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Race, Ethnicity, and Language Data: Standardization for Health Care Quality Improvement
Appendix C
Workshop Agendas
Committee on Future Directions for the National Healthcare Quality and Disparities Reports and Subcommittee on Standardized Collection of Race/Ethnicity Data for Healthcare Quality Improvement
National Academy of Sciences’ Keck Building
500 Fifth Street, NW, Room 100, Washington, DC
DAY 1—MONDAY, FEBRUARY 9, 2009
ROOM 100
CLOSED SESSION (Committee and Subcommittee Members and IOM Staff Only)
7:45–10:30 AM
END CLOSED SESSION-START OPEN SESSION
Public Workshop
11:00
Welcome and Introductory Remarks
Sheila Burke, Chair and Moderator
Session 1:
Setting Future Directions for the National Healthcare Quality Report (NHQR) and National Healthcare Disparities Report (NHDR)
11:05
Lessons Learned in Developing NHQR and NHDR
Earnest Moy, MD, MPH, Team Lead, NHQR & NHDR, Center for Quality Improvement and Patient Safety, Agency for Healthcare Research and Quality (AHRQ), HHS
11:45
Remarks from Study Sponsor
Carolyn Clancy, MD, Director, AHRQ, HHS
END OPEN SESSION-START CLOSED SESSION
12:25 PM
Working Lunch, Committee Members Only
END CLOSED SESSION-START OPEN SESSION
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Session 2:
Race/Ethnicity/Language Data Categories: Definitions, Collection, Aggregation, and Reporting for Quality Improvement
1:00
Welcome
David Nerenz, Subcommittee Chair and Moderator
1:05
Rationale for Expanded Race/Ethnicity Data Collection and Lessons from the National Health Plan Collaborative
Nicole Lurie, MD, MSPH, Director, RAND Center for Population Health and Health Disparities
1:40
Standardizing Race/Ethnicity Categories Across a State and Within a Health Plan
Kalahn Taylor-Clark, PhD, MPH, Senior Associate, Engelberg Center for Healthcare Reform, High Value Health Care Initiative, The Brookings Institution
Kathryn L. Coltin, MPH, Director, External Quality Data Initiatives, Harvard Pilgrim Health Care
2:20
Break
2:30
Incorporating Language Needs into Quality Improvement
Mara Youdelman, JD, LLM, Staff Attorney, National Health Law Program (NHeLP)
Marsha Regenstein, PhD, Associate Research Professor and Co-Director Center for Health Care Quality, George Washington University
3:00
Current and Future Federal Standards for Race/Ethnicity/Language Data
Katherine K. Wallman, BA, Chief Statistician, U.S. Office of Management and Budget
Karen Humes, MA, Assistant Division Chief for Special Population Statistics, Population Division, U.S. Census Bureau
3:50
The HRET Toolkit and Hospital Data Collection
Romana Hasnain-Wynia, PhD (Subcommittee Member), Director, Center for Healthcare Equity and Associate Professor, Institute for Healthcare Studies, Northwestern University, Feinberg School of Medicine
4:15
Experiences of SEER and NHIS
Brenda Edwards, PhD, Associate Director, Surveillance Research Program, Division of Cancer Control & Population Sciences, National Cancer Institute
Jennifer Madans, PhD, Associate Director for Science, National Center for Health Statistics
5:00
Gathering Data on Subpopulations Beyond OMB Categories
Deeana Jang, JD, Policy Director, Asian & Pacific Islander American Health Forum, presenting for Out of Many, One (OMO) Health Data Taskforce
5:25
Questions from the Public
5:35
Adjourn
END OPEN SESSION-START CLOSED SESSION
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Race, Ethnicity, and Language Data: Standardization for Health Care Quality Improvement
DAY 2—TUESDAY, FEBRUARY 10, 2009
ROOM 100
CLOSED SESSION (Committee and Subcommittee Members and IOM Staff Only)
7:45 AM
Continental Breakfast
END CLOSED SESSION-START OPEN SESSION
Public Workshop
8:05
Welcome
Sheila Burke, Chair and Moderator
Session 3:
Initiatives in Data Aggregation and Quality Measurement
8:10
