans and services

Mode of administration/data collection

Mail or telephone questionnaire

Sample design

Random sample of health plan members by independent survey vendors following standardized procedures

Primary survey content

Consumer experiences in obtaining health care, including five major areas: getting needed care; getting care without long waits; how well doctors communicate; courteous and helpful office staff; customer service.

Population targeted

Surveys are tailored for various groups, including adults; children; children with chronic conditions; insured populations including commercial, Medicaid, Medicare, and Medicare managed care.

Demographic data

Age, gender, education, race, ethnicity, region, insurance coverage, health status

Years

Since 1998

Schedule

Annual

Geographic estimates

State, census bureau regions

Contact information

http://ncbd.cahps.org

Other

The National CAHPS Benchmarking Database is a national repository of CAHPS survey data that is available to researchers and others interested in using comparative CAHPS survey results for benchmarking and research. Information available at http://ncbd.cahps.org/Home/index.asp.

Suggested Citation:"APPENDIX B Sources of Data: Surveys and Datasets." Institute of Medicine and National Research Council. 2005. Assessing the Quality of Cancer Care: An Approach to Measurement in Georgia. Washington, DC: The National Academies Press. doi: 10.17226/11244.
×

Health Plan Employer Data and Information Set (HEDIS)

Sponsor

National Committee for Quality Assurance (NCQA)

Description

A set of standardized performance measures designed to provide purchasers and consumers with the ability to evaluate the quality of different health plans.

Mode of administration/data collection

NCQA collects and maintains HEDIS data directly from its member managed-care organizations and preferred provider organizations. All HEDIS data are maintained in a central database.

Sample design

NA

Primary survey content

Effectiveness of care (e.g. cancer screening, immunization status, etc.), access/availability of care, member satisfaction with the experience of care, cost of care, health plan stability, informed health care choices, use of services

Population targeted

Health plan members including children and adults enrolled in Medicaid, Medicare, and commercial health plans

Demographic data

Age, sex, race, education

Years

Since 1993

Schedule

Annual

Geographic estimates

By health plan

Contact information

http://www.ncqa.org/Programs/HEDIS/

NA = not applicable.

Suggested Citation:"APPENDIX B Sources of Data: Surveys and Datasets." Institute of Medicine and National Research Council. 2005. Assessing the Quality of Cancer Care: An Approach to Measurement in Georgia. Washington, DC: The National Academies Press. doi: 10.17226/11244.
×

National Home and Hospice Care Survey

Sponsor

U.S. Department of Health and Human Services, Centers for Disease Control and Prevention, National Center for Health Statistics

Description

Survey of home and hospice care agencies concerning agency management and current and discharged patients

Mode of administration/data collection

Personal interviews with administrators and staff are used to complete questionnaires for samples of current and discharged patients.

Sample design

Stratified two-stage probability sample of patients served by Medicare- or Medicaid-certified agencies

Primary survey/database content

Referral and length of service, diagnoses, number of visits, patient charges, health status, reason for discharge, and types of services provided

Population targeted

Patients of U.S. home health and hospice care agencies

Demographic

Gender, age, educational attainment, race/ethnicity, marital data status and health status

Years

For individual years from 1992-1994, 1996, 1998, and 2000

Schedule

Periodically, based on funding availability

Geographic estimates

U.S. Bureau of Census regions and metropolitan statistical areas

Contact information

http://www.cdc.gov/nchs/about/major/nhhcsd/nhhcsd.htm

Suggested Citation:"APPENDIX B Sources of Data: Surveys and Datasets." Institute of Medicine and National Research Council. 2005. Assessing the Quality of Cancer Care: An Approach to Measurement in Georgia. Washington, DC: The National Academies Press. doi: 10.17226/11244.
×

National Vital Statistics System—Mortality

Sponsor

U.S. Department of Health and Human Services, Centers for Disease Control and Prevention, National Center for Health Statistics

Description

An intergovernmental collaboration between the National Center for Health Statistics and the 50 states, two cities, and five territories organized to collect and disseminate mortality statistical information from death certificates

Mode of administration/data collection

Death certificates are completed by physicians, coroners, medical examiners, and funeral directors and filed with state vital statistics offices.

Sample design

All deaths (nationally, about 2.2 to 2.3 million annually)

Primary survey/database content

Year of death, underlying and multiple causes of death, place of decedent’s residence, place death occurred, age at death, day and month of death, selected demographic data

Population targeted

U.S. deaths

Demographic data

Detailed race and ethnicity, marital status, place of birth, gender, educational attainment for selected states, and occupation and industry for selected states

Years

Complete since 1933

Schedule

Annual

Geographic estimates

National, regional, and state. Selected data are available for counties with more than 100,000 persons.

