National Academies Press: OpenBook
« Previous: 5 Reconciling the Benefits and Risks of Expanded Data Access
Suggested Citation:"References." National Research Council. 2005. Expanding Access to Research Data: Reconciling Risks and Opportunities. Washington, DC: The National Academies Press. doi: 10.17226/11434.
×

References

Abowd, J.M., and J.I. Lane 2003 The Economics of Data Confidentiality. Unpublished paper presented at the National Research Council’s Committee on National Statistics Workshop on Confidentiality of and Access to Research Data Files, October 16-17, Washington, DC. Available: http://instruct1.cit.cornell.edu/~jma7/abowd_lane_CNSTAT_economics_of_confidentiality_2003016.pdf [July 2005].

2004 New approaches to confidentiality protection: Synthetic data, remote access and research data centers. Pages 282-289 in J. Domingo-Ferrar and V. Torra, editors., Privacy in Statistical Databases. New York: Springer-Verlag.

Abowd, J.M., and S.D. Woodcock 2001 Disclosure limitation in longitudinal linked data. In Confidentiality, Disclosure and Data Access: Theory and Practical Application for Statistical Agencies, P. Doyle, J.I. Lane, J.M. Theeuwes, and L.V. Zayatz, editors. Amsterdam, The Netherlands: North-Holland.

American Association of State Colleges and Universities 2003 Access for All? Debating In-State Tuition for Undocumented Alien Students. Available: http://www.aascu.org/special_report/access_for_all.htm [December 3, 2004].


Bailar, J.C., III 2003 The Role of Data Access in Scientific Replication. Unpublished paper presented at the National Research Council’s Committee on National Statistics Confidential Data Access for Research Purposes Workshop, October 16-17, Washington, DC.

Barabba, V. 1975 The right of privacy and the need to know. In The Census Bureau: A Numerator and Denominator for Measuring Change. U.S. Census Bureau Technical Paper 37. Washington, DC: U.S. Government Printing Office.

Barquin, R., and C. Northouse 2003 Data Collection and Analysis: Balancing Individual Rights and Societal Benefits. Unpublished paper presented at the National Research Council’s Committee on National Statistics Confidential Data Access for Research Purposes Workshop, October 16-17, Washington, DC.

Suggested Citation:"References." National Research Council. 2005. Expanding Access to Research Data: Reconciling Risks and Opportunities. Washington, DC: The National Academies Press. doi: 10.17226/11434.
×

Bates, N.A. 2005 Development and Testing of Informed Consent Questions to Link Survey Data with Administrative Records. Proceedings of ASA Survey Research Methods Section. Alexandria, VA: American Statistical Association.

Battacharya, J., and D. Lakdawalla 2003 Does Medicare Benefit the Poor? New Answers to an Old Question. NBER Working Paper No. 9215 revised. Cambridge, MA: National Bureau of Economic Research.

Boisjoly, J., K.M. Harris, and G.T. Duncan 1998 Trends, events, and duration of initial welfare spells. Social Service Review 72(4):466-492.

Bound, J., C. Brown, and N. Mathiowetz 2001 Measurement error in survey data. In Handbook of Econometrics, Volume 5, J. Heckman and E. Leamer, editors. Amsterdam, The Netherlands: North Holland.

Brown, C. 2003 Longitudinal Data and Public Policy. Unpublished paper presented at the National Research Council’s Committee on National Statistics Confidential Data Access for Research Purposes Workshop, October 16-17, Washington, DC.


Cain, G., and D. Wissoker 1990 A reanalysis of marital stability in the Seattle-Denver Income Maintenance Experiment. American Journal of Sociology 95(5):1235-1269.

Clemetson, L. 2004 Homeland security given data on Arab-Americans. New York Times, July 30.

Cohen, S.H., and W. Hadden 2004 Issues and Impediments to Expanding Access to Confidential Statistical Agency Data: Restricted Data and Restricted Access. Statistical Policy Working Paper No. 35, Federal Committee on Statistical Methodology Seminar. Available: http://www.fcsm.gov [September 2005].

Consortium of Social Science Associations 2004 Behavioral and Social Science in the Administration’s FY 2004 Budget. Available: www.aaas.org/spp/rd/04pch21.pdf [November 29, 2004].

Couper, M.P., E. Singer, and R.A. Kulka 1998 Participation in the 1990 decennial census: Politics, privacy, pressures. American Politics Quarterly 26: 59-80.


