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Appendix A Workshop Agenda Innovations in Service Delivery in the Age of Genomics Workshop July 28, 2008 Keck Building Room 100 500 Fifth Street, NW Washington, DC 20001 Workshop Goals: 1. To understand the current status of genetic and genomic service delivery 2. To explore how needs will change as genomic innovation progresses 3. To examine what types of alternative practice models will be needed Welcome and Introductions 8:30 a.m. Wylie Burke, University of Washington Chair, Roundtable on Translating Genomic-Based Research for Health Session 1: Current Status of Genetic Service Delivery 8:45 a.m. Debra Lochner Doyle, Washington State Department of Health Session 2: The Strengths and Challenges of the Current 9:05 a.m. System Disparities and access Alexandra Shields, Harvard/Massachusetts General Hospital Center on Genomics, Vulnerable Populations & Health Disparities Patient education and communication Vivian Ota Wang, Genetic Counselor 

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 INNOVATIONS IN SERVICE DELIVERY IN THE AGE OF GENOMICS Educational pipeline and workforce Catherine Wicklund, National Society of Genetic Counselors Discussion 10:05 a.m. Break 10:30 a.m. Session 3: New Models for Service Delivery 10:45 a.m. Heather Shappell, Informed Medical Decisions Elissa Levin, Navigenics Cynthia Prows, Cincinnati Children’s Hospital Discussion 11:30 a.m. Lunch 12:15 p.m. Session 4: vision of the Future 1:15 p.m. Wylie Burke, University of Washington Discussion 1:45 p.m. Break 2:30 p.m. Session 5: Brainstorming on a Service Delivery Model for 2:45 p.m. the Future Sharon Kardia, University of Michigan, Moderator Frederick Chen, University of Washington Catherine DesRoches, Institute for Health Policy, Massachusetts General Hospital Bruce Korf, American College of Medical Genetics Debra Lochner Doyle, Washington State Department of Health Alexandra Shields, Harvard/Massachusetts General Hospital Center on Genomics, Vulnerable Populations & Health Disparities Sharon Terry, Genetic Alliance Vivian Ota Wang, Genetic Counselor Catherine Wicklund, National Society of Genetic Counselors

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 APPENDIX A Discussion 4:00 p.m. Summing up: Lessons Learned 5:00 p.m. Wylie Burke, University of Washington Catherine Wicklund, National Society of Genetic Counselors Workshop Adjourns 5:30 p.m.

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