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Performance Measurement: Accelerating Improvement (Pathways to Quality Health Care Series) (2006)
Board on Health Care Services (HCS)

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. "Appendix J Commissioned Paper: Palliative Care/End-of-Life Measures--Sydney Dy and Joanne Lynn." Performance Measurement: Accelerating Improvement (Pathways to Quality Health Care Series). Washington, DC: The National Academies Press, 2006.

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Performance Measurement: Accelerating Improvement

Domain

Category Name of Measure

Description

Satisfaction

After-death bereaved family interview

3 versions: hospice, hospital, and nursing home. Up to 8 domains and 133 items. Telephone survey with family member 3–6 months after death

Family perspective

Numerators: Family members who reported that: (1) overall assessment of quality was excellent; (2) sufficient desired physical comfort and emotional support provided to patient; (3) shared decision making supported; (4) patient treated with respect; (5) needs of family attended to; (6) care coordinated.

Denominator: Deaths

NHPCO FEHC NDS

Family Evaluation of Hospice Care: Core survey, 43 items; 17 optional items. Sent 2 months after death. Bereavement satisfaction survey sent 13 months after death

Family perspective

3 numerators: Family members who reported—(1) Safe dying (caregiver confidence in providing safe care) (2) Effective grieving (emotional support to loved ones before and after death) (3) Family evaluation of hospice care (willingness to recommend hospice care)

Denominator: Hospice deaths

Continuity

Identify source of care

ACOVE Continuity

All vulnerable elders should be able to identify a provider or clinic that they would call in need of medical care

Numerator: Patient who can identify provider/clinic to call if needs health care

Denominator: Vulnerable elders

aDeath certificates that listed death as a result of any of the following were excluded: pregnancy and childbirth-related causes, motor vehicle accidents, all other accidents, suicide, assault homicide, and all other external causes. Foreign residents and those with an unknown site of death were also excluded. Death certificates that listed a site of death as other than a nursing home, hospital, or home were included in the denominator for all calculations.

For UHC data, palliative care population admissions were defined as: Adult patients with 2 previous admissions (any DRG) within 12 months of the target admission; and target admission with >4 days length of stay for DRGS for heart failure (127), cancer DRG pool (82, 203, 172, 274, 346, 10), HIV (489), or respiratory DRG pool (483, 475).

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