Below are the first 10 and last 10 pages of uncorrected machine-read text (when available) of this chapter, followed by the top 30 algorithmically extracted key phrases from the chapter as a whole.
Intended to provide our own search engines and external engines with highly rich, chapter-representative searchable text on the opening pages of each chapter. Because it is UNCORRECTED material, please consider the following text as a useful but insufficient proxy for the authoritative book pages.
Do not use for reproduction, copying, pasting, or reading; exclusively for search engines.
OCR for page 343
Cancer Care for the Whole Patient: Meeting Psychosocial Health Needs Appendix A Committee Member Biographies Nancy E. Adler, PhD, is professor of psychology, Departments of Psychiatry and Pediatrics, University of California, San Francisco (UCSF), where she is also vice-chair of the Department of Psychiatry, and director of the Center for Health and Community. She received a BA from Wellesley College and a PhD in psychology from Harvard University. After serving as assistant and associate professor at the University of California, Santa Cruz, she went to UCSF to initiate a graduate program in health psychology. She has served as director of that program, a National Institute of Mental Health (NIMH)-sponsored postdoctoral program in Psychology and Medicine: An Integrative Research Approach, and a new postdoctoral Health and Society Scholars Program funded by The Robert Wood Johnson Foundation. Dr. Adler is a fellow of the American Psychological Society and the American Psychological Association (APA). She has served as president of the APA’s Division of Population and Environmental Psychology and received its Superior Service Award. She is a member of the Society for Experimental Social Psychology, the Academy of Behavioral Medicine Research, and the Society for Behavioral Medicine. She has been awarded the UCSF Chancellor’s Award for Advancement of Women; the George Sarlo Prize for Excellence in Teaching; and the Outstanding Contribution to Health Psychology Award from the APA’s Division of Health Psychology. She is a member of the Institute of Medicine (IOM) and was named a national associate of the National Academies. She also serves on the Advisory Committee to the Director of the National Institutes of Health (NIH). Dr. Adler’s earlier research examined the utility of decision models for understanding health behaviors, with a particular focus on reproductive
OCR for page 344
Cancer Care for the Whole Patient: Meeting Psychosocial Health Needs health. Her current work examines the pathways from socioeconomic status to health. As director of the MacArthur Foundation Research Network on Socioeconomic Status and Health, she coordinates research spanning social, psychological, and biological mechanisms by which socioeconomic status influences health. Within the network she has focused on the role of subjective social status in health. Rhonda J. Robinson-Beale, MD, is chief medical officer, Clinical Program Effectiveness and Quality, for United Behavioral Health (UBH). In this position, she manages a staff of clinicians and professionals solely dedicated to quality, clinical program design and implementation, learning and consultation, and behavioral health informatics. She is an experienced behavioral health practitioner with more than 20 years of experience in diverse treatment and research settings who recognizes the value of integrating behavioral, medical, pharmacy, and disability programs to treat the needs of the whole patient. Dr. Robinson-Beale joined the legacy UBH company PacifiCare Behavioral Health in October 2005 as chief medical officer. She assumed her new duties as chief medical officer of UBH during the companies’ brief integration period. Her extensive background includes lead clinical positions at national behavioral and health organizations such as Cigna Behavioral Health, Blue Cross Blue Shield of Michigan, and Health Alliance Plan. During her tenure at Cigna, she was responsible for the organization’s clinical direction, particularly in the area of clinical integration across pharmacy, behavioral, and medical programs. During the past 10 years, Dr. Robinson-Beale has authored more than 17 papers that have informed audiences about behavioral health integration, selected quality initiatives, diagnosis and management of behavioral health conditions in the primary care setting, disease management models, substance abuse and pregnancy, dual diagnosis, and management of psychiatric care for HIV patients. She is a graduate of Wayne State University School of Medicine in Detroit and the University of Michigan, Ann Arbor. Diane S. Blum, MSW, is executive director of CancerCare, Inc., a national