Detmer, D. E. 2003. Building the national health information infrastructure for personal health, health care services, public health, and research. BMC Medical Informatics and Decision Making 3(1). http://www.biomedcentral.com/1472-6947/3/1 (accessed August 31, 2010).
FACCT (Foundation for Accountability) Survey. 2003. Connecting for health: Consumer attitudes towards a personal health record. http://www.connectingforhealth.org/resources/phwg_survey_6.5.03.pdf (accessed August 18, 2008).
Hrynaszkiewicz, I., and D. Altman. 2009. Towards agreement on best practice for publishing raw clinical trial data. Trials 10(17).
International Society for Disease Surveillance. 2008. Home page. http://syndromic.org (accessed August 18, 2008).
IOM (Institute of Medicine). 2001. Crossing the quality chasm. Washington, DC: National Academy Press.
———. 2009. Beyond the HIPAA Privacy Rule: Enhancing Privacy, Improving Health Through Research. Washington, DC: The National Academies Press.
Kawamoto, K., H. F. Willard, and G. S. Ginsburg. 2009. A national clinical decision support infrastructure to enable the widespread and consistent practice of genomic and personalized medicine. BMC Medical Informatics and Decision Making 3(1).
Let data speak to data. 2005. Nature 438(7068).
Louis Harris & Associates. 1993. Health information privacy survey, 1993. New York: Louis Harris & Associates.
Markle Foundation. 2006. National survey on electronic personal health records. http://www.markle.org/downloadable_assets/research_doc_120706.pdf (accessed August 18, 2008).
———. 2008a. Connecting for health: The common framework. http://www.connecting-forhealth.org/commonframework/ (accessed August 19, 2008).
———. 2008b. Connectivity in the 21st century. http://www.connectingforhealth.com/connectivity/ (accessed August 18, 2008).
Ness, R. B. 2007. Influence of the hipaa privacy rule on health research. Journal of the American Medical Association 298(18):2164–2170.
NRC (National Research Council). 2009. Computational technology for effective health care: Immediate steps and strategic directions. Washington, DC: The National Academies Press.
Piwowar, H. A., M. J. Becich, H. Bilofsky, and R. S. Crowley. 2008. Towards a Data Sharing Culture: Recommendations for Leadership from Academic Health Centers. PLoS Medicine 5(9):e183.
Safran, C., M. Bloomrosen, W. E. Hammond, S. Labkoff, S. Markel-Fox, P. C. Tang, D. E. Detmer, with input from the expert panel. 2007. Toward a national framework for the secondary use of health data: An american medical informatics association white paper. Journal of the American Medical Informatics Association 14(1):1–9. http://www.healthlawyers.org/Members/PracticeGroups/HIT/Toolkits/Documents/5_Health_Data_AMIA_Summary.pdf (accessed August 18, 2008).