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PAPERBACK price:$68.75 add to cart Rights & Permissions Free PDF Access Sign in to download PDF book and chapters Free Resources PDF SUMMARY Display this book on your site! Related Titles Digital Infrastructure for the Learning Health System: The Foundation for Continuous Improvement in Health and Health Care: Workshop Series Summary Patients Charting the Course: Citizen Engagement in the Learning Health System: Workshop Summary Other Related Titles Clinical Data as the Basic Staple of Health Learning: Creating and Protecting a Public Good: Workshop Summary (2010) Roundtable on Value & Science-Driven Health Care (VSRT) Citation Manager Export the bibliographic data for this book in your chosen format Web Search Builder Use this book's key terms to search within this book, across our collection, or across the Web. Skim This Chapter Skim this chapter and use this chapter's key terms to search within this book. Reference Finder Paste in your own text to find books that relate to your topic. Citation Manager Goodby, Alex W., Olsen, LeighAnne, McGinnis, Michael. "Appendix C: Workshop Attendee List." Clinical Data as the Basic Staple of Health Learning: Creating and Protecting a Public Good: Workshop Summary. Washington, DC: The National Academies Press, 2010. Please select a format: Page 299   E-mail Share on facebook Facebook Share on delicious Delicious Share on stumbleupon Stumble Share on twitter Twitter More Sharing ServicesMore The following HTML text is provided to enhance online readability. Many aspects of typography translate only awkwardly to HTML. Please use the page image as the authoritative form to ensure accuracy. Appendix C Workshop Attendee List Patricia Adams National Pharmaceutical Council Charles Alston Manning Selvage & Lee Margaret Anderson FasterCures Jill Arent Wyeth Pharmaceuticals Grant Bagley American Acadamy of Pharmaceutical Physicians Richard A. Bankowitz Premier Inc. Michael Banyas NIH—Clinical Center Dennis J. Barbour Society for Investigative Dermatology Galen Barbour Uniformed Services University Mercedes Barrs Amylin Pharmaceuticals, Inc. Eric Bass Rachel Behrman Food and Drug Administration Rami Ben-Joseph sanofi-aventis Mark Benton Milbank Memorial Fund Stefano Bertuzzi National Institutes of Health, Office of the Director Aman Bhandari Centers for Medicare & Medicaid Services Page 299 Front Matter (R1-R22) Summary (1-42) 1 Clinical Data as the Basic Staple of the Learning Health System (43-68) 2 U.S. Healthcare Data Today: Current State of Play (69-108) 3 Changing the Terms: Data System Transformation in Progress (109-136) 4 Healthcare Data: Public Good or Private Property? (137-170) 5 Healthcare Data as a Public Good: Privacy and Security (171-202) 6 Creating a Next-Generation Data Utility: Building Blocks and the Action Agenda (203-230) 7 Engaging the Public (231-248) 8 Clinical Data as the Basic Staple of Health Learning: Ideas for Action (249-268) Appendixes (269-270) Appendix A: Workshop Agenda (271-276) Appendix B: Biographical Sketches of Workshop Participants (277-298) Appendix C: Workshop Attendee List (299-310) Appendix D: The IOM Committee on Health Research and the Privacy of Health Information: The HIPAA Privacy Rule (311-315) Other Publications in the Learning Healthcare System Series (316-316)

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OCR for page 299
Clinical Data as the Basic Staple of Health Learning: Creating and Protecting a Public Good - Workshop Summary Appendix C Workshop Attendee List Patricia Adams National Pharmaceutical Council Charles Alston Manning Selvage & Lee Margaret Anderson FasterCures Jill Arent Wyeth Pharmaceuticals Grant Bagley American Acadamy of Pharmaceutical Physicians Richard A. Bankowitz Premier Inc. Michael Banyas NIH—Clinical Center Dennis J. Barbour Society for Investigative Dermatology Galen Barbour Uniformed Services University Mercedes Barrs Amylin Pharmaceuticals, Inc. Eric Bass Rachel Behrman Food and Drug Administration Rami Ben-Joseph sanofi-aventis Mark Benton Milbank Memorial Fund Stefano Bertuzzi National Institutes of Health, Office of the Director Aman Bhandari Centers for Medicare & Medicaid Services