nonprofit organization that provides free professional support services, including counseling, education, financial assistance, and practical help, to people with cancer and their loved ones. Prior to joining CancerCare as director of social service, Ms. Blum served as a social work supervisor at the Memorial Sloan-Kettering Cancer Center and the Dana Farber Cancer Institute. Co-founder of the National Alliance of Breast Cancer Organizations, she is a founder of National Breast Cancer Awareness Month and serves as editor-in-chief of People Living with Cancer, the American Society of Clinical Oncology’s (ASCO) website for patients and the public. Additionally, she serves on committees of the IOM, ASCO, and the National Association of Social Work and is a member of the editorial boards of five oncology-
OCR for page 345
Cancer Care for the Whole Patient: Meeting Psychosocial Health Needs related publications. Ms. Blum’s awards include the Lifetime Achievement Award from the Board of Sponsors of National Breast Cancer Awareness Month, the Special Recognition Award from the National Coalition for Cancer Survivorship, the Republic Bank Breast Cancer Research Foundation Award, and the Special Recognition Award of the American Society of Clinical Oncology. Ms. Blum has written and lectured extensively on the psychosocial needs of cancer patients and their families. Her research has been published in a variety of medical journals, including the American Journal of Hospice and Palliative Care, the Journal of Psychosocial Oncology, the Journal of Pain and Symptom Management, and the Annals of Internal Medicine. She received a bachelor’s degree from the University of Rochester and a master’s degree from the School of Social Welfare at the State University of New York, Buffalo. Patricia A. Ganz, MD, a medical oncologist, received her BA magna cum laude from Radcliffe College (Harvard University) in 1969 and her MD from the University of California, Los Angeles (UCLA) in 1973. She subsequently completed her training in internal medicine and hematology-oncology at UCLA Medical Center, where she also served as chief resident in medicine. She has been a member of the faculty of the UCLA School of Medicine since 1978 and the UCLA School of Public Health since 1992. Since 1993 she has been director of the Division of Cancer Prevention and Control Research at the Jonsson Comprehensive Cancer Center. In 1999 she was awarded an American Cancer Society Clinical Research Professorship for “enhancing patient outcomes across the cancer control continuum.” In 2006 she was awarded funding to lead UCLA’s Cancer Survivorship Center of Excellence as part of the LIVESTRONG™ Survivorship Center of Excel lence Network. Dr. Ganz is a pioneer in the assessment of quality of life in cancer patients and is active in clinical trials research with the National Surgical Adjuvant Breast and Bowel Project. She has focused many of her clinical and research efforts in the areas of breast cancer and its prevention, and was a member of the National Cancer Institute’s (NCI) Progress Review Group on Breast Cancer. At the Jonsson Cancer Center, she directs the UCLA Family Cancer Registry and Genetic Evaluation Program. Her other major areas of research include cancer survivorship and late effects of cancer treatment, cancer in the elderly, and quality of care for cancer patients. She is an associate editor for the Journal of Clinical Oncology, the Journal of the National Cancer Institute, and CA-A Journal for Clinicians. She currently serves on the NCI Board of Scientific Advisors and recently completed a term on the Board of Directors of ASCO. Sherry Glied, PhD, is professor and chair of the Department of Health Policy and Management of Columbia University’s Mailman School of Public Health. She holds a BA in economics from Yale University, an MA in
OCR for page 346
Cancer Care for the Whole Patient: Meeting Psychosocial Health Needs economics from the University of Toronto, and a PhD in economics from Harvard University. In 1992–1993, she served as a senior economist for health care and labor market policy to the President’s Council of Economic Advisers under Presidents Bush and Clinton. She was a participant in President Clinton’s Health Care Task Force and headed working groups on global budgets and on the economic impacts of the health plan. Her research on health policy has focused on the financing of health care services in the United States. She is the author of recently published articles and reports on women’s health insurance, expansions of children’s health insurance, Medicaid managed care, and the role of insurance in hospital care. Dr. Glied is past recipient of a Robert Wood Johnson Investigator Award, through which she has been