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References

Aarnio, M., J. P. Mecklin, L. A. Aaltonen, M. Nystrom-Lahti, and H. J. Jarvinen. 1995. Lifetime risk of different cancers in hereditary non-polyposis colorectal cancer (HNPCC) syndrome. International Journal of Cancer 64(6):430-433.

Blazer, K. R., D. J. MacDonald, C. Ricker, S. Sand, G. C. Uman, and J. N. Weitzel. 2005. Outcomes from intensive training in genetic cancer risk counseling for clinicians. Genetics in Medicine 7(1):40-47.

Botkin, J. R., K. R. Smith, R. T. Croyle, B. J. Baty, J. E. Whlie, D. Cutson, A. Chan, H. A. Hamann, C. Lerman, J. McDonald, V. Venne, J. N. Ward, and E. Lyon. 2003. Genetic testing for a BRCA1 mutation: prophylactic surgery and screening behavior in women 2 years post testing. American Journal of Medical Genetics. A 118(3):201-209.

Charles, S., L. Kessler, J. E. Stopfer, S. Domchek, and C. H. Halbert. 2006. Satisfaction with genetic counseling for BRCA1 and BRCA2 mutations among African-American women. Patient Education and Counseling 63(1-2):196-204.

Claes, E., G. Evers-Kiebooms, M. Decruyenaere, L. Denayer, A. Boogarts, K. Philippe, and E. Legius. 2005. Surveillance behavior and prophylactic surgery after predictive testing for hereditary breast/overian cancer. Behavioral Medicine 31(3):93-105.

Coelho, J. J., A. Arnold, J. Nayler, M. Tishchkowitz, and J. MacKay. 2005. An assessment of the efficacy of cancer genetic counseling using real-time videoconferencing technology (telemedicine) compared to face-to-face consultations. European Journal of Cancer 41(150):2257-2261.

Epplein, M., K. P. Koon, S. D. Ramsey, and J. D. Potter. 2005. Genetic services for familial cancer patients: A follow-up survey of National Cancer Institute Cancer Centers. Journal of Clinical Oncology 23(21):4713-4718.

Erikson, C., E. Salsberg, G. Forte, S. Bruinooge, and M. Goldstein. 2007. Future supply and demand for oncologists: Challenges to assuring access to oncology services. Journal of Oncology Practice 3(2):79-86.



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References Aarnio, M., J. P. Mecklin, L. A. Aaltonen, M. Nystrom-Lahti, and H. J. Jarvinen. 1995. Life- time risk of different cancers in hereditary non-polyposis colorectal cancer (HNPCC) syndrome. International Journal of Cancer 64(6):430-433. Blazer, K. R., D. J. MacDonald, C. Ricker, S. Sand, G. C. Uman, and J. N. Weitzel. 2005. Outcomes from intensive training in genetic cancer risk counseling for clinicians. Genetics in Medicine 7(1):40-47. Botkin, J. R., K. R. Smith, R. T. Croyle, B. J. Baty, J. E. Whlie, D. Cutson, A. Chan, H. A. Hamann, C. Lerman, J. McDonald, V. Venne, J. N. Ward, and E. Lyon. 2003. Genetic testing for a BRCA1 mutation: prophylactic surgery and screening behavior in women 2 years post testing. American Journal of Medical Genetics. A 118(3):201-209. Charles, S., L. Kessler, J. E. Stopfer, S. Domchek, and C. H. Halbert. 2006. Satisfaction with genetic counseling for BRCA1 and BRCA2 mutations among African-American women. Patient Education and Counseling 63(1-2):196-204. Claes, E., G. Evers-Kiebooms, M. Decruyenaere, L. Denayer, A. Boogarts, K. Philippe, and E. Legius. 2005. Surveillance behavior and prophylactic surgery after predictive testing for hereditary breast/overian cancer. Behaioral Medicine 31(3):93-105. Coelho, J. J., A. Arnold, J. Nayler, M. Tishchkowitz, and J. MacKay. 2005. An assessment of the efficacy of cancer genetic counseling using real-time videoconferencing technology (telemedicine) compared to face-to-face consultations. European Journal of Cancer 41(150):2257-2261. Epplein, M., K. P. Koon, S. D. Ramsey, and J. D. Potter. 2005. Genetic services for familial cancer patients: A follow-up survey of National Cancer Institute Cancer Centers. Journal of Clinical Oncology 23(21):4713-4718. Erikson, C., E. Salsberg, G. Forte, S. Bruinooge, and M. Goldstein. 2007. Future supply and demand for oncologists: Challenges to assuring access to oncology services. Journal of Oncology Practice 3(2):79-86. 