Dalenius, T., and S.P. Reiss 1982 Data-swapping: A technique for disclosure control. Journal of Statistical Planning and Inference (6):73-85.

Dash, E., and T. Zeller 2005 MasterCard says 40 million files are put at risk. New York Times June 18:A1

David, P.A. 2001 Digital Technologies, Research Collaborations and the Extension of Protection for Intellectual Property in Science: Will Building ‘Good Fences’ Really Make ‘Good Neighbors’ in Science? MERIT Research Memorandum No. 2001-004. Maastrict Economic Research Institute on Innovation and Technology, Maastrict, The Netherlands.

Dillman, D.A., M.D. Sinclair, and J.R. Clark 1993 Effects of questionnaire length, respondent-friendly design, and a difficult question on response rates for occupant-addressed census mail surveys. Public Opinion Quarterly 57:289-304.

Domingo-Ferrer, J., and V. Terra 2001 Disclosure control methods and information loss for microdata. In Confidentiality, Disclosure and Data Access: Theory and Practical Application for Statistical Agencies, P. Doyle, J.I. Lane, J.M. Theeuwes, and L.V. Zayatz, editors. Amsterdam, The Netherlands: North-Holland.

Suggested Citation:"References." National Research Council. 2005. Expanding Access to Research Data: Reconciling Risks and Opportunities. Washington, DC: The National Academies Press. doi: 10.17226/11434.
×

Doyle, P., J.I. Lane, J.J.M., Theeuwes, and L.V. Zayatz. 2001 Confidentiality, Disclosure, and Data Access: Theory and Practical Applications for Statistical Agencies. Amsterdam, The Netherlands: North-Holland.

Duncan, G.T. 2002 Confidentiality and statistical disclosure limitation. In International Encyclopedia of the Social and Behavioral Sciences, N.J. Smelser and P.B. Baltes, editors. Oxford, U.K.: Pergamon.

2004 Exploring the tension between privacy and the social benefits of governmental databases. In A Little Knowledge: Privacy, Security and Public Information After September 11, P.M. Shane, J. Podesta, and R.C. Leone editors. New York: The Century Foundation.

Duncan, G.T., S.E. Fienberg, R. Krishnan, R. Padman, and S.F. Roehrig 2001 Disclosure limitation methods and information loss for tabular data. In Confidentiality, Disclosure and Data Access: Theory and Practical Applications for Statistical Agencies, P. Doyle, J.I. Lane, J.M. Theeuwes, and L.V. Zayatz, editors. Amsterdam, The Netherlands: North-Holland.

Duncan, G.T., S. Keller-McNulty, and S.L. Stokes 2003 Disclosure Risk vs. Data Utility: The R-U Confidentiality Map. Working Paper. Available: http://www.heinz.cmu.edu/wpapers/detail.jsp?id=4386 [November 29, 2004].

Duncan, G.T., and D. Lambert 1986 Disclosure-limited data dissemination. Journal of the American Statistical Association 81:10-18.

1989 The risk of disclosure for microdata. Journal of Business and Economic Statistics 7:207-217.

Duncan, G.T., and S. Mukherjee 2000 Optimal disclosure limitation strategy in statistical databases: Deterring tracker attacks through additive noise. Journal of the American Statistical Association (95):720-729.

Duncan G.T., and R.W. Pearson 1991 Enhancing access to microdata while protecting confidentiality. Statistical Science 6:219-239.

Duncan, G.T., and S.L. Stokes 2004 Disclosure risk vs. data utility: The R-U confidentiality map as applied to topcoding. Chance 17:16-20.

Duncan, K. 2000 Incentives and the work decisions of welfare recipients: Evidence from the Panel Survey of Income Dynamics, 1981-1988. American Journal of Economics and Sociology 59(3):433-449.

Dunton, N. 2000 PUMS. Pp. 311-312 in Encyclopedia of the U.S. Census, M.J. Anderson, editor. Washington, DC: CQ Press.


Ferber, R. 1966 The Reliability of Consumer Reports of Financial Assets and Debt. Studies in Consumer Savings # 6. Urbana, IL: Bureau of Economic and Business Research, University of Illinois.

Foster, L., J. Haltiwanger, and C.J. Krizan 2001 Aggregate productivity growth: Lessons from microeconomic evidence. Chapter 8 in New Directions in Productivity Analysis, E. Dean, M. Harper, and C. Hulten, editors. Chicago: University of Chicago Press.