studying the U.S. employer-based health insurance system. Her work in mental health policy has focused on the problems of women and children. She is a member of the MacArthur Foundation’s Network on Mental Health Policy, the IOM, the board of AcademyHealth, and the National Academy of Social Insurance and a research associate of the National Bureau of Economic Research. In 2004 Professor Glied served as chair of the AcademyHealth Annual Research Meeting. She was the 2004 winner of Research!America’s Eugene Garfield Economic Impact of Health Research Award. She is a senior associate editor of Health Services Research; an associate editor of the Journal of Health Politics, Policy, and Law; a member of the editorial board of the Milbank Quarterly; and a member of the editorial committee of the Annual Review of Public Health. Jessie Gruman, PhD, is founder and president of the Center for the Advancement of Health, an independent, nonpartisan Washington-based policy institute funded by the John D. and Catherine T. MacArthur Foundation; the Annenberg Foundation; and others, including the W. K. Kellogg Foundation and the Atlantic Philanthropies. Since it was established in 1992, the Center has worked to ensure that people are able to meet the demands placed on them by health information that is increasingly complex, health professionals who are increasingly specialized and pressed for time, and health care that is increasingly brilliant but chaotic. Dr. Gruman has worked on this same set of concerns in the private sector (AT&T), the public sector (National Institutes of Health), and the voluntary health sector (American Cancer Society). She received her undergraduate degree from Vassar College and her PhD in social psychology from Columbia University. She is a professorial lecturer in the School of Public Health at The George Washington University and serves on the boards of trustees of the Advisory Panel on Medicare Education of the U.S. Department of Health and Human Services, the Public Health Institute, the Sallan Foundation, and the Center for Information Therapy, among others. Dr. Gruman is a fellow of
OCR for page 347
Cancer Care for the Whole Patient: Meeting Psychosocial Health Needs the Society of Behavioral Medicine and has received the Society’s awards for distinguished service and Leadership in Translation of Research to Practice. She was recognized for outstanding service by the APA and was honored by Research!America for her leadership in advocacy for health research. She is the recipient of an honorary doctorate in public policy from Carnegie Mellon University and the Presidential Medal of The George Washington University. She served as executive in residence at Vassar College, serves on the editorial board of The Annals of Family Medicine, and is a member of the APA, the Association for Psychological Science, and the Council on Foreign Relations. Dr. Gruman is the author of numerous articles and essays published in scholarly journals and public media. Her book for the general public, After Shock: What to Do When the Doctor Gives You—or Someone You Love—a Devastating Diagnosis (Walker Publishing, 2007), is about how people use scientific information to make decisions about their health care. Michael Hoge, PhD, is professor of psychology in the Psychiatry Department of the Yale University School of Medicine and director of Yale Behavioral Health. He is past chair of the Behavioral Health Professional and Technical Advisory Committee of the Joint Commission on Accreditation of Healthcare Organizations and recipient of the 2001 Moffic Award for Ethical Practice in Public Sector Managed Behavioral Healthcare. Dr. Hoge is an expert in workforce development in behavioral health. He is a founding member of The Annapolis Coalition on the Behavioral Health Workforce, which initiated a national, interprofessional effort to improve the recruitment, retention, and training of individuals who provide prevention and treatment services for persons with mental illnesses and substance use disorders. He is also senior editor of the recently released National Action Plan on Behavioral Health Workforce Development, which was commissioned by the federal Substance Abuse and Mental Health Services Administration. Dr. Hoge has consulted on behavioral health workforce issues for the President’s New Freedom Commission on Mental Health, the IOM’s Committee on Crossing the Quality Chasm: Adaptation to Mental Health and Addictive Disorders, and multiple states and organizations. He is senior editor of three special journal issues on workforce development in behavioral health and author of numerous peer-reviewed articles on this topic. Jimmie C. Holland, MD, is attending psychiatrist and holder of the Wayne E. Chapman Chair in Psychiatric Oncology at the Memorial Sloan-Kettering Cancer Center, and professor of psychiatry at Weill Medical College of Cornell University. She is recognized internationally as the founder of the subspecialty of psycho-oncology. Starting in the mid-1970s, she conducted some of the first epidemiological studies related to the prevalence and