Roadmap for Coordinated Quality Measurement and Reporting
Joachim Roski, PhD, MPH, Managing Director, High-Value Health Care Project, Engelberg Center for Health Care Reform, The Brookings Institution
Physician-level Quality Measurement and Reporting
Karen Kmetik, PhD, Director, Clinical Performance Evaluation, American Medical Association and The Physician Consortium for Performance Improvement
9:15
National Priorities Partnership’s Priority Areas and Corresponding Goals
Karen Adams, PhD, MT, Vice President, National Priorities, National Quality Forum
10:00
Advancing Quality Improvement
Don Berwick, MD, MPP, President and CEO, Institute for HealthCare Improvement
10:35
Break
Session 4:
Select Federal Data Improvement Efforts
10:50
CMS’ Recommendations for NHQR and NHDR and for Data Improvement
Thomas Reilly, PhD, Deputy Director, Office of Research, Development and Information, Centers for Medicare and Medicaid Services (CMS)
Paul McGann, MD, Deputy Chief Medical Officer, Office of Clinical Standards and Quality, CMS
Lessons from Healthcare Cost and Utilization Project
Irene Fraser, PhD, Director Center for Delivery, Organization, and Markets, AHRQ
END OPEN SESSION-START CLOSED SESSION
12:00–3:00 PM
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Committee on Future Directions for the National Healthcare Quality and Disparities Reports and Subcommittee on Standardized Collection of Race/Ethnicity Data for Healthcare Quality Improvement
Hyatt Regency Newport Beach
1107 Jamboree Road, Terrace Room, Newport Beach, CA
DAY 1—WEDNESDAY, MARCH 11, 2009
TERRACE ROOM
CLOSED SESSION (Committee and Subcommittee Members and IOM Staff Only)
7:45 AM–12:45 PM
END CLOSED SESSION-START OPEN SESSION
Public Workshop
12:45
Welcome
Sheila Burke, Chair and Moderator
12:50
Defining Race, Ethnicity and Language Populations
Marjorie Kagawa-Singer, PhD, MN, RN, Professor, UCLA School of Public Health and Professor, Department of Asian American Studies
Gayle Tang, MSN, RN, Director, National Linguistic & Cultural Programs, National Diversity, Kaiser Permanente
1:35
Accounting for Diversity in Quality Improvement
Michael Rodriguez, MD, MP, Associate Professor and Vice Chair of Research, George F. Kneller Endowed Chair in Family Medicine, Department of Family Medicine, David Geffen School of Medicine, UCLA
Ron Hays, PhD, Professor, Division of General Internal Medicine and Health Services Research, UCLA
2:20
Quality Measurement
Andrew Bindman, MD, Professor of Medicine, Health Policy Epidemiology and Biostatistics, UCSF and Director of CaMRI (CA Medicaid Research Institute)
Patrick Romano, MD, MPH, Professor, Divisions of General Medicine and General Pediatrics, Center for Healthcare Policy and Research, UC Davis
3:05
Public Comment
3:15
Break
END OPEN SESSION-START CLOSED SESSION
3:25–5:15
5:15
Adjourn
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DAY 2—THURSDAY, MARCH 12, 2009
TERRACE ROOM
CLOSED SESSION (Committee and Subcommittee Members and IOM Staff Only)
7:45–8:40 AM
END CLOSED SESSION-START OPEN SESSION
Public Workshop
8:40
Welcome
Sheila Burke, Chair and Moderator
8:45
Direct Collection and Indirect Estimation of Race/Ethnicity/Language Data
Marc Elliott, PhD, Senior Statistician, RAND
Allen Fremont, MD, PhD, Natural Scientist and Sociologist RAND Corporation
Grace Ting, MHA, Health Services Director, Health Equities Programs, Wellpoint, Inc.
9:50
Break
10:00
Priorities for Quality Improvement and Ways to Leverage Collected Information
David Lansky, PhD, President and CEO, Pacific Business Group on Health
Maribeth Shannon, MS, Director, Market and Policy Monitor Program, California Healthcare Foundation
Thomas Williams, MPH, MBA, Executive Director, Integrated Healthcare Association
11:15
Public Comment
END OPEN SESSION-START CLOSED SESSION
11:30 AM–3:00 PM
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