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Appendix A
Workshop Agenda
Innovations in Service Delivery in the Age of Genomics Workshop
July 28, 2008
Keck Building
Room 100
500 Fifth Street, NW
Washington, DC 20001
Workshop Goals:
1. To understand the current status of genetic and genomic
service delivery
2. To explore how needs will change as genomic innovation
progresses
3. To examine what types of alternative practice models will
be needed
Welcome and Introductions
8:30 a.m.
Wylie Burke, University of Washington
Chair, Roundtable on Translating Genomic-Based
Research for Health
Session 1: Current Status of Genetic Service Delivery
8:45 a.m.
Debra Lochner Doyle, Washington State Department of
Health
Session 2: The Strengths and Challenges of the Current
9:05 a.m.
System
Disparities and access
Alexandra Shields, Harvard/Massachusetts General
Hospital Center on Genomics, Vulnerable Populations &
Health Disparities
Patient education and communication
Vivian Ota Wang, Genetic Counselor
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INNOVATIONS IN SERVICE DELIVERY IN THE AGE OF GENOMICS
Educational pipeline and workforce
Catherine Wicklund, National Society of Genetic
Counselors
Discussion
10:05 a.m.
Break
10:30 a.m.
Session 3: New Models for Service Delivery
10:45 a.m.
Heather Shappell, Informed Medical Decisions
Elissa Levin, Navigenics
Cynthia Prows, Cincinnati Children’s Hospital
Discussion
11:30 a.m.
Lunch
12:15 p.m.
Session 4: vision of the Future
1:15 p.m.
Wylie Burke, University of Washington
Discussion
1:45 p.m.
Break
2:30 p.m.
Session 5: Brainstorming on a Service Delivery Model for
2:45 p.m.
the Future
Sharon Kardia, University of Michigan, Moderator
Frederick Chen, University of Washington
Catherine DesRoches, Institute for Health Policy,
Massachusetts General Hospital
Bruce Korf, American College of Medical Genetics
Debra Lochner Doyle, Washington State Department of
Health
Alexandra Shields, Harvard/Massachusetts General
Hospital Center on Genomics, Vulnerable Populations &
Health Disparities
Sharon Terry, Genetic Alliance
Vivian Ota Wang, Genetic Counselor
Catherine Wicklund, National Society of Genetic
Counselors
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APPENDIX A
Discussion
4:00 p.m.
Summing up: Lessons Learned
5:00 p.m.
Wylie Burke, University of Washington
Catherine Wicklund, National Society of Genetic
Counselors
Workshop Adjourns
5:30 p.m.
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