Physician and Survivor Decision Support Using Information Technology: The Passport for Care,

 

91

   

 Reaction,

 

94

   

 Regional Approaches to Cancer Survivorship Planning,

 

100

5

 

PILOT TESTS AND ASSESSMENT OF THEIR IMPACT

 

107

   

 Introduction,

 

107

   

 LIVESTRONG™ Survivorship Center of Excellence Network,

 

107

   

 Quality Oncology Practice Initiative,

 

112

   

 The HMO Cancer Research Network,

 

114

   

 The Centers for Medicare and Medicaid Service’s 2006 Oncology Demonstration Program,

 

117

   

 An Evaluation and Research Agenda,

 

124

6

 

WRAP-UP SESSION

 

129

 

 

APPENDIXES

 

 

   

 A  Workshop Agenda

 

133

   

 B  Participant Names and Affiliations

 

136

   

 C  Excerpt: From Cancer Patient to Cancer Survivor: Lost in Transition

 

139

   

 D  Commissioned Background Papers

 

143

   

 D.1  The Cancer Treatment Plan and Summary: Re-Engineering the Culture of Documentation to Facilitate High Quality Cancer Care

 

145

   

 D.2  Recommendations for Healthy Behavior and Wellness Following Primary Treatment for Cancer

 

166

   

 D.3  The Passport for Care, Improving the Lives of Childhood Cancer Survivors: Development of a Novel Internet Resource for Managing Long-Term Health Risks

 

206

   

 D.4  Regional Approaches to Cancer Survivorship Care Planning

 

242

   

 D.5  Cancer Survivorship Care Planning: An Evaluation and Research Agenda

 

257

   

 E  Template for “Cancer Survivorship Care Plan” Tested in IOM Focus Groups and Interviews

 

276

   

 F  Treatment Summary Forms Developed by the Children’s Oncology Group (COG)

 

288

   

 G  Memorial Sloan-Kettering Cancer Center Treatment Summary and Follow-Up Plan

 

307



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