Suggested Citation:"References." National Research Council. 2005. Expanding Access to Research Data: Reconciling Risks and Opportunities. Washington, DC: The National Academies Press. doi: 10.17226/11434.
×

Fox, S., and O. Lewis 2001 Fear of Online Crime: Americans Support FBI Interception of Criminal Suspects’ Email and New Laws to Protect Online Privacy. Pew Internet & American Life Project. Available: http://www.pewinternet.org.


Gaquin, D. 2000a Data dissemination and use. In Encyclopedia of the U.S. Census, M.J. Anderson, editor in chief. Washington, DC: CQ Press.

2000b Summary tape files. Encyclopedia of the U.S. Census, M.J. Anderson, editor. Washington, DC: CQ Press.

Garber, A.M., T.E. MaCurdy, and M.C. McClellan 1998 Persistence of Medicare expenditures among elderly beneficiaries. Pp. 153-180 in Frontiers in Health Policy, Vol. 1, A.M. Garber, editor. Cambridge, MA: MIT Press.

Gilheany, S. 2000 The Decline of Magnetic Disk Storage Cost Over the Next 25 Years. Available: http://www.berghell.com/whitepapers/Storage%20Costs.pdf [December 2, 2004].

Gordon, R. 1999 Confidential data files linked to the National Longitudinal Survey of Youth, 1979 Cohort: A case study. Unpublished paper presented at the National Research Council’s Committee on National Statistics Workshop on Confidentiality of and Access to Data Research Files, October 14-15, Washington, DC.

Groenveld, L. P., N.B. Tuma, and M.T. Hannan 1980 The effects of negative income tax programs on marital dissolution. The Journal of Human Resources 15(4)(fall):654-674.

Groves, R., and J. Lepkowski 1985 Cost and error modeling for large-scale telephone surveys. Pp. 330-357 in Proceedings of the Bureau of the Census First Annual Research Conference. Washington, DC: U.S. Department of Commerce.

Guarino, J.A., J.M. Hill, and H.F. Woltman 2001 Analysis of the Social Security Number - Notification Component of the Social Security Number, Privacy Attitudes, and Notification Experiment. Washington, DC: U.S. Department of Commerce.


Haltiwanger, J., S. Davis, and S. Schuh 1996 Job Creation and Destruction. Cambridge, MA: MIT Press.

Hawala, S., L. Zayatz, and S. Rowland 2004 American FactFinder: Disclosure limitation for the advanced query system. Journal of Official Statistics 20(1):115-124.

Hayes, B. 2002 Terabyte territory. American Scientist 90(3):212-216.

Hildreth, A.K. 2003 The Census Research Data Center (RDC) Network: Problems, Possibilities and Precedents. Unpublished paper presented at the National Research Council’s Committee on National Statistics Confidential Data Access for Research Purposes Workshop, October 16-17, Washington, DC.

Hillygus, S., N. Nie, and K. Prewitt with G. Pals 2006 Civic Mobilization and Privacy Concerns in the 2000 Census. New York: Russell Sage Foundation.

Hoynes, H., and T. MaCurdy 1994 Has the decline in benefits shortened welfare spells? American Economic Review 84(2):43-48.

Suggested Citation:"References." National Research Council. 2005. Expanding Access to Research Data: Reconciling Risks and Opportunities. Washington, DC: The National Academies Press. doi: 10.17226/11434.
×

Hurd, M., F.T. Juster, and J.P. Smith 2003 Enhancing the quality of data on income: Recent innovations from the HRS. Journal of Human Resources 38(3):758-772.


Institute of Medicine 2005 Vaccine Safety Research, Data Access, and Public Trust. Committee on the Review of National Immunization Program’s Research Procedures and Data Sharing Program, Board on Health Promotion and Disease Prevention. Washington, DC: The National Academies Press.


Journal of Human Resources 1995 Vol. 30, No 5. Available: http://www.ssc.wisc.edu/jhr/1995ab/loprest.html [May 23, 2005].


Klein, L., and A.C. Goldberger 1955 An Econometric Model of the United States, 1929–1952. Amsterdam: North-Holland Publishing Co.

Kuhn, T. 1962 The Structure of Scientific Revolutions. Chicago, IL: University of Chicago Press.


Lambert, D. 1993 Measures of disclosure risk and harm. Journal of Official Statistics 9:313-333.