Contact information

http://www.cdc.gov/nchs/about/major/dvs/mortdata.htm

Suggested Citation:"APPENDIX B Sources of Data: Surveys and Datasets." Institute of Medicine and National Research Council. 2005. Assessing the Quality of Cancer Care: An Approach to Measurement in Georgia. Washington, DC: The National Academies Press. doi: 10.17226/11244.
×

Youth Risk Behavior Survey (YRBS)

Sponsor

U.S. Department of Health and Human Services, Centers for Disease Control and Prevention (CDC)

Description

YRBS, a component of the Youth Risk Behavior Survey Surveillance System, is a national school-based survey of high school students that is conducted by CDC. It is designed to monitor national progress toward achieving the Healthy People 2000 and 2010 objectives and to track health risk behaviors among youth. States can receive federal funding to conduct the YRBS for state and local purposes. The state version of the survey uses different sampling and other procedures.

Mode of administration/data collection

Self-administered questionnaire. Students record their responses on a computer-scannable booklet or answer sheet.

Sample design

Three-stage, cluster sample design

Primary survey content

Risk behaviors such as tobacco use, inadequate physical activity, alcohol and drug use, and sexual behavior

Population targeted

9th–12th grade students. States have the option of also surveying middle school students or those in juvenile justice facilities.

Demographic Data

Gender, age, grade in school

Years

Since 1991

Schedule

The national YRBS is conducted every 2 years.

Geographic estimates

National-level estimates only from the national survey

Contact information

http://www.cdc.gov/HealthyYouth/yrbs/

NA = not applicable.

Suggested Citation:"APPENDIX B Sources of Data: Surveys and Datasets." Institute of Medicine and National Research Council. 2005. Assessing the Quality of Cancer Care: An Approach to Measurement in Georgia. Washington, DC: The National Academies Press. doi: 10.17226/11244.
×
Page 257
Suggested Citation:"APPENDIX B Sources of Data: Surveys and Datasets." Institute of Medicine and National Research Council. 2005. Assessing the Quality of Cancer Care: An Approach to Measurement in Georgia. Washington, DC: The National Academies Press. doi: 10.17226/11244.
×
Page 258
Suggested Citation:"APPENDIX B Sources of Data: Surveys and Datasets." Institute of Medicine and National Research Council. 2005. Assessing the Quality of Cancer Care: An Approach to Measurement in Georgia. Washington, DC: The National Academies Press. doi: 10.17226/11244.
×
Page 259
Suggested Citation:"APPENDIX B Sources of Data: Surveys and Datasets." Institute of Medicine and National Research Council. 2005. Assessing the Quality of Cancer Care: An Approach to Measurement in Georgia. Washington, DC: The National Academies Press. doi: 10.17226/11244.
×
Page 260
Suggested Citation:"APPENDIX B Sources of Data: Surveys and Datasets." Institute of Medicine and National Research Council. 2005. Assessing the Quality of Cancer Care: An Approach to Measurement in Georgia. Washington, DC: The National Academies Press. doi: 10.17226/11244.
×
Page 261
Suggested Citation:"APPENDIX B Sources of Data: Surveys and Datasets." Institute of Medicine and National Research Council. 2005. Assessing the Quality of Cancer Care: An Approach to Measurement in Georgia. Washington, DC: The National Academies Press. doi: 10.17226/11244.
×
Page 262
Suggested Citation:"APPENDIX B Sources of Data: Surveys and Datasets." Institute of Medicine and National Research Council. 2005. Assessing the Quality of Cancer Care: An Approach to Measurement in Georgia. Washington, DC: The National Academies Press. doi: 10.17226/11244.
×
Page 263
Next: APPENDIX C Glossary, Abbreviations, and Acronyms »
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Shortly after 1998, leading members of Georgia's government, medical community, and public-spirited citizenry began considering ways in which some of Georgia's almost $5 billion, 25-year settlement from the tobacco industry's Master Settlement Agreement with the 50 states could be used to benefit Georgia residents. Given tobacco's role in causing cancer, they decided to create an entity and program with the mission of making Georgia a national leader in cancer prevention, treatment, and research. This new entity--called the Georgia Cancer Coalition, Inc. (GCC)-- and the state of Georgia subsequently began implementing a far-reaching state cancer initiative that includes five strategic goals: (1) preventing cancer and detecting existing cancers earlier; (2) improving access to quality care for all state residents with cancer; (3) saving more lives in the future; (4) training future cancer researchers and caregivers; and (5) turning the eradication of cancer into economic growth for Georgia.

Assessing the Quality of Cancer Care identifies a set of measures that could be used to gauge Georgia's progress in improving the quality of its cancer services and in reducing cancer-related morbidity and mortality.

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