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Race, Ethnicity, and Language Data: Standardization for Health Care Quality Improvement Appendix C Workshop Agendas Committee on Future Directions for the National Healthcare Quality and Disparities Reports and Subcommittee on Standardized Collection of Race/Ethnicity Data for Healthcare Quality Improvement National Academy of Sciences’ Keck Building 500 Fifth Street, NW, Room 100, Washington, DC DAY 1—MONDAY, FEBRUARY 9, 2009 ROOM 100 CLOSED SESSION (Committee and Subcommittee Members and IOM Staff Only) 7:45–10:30 AM END CLOSED SESSION-START OPEN SESSION Public Workshop 11:00 Welcome and Introductory Remarks Sheila Burke, Chair and Moderator Session 1: Setting Future Directions for the National Healthcare Quality Report (NHQR) and National Healthcare Disparities Report (NHDR) 11:05 Lessons Learned in Developing NHQR and NHDR Earnest Moy, MD, MPH, Team Lead, NHQR & NHDR, Center for Quality Improvement and Patient Safety, Agency for Healthcare Research and Quality (AHRQ), HHS 11:45 Remarks from Study Sponsor Carolyn Clancy, MD, Director, AHRQ, HHS END OPEN SESSION-START CLOSED SESSION 12:25 PM Working Lunch, Committee Members Only END CLOSED SESSION-START OPEN SESSION
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Race, Ethnicity, and Language Data: Standardization for Health Care Quality Improvement Session 2: Race/Ethnicity/Language Data Categories: Definitions, Collection, Aggregation, and Reporting for Quality Improvement 1:00 Welcome David Nerenz, Subcommittee Chair and Moderator 1:05 Rationale for Expanded Race/Ethnicity Data Collection and Lessons from the National Health Plan Collaborative Nicole Lurie, MD, MSPH, Director, RAND Center for Population Health and Health Disparities 1:40 Standardizing Race/Ethnicity Categories Across a State and Within a Health Plan Kalahn Taylor-Clark, PhD, MPH, Senior Associate, Engelberg Center for Healthcare Reform, High Value Health Care Initiative, The Brookings Institution Kathryn L. Coltin, MPH, Director, External Quality Data Initiatives, Harvard Pilgrim Health Care 2:20 Break 2:30 Incorporating Language Needs into Quality Improvement Mara Youdelman, JD, LLM, Staff Attorney, National Health Law Program (NHeLP) Marsha Regenstein, PhD, Associate Research Professor and Co-Director Center for Health Care Quality, George Washington University 3:00 Current and Future Federal Standards for Race/Ethnicity/Language Data Katherine K. Wallman, BA, Chief Statistician, U.S. Office of Management and Budget Karen Humes, MA, Assistant Division Chief for Special Population Statistics, Population Division, U.S. Census Bureau 3:50 The HRET Toolkit and Hospital Data Collection Romana Hasnain-Wynia, PhD (Subcommittee Member), Director, Center for Healthcare Equity and Associate Professor, Institute for Healthcare Studies, Northwestern University, Feinberg School of Medicine 4:15 Experiences of SEER and NHIS Brenda Edwards, PhD, Associate Director, Surveillance Research Program, Division of Cancer Control & Population Sciences, National Cancer Institute Jennifer Madans, PhD, Associate Director for Science, National Center for Health Statistics 5:00 Gathering Data on Subpopulations Beyond OMB Categories Deeana Jang, JD, Policy Director, Asian & Pacific Islander American Health Forum, presenting for Out of Many, One (OMO) Health Data Taskforce 5:25 Questions from the Public 5:35 Adjourn END OPEN SESSION-START CLOSED SESSION