OCR for page 348
Cancer Care for the Whole Patient: Meeting Psychosocial Health Needs nature of psychological problems in patients with cancer. In 1977, she established the first Psycho-Oncology Committee as part of the NCI clinical trials group Cancer and Leukemia Group B, serving as chair through 2001. She was founding president of the International Psycho-Oncology Society (1984) and of the American Psychosocial Oncology Society (1986). Dr. Holland was senior editor of the first textbook in psycho-oncology, The Handbook of Psychooncology (1989), and of a second text, PsychoOncology (1998), both published by Oxford University Press. Similarly, she started the first international journal in the field, Psycho-Oncology, in 1992, and continues as its co-editor. Dr. Holland and Sheldon Lewis co-authored a book aimed at helping patients and their families cope with cancer—The Human Side of Cancer, published in 2000 by HarperCollins. As chair of the National Comprehensive Cancer Network’s Panel on Management of Distress, Dr. Holland has worked since the Panel’s inception in 1997 to promulgate the first clinical practice guidelines for psychosocial care in cancer. The IOM elected her as a member in 1995, and she served on its National Cancer Policy Board. In 2000, she received the American Psychiatric Association’s Presidential Commendation. The American Cancer Society (ACS) awarded her its Medal of Honor for Clinical Research in 1994, as well as the ASCO/ACS Lecture and Award in 2003. The 13th Claude Jacquillat Award for Clinical Cancer Research was presented to her in Paris in 2005. In April 2005, the Joseph Burchenal Award for Clinical Research was granted to Dr. Holland by the American Association for Cancer Research. Melissa M. Hudson, MD, is a full member of the Department of Oncology at St. Jude Children’s Research Hospital. She earned her MD from the University of Texas Medical School in Houston in 1983. She completed a pediatric residency at the University of Texas and then pursued pediatric hematology-oncology fellowship training at the M. D. Anderson Cancer Center. Dr. Hudson joined the St. Jude faculty in 1989. She is currently a member of the Leukemia/Lymphoma Division in the Department of Hematology Oncology. She has been principal investigator of St. Jude pediatric Hodgkin’s trials for the past 15 years. These trials have evaluated risk-adapted, response-based combined modality therapy regimens designed to reduce organ dysfunction and subsequent malignancies in long-term survivors. In 1993 Dr. Hudson became director of the After Completion of Therapy Clinic, which supervises the care of more than 5,000 long-term childhood cancer survivors treated in St. Jude trials. She has published widely on her research initiatives in pediatric Hodgkin’s disease, late treatment sequelae after childhood cancer, and health education of childhood cancer survivors. She is vice-chair of the Children’s Oncology Group Late Effects Steering Committee and co-chair of the Children’s Oncology Group Long-Term Follow-Up Guidelines for Survivors of Childhood, Adolescent
OCR for page 349
Cancer Care for the Whole Patient: Meeting Psychosocial Health Needs and Young Adult Cancer. She also serves as pediatric section editor of the journal Cancer and on the editorial board of Pediatric Blood and Cancer and ASCO News & Forum. Sherrie Kaplan, PhD, is associate dean for the School of Medicine, professor of medicine and executive director, Center for Health Policy Research, University of California, Irvine (UCI). She came to UCI from Tufts University School of Medicine and the Harvard School of Public Health, where she received the outstanding professor award for multiple consecutive years. Dr. Kaplan received her undergraduate, MPH, MSPH, and PhD from the University of California, Los Angeles, the latter in a joint program between public health and measurement psychology. One of the eminent social scientists in medicine, she is currently professor of medicine at the UCI School of Medicine. In her distinguished academic career, Dr. Kaplan has pioneered a number of areas of research. She has done ground-breaking research demonstrating that patients can be taught to participate effectively in medical decisions, with positive effects on their health outcomes. Her work on the application of psychometric techniques to assessment of the performance of varying levels of the health care