Appendix E
Subcommittee Template: Developing a National Standard Set of Granular Ethnicity Categories and a Rollup Scheme

The Subcommittee on Standardized Collection of Race/Ethnicity Data for Healthcare Quality Improvement recommends using the Office of Management and Budget (OMB) race and Hispanic ethnicity categories (Asian, Black or African American, Native Hawaiian or Other Pacific Islander, White, American Indian or Alaska Native, and Hispanic or Latino) and using a national standard set of granular ethnicity categories based on ancestry. Not all entities collecting data will include the comprehensive list of granular ethnicity categories in their databases or on their data collection instruments as the categories most important for collection by a health plan in Boston might differ from the categories important for collection by a health system in rural Missouri. These entities can select whatever number of locally relevant categories from the national standard set to present as pre-specified categories for check-off of responses; local lists should also be capable of identifying other ethnicities for all who wish to self-identify by including an open-ended choice of “Other, please specify: __.” The subcommittee believes it is important to supplement the OMB categories by collecting granular ethnicity data and to retain these in data systems so that more detailed analysis and reporting is possible than with the current OMB categories. The number of categories any entity finds necessary for analysis will vary according to the composition of the population being served or studied, whether the size of subgroups is sufficiently large to make statistically reliable comparisons, and whether the pattern of differences experienced by subgroups identifies distinct needs that are not already revealed by data aggregated into broader categories.

The national standard set must be comprehensive of the nation’s population to ensure the capture of even small, geographically isolated population groups that would potentially be important in specific locales for analyses and the provision of culturally and linguistically appropriate care. Furthermore, the set must be responsive to changing demographic trends and thus must be regularly updated.

DEVELOPMENT OF THE TEMPLATE

The subcommittee did not identify a single existing category list believed to be comprehensive enough to serve as a national, standard set. For example, as discussed in Chapter 3, the Centers for Disease Control and Prevention (CDC)/Health Level 7 (HL7) Race and Ethnicity Code Set 1.0 does not include all relevant granular ethnicities. It does not, for instance, include Somali or Russian. The Massachusetts Superset was developed partially because of these noted absences in the CDC/HL7 Code Set and includes granular ethnicities that are locally relevant to the Commonwealth of Massachusetts. Demographic distributions confirm that there may be ethnic groups present



The National Academies | 500 Fifth St. N.W. | Washington, D.C. 20001
Copyright © National Academy of Sciences. All rights reserved.
Terms of Use and Privacy Statement



Below are the first 10 and last 10 pages of uncorrected machine-read text (when available) of this chapter, followed by the top 30 algorithmically extracted key phrases from the chapter as a whole.
Intended to provide our own search engines and external engines with highly rich, chapter-representative searchable text on the opening pages of each chapter. Because it is UNCORRECTED material, please consider the following text as a useful but insufficient proxy for the authoritative book pages.

Do not use for reproduction, copying, pasting, or reading; exclusively for search engines.