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Race, Ethnicity, and Language Data: Standardization for Health Care Quality Improvement DAY 2—TUESDAY, FEBRUARY 10, 2009 ROOM 100 CLOSED SESSION (Committee and Subcommittee Members and IOM Staff Only) 7:45 AM Continental Breakfast END CLOSED SESSION-START OPEN SESSION Public Workshop 8:05 Welcome Sheila Burke, Chair and Moderator Session 3: Initiatives in Data Aggregation and Quality Measurement 8:10 Roadmap for Coordinated Quality Measurement and Reporting Joachim Roski, PhD, MPH, Managing Director, High-Value Health Care Project, Engelberg Center for Health Care Reform, The Brookings Institution Physician-level Quality Measurement and Reporting Karen Kmetik, PhD, Director, Clinical Performance Evaluation, American Medical Association and The Physician Consortium for Performance Improvement 9:15 National Priorities Partnership’s Priority Areas and Corresponding Goals Karen Adams, PhD, MT, Vice President, National Priorities, National Quality Forum 10:00 Advancing Quality Improvement Don Berwick, MD, MPP, President and CEO, Institute for HealthCare Improvement 10:35 Break Session 4: Select Federal Data Improvement Efforts 10:50 CMS’ Recommendations for NHQR and NHDR and for Data Improvement Thomas Reilly, PhD, Deputy Director, Office of Research, Development and Information, Centers for Medicare and Medicaid Services (CMS) Paul McGann, MD, Deputy Chief Medical Officer, Office of Clinical Standards and Quality, CMS Lessons from Healthcare Cost and Utilization Project Irene Fraser, PhD, Director Center for Delivery, Organization, and Markets, AHRQ END OPEN SESSION-START CLOSED SESSION 12:00–3:00 PM
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Race, Ethnicity, and Language Data: Standardization for Health Care Quality Improvement Committee on Future Directions for the National Healthcare Quality and Disparities Reports and Subcommittee on Standardized Collection of Race/Ethnicity Data for Healthcare Quality Improvement Hyatt Regency Newport Beach 1107 Jamboree Road, Terrace Room, Newport Beach, CA DAY 1—WEDNESDAY, MARCH 11, 2009 TERRACE ROOM CLOSED SESSION (Committee and Subcommittee Members and IOM Staff Only) 7:45 AM–12:45 PM END CLOSED SESSION-START OPEN SESSION Public Workshop 12:45 Welcome Sheila Burke, Chair and Moderator 12:50 Defining Race, Ethnicity and Language Populations Marjorie Kagawa-Singer, PhD, MN, RN, Professor, UCLA School of Public Health and Professor, Department of Asian American Studies Gayle Tang, MSN, RN, Director, National Linguistic & Cultural Programs, National Diversity, Kaiser Permanente 1:35 Accounting for Diversity in Quality Improvement Michael Rodriguez, MD, MP, Associate Professor and Vice Chair of Research, George F. Kneller Endowed Chair in Family Medicine, Department of Family Medicine, David Geffen School of Medicine, UCLA Ron Hays, PhD, Professor, Division of General Internal Medicine and Health Services Research, UCLA 2:20 Quality Measurement Andrew Bindman, MD, Professor of Medicine, Health Policy Epidemiology and Biostatistics, UCSF and Director of CaMRI (CA Medicaid Research Institute) Patrick Romano, MD, MPH, Professor, Divisions of General Medicine and General Pediatrics, Center for Healthcare Policy and Research, UC Davis 3:05 Public Comment 3:15 Break END OPEN SESSION-START CLOSED SESSION 3:25–5:15 5:15 Adjourn
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Race, Ethnicity, and Language Data: Standardization for Health Care Quality Improvement DAY 2—THURSDAY, MARCH 12, 2009 TERRACE ROOM CLOSED SESSION (Committee and Subcommittee Members and IOM Staff Only) 7:45–8:40 AM END CLOSED SESSION-START OPEN SESSION Public Workshop 8:40 Welcome Sheila Burke, Chair and Moderator 8:45 Direct Collection and Indirect Estimation of Race/Ethnicity/Language Data Marc Elliott, PhD, Senior Statistician, RAND Allen Fremont, MD, PhD, Natural Scientist and Sociologist RAND Corporation Grace Ting, MHA, Health Services Director, Health Equities Programs, Wellpoint, Inc. 9:50 Break 10:00 Priorities for Quality Improvement and Ways to Leverage Collected Information David Lansky, PhD, President and CEO, Pacific Business Group on Health Maribeth Shannon, MS, Director, Market and Policy Monitor Program, California Healthcare Foundation Thomas Williams, MPH, MBA, Executive Director, Integrated Healthcare Association 11:15 Public Comment END OPEN SESSION-START CLOSED SESSION 11:30 AM–3:00 PM
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