Goodby, Alex W., Olsen, LeighAnne, McGinnis, Michael. "Appendix A: Workshop Agenda." Clinical Data as the Basic Staple of Health Learning: Creating and Protecting a Public Good: Workshop Summary. Washington, DC: The National Academies Press, 2010.
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Clinical Data as the Basic Staple of Health Learning: Creating and Protecting a Public Good - Workshop Summary
Even clinical research and medical care data developed with public funds are often not available for broader analysis and insights.
Broader access and use of healthcare data for new insights requires not only fostering data system reliability and interoperability, but addressing the matter of individual data ownership and the extent to which data central to progress in health and health care should constitute a public good.
Goal: To explore these issues, identify potential approaches, and discuss possible strategies for their engagement.
DAY ONE
8:30
WELCOME ANDOPENINGREMARKS
J. Michael McGinnis, Institute of Medicine
8:45
CLINICALDATA AS THEBASICSTAPLE OF THELEARNINGHEALTHCARESYSTEM
What is the current profile of our clinical data “utility”? What might be possible if all data sources could be readily and reliably drawn upon for new insights into healthcare effectiveness? What specific key steps would foster achieving this vision?
David J. Brailer, Health Evolution Partners
9:30
SESSION1: U.S. HEALTHCAREDATATODAY: CURRENTSTATE OFPLAY
What purposes drive the collection of healthcare data in the United States and what is the system’s current profile? How accessible are clinical data for new clinical insights, how well are they used, and what are the barriers? How might clinical data from all sources—publicly funded and privately funded—be made more useful to monitor clinical effectiveness?
Chair: Cato T. Laurencin, University of Virginia and IOM Roundtable on Value & Science-Driven Health Care
• Current healthcare data profile
Simon P. Cohn, Kaiser Permanente and National Committee onVital and Health Statistics
• Data used as indicators for assessing, managing, and improvinghealth care
Barbra G. Rabson, Massachusetts Health Quality Partners