OCR for page 183
Appendix E Subcommittee Template: Developing a National Standard Set of Granular Ethnicity Categories and a Rollup Scheme The Subcommittee on Standardized Collection of Race/Ethnicity Data for Healthcare Quality Improvement recommends using the Office of Management and Budget (OMB) race and Hispanic ethnicity categories (Asian, Black or African American, Native Hawaiian or Other Pacific Islander, White, American Indian or Alaska Native, and Hispanic or Latino) and using a national standard set of granular ethnicity categories based on ancestry. Not all entities collecting data will include the comprehensive list of granular ethnicity categories in their databases or on their data collection instruments as the categories most important for collection by a health plan in Boston might differ from the categories important for collection by a health system in rural Missouri. These entities can select whatever number of locally relevant categories from the national standard set to present as pre-specified categories for check-off of responses; local lists should also be capable of identifying other ethnicities for all who wish to self-identify by including an open-ended choice of “Other, please specify: __.” The subcommittee believes it is important to supplement the OMB categories by collecting granular ethnicity data and to retain these in data systems so that more detailed analysis and reporting is possible than with the current OMB categories. The number of categories any entity finds necessary for analysis will vary according to the composition of the population being served or studied, whether the size of subgroups is sufficiently large to make statistically reliable comparisons, and whether the pattern of differences experienced by subgroups identifies distinct needs that are not already revealed by data aggregated into broader categories. The national standard set must be comprehensive of the nation’s population to ensure the capture of even small, geographically isolated population groups that would potentially be important in specific locales for analyses and the provision of culturally and linguistically appropriate care. Furthermore, the set must be responsive to changing demographic trends and thus must be regularly updated. DEVELOPMENT OF THE TEMPLATE The subcommittee did not identify a single existing category list believed to be comprehensive enough to serve as a national, standard set. For example, as discussed in Chapter 3, the Centers for Disease Control and Prevention (CDC)/Health Level 7 (HL7) Race and Ethnicity Code Set 1.0 does not include all relevant granular ethnicities. It does not, for instance, include Somali or Russian. The Massachusetts Superset was developed partially because of these noted absences in the CDC/HL7 Code Set and includes granular ethnicities that are locally relevant to the Commonwealth of Massachusetts. Demographic distributions confirm that there may be ethnic groups present 1

OCR for page 183
14 RACE, ETHNICITY, AND LANGUAGE DATA across the country that may not have a large presence in Massachusetts (e.g., Navajo, which may be of impor- tance in Arizona). Thus, the subcommittee concluded that the Massachusetts Superset provides an ample, but not complete, set of granular ethnicity categories. Similarly, the Kaiser Permanente Granular Ethnicity Code Set was determined to be representative of many, but perhaps not all, granular ethnicities. To capture all of the granular ethnicities represented in the United States, the subcommittee reviewed the Census Bureau’s Ancestry Code List. The Census Ancestry Code List is compiled from responses to the Census’ open-ended ancestry question, which allows respondents to write in their lineage or ancestry.1 Thus, the list includes a myriad of granular ethnicity categories, ranging from Hausa, an ethnic group in northern Nigeria, to more general responses of European and American. The CDC/HL7 Code Set, Massachusetts Superset, Census Ancestry Code List, and Kaiser Permanente Granular Ethnicity Code Set interchangeably use country or place names to indicate ethnicities (i.e., Singapore to represent Singaporean). The subcommittee revised the list to represent categories with ethnicities as opposed to places, whenever possible; this is reflected in the subcommittee’s template (Table E-1). The CDC/HL7 Code Set includes an extensive list of American Indian or Alaska Native categories and codes. Thus, the CDC/HL7 Code Set may serve as the template from which entities can choose locally relevant tribal categories and codes. The Census Ancestry Code list does not include American Indian or Alaska Native tribes. The Massachusetts Superset and the Kaiser Permanente Granular Ethnicity Code Set both include limited lists of locally relevant tribes. ADAPTION OF THE TEMPLATE TO A NATIONAL STANDARD LIST The subcommittee presents a cumulative list of granular ethnicity categories from different sources (Table E-1) that may serve as a template from which the Department of Health and Human Services (HHS) should develop a national standard list of granular ethnicity categories with accompanying unique codes (Recommendation 6-1a). Some of these granular ethnicities have already been assigned permanent five-digit unique numerical codes by CDC/HL7. The remaining granular ethnicities included in the subcommittee template also need permanent five- digit unique numerical codes. To indicate which categories and codes may be similar, the Public Use Microdata Sample File (PUMS) con - siders some Census ancestry codes to have “corresponding detailed ancestry codes” (i.e., Hausa may be said to correspond with Nigeria).2 The subcommittee concluded that because of the large number of very specific ethnici - ties included on the Census Ancestry Code List, some ethnicities would be best presented as corresponding with others. Corresponding ethnicities are indicated in Table E-1 using indents. When HHS is developing codes for the granular ethnicity categories included in this template (per Recommendation 6-1a), corresponding ethnicities may have the same codes (i.e., one or more granular ethnicity categories may have the same code). ROLLUP TO THE OMB RACE AND HISPANIC ETHNICITY CATEGORIES Locally tailored quality improvement activities may target granular ethnicity groups without needing to relate those groups to a single OMB race category. Collecting race, Hispanic ethnicity, and granular ethnicity data sepa - rately, as the subcommittee recommends, allows reporting of the OMB categories when necessary without requiring rollup of the granular ethnicities, provided that individuals respond to all the questions asked. Nonetheless, the subcommittee recognizes that data collected under some circumstances (e.g., a reporting request for OMB-level data where only granular ethnicity is collected) cannot be used or compared with data collected using the OMB race and Hispanic ethnicity categories without the use of a rollup scheme to link granular ethnicities to the OMB categories. To examine both the feasibility and limitations of such schemes, the subcommittee mapped in Table E-1 1 The CDC/HL7 Code Set was developed using write-in responses to the Census questions on race and Hispanic ethnicity, not responses to the Census ancestry question. The Census ancestry list is more comprehensive than the list used to develop the CDC/HL7 Code Set. 2 U.S. Census Bureau. 2007. ACS 1-year PUMS code lists: Ancestry codes. http://www.census.gov/acs/www/Products/PUMS/C2SS/ CodeList/2007/Ancestry.htm (accessed June 23, 2009).