Levitan, S.A., and F. Gallo 1990 Work and family: The impact of legislation. Monthly Labor Review, March, 34-40.

Linet, M. 2003 Impact of HIPAA on Research. Testimony prepared for the National Committee on Vital and Health Statistics Subcommittee on Privacy and Confidentiality, November 19-20, Silver Spring, MD.

Little, R.J.A. 1993 Statistical analysis of masked data. Journal of Official Statistics 9:407-426.


Marquis, K.H., and C.J. Moore 1990 Measurement errors in SIPP program reports. Pp. 721-745 in Proceedings of the Bureau of the Census 1990 Annual Research Conference. Washington, DC: U.S. Department of Commerce.

Martinson, B.C., M.S. Anderson, and R. de Vries 2005 Scientists behaving badly. Nature 435:737-738.

McClellan, M., and J. Skinner 2004 The Incidence of Medicare. (Working Paper.) Available: http://www.dartmouth.edu/~economic/faculty/Skinner/Papers/ms%20medicare%206%20feb%2004.pdf [November 30, 2004].

McCullagh, D. 2004 Database nation: The upside of “zero privacy.” Reason (June). Available: http://www.reason.com/0406/fe.dm.database.shtml [December 21, 2004].

McGuckin, R.H. 1992 The Importance of Establishment Data in Economic Research. Discussion paper, Center for Economic Studies. U.S. Census Bureau, Washington, DC.

1995 Establishment microdata for economic research and policy analysis: Looking beyond the aggregates. Journal of Business and Economic Statistics 13(1):121-126.

McGuckin, R.H., and S.V. Nguyen 1990 Public use microdata: Disclosure and usefulness. Journal of Economic and Social Measurement 16(1):19-39.

McMillen, D. 2003 Privacy, Confidentiality, and Data Sharing. Unpublished paper presented at the National Research Council’s Committee on National Statistics Confidential Data Access for Research Purposes Workshop, October 16-17, Washington, DC.

Suggested Citation:"References." National Research Council. 2005. Expanding Access to Research Data: Reconciling Risks and Opportunities. Washington, DC: The National Academies Press. doi: 10.17226/11434.
×

McMillen, M. 1999 National Center for Education Statistics: Data licensing systems. Unpublished paper presented at the National Research Council’s Committee on National Statistics Workshop on Confidentiality of and Access to Data Research Files, October 14-15, Washington DC.

Menchik, P.L., and M. David 1983 Income distribution, lifetime savings, and bequests. American Economic Review 73(4):672-690.


National Commission for the Protection of Human Subjects of Biomedical and Behavioral Research 1979 The Belmont Report: Ethical Principles and Guidelines for the Proection of Human Subjects of Research. Office of Human Subjects Research, National Institutes of Health. Washington, DC: U.S. Department of Health and Human Services.

National Highway Traffic Safety Administration 2001 National EMS Research Agenda. Available: http://www.nhtsa.dot.gov/people/injury/ems/ems-agenda/toc.htm [December 6, 2004].

National Research Council 1979 Privacy and Confidentiality as Factors in Survey Response. Panel on Privacy and Confidentiality as Factors in Survey Response, Committee on National Statistics, Asssembly of Behavioral and Social Sciences. Washington, DC: National Academy Press.

1985 Sharing Research Data. Committee on National Statistics. S.E. Fienberg, M.E. Martin, and M.L. Straf, editors. Commission on Behavioral and Social Sciences and Education. Washington, DC: National Academy Press.

1991 Improving Information for Social Policy Decisions: The Uses of Microsimulation Modeling. Volume I: Review and Recommendations. Panel to Evaluate Microsimulation Models for Social Welfare Programs, C.F. Citro and E.A. Hanushek, editors. Committee on National Statistics, Commission on Behavioral and Social Sciences and Education. Washington, DC: National Academy Press.

1993 Private Lives and Public Policies: Confidentiality and Accessibility of Government Statistics. Panel on Confidentiality and Data Access, G.T. Duncan, T.B. Jabine, and V.A de Wolf, editors. Committee on National Statistics, Commission on Behavioral and Social Sciences and Education. Washington, DC: National Academy Press.

1997 Assessing Policies for Retirement Income: Needs for Data, Research, and Models. Panel on Retirement Income Modeling, C.F. Citro and E.A. Hanushek, editors. Committee on National Statistics, Commission on Behavioral and Social Sciences and Education. Washington, DC: National Academy Press.

