Patient Education and Illness Self-Management

Living Beyond Cancer: Finding a New Balance (President’s Cancer Panel, 2004)

Recommendation 2 Procedures should be established within diverse patient care settings to better inform patients/survivors and their caregivers about available legal and regulatory protections and resources [e.g., pertaining to employment and insurance.].

Recommendation 5a All survivors should be counseled about common psychosocial effects of cancer and cancer treatment and provided specific referrals to available support groups and services.

Clinical Practice Guidelines for the Psychosocial Care of Adults with Cancer (National Breast Cancer Centre and National Cancer Control Initiative, 2003)

Clinic-based protocols should be developed to ensure the following goals:

  • Copies of evidence-based information about treatment options are provided to all patients.

  • Listings of other information resources which may be of value are provided to all patients.

Achieving the Promise: Transforming Mental Health Care in America (New Freedom Commission on Mental Health, 2003)

Recommendation 2.5 Protect and enhance the rights of people with mental illness.

Meeting Psychosocial Needs of Women with Breast Cancer (IOM and NRC, 2004)

The National Cancer Institute (NCI), the American Cancer Society (ACS), and professional organizations (e.g., American Society of Clinical Oncology, American College of Surgeons, American Association of Colleges of Nursing, American Psychosocial Oncology Society, American Society of Social Work, American Society for Therapeutic Radiology and Oncology, Oncology Nursing Society) need to partner with advocacy groups (e.g., National Breast Cancer Coalition, National Alliance of Breast Cancer Organizations, Wellness Community, National Coalition Cancer Survivorship [NCCS]) to focus attention on psychosocial needs of patients and resources that provide psychosocial services in local communities and nationally.

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