OCR for page 300
Clinical Data as the Basic Staple of Health Learning: Creating and Protecting a Public Good - Workshop Summary Shawn Bishop U.S. Senate Finance Committee Cate Blankenburg American Osteopathic Association Rachel Block New York eHealth Collaborative Meryl Bloomrosen American Medical Informatics Association David Blumenthal Office of the National Coordinator for Health IT Marilyn Sue Bogner Institute for the Study of Human Error, LLC Kathy Bowles School of Nursing David Brailer Health Evolution Partners Brad Brimhall TriCore Reference Laboratories Robert Brown Tri-Service Infrastructure Management Program Office, Military Health System Robert Browne Eli Lilly and Company Lynda Bryant-Comstock GlaxoSmithKline Laird Burnett Kaiser Permanente Eric Caplan United Biosource Company Tony Cardinelli TRICARE Linda Carter Johnson & Johnson Margaret Cary Veterans Health Administration Alan Cash Armed Forces Institute of Pathology Kee Chan Boston University John Chelen Hampshire Research Institute Kate Cherry Georgetown University Peter Cizmadia KSJ & Associates John Clarke Drexel University Anni Coden IBM Andrew Cohen AGC & Associates Perry D. Cohen Parkinson Pipeline Project Simon Cohn The Permanente Federation

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Clinical Data as the Basic Staple of Health Learning: Creating and Protecting a Public Good - Workshop Summary Elaine Collier National Center for Research Resources William Crown i3 Innovus Frederick Curro New York University Kirstin Dawson America’s Health Insurance Plans James DeMaioribus Johnson & Johnson Anuj Desai Johnson & Johnson Health Care Systems Emily DeVoto National Breast Cancer Coalition Fund Christopher Dezii Bristol-Myers Squibb Company Carol Diamond Markle Foundation Dave Domann Johnson & Johnson Joyce Dubow AARP Office of Policy and Strategy Lammot DuPont Manatt Health Solutions Ria Eapen National Consumers League Jennifer Eaton Health Resources and Services Administration Shahram Ebadollahi IBM Brenda Ecken Booz Allen Hamilton Jill Eden Institute of Medicine Alfred Engelberg The Engelberg Foundation Alexander Eremia MedStar Health, Inc. Lynn Etheredge George Washington University Rebecca Etz Robert Wood Johnson Medical School Mary Evans National Institutes of Health Jim Fackler Johns Hopkins University School of Medicine Nancy Featherstone AstraZeneca Pharmaceuticals, LLP Laurie Feinberg HHS/OS/ASPE/HP Shelley Fichtner Pharmaceutical Research and Manufacturers of America

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Clinical Data as the Basic Staple of Health Learning: Creating and Protecting a Public Good - Workshop Summary Rosemarie Filart National Institutes of Health Steven Findlay Consumers Union Jack Fitzgibbons CarePath, Inc. Ila Flannigan Georgetown University Steve Flowers IMS Health Mona Floyd Research!America Raymond Formanek, Jr. Food and Drug Administration Christopher Forrest The Children’s Hospital of Philadelphia Renee Fox Robert Wood Johnson Health Policy Steven Fox Agency for Healthcare Research and Quality Susan Friedman American Osteopathic Association Richard Fry Foundation for Managed Care Pharmacy Vicki Fung Kaiser Allison Garcimonde Manatt Health Solutions Steven Garfinkel American Institutes for Research Jennifer Garvin Philadelphia Veterans Affairs Medical Center Reed Gelzer Advocates for Documentation Integrity and Compliance Misrak Gezmu National Institute of Allergy and Infectious Diseases Mark Gorman National Coalition for Cancer Survivorship Gail Graham Department of Veterans Affairs, Veterans Health Administration Tina Grande Healthcare Leadership Council Linda Greenberg Agency for Healthcare Research and Quality Mary Greene Booz Allen Hamilton Ghanshyam Gupta Division of Biostatistics, CBER, Food and Drug Administration