1998 People and Pixels: Linking Remote Sensing and Social Science. Committee on the Human Dimensions of Global Change, Diana Liverman, Emilio F. Moran, Ronald R. Rindfuss, and Paul C. Stern, editors. Commission on Behavioral and Social Sciences and Education. Washington, DC: National Academy Press.

2000 Improving Access to and Confidentiality of Research Data: Report of a Workshop. Committee on National Statistics, C. Mackie and N. Bradburn, editors. Commission on Behavioral and Social Sciences and Education. Washington, DC: National Academy Press.

2001a Cells and Surveys: Should Biological Measures Be Included in Social Science Research? Committee on Population, C.E. Finch, J.W. Vaupel, and K. Kinsella, editors. Commission on Behavioral and Social Sciences and Education. Washington, DC: National Academy Press.

Suggested Citation:"References." National Research Council. 2005. Expanding Access to Research Data: Reconciling Risks and Opportunities. Washington, DC: The National Academies Press. doi: 10.17226/11434.
×

2001b Evaluating Welfare Reform in an Era of Transition. Panel on Data and Methods for Measuring the Effects of Changes in Social Welfare Programs, R.A.Moffitt and M. Ver Ploeg, editors. Committee on National Statistics, Division of Behavioral and Social Sciences and Education. Washington, DC: National Academy Press.

2002 Access to Research Data in the 21st Century: An Ongoing Dialogue Among Interested Parties. Report of a Workshop. Science, Law, and Policy Panel, Policy and Global Affairs. Washington, DC: National Academy Press.

2003a Ensuring the Quality of Data Disseminated by the Federal Government: Workshop Report. Ad Hoc Committee on Ensuring the Quality of Government Information, Science, Technology, and Law Program, Policy and Global Affairs. Washington D.C.: The National Academies Press.

2003b Protecting Participants and Facilitating Behavioral and Social Science Research. Panel on Institutional Review Boards, Surveys, and Social Science Research, C.F. Citro, D.R. Ilgen, and C.B. Marrett, editors. Committee on National Statistics and Board on Behavioral, Cognitive, and Sensory Sciences, Division of Behavioral and Social Sciences and Education. Washington, DC: The National Academies Press.

2004a Measuring Racial Discrimination. Panel on Methods for Assessing Discrimination, R.M. Blank, M. Dabady, and C.F. Citro, editors. Committee on National Statistics, Division of Behavioral and Social Sciences and Education. Washington, DC: The National Academies Press.

2004b The 2000 Census: Counting Under Adversity. Panel to Review the 2000 Census, C.F. Citro, D.L. Cork, and J.L. Norwood, editors. Committee on National Statistics, Division of Behavioral and Social Sciences and Education. Washington, DC: The National Academies Press.

2005 Principles and Practices for a Federal Statistical Agency, Third Edition. Committee on National Statistics. M.E. Martin, M.L. Straf, and C.F. Citro, editors. Division of Behavioral and Social Sciences and Education. Washington, DC: The National Academies Press.


Ochas, S., J. Rasmussen, C. Robson, and M. Salib 2001 Reidentification of Individuals in Chicago’s Homicide Database: A Technical and Legal Study. Unpublished manuscript, Massachusetts Institute of Technology.

O’Neill, J., D. Wolf, L. Bassi, and M. Hannan 1984 An Analysis of Time on Welfare. Washington, DC: The Urban Institute.

O’Rourke, J.M., and M.P. Gutmann 2005 Citations Database—Human Subjects Protection and Disclose Risk Analysis, Project 3: Statistical Disclosure Control: Best Practices and Tools for the Social Sciences. Inter-university Consortium for Political and Social Research, Ann Arbor, MI. Available: www.icpsr.umic.edu/HSP/bibliography-keyword.htm. [October 2005].


Paas, G. 1988 Disclosure risk and disclosure avoidance for microdata. Journal of Business and Economic Statistics 6:487-500.

Perrit, H.H., Jr. 2003 Protecting Confidentiality of Research Data through Law. Unpublished paper presented at the National Research Council’s Committee on National Statistics Confidential Data Access for Research Purposes Workshop, October 16-17, Washington, DC.

Prewitt, K. 2000 Remarks prepared for session on Census 2000 organized by the Census 2000 Initiative and the Leadership Conference on Civil Rights, March 24, Washington DC.

