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Clinical Data as the Basic Staple of Health Learning: Creating and Protecting a Public Good: Workshop Summary (2010)
Roundtable on Value & Science-Driven Health Care (VSRT)

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Goodby, Alex W., Olsen, LeighAnne, McGinnis, Michael. "Appendix A: Workshop Agenda." Clinical Data as the Basic Staple of Health Learning: Creating and Protecting a Public Good: Workshop Summary. Washington, DC: The National Academies Press, 2010.

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Clinical Data as the Basic Staple of Health Learning: Creating and Protecting a Public Good - Workshop Summary

 

• Organizational models

 

Mark B. McClellan, The Brookings Institution

 

• Building on collaborative models

 

Chris B. Forrest, Children’s Hospital of Philadelphia

 

• Technical and operational challenges

 

Brian J. Kelly, Accenture

 

• Economic incentives

 

C. Eugene Steuerle, Urban Institute

 

Panel discussion to follow

2:45

SESSION 7: ENGAGING THE PUBLIC

What are current public views on using clinical care data for research? In what types of information are patients interested, and how might this influence how they respond to potential uses of health information? What are the needed advances (technical, communication, demonstration of value) that might help address the concerns of healthcare consumers?

Chair: Donald M. Steinwachs, Johns Hopkins University and IOM Roundtable on Value & Science-Driven Health Care

 

• Generating public interest in a public good

 

Alison Rein, AcademyHealth

 

• Implications of “patients like me” databases

 

Courtney Hudson, EmergingMed

 

• Implications of personal health records

 

Jim Karkanias, Microsoft

 

Panel discussion to follow

4:15

CONCLUDING SUMMARY REMARKS AND ADJOURNMENT

J. Michael McGinnis, Institute of Medicine

PLANNING COMMITTEE:

David Blumenthal, Massachusetts General Hospital, Harvard University

Marc Boutin, National Health Council

Mary Durham, Kaiser Foundation Hospitals

Lynn Etheredge, George Washington University

George Isham, HealthPartners Inc.

Peter Juhn, Johnson & Johnson

Alexander Walker, Harvard School of Public Health, Harvard University

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