study interventions. Researchers should have appropriate plans for ensuring that the essential elements are understood and should consider alternative ways (such as neutral educators) to educate parents about the research. The informed consent process should also include discussion with the community about any experimental tests that may be part of the research and the informed consent form should clearly state whether such test results will be available to parents. This issue is discussed in detail in the next chapter. IRBs should require that these criteria are met.

Recommendation 6.2: Institutional review boards that review intervention or longitudinal cohort studies on housing health hazards involving children should require that the informed consent process reflects appropriate community input and includes plans to ensure that parents of child subjects understand the essential elements of the research.

Recommendation 6.3: Payment for participating in research on housing health hazards involving children should reimburse: (1) reasonable expenses directly related to participation; (2) reasonable, age-appropriate compensation to children for time spent in research that does not offer the prospect of direct benefit; and (3) reasonable compensation to parents for time spent in research. Such compensation may be in addition to token gifts to parents and children as gestures of appreciation. Such payments must avoid the potential for undue influence.



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