2004 What if we give a census and no one comes? Science (676):1452-1453.

Suggested Citation:"References." National Research Council. 2005. Expanding Access to Research Data: Reconciling Risks and Opportunities. Washington, DC: The National Academies Press. doi: 10.17226/11434.
×

Raghunathan, T.E. 2003 Evaluation of Inferences from Multiple Synthetic Data Sets Created Using Semiparametric Approach. Unpublished paper presented at the National Research Council’s Committee on National Statistics Confidential Data Access for Research Purposes Workshop, October 16-17, Washington, DC.

Raghunathan, T.E., J.P. Reiter, and D.R. Rubin 2003 Multiple imputation for statistical disclosure limitation. Journal of Official Statistics 19:1-16.

Reiter, J.P. 2003 Estimating Probabilities of Identification for Microdata. Unpublished paper presented at the National Research Council’s Committee on National Statistics Confidential Data Access for Research Purposes Workshop, October 16-17, Washington, DC. [Submitted to Journal of the American Statistical Association.]

Rhea, S., P. Eaton, D. Geels, H. Weatherspoon, B. Zhao, and J. Kubiatowicz 2003 Pond: The OceanStore prototype. Proceedings of the 2nd USENIX Conference on File and Storage Technologies (FAST 03). Available: http://www.cs.ucsb.edu/~ebelding/courses/276/f04/papers/pond.pdf [August 2005].

Rindfuss, R.R. 2002 Conflicting demands: Confidentiality promises and data availability. Newsletter of the International Human Dimensions Programme on Global Environmental Change, February. Available: http://www.ihdp.uni-bonn.de/html/publications/update/update02_02/Update02_02_art1.html [November 30, 2004].

Rowland, S. 2003 Examination of Monitored, Remote Microdata Access Systems. Paper presented at the National Research Council’s Committee on National Statistics Confidential Data Access for Research Purposes Workshop, October 16-17, Washington, DC.

Rubin, D.B. 1993 Discussion of statistical disclosure limitation. Journal of Official Statistics (9):461-468.

Ruggles, S. 2000 Data user’s perspective on confidentiality. Of Significance—Journal of the Association of Public Data Users 2:1-5.


Schweinhart, L.J. 2004 The High/Scope Perry Preschool Study Through Age 40. Available: www.highscope.org/Research/PerryProject/PerryAge40SumWeb.pdf [December 3, 2004].

Seastrom, M. 2001 Licensing. Pp. 279-296 in Confidentiality, Disclosure, and Data Access: Theory and Practical Applications for Statistical Agencies, P. Doyle, J.I. Lane, J.J.M. Theeuwes, and L.V. Zayatz, editors. Amsterdam, Netherlands: North-Holland, Elsevier Science.

Seastrom, M.M., C. Wright, and J. Melnicki 2003 The Role of Licensing and Enforcement Mechanisms in Promoting Access and Protecting Confidentiality. Unpublished paper presented at the National Research Council’s Committee on National Statistics Confidential Data Access for Research Purposes Workshop, October 16-17, Washington, DC

Seltzer, W., and M. Anderson 2000 After Pearl Harbor: The Proper Role of Population Data Systems in Time of War. Available: http://www.uwm.edu/~margo/govstat/integrity.htm [December 15, 2004].

Suggested Citation:"References." National Research Council. 2005. Expanding Access to Research Data: Reconciling Risks and Opportunities. Washington, DC: The National Academies Press. doi: 10.17226/11434.
×

2003 Government Statistics and Individual Safety: Revisiting the Historical Record of Disclosure, Harm, and Risk. Paper presented at the National Research Council’s Committee on National Statistics Confidential Data Access for Research Purposes Workshop, October 16-17, Washington, DC. Available: http://www.uwm.edu/~margo/govstat/WS-MAcnstat.pdf [December 8, 2004].

Sieber, J. 1991 Sharing Social Science Data: Advantages and Challenges. Newbury Park, CA: Sage Publications.

Singer, E. 2004 Principles and practices related to scientific integrity. In Survey Methodology, R.M. Groves et al. New York: Wiley.

Singer, E., N.A. Mathiowetz, and M.P. Couper 1993 The impact of privacy and confidentiality concerns on survey participation: The case of the 1990 census. Public Opinion Quarterly 57(4):465-482.

Singer, E., R.Y. Shapiro, and L.R. Jacobs 1997 Privacy of health care data: What does the public know? How much do they care? In Health Care and Information Ethics, A.y Chapman, ed. Washington, DC: American Association for the Advancement of Science.

