MEB disorders in young people, using an accepted current taxonomy (e.g., the Diagnostic and Statistical Manual of Mental Disorders, the International Statistical Classification of Diseases) and (2) data that can provide indicators and trends for key risk and protective factors that serve as significant predictors for such disorders.
Methods for collecting such data should:
be capable of providing reliable prevalence estimates for minority populations and high-risk groups (e.g., incarcerated youth, foster children, immigrant children, youth with chronic diseases, children with developmental delays);
be capable of providing accurate estimates at the level of individual states, ideally with unique identifiers that would facilitate the use of data by local communities and potential linkage with other state databases, such as those created as part of the No Child Left Behind Act of 2001; and
include measurement of identified risk and protective factors, either directly or by building links to appropriate databases (e.g., parental death, foster care placement, divorce, incarceration).
As illustrated in Table 2-1, multiple agencies of the U.S. Department of Health and Human Services (HHS) administer surveys that collect data related to MEB disorders. The Centers for Disease Control and Prevention, which has public health surveillance and prevention within its mandate and administers several major surveys potentially relevant to this task, is one possible lead agency for the collection of prevalence and incidence data. Similarly, the Substance Abuse and Mental Health Services Administration is the lead federal agency charged with “building resilience and facilitating recovery” in relation to substance abuse and mental disorders. It has recently expanded its population survey, NSDUH, beyond substance abuse, making it another potential option. However, while a specific agency may need to be identified to provide data on the prevalence and incidence of disorders, inclusion of data related to risk and protective factors is likely to require the involvement and input of multiple HHS agencies, making this a departmental responsibility. The Office of Disease Prevention and Health Promotion and the Office of the Assistant Secretary for Planning and Evaluation, both in the Office of the Secretary, would potentially be able to serve a coordinating function.
Young people with MEB disorders tend to receive care from a wide range of service providers and agencies, including the child welfare, education, and juvenile justice systems, as well as primary medical and specialty mental health care providers. Very little is known about the adequacy of