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Clinical Data as the Basic Staple of Health Learning: Creating and Protecting a Public Good - Workshop Summary Kara Haas Johnson & Johnson Mary Hager American Dietetic Association Michael Halpern American Cancer Society Carolyn Hamm Walter Reed Army Medical Center Michael Handrigan Agency for Healthcare Research and Quality Anthony Hayward National Center for Research Resources John Hedstrom The Society of Thoracic Surgeons Janet Heinrich Health Policy R&D Robin Hertz Pfizer, Inc. Kathleen Hewitt The American College of Cardiology Laura Hoffmeister CMS Carmen Hooker Odom Milbank Memorial Fund Robert N. Hotchkiss Hospital for Special Surgery Han-Yao Huang Merck Courtney Hudson EmergingMed Susan Ingargiola Manatt Health Solutions Andrea Inserra Booz Allen Hamilton Belinda Ireland BJC HealthCare Sarah Johnson Georgetown University Anne Jones American Association of Colleges of Osteopathic Medicine Peter Juhn Johnson & Johnson Scott Kahan Johns Hopkins School of Public Health Jim Karkanias Microsoft Elisabeth Kato Hayes, Inc. Marcia Kean Feinstein Kean Healthcare Brian Kelly Accenture Neil Kirschner American College of Physicians

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Clinical Data as the Basic Staple of Health Learning: Creating and Protecting a Public Good - Workshop Summary Ronald Klar Health Services Analysis, Inc. Steven Krosnick National Cancer Institute Philip Kroth University of New Mexico Cara Krulewitch Food and Drug Administration Christian Kulak Harris Interactive Patricia Kurtz The Joint Commission Arnold Kuzmack Food and Drug Administration Pierre-André La Chance Kaiser Permanente Center for Health Research Mollie Lane Senate Finance Committee John Larney CarePath, Inc. Jeanne Larsen Georgetown University Medical Center Michael Lauer National Heart, Lung, and Blood Institute Cato Laurencin University of Virginia Martha Lee Food and Drug Administration Teresa Lee Advanced Medical Technology Association (AdvaMed) Harold Lehmann Johns Hopkins University James Leonard Kennell and Associates Arthur Levin Center for Medical Consumers Jack Lewin American College of Cardiology Keith Lind AARP Svetlana Lisanti Bio-Medical Resources Group Bryan Luce United BioSource Corporation Jaime Lucove Allscripts Susan Lumsden Health Resource and Services Administration Carole J. DeSpain Magoffin National Minority Quality Forum Brian Maloney AstraZeneca Pharmaceuticals, LLP

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Clinical Data as the Basic Staple of Health Learning: Creating and Protecting a Public Good - Workshop Summary William Marder Thomson Healthcare Danica Marinac-Dabic Food and Drug Administration John Martin Premier, Inc. Elliot Maxwell eMaxwell & Associates Robert Mayes Agency for Healthcare Research and Quality Doug McAllaster DoD TRICARE Management Agency Mark McClellan The Brookings Institution Jessyna McDonald University of the District of Columbia Newell McElwee Pfizer, Inc. Lori Meyers HealthCore Lori Mihalich Vinson & Elkins, LLP Amy Miller Personalized Medicine Coalition Nancy Miller Office of the Director, National Institutes of Health Tom Miller American Enterprise Institute JoAnn Minor Food and Drug Administration, OSHI Abdollah Moghaddam Office of the Air Force Surgeon General Carol Monaco American Osteopathic Association Nisha Money Uniformed Services University of Health Sciences Don Moran sanofi-aventis Hazel Moran Mental Health America Anne Mueller AstraZeneca Garry Neil Johnson & Johnson Chalapathy Neti IBM Peter Neupert Microsoft Nicole Newburg-Rinn Health Resources and Services Administration Christopher Nielson Veterans Affairs