Singer, E., J. Van Hoewyk, and R. Neugebauer 2003 Attitudes and behavior: The impact of privacy and confidentiality concerns on participation in the 2000 census. Public Opinion Quarterly 65(3):368-384.

Singer, E., J. Van Hoewyk, and R. Tourangeau 2001 Final Report on the 1999-2000 Surveys of Privacy Attitudes. Contract No. 50-YABC-7-66019, Task Order No. 46-YAB-9-0002. Washington, DC: U.S. Census Bureau.

Singh, A.C., F. Yu, and G.H. Dunteman 2003 MASSC: A New Data Mask for Limiting Statistical Information Loss and Disclosure. Paper presented at the Joint ECE/EUROSTAT Work Session on Data Confidentiality, Luxembourg. Available: Statistics Research Division, RTI International, Research Triangle Park, NC.

Soete, L., and Bas ter Weel 2003 ICT and Access to Research Data: An Economic Review. Unpublished paper (June). Maastrict Economic Research Institute on Innovation and Technology, Maastrict, The Netherlands.

Spruill, N.L. 1983 The confidentiality and analytic usefulness of masked business microdata. In Proceedings of the Section on Survey Research Methods, American Statistical Association. Washington, DC: American Statistical Association.

Swazey, J., M.S. Anderson, and K. S. Louis 1993 Ethical problems in academic research. American Scientist Online (originally appeared in November/December issue). Available: http://www.americanscientist.org/template/AssetDetail/assetid/33432;jsessionid=baagLvqUb8uc7F?fulltext=true [May 31, 2005].

Sweeney, L. 1999 Computational disclosure control for medical microdata: The datafly system. In Record Linkage Techniques 1997: Proceedings of an International Workshop and Exposition. Committee on Applied and Theoretical Statistics. Washington, DC: National Academy Press.

2001 Information explosion. In Confidentiality, Disclosure, and Data Access: Theory and Practical Applications for Statistical Agencies, P. Doyle, J.I. Lane, J.M. Theeuwes, and L.V. Zayatz, editors. Washington, DC: Urban Institute.

Suggested Citation:"References." National Research Council. 2005. Expanding Access to Research Data: Reconciling Risks and Opportunities. Washington, DC: The National Academies Press. doi: 10.17226/11434.
×

Sweeney, L., B. Malin, and E. Newton 2003 Trail Re-identification: Learning Who You are From Where You Have Been. Data Privacy Laboratory Technical Report, LIDAP-WP12. Carnegie Mellon University, School of Computer Science.


Taueber, C. 1981 America enters the eighties: Some social indicators. The Annals of the American Academy of Political and Social Science (vol. 453). Thousand Oaks, CA: Sage Publications.

Triplett, J. 1991 The federal statistical system’s response to emerging data needs. Journal of Economic and Social Measurement 17(3-4):155-177.


U.S. Census Bureau 2004 U.S. Census Bureau Privacy Principles. Washington, DC: U.S. Department of Commerce.

U.S. Office of Management and Budget 2004 Statistical Programs of the United States Government: Fiscal Year 2005. Washington, DC: Executive Office of the President. Also available: http://www.whitehouse.gov/omb/inforeg/05statprog.pdf [September 2005].

2005 Final Information Quality Bulletin for Peer Review. 70 FR 2664-02 (January 14).


Willenborg, L., and T. de Waal 1995 Statistical Disclosure Control in Practice. (Lecture Notes in Statistics 111.) New York: Springer.

Winkler, W.E. 1988 Using the EM algorithm for weight computation in the Fellegi-Sunter model of record linkage. Pp. 667-671 in Proceedings of the Section on Survey Research Methods. Washington, DC: American Statistical Association.

1998 Re-identification methods for evaluating the confidentiality of analytically valid microdata. Research in Official Statistics 1:87-104.

Woodbury, R., A. Gustman, L. Lillard, O. Mitchell, and R. Willis 1999 The Value of Linked Data in Aging Research. Paper prepared for April 17-18, 2000, meeting of the Panel on a Research Agenda and New Data for an Aging World, Committee on Population, National Research Council, Washington, DC.

