Goodby, Alex W., Olsen, LeighAnne, McGinnis, Michael. "Appendix A: Workshop Agenda." Clinical Data as the Basic Staple of Health Learning: Creating and Protecting a Public Good: Workshop Summary. Washington, DC: The National Academies Press, 2010.
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Clinical Data as the Basic Staple of Health Learning: Creating and Protecting a Public Good - Workshop Summary
• Organizational models
Mark B. McClellan, The Brookings Institution
• Building on collaborative models
Chris B. Forrest, Children’s Hospital of Philadelphia
• Technical and operational challenges
Brian J. Kelly, Accenture
• Economic incentives
C. Eugene Steuerle, Urban Institute
Panel discussion to follow
2:45
SESSION7: ENGAGING THEPUBLIC
What are current public views on using clinical care data for research? In what types of information are patients interested, and how might this influence how they respond to potential uses of health information? What are the needed advances (technical, communication, demonstration of value) that might help address the concerns of healthcare consumers?
Chair: Donald M. Steinwachs, Johns Hopkins University and IOMRoundtable on Value & Science-Driven Health Care
• Generating public interest in a public good
Alison Rein, AcademyHealth
• Implications of “patients like me” databases
Courtney Hudson, EmergingMed
• Implications of personal health records
Jim Karkanias, Microsoft
Panel discussion to follow
4:15
CONCLUDINGSUMMARYREMARKS ANDADJOURNMENT
J. Michael McGinnis, Institute of Medicine
PLANNING COMMITTEE:
David Blumenthal, Massachusetts General Hospital, Harvard University
Marc Boutin, National Health Council
Mary Durham, Kaiser Foundation Hospitals
Lynn Etheredge, George Washington University
George Isham, HealthPartners Inc.
Peter Juhn, Johnson & Johnson
Alexander Walker, Harvard School of Public Health, Harvard University