OCR for page 183
1 APPENDIX E granular ethnicity responses collected from the ancestry question on Census 2000 to the OMB race and Hispanic ethnicity categories. Table E-1 uses the existing CDC/HL7 rollup scheme as a basis; the subcommittee tested the assumptions of those OMB category assignments with responses to the Census race and Hispanic ethnicity ques - tions to determine if 90 percent of respondents giving a specific ancestry response identified with the category to which the CDC/HL7 rollup scheme assigns them. For most granular ethnicity categories, 90 percent or more of respondents to Census 2000 did self-identify with the OMB category to which the CDC/HL7 rollup would assign them. However, Appendix F identifies a number of granular categories that do not meet the 90 percent threshold, and thus would have “no determinate OMB race classification” if this threshold was adopted. An analyst wanting to roll up the categories in Appendix F to an OMB race group or Hispanic origin would have to defer to existing OMB and Census definitions based on geographic ancestry (see Table 1-1 in Chapter 1 of the report). While many granular ethnicities can be mapped to the OMB Hispanic ethnicity category based on the existing CDC/HL7 roll-up, none of the granular ethnicities associated with the Hispanic ethnicity category can be assigned to an OMB race category with greater than 90 percent certainty. In addition, high percentages of persons who report an American Indian or Alaska Native ancestry have been known to identify as White, multiracial, or “Some Other Race” (see discussion of American Indian or Alaska Natives in Chapter 2). Similarly, substantial portions of respondents who report a Pacific Islander ancestry identify with a race besides with the Native Hawaiian or Other Pacific Islander race category. The tribal groups and Pacific Islander groups have been left by the subcommittee in the American Indian or Alaska Native and Native Hawaiian or Other Pacific Islander race categories, respectively rather than move them to a “no determinate OMB race classification.” There was insufficient data to apply the 90 percent rule to all the individual subcategories under those headings. Analysts should understand that making an assignment using a 90 percent (or any other percent) threshold or an assignment based solely on geography incurs a higher probability that the rollup assignment misclassifies individuals based upon how they would self-identify their race when asked directly about their race. The rates of misclassification, even for granular ethnicities meeting a 90 percent threshold, underscores the fact that rollup schemes only provide probabilistic assignments useful for analysis at the group or population level, and should never be used to assign an actual race to an individual’s medical record. Entities may, in some instances, want to aggregate granular ethnicity categories into broader ethnicity cat - egories for analysis or to meet reporting requirements (e.g., aggregating all western European granular ethnicities into a broad “Western European” category). However, the granular ethnicity data should be retained in data sys - tems when the data are shared and for use in future analysis, reporting, and service provision. The subcommittee notes that the Census ancestry code list groups ethnicities partially by geography (e.g., Western European [sans Spanish], South Asian, Sub-Saharan African) and partially by Hispanic ethnicity (e.g., Spanish, Central and South American, and West Indian).3 The Massachusetts Superset includes 31 broader ethnicity categories and 140 sub- ethnicity categories. The sub-ethnicity categories can be aggregated to the broader ethnicity categories as needed for reporting and analysis. The subcommittee concluded though that these mid-level groups should not necessarily collapse into the OMB race categories. The list of granular ethnicities presented below provides a baseline template for a national standard set of granular ethnicity categories. An entity can decide, based on local circumstances, whether to use 10 or 100 catego - ries from the template for collection and/or analysis. If the entity sees an increase in the use of the “Other, please specify: __” option, it may consider adding categories to its local list. If an organization chooses not to have a preset list of categories, it will need to compile responses according to the template to ensure comparability with data collected by other entities. 3 U.S. Census Bureau. 2001. Ancestry code list. http://factfinder.census.gov/metadoc/ancestry.pdf (accessed June 18, 2009).