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 CANCER-RELATED GENETIC TESTING AND COUNSELING Freedman, A. N., L. Wideroff, L. Olson, W. Davis, C. Klabunde, K. P. Srinath, B. B. Reeve, R. T. Croyle, and R. Ballard-Barbash. 2003. US physicians’ attitudes towards genetic testing for cancer susceptibility. American Journal of Medical Genetics, A 120(1):63-71. Frost, M. H., D. J. Schaid, T. A. Sellers, J. M. Slezak, P. G. Arnold, J. E. Woods, P. M. Petty, J. L. Johnson, D. L. Sitta, S. K. McDonnell, T. A. Rummans, R. B. Jenkins, J. A. Sloan, and L. C. Hartmann. 2000. Long-term satisfaction and psychological and social function following bilateral prophylactic mastectomy. Journal of the American Medical Association 284(3):319-324. Frost, M. H., J. M. Slezak, N. V. Tran, C. I. Williams, J. L. Johnson, J. E. Woods, P. M. Petty, J. H. Donohue, C. S. Grant, J. A. Sloan, T. A. Sellers, and L. C. Hartmann. 2005. Satisfaction after contralateral prophylactic mastectomy: The significance of mastectomy type, reconstructive complications, and body appearance. Journal of Clinical Oncology 23(310):7849-7856. Genetic testing for breast and ovarian cancer susceptibility: Evaluating direct-to-consumer marketing—Atlanta, Denver, Raleigh-Durham, and Seattle, 2003. 2004. Morbidity and Mortality Weekly Report, 53:603-606. Graves, K. D., B. N. Peshkin, C. H. Halbert, T. D. Demarco, C. Isaacs, and M. D. Schwartz. 2006. Predictors and outcomes of contralateral prophylactic mastectomy among breast cancer survivors. Breast Cancer Research and Treatment Oct 26 Epub. http://www. lifestages.com/health/breast.cancer_2006.html (accessed July 27, 2007). Hadley, D. W., J. F. Jenkins, E. Dimond, M. de Carvalho, I. Kirsch, and C. G. Palmer. 2004. Colon cancer screening practices after genetic counseling and testing for hereditary nonpolyposis colorectal cancer. Journal of Clinical Oncology 22(1):39-44. Halbert, C., H. Lynch, J. Lynch, D. Main, S. Kucharski, A. K. Rustgi, and C. Lerman. 2004. Colon cancer screening practices following genetic testing for hereditary nonpolyposis colon cancer (HNPCC) mutations. Archies of Internal Medicine 164(17):1881-1887. Halbert, C., K. Brewster, A. Collier, C. Smith, L. Kessler, B. Weathers, J. E. Stopfer, S. Comchek, and E. P. Wileyto. 2005. Recruiting African American women to participate in hereditary breast cancer research. Journal of Clinical Oncology 23(31):7967-7973. Hudson, K., J. Murphy, D. Kaufman, G. Javitt, S. Katsanis, and J. Scott. 2006. Oversight of U.S. genetic testing laboratories. Nature and Biotechnology 24(9):1083-1090. Hughes, C., S. K. Peterson, A. Ramirez, K. J. Gallion, P. G. McDonald, C. S. Skinner, and D. Bowen. 2004. Minority recruitment in hereditary breast cancer research. Cancer Epidemiology Biomarkers and Preention 13(7):1146-1155. Jarvinen, H. J., J. P. Mecklin, and P. Sistonen. 1995. Screening reduces colorectal cancer rate in families with hereditary nonpolyposis colorectal cancer. Gastroenterology 108(5):1590-1592. Kelly, K. M., and K. Sweet. 2007. In search of a familial cancer risk assessment tool. Clinical Genetics 71(1):76-83. Korf, B. R., G. Feldman, and G. L. Wiesner. 2005. Report of Banbury Summit meeting on training of physicians in medical genetics, October 20-22, 2004. Genetics in Medicine 7(5):433-436. Lehmann, A. 1997. Aspects psychologiques du conseil genetique (Psychological aspects of genetic counseling). In Oncogenetique: ers une medicine de presumption/prediction, edited by J.-Y. Bignon. Cachan, France: Lavoisier. Pp. 383-395.

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