Appendix D.3
The Passport for Care Improving the Lives of Childhood Cancer Survivors: Development of a Novel Internet Resource for Managing Long-Term Health Risks

David G. Poplack, MD,* Michael Fordis, MD,** Marc E. Horowitz, MD,* Wendy Landier, RN, MSN, CPNP, CPON,+ Melissa M. Hudson, MD,++ Smita Bhatia, MD,+ Kevin C. Oeffinger, MD,# Ann C. Mertens, PhD,## and Quentin W. Smith, MS**

1.
Introduction to the Passport for Care (PFC)

The Institute of Medicine,1 the President’s Cancer Panel,2 and the Centers for Disease Control and Prevention3 have emphasized the importance of periodic evaluation and screening of cancer survivors for late effects of treatment for their cancers. The Children’s Oncology Group (COG) recently released version 2 of a set of comprehensive, evidence-based, long-term follow-up guidelines for health care providers managing childhood cancer survivors.4 While recognizing that the length and depth of the COG guidelines are important in order to provide clinically relevant, evidence-based recommendations and supporting health education materials, clinician time limitations and the effort required to identify the specific recommendations relevant to individual patients using the current paper-based

*

Texas Children’s Cancer Center, Baylor College of Medicine

**

Center for Collaborative and Interactive Technologies, Baylor College of Medicine

+

City of Hope

++

St. Jude Children’s Research Hospital

#

Memorial Sloan-Kettering Cancer Center

##

University of Minnesota Medical School and Cancer Center



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