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Clinical Data as the Basic Staple of Health Learning: Creating and Protecting a Public Good - Workshop Summary Georginah Anne Nyambura Munene Umoja Women Health Care Mobile Clinics & Centers Eduardo Ortiz National Heart, Lung, and Blood Institute Keith Ortiz VantagePoint Consulting Group James Ostell National Library of Medicine Jeng-Jong Pan National Institute on Drug Abuse Kavita Patel U.S. Senate Committee on Health, Education, Labor, and Pensions Milesh Patel American Academy of Otolaryngology-Head and Neck Surgery Perry Payne George Washington University Steve Pelletier Pelletier Editorial Eleanor M. Perfetto Pfizer, Inc. Gary Persinger National Pharmaceutical Council Steve Phurrough Centers for Medicare & Medicaid Services Susan Pingleton Association of American Medical Colleges Robin Portman Booz Allen Hamilton Eva Powell National Partnership for Women and Families Peter Quinn CarePath, Inc. Greg Raab Raab & Associates, Inc. Barbra Rabson Massachusetts Health Quality Partners John Rayburn Healthcare Leadership Council Alison Rein AcademyHealth Karin Remington National Institute of General Medical Sciences Mary Lacey Reuther BGR Holding, LLC Craig Richardson Johnson & Johnson Health Care Systems John Ring American Heart Association Wayne Rosenkrans AstraZeneca Pharmaceuticals, LLP

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Clinical Data as the Basic Staple of Health Learning: Creating and Protecting a Public Good - Workshop Summary Susan Ross S.D. Ross Consulting Jaewon Ryu Department of Veterans Affairs Jody Sachs National Institutes of Health Rajni Samavedam Booz Allen Hamilton Karen Sanders American Psychiatric Association Michael Sayre National Institutes of Health Leslie Schafer TRICARE Kristin Schneeman FasterCures Victor Schneider Office of the Chief Health and Medical Officer Stephen Schoenbaum The Commonwealth Fund Sven Seyffert Medtronic Chad Shearer Center for Health Care Strategies Gail Shearer Consumers Union George Silberman Cancer Policy Group, LLC Rebecca Singer Cohen United BioSource Corporation Eve Slater Pfizer, Inc. Isabella Sledge United BioSource Corporation Karen Smith AstraZeneca Pharmaceuticals, LLP Peter Smith Duke University Medical Center Scott R. Smith Agency for Healthcare Research and Quality James Sorace U.S. Department of Health and Human Services Michelle Spetman Brigham & Women’s Hospital Melissa Stegun George Washington University Donald Steinwachs Johns Hopkins University Charles Stemple Humana Eugene Steuerle Urban Institute Melissa Stevens FasterCures

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Clinical Data as the Basic Staple of Health Learning: Creating and Protecting a Public Good - Workshop Summary Ansalan Stewart Office of the Secretary of Health and Human Services Harriette Stewart Army Long Term Family Case Management Mark Stewart American College of Cardiology Robin Stombler Auburn Health Strategies, LLC Michael Stoto Georgetown University David Sugano Schering-Plough Betty Tai Center for the Clinical Trials Network Robert Temple Food and Drug Administration Nicolas Terry Center for Health Law Studies Susan Thaul Congressional Research Service Jordana Thomas U.S. Army—Telemedicine and Advanced Technology Research Center Beverly Thompson Uniformed Services University Richard Toselli Johnson & Johnson Deborah Trautman Office of Speaker Pelosi Jonathan Treadwell ECRI Institute Brian Turcsanyi Pittsburgh Regional Health Initiative Nathan Vafaie National Health Council Allison Viola American Health Information Management Association Mary Walchak Becton, Dickinson and Company Steven Waldren American Academy of Family Physicians Christian Weaver Tri-Service Infrastructure Management Program Office, Military Health System Jeff Weinfeld HRSA Rachel Weinstein Johnson & Johnson, Pharmaceutical Research & Development Kathleen Weis Pfizer, Inc. Alan Westin Columbia University

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Clinical Data as the Basic Staple of Health Learning: Creating and Protecting a Public Good - Workshop Summary Christine Weston Johns Hopkins School of Public Health Kimberly Westrich National Pharmaceutical Council Edward Westrick UMass Memorial Health Care James Whitlock Air Force Medical Service Marcy Wilder Hogan & Hartson, LLP Claudia Williams Markle Foundation Karen Williams National Pharmaceutical Council Deborah Willis-Fillinger Health Resources and Services Administration Catherine Witkop Agency for Healthcare Research and Quality/Johns Hopkins University Kim Wittenberg Agency for Healthcare Research and Quality Hui-Hsing Wong OASPE Janet Woodcock Food and Drug Administration Chantal Worzala Health Policy R&D Laura Zick Eli Lilly and Company

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Clinical Data as the Basic Staple of Health Learning: Creating and Protecting a Public Good - Workshop Summary This page intentionally left blank.