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Workshop on Disability in America: A New Look - Summary and Background Papers (2006)
Board on Health Sciences Policy (HSP)

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. "Summary of Workshop Presentations and Discussions." Workshop on Disability in America: A New Look - Summary and Background Papers. Washington, DC: The National Academies Press, 2006.

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Workshop on Disability in america A new look: Summary and background papers

MODELS AND CONCEPTS OF DISABILITY

Presentations

Dr. Gale Whiteneck began with a brief history of models of disability. (The paper prepared by Dr. Whiteneck appears in Appendix B.) He noted in particular the seminal contribution of Saad Nagi in differentiating disability-related outcomes at three levels, namely, the organ, the person, and society. Dr. Whiteneck then focused on an assessment of the transition from the International Classification of Impairments, Disabilities and Handicaps (ICIDH) to the International Classification of Functioning, Disability and Health (ICF), which were published by the World Health Organization (WHO) in 1980 and 2001, respectively (WHO, 1980, 2001). ICF and its associated description offered one major conceptual step forward but also one step backward. Drawing on his experience with the classification revision process, Dr. Whiteneck proposed that several additional steps are needed to revise and apply the model.

The major step forward with ICF was the inclusion of physical, social, and other environmental factors that interact with an individual’s health conditions and other characteristics to produce outcomes, including activity (defined as the execution of a task or action by an individual) and participation (defined as an individual’s involvement in a life situation). This step was consistent with the recommendations of the IOM committees in 1991 and 1997 (IOM, 1991, 1997) and also with the provisions of the Americans with Disabilities Act (ADA; P.L. 101-336), which became law in 1990.

Other improvements in the classification involved the incorporation of neutral as well as negative ways of describing an individual’s status. For example, the ICF model uses the neutral phrase “body function and structure” as well as the term “impairment” and includes the term “activity” as well as “activity limitation.” The revised model also emphasized the complexity of possible interactions among its components (e.g., as shown by the two-way arrows rather than one-way “causal” arrows in the model’s graphic representation).

The step backward with ICF was the blurring of the conceptual distinctions between activity and participation (and between activity limitations and participation restrictions). Rather than identifying certain difficulties as activity limitations and other difficulties as participation restrictions, ICF grouped them together in a single list. Among the many differences between the two concepts, the foremost is that activity (e.g., walking) operates primarily at the person level, whereas participation (e.g., working) operates at the social and societal level. Activities are generally simpler than participation, and participation is more dependent on environmental factors than

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Front Matter (R1-R16)
Introduction (1-3)
Summary of Workshop Presentations and Discussions (4-38)
Appendix A Workshop Agenda and Participants (39-49)
Appendix B Conceptual Models of Disability: Past, Present, and Future--Gale Whiteneck (50-66)
Appendix C Defining and Classifying Disability in Children--Rune J. Simeonsson (67-87)
Appendix D How Does the Environment Influence Disability? Examining the Evidence--Julie J. Keysor (88-100)
Appendix E Late-Life Disability Trends: An Overview of Current Evidence--Vicki A. Freedman (101-112)
Appendix F Chronic Disease and Trends in Severe Disability in Working-Age Populations--Jay Bhattacharya, Kavita Choudhry, and Darius Lakdawalla (113-142)
Appendix G Trends in Disability in Early Life--Ruth E. K. Stein (143-156)
Appendix H Aspects of Disability Across the Life Span: Risk Factors for Disability in Late Life--Jack M. Guralnik (157-165)
Appendix I Health Care Transition of Adolescents and Young Adults with Disabilities and Special Health Care Needs: New Perspectives--John Reiss and Robert Gibson (166-184)
Appendix J Secondary Conditions and Disability--Margaret A. Turk (185-193)
Appendix K A User’s Perspective on Midlife (Ages 18 to 65) Aging with Disability--June Isaacson Kailes (194-204)
Appendix L Impact of Exercise on Targeted Secondary Conditions--James H. Rimmer and Swati S. Shenoy (205-221)
Appendix M Secondary Conditions with Spinal Cord Injury--William A. Bauman (222-233)
Appendix N Depression as a Secondary Condition in People with Disabilities-Bryan Kemp (234-250)
Appendix O Promoting Health and Preventing Secondary Conditions Among Adults with Developmental Disabilities--Tom Seekins, Meg Traci, Donna Bainbridge, Kathy Humphries, Nancy Cunningham, Rod Brod, and James Sherman (251-264)
Appendix P Biographical Sketches of Workshop Committee and Workshop Presenters (265-276)