Ongoing educational opportunities are available to members of rehabilitation services.

A mechanism is in place to inform patients and family members of the services available.

Patient Advocacy and Survivorship Guidelines: Information and programs specific to patient advocacy and survivorship issues are available to cancer patients and their families.

Programs and educational resources for survivors and their families should include but are not limited to the following:

  1. Access to information about cancer prevention, early detection, genetics, disease treatment, symptom management, and psychosocial, spiritual, and financial concerns through written materials and/or referrals to same via the Internet, other experts, or support organizations.

  2. Information about local, regional, and national resources on any aspect of cancer, cancer care, research, advocacy, and survivorship.

  3. Access to support groups onsite or through referrals to local or web-based support groups and other support mechanisms, such as telephone connection programs linking survivors together.

  4. Information about specific survivorship issues, such as employment rights, insurance coverage, late and long-term effects of disease and treatment, advance directives, living will and durable power of attorney, estate planning, options for recurrent disease management, and end-of-life care planning.

  5. Programmatic opportunities to participate with the care team to develop community outreach education and support programs for quality cancer care in the community and to educate professional staff about the cancer experience.

Resources are allocated to provide a robust advocacy and survivorship program.

National standards for advocacy and survivorship will be incorporated into program planning, implementation, and evaluation.

SOURCE: ACCC (2004c,d).

This section of the chapter highlights selected programs that provide services nationally, those offered by the American Cancer Society and the Wellness Community, selected programs that focus on the needs of Hispanic and African-American cancer survivors, and support available by telephone or online. Appendix 4D includes a description of the delivery of psychosocial services for women with breast cancer to illustrate some of the barriers to access to care.

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