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Workshop on Disability in America: A New Look - Summary and Background Papers (2006)
Board on Health Sciences Policy (HSP)

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. "Appendix J Secondary Conditions and Disability--Margaret A. Turk." Workshop on Disability in America: A New Look - Summary and Background Papers. Washington, DC: The National Academies Press, 2006.

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Workshop on Disability in america A new look: Summary and background papers

(IOM’s) 1991 report Disability in America (Pope and Tarlov, 1991) and its 1997 report Enabling America (Brandt and Pope, 1997). Both reports defined secondary conditions specifically in terms of physical or mental health problems.

The new concept was embraced, especially by the federal funding agencies, such as the National Center for Medical Rehabilitation Research (NCMRR), the National Institute for Disability Related Research (NIDRR), and the Centers for Disease Control and Prevention (CDC). These agencies initially funded research to identify and define secondary conditions and then supported further studies to evaluate interventions that can be used to prevent or modify such conditions. The concept also became a part of the strategic planning cores within the agencies.

Recognizing the potential to improve the prevention of secondary conditions, CDC organized national conferences highlighting their epidemiology as well as preventive and modifying strategies. The conferences promoted discussions that enriched the understanding of secondary conditions. Individuals with disabilities were active participants in the discussions, including discussions of areas for research. The CDC Disability and Health Team initiated a funding stream for research into the secondary conditions of individuals with disabilities, and it also supported statewide disability and health programs and projects. As a result of these CDC-supported initiatives and the strategic plans of NCMRR, NIDRR, and other funding sources, a science base for secondary conditions is developing.

On another front, the American Association of Health and Disability was established. The mission of this professional and advocacy organization is the prevention of additional health complications and secondary conditions in people with disabilities and the encouragement of health promotion and wellness programs that will assist people with disabilities to attain and maintain a positive health status. This national organization promotes interactions and information sharing among consumers, professionals, and agencies regarding secondary conditions and wellness for individuals with disabilities.

KEY DIMENSIONS OF SECONDARY CONDITIONS

No single seminal article has defined and enumerated secondary conditions. Various definitions and lists of conditions have appeared in articles and book chapters, on websites, and in promotional material (Pope and Tarlov, 1991; Lollar, 1994; Brandt and Pope, 1997; Coyle et al., 2000; U.S. Department of Health and Human Services, 2000; Simeonsson et al., 2002; Traci et al., 2002; Turk and Weber, 2005). Notwithstanding certain differences, these discussions generally specify some common key dimensions, in particular, that a secondary condition

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Front Matter (R1-R16)
Introduction (1-3)
Summary of Workshop Presentations and Discussions (4-38)
Appendix A Workshop Agenda and Participants (39-49)
Appendix B Conceptual Models of Disability: Past, Present, and Future--Gale Whiteneck (50-66)
Appendix C Defining and Classifying Disability in Children--Rune J. Simeonsson (67-87)
Appendix D How Does the Environment Influence Disability? Examining the Evidence--Julie J. Keysor (88-100)
Appendix E Late-Life Disability Trends: An Overview of Current Evidence--Vicki A. Freedman (101-112)
Appendix F Chronic Disease and Trends in Severe Disability in Working-Age Populations--Jay Bhattacharya, Kavita Choudhry, and Darius Lakdawalla (113-142)
Appendix G Trends in Disability in Early Life--Ruth E. K. Stein (143-156)
Appendix H Aspects of Disability Across the Life Span: Risk Factors for Disability in Late Life--Jack M. Guralnik (157-165)
Appendix I Health Care Transition of Adolescents and Young Adults with Disabilities and Special Health Care Needs: New Perspectives--John Reiss and Robert Gibson (166-184)
Appendix J Secondary Conditions and Disability--Margaret A. Turk (185-193)
Appendix K A User’s Perspective on Midlife (Ages 18 to 65) Aging with Disability--June Isaacson Kailes (194-204)
Appendix L Impact of Exercise on Targeted Secondary Conditions--James H. Rimmer and Swati S. Shenoy (205-221)
Appendix M Secondary Conditions with Spinal Cord Injury--William A. Bauman (222-233)
Appendix N Depression as a Secondary Condition in People with Disabilities-Bryan Kemp (234-250)
Appendix O Promoting Health and Preventing Secondary Conditions Among Adults with Developmental Disabilities--Tom Seekins, Meg Traci, Donna Bainbridge, Kathy Humphries, Nancy Cunningham, Rod Brod, and James Sherman (251-264)
Appendix P Biographical Sketches of Workshop Committee and Workshop Presenters (265-276)