system, from health care organizations to individual physicians, has made her a national expert on this current and controversial topic. Well known for her work in the development of measures of the quality of technical and interpersonal care, health status, and quality of life, particularly for vulnerable populations, she is now working on an innovative project among minority populations using community-based minority “coaches” to train patients to participate effectively in chronic disease care, and is developing and modifying measures for assessing the project’s impact on quality of care and quality of life. Alicia K. Matthews, PhD, is a clinical psychologist and associate professor in the Department of Public Health, Mental Health, and Administrative Nursing at the University of Illinois at Chicago. Her primary research interests are in cancer prevention and control, psychosocial adjustment to illness, and identification of the sociocultural predictors of mental and physical health outcomes in African American and other underserved populations. She has conducted funded research studies examining information seeking and treatment decision making among newly diagnosed African American cancer patients, factors associated with quality of life in lesbian women with breast cancer, prevalence and predictors of anxiety among survivors of breast cancer, evaluation of a education program on breast and cervical cancer education targeting African American lesbian and bisexual women, and mental illness stigma in members of the African American community. Ruth McCorkle, PhD, has over 28 years of experience in cancer control and
OCR for page 350
Cancer Care for the Whole Patient: Meeting Psychosocial Health Needs psychosocial oncology research. She is a national and international leader in cancer nursing and education and cancer control research. She was the first research chair of the Oncology Nursing Society, and is a charter member of the Oncology Nursing Society, the International Society of Nurses in Cancer Care, and the American Psychosocial Oncology Society. She has served on the board of directors of all three organizations and is currently president of the latter. Dr. McCorkle has served as a member of the study sections of the National Cancer Institute and the National Institute of Nursing Research. She was on the Board of Scientific Advisors for NCI and is currently on the External Scientific Advisory Board of the Children’s Oncology Group. In the early 1980s, she obtained the first nonmedical NCI Institutional Research Training Grant and opened the door for other nonmedical fields to become competitive in securing funding. She was elected to the American Academy of Nursing in 1970 and the IOM in 1990 and recently served on the committee to review NIH centers. Dr. McCorkle is Florence S. Wald Professor of Nursing and has twice been designated an American Cancer Society Professor (1986–1991, 1992–1996). She is director of Yale’s Center for Excellence in Chronic Illness Care and was chair of the School of Nursing’s doctoral program from 1998 to 2004. Dr. McCorkle has won numerous awards recognizing her outstanding contributions to nursing science and oncology nursing. She has done landmark research on the psychosocial ramifications of cancer, testing the effects of a specialized nursing intervention program on helping patients and caregivers manage the consequences of cancer and its treatment, enhancing their quality of life, and improving their survival. In 1988, she received the Outstanding Research Award from the Pennsylvania Nurses Association. She was recognized again in 1993 as Nurse Scientist of the Year by the American Nurses Association and in 1994 received the Distinguished Research Award from the Oncology Nursing Society. In 2004, she was elected to the Connecticut Academy of Science and Engineering. Most recently, she was awarded the Distinguished Scholar in Nursing by the College of Nursing, New York University. Harold Alan Pincus, MD, is vice chair of the Department of Psychiatry and associate director of the Irving Institute for Clinical and Translational Research at Columbia University and director of Quality and Outcomes Research at New York-Presbyterian Hospital. He also serves as senior scientist at the RAND Corporation. Previously, he was director of RAND-University of Pittsburgh Health Institute and executive vice chairman of the Department of Psychiatry at the University of Pittsburgh, where he still maintains an adjunct professorship. He is director of The Robert Wood Johnson Foundation’s National Program on Depression in Primary Care: Linking Clinical and Systems Strategies and the Hartford Foundation’s National Program on Building Interdisciplinary Geriatric Research Centers.
