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From Cancer Patient to Cancer Survivor: Lost in Transition (2005)
National Cancer Policy Board (NCPB)

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. "4 Delivering Cancer Survivorship Care." From Cancer Patient to Cancer Survivor: Lost in Transition. Washington, DC: The National Academies Press, 2005.

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From Cancer Patient to Cancer Survivor: Lost in Transition

Program Name, Sponsor

Services and Availability

Blood Cancers

The Leukemia and Lymphoma Society

http://www.leukemia-lymphoma.org

  • Group support

  • One-on-one peer telephone support

  • Educational programs and physician lectures

  • Call center staffed with social workers, nurses, and health educators

59 local chapters, and information available nationwide by telephone

Thyroid Cancer

ThyCa: Thyroid Cancer Survivors Association, Inc.

http://www.thyca.org

  • Group support

  • One-on-one peer support

  • Email support groups

Available nationwide during the internet, and in person in some locations

Community-based educational programs are offered at all The Wellness Community locations and at some independent cancer clinics. A variety of topics are covered, and programs are designed to help people with cancer and their caregivers feel a greater sense of hope, control over their situation, and community. National education programs are focused on coping with cancer as a chronic condition, with strategies for managing the disease, its side effects, and a host of lifestyle and emotional concerns that arise over time. The Frankly Speaking about New Discoveries in Cancer program, developed in 2004, covers information about the most current medical and psychosocial advances, and addresses topics such as complementary and alternative medicine and psychological concerns (The Wellness Community, 2005).

Evaluations of The Wellness Community programs are underway and include a comparison of face-to-face and online support services, an examination of provider best practices, and analyses of outcomes associated with interventions (Lieberman et al., 2003). Research partners include Stanford University, University of California–San Francisco, M.D. Anderson Cancer Center, Catholic University, and the National Coalition for Cancer Survivorship.

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