Suggested Citation:"References." National Research Council. 2005. Expanding Access to Research Data: Reconciling Risks and Opportunities. Washington, DC: The National Academies Press. doi: 10.17226/11434.
×
Page 85
Suggested Citation:"References." National Research Council. 2005. Expanding Access to Research Data: Reconciling Risks and Opportunities. Washington, DC: The National Academies Press. doi: 10.17226/11434.
×
Page 86
Suggested Citation:"References." National Research Council. 2005. Expanding Access to Research Data: Reconciling Risks and Opportunities. Washington, DC: The National Academies Press. doi: 10.17226/11434.
×
Page 87
Suggested Citation:"References." National Research Council. 2005. Expanding Access to Research Data: Reconciling Risks and Opportunities. Washington, DC: The National Academies Press. doi: 10.17226/11434.
×
Page 88
Suggested Citation:"References." National Research Council. 2005. Expanding Access to Research Data: Reconciling Risks and Opportunities. Washington, DC: The National Academies Press. doi: 10.17226/11434.
×
Page 89
Suggested Citation:"References." National Research Council. 2005. Expanding Access to Research Data: Reconciling Risks and Opportunities. Washington, DC: The National Academies Press. doi: 10.17226/11434.
×
Page 90
Suggested Citation:"References." National Research Council. 2005. Expanding Access to Research Data: Reconciling Risks and Opportunities. Washington, DC: The National Academies Press. doi: 10.17226/11434.
×
Page 91
Suggested Citation:"References." National Research Council. 2005. Expanding Access to Research Data: Reconciling Risks and Opportunities. Washington, DC: The National Academies Press. doi: 10.17226/11434.
×
Page 92
Suggested Citation:"References." National Research Council. 2005. Expanding Access to Research Data: Reconciling Risks and Opportunities. Washington, DC: The National Academies Press. doi: 10.17226/11434.
×
Page 93
Suggested Citation:"References." National Research Council. 2005. Expanding Access to Research Data: Reconciling Risks and Opportunities. Washington, DC: The National Academies Press. doi: 10.17226/11434.
×
Page 94
Next: Appendix A Workshop Summary »
Expanding Access to Research Data: Reconciling Risks and Opportunities Get This Book
×
 Expanding Access to Research Data: Reconciling Risks and Opportunities
Buy Paperback | $44.00 Buy Ebook | $35.99
MyNAP members save 10% online.
Login or Register to save!
Download Free PDF

Policy makers need information about the nation—ranging from trends in the overall economy down to the use by individuals of Medicare—in order to evaluate existing programs and to develop new ones. This information often comes from research based on data about individual people, households, and businesses and other organizations, collected by statistical agencies. The benefit of increasing data accessibility to researchers and analysts is better informed public policy. To realize this benefit, a variety of modes for data access— including restricted access to confidential data and unrestricted access to appropriately altered public-use data—must be used. The risk of expanded access to potentially sensitive data is the increased probability of breaching the confidentiality of the data and, in turn, eroding public confidence in the data collection enterprise. Indeed, the statistical system of the United States ultimately depends on the willingness of the public to provide the information on which research data are based. Expanding Access to Research Data issues guidance on how to more fully exploit these tradeoffs. The panel’s recommendations focus on needs highlighted by legal, social, and technological changes that have occurred during the last decade.

READ FREE ONLINE

  1. ×

    Welcome to OpenBook!

    You're looking at OpenBook, NAP.edu's online reading room since 1999. Based on feedback from you, our users, we've made some improvements that make it easier than ever to read thousands of publications on our website.

    Do you want to take a quick tour of the OpenBook's features?

    No Thanks Take a Tour »
  2. ×

    Show this book's table of contents, where you can jump to any chapter by name.

    « Back Next »
  3. ×

    ...or use these buttons to go back to the previous chapter or skip to the next one.

    « Back Next »
  4. ×

    Jump up to the previous page or down to the next one. Also, you can type in a page number and press Enter to go directly to that page in the book.

    « Back Next »
  5. ×

    Switch between the Original Pages, where you can read the report as it appeared in print, and Text Pages for the web version, where you can highlight and search the text.

    « Back Next »
  6. ×

    To search the entire text of this book, type in your search term here and press Enter.

    « Back Next »
  7. ×

    Share a link to this book page on your preferred social network or via email.

    « Back Next »
  8. ×

    View our suggested citation for this chapter.

    « Back Next »
  9. ×

    Ready to take your reading offline? Click here to buy this book in print or download it as a free PDF, if available.

    « Back Next »
Stay Connected!