TABLE 7-1 Domains of Cancer Survivorship Research

Survivorship Research Domain

Definition and Potential Research Foci

Descriptive and analytic research

Documenting for diverse cancer sites the prevalence and incidence of physiologic and psychosocial late effects, second cancers, and their associated risk factors

Determining physiologic outcomes of interest, including late and long-term medical effects such as cardiac or endocrine dysfunction, premature menopause, and the effects of other comorbidities on these adverse outcomes

Measuring psychosocial outcomes of interest, including the longitudinal evaluation of survivors’ quality of life, coping and resilience, and spiritual growth

Intervention research

Examining strategies that can prevent or diminish adverse physiologic or psychosocial sequelae of cancer survivorship

Elucidating the impact of specific interventions (psychosocial, behavioral, or medical) on subsequent health outcomes or health practices

Examination of survivorship sequelae for understudied cancer sites

Examining the physiologic, psychosocial, and economic outcomes among survivors of colorectal, head and neck, hematologic, lung, or other understudied sites

Follow-up care and surveillance

Elucidating whether the timely introduction of optimal treatment strategies can prevent or control late effects

Evaluating the effectiveness of follow-up care clinics/programs in detecting recurrence of the index cancer, detecting new primary cancers, and preventing or ameliorating long-term effects of cancer and its treatment, thereby increasing duration of life and quality of life

Evaluating alternative surveillance strategies and models of follow-up care for cancer survivors that take into account cultural expectations, patient preference, insurance status, and other factors

Developing a consistent, standardized model of service delivery for cancer-related follow-up care across cancer centers and community oncology practices

Assessing optimal quality, content, frequency, setting, and provider of follow-up care for survivors

Economic sequelae

Examining the economic effects of cancer for the survivor and family and the health and quality of life outcomes resulting from diverse patterns of care and service delivery settings

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