OCR for page 351
Cancer Care for the Whole Patient: Meeting Psychosocial Health Needs Dr. Pincus has also served as deputy medical director of the American Psychiatric Association and founding director of its Office of Research, and as executive director of the American Psychiatric Institute for Research and Education. Prior to joining the American Psychiatric Association, he was special assistant to the director of the National Institute of Mental Health. Dr. Pincus has had a particular research interest in the practice of evidence-based medicine; quality improvement; and the relationships among general medicine, mental health, and substance abuse, developing and empirically testing models of those relationships. He currently maintains a small private practice specializing in major affective disorders and has spent one evening a week for 22 years at a public mental health clinic, caring for patients with severe mental illness. Dr. Pincus graduated from the University of Pennsylvania and received his medical degree from Albert Einstein College of Medicine in New York. Lee S. Schwartzberg, MD, FACP, is a senior partner and medical director at the West Clinic, a 29-physician oncology, hematology, and radiology practice in Memphis, Tennessee. He received fellowship training in medical oncology and hematology at the Memorial Sloan-Kettering Cancer Center, where he also served as chief medical resident and was a founding member of the institutional ethics committee. Dr. Schwartzberg is a clinical professor of medicine at the University of Tennessee College of Medicine. He is founder and medical director for the Baptist Centers for Cancer Care Cancer Genetics Program and the Stem Cell Transplant Program. He also serves as chair of the Baptist Comprehensive Breast Center multidisciplinary program. His major research interests are new therapeutic approaches to breast cancer, targeted therapy, and supportive care. Dr. Schwartzberg was principal investigator for the Baptist Cancer Institute Community Clinical Oncology Program from 1995 to 2000. Since then he has focused his research interests as president of the Accelerated Community Oncology Research Network (ACORN). Dr. Schwartzberg was awarded the 2004 Jefferson Award for community service. He is founding editor-in-chief of the journal Community Oncology and serves on the editorial board of the Journal of Supportive Oncology. He has authored more than 60 research papers and maintains a private practice in medical oncology. Edward H. Wagner, MD, MPH, FACP, is a general internist/epidemiologist and director of the MacColl Institute for Healthcare Innovation at the Center for Health Studies (CHS) Group Health Cooperative. His research and quality improvement work focus on improving the care of seniors and others with chronic illness. Since 1998, he has directed Improving Chronic Illness Care, a national program of The Robert Wood Johnson Foundation. He and his MacColl Institute colleagues developed the Chronic Care
OCR for page 352
Cancer Care for the Whole Patient: Meeting Psychosocial Health Needs Model, which has now been used in quality improvement programs worldwide. He also is principal investigator of the Cancer Research Network, an NCI-funded cancer research consortium of 13 HMO-based research programs. He has written two books and more than 250 publications. He serves on the editorial boards of Health Services Research, the British Medical Journal, the Journal of Cancer Survivorship, and the Journal of Clinical Epidemiology. Terrie Wetle, PhD, is associate dean of medicine for public health and public policy at Brown Medical School and is professor of community health. She was most recently deputy director, National Institute on Aging at NIH. Formerly, she was director for the Braceland Center for Mental Health and Aging at the Institute of Living and associate professor of community medicine and health care, University of Connecticut Health Center School of Medicine. She is former associate director of the Division on Aging and assistant professor of medicine at Harvard Medical School. At Yale, she was director of the Program in Long Term Care Administration and assistant professor of epidemiology and public health. She previously worked in federal government as a social policy analyst for the Administration on Aging, Department of Health and Human Services, and in local government as director of an area agency on aging in Portland, Oregon. She is past president of the Gerontological Society of America and is currently president of the American Federation for Aging Research. Her research interests include social gerontology, the organization and financing of health care, ethical issues in geriatric care and public health, and end-of-life care. She has more than 200 scientific publications and serves on the editorial boards of several journals. Her most recent edited books are Financing Long Term Care: The Integration of Public and Private Roles and Improving Aging and Public Health Research: Qualitative and Mixed Methods.