OCR for page 183
16 RACE, ETHNICITY, AND LANGUAGE DATA TABLE E-1 Template of Granular Ethnicity Category Lists and Coding Schemes with Rollup to the OMB Race and Hispanic Ethnicity Categories Kaiser Permanente CDC/HL7 Race Census Granular OMB Race and Hispanic and Ethnicity Massachusetts Ancestry Ethnicity Code Superseta Codesb Setc Ethnicity Category Granular Ethnicity Code Set 1.0 Asian 2028-9 X X Xa Asian Indian 2029-7 X X Kashmir X Andaman Islander X Andhra Pradesh X Assamese X Goanese X Gujarati X Karnatakan X Keralan X Madhya Pradesh X Maharashtran X Madras X Mysore X Nagaland X Orissa X Pondicherry X Rajasthan X Sikkim X Tamil Nadu X Uttar Pradesh X Bhutanese 2031-3 X X Baram/Burman X Xa Chinese 2034-7 X X Manchurian X Taiwanese 2035-4 X X X Tagalog X Xa Japanese 2039-6 X X Issei X Nisei X Sansei X Vonsei X Gonsei X Okinawan 2043-8 X X Iwo Jiman 2048-7 Xa Korean 2040-4 X X Xa Vietnamese 2047-9 X X Katu X Ma X Mnong X Kihn/Viet X Hmong 2037-0 X X X Malay X Maldivian 2049-5 X X Singaporean 2051-1 X X X Punjab X Cantonese X

OCR for page 183
1 APPENDIX E TABLE E-1 Continued Kaiser Permanente CDC/HL7 Race Census Granular OMB Race and Hispanic and Ethnicity Massachusetts Ancestry Ethnicity Code Superseta Codesb Setc Ethnicity Category Granular Ethnicity Code Set 1.0 Mongolian X Tibetan X Hong Kong X Macao X Ryukyu Islander X North Bornean X Formosan X Montagnard X Indo Chinese X Amerasian X Kazakh/Qazaq X Kazakhstani X Bangladeshi 2030-5 X X X Nepalese/Nepali 2050-3 X X X Bengali X X Pakistani 2044-6 X X X Sri Lankan 2045-3 X X X Singhalese/Sinhalese X X Veddah X Burmese 2032-1 X X X Shan X Xa Cambodian 2033-9 X X Khmer X X Xa Filipino 2036-2 X X Indonesian 2038-8 X X X Bornean X Javanese/Jawa X X Sumatra X Xa Laotian/Lao 2041-2 X X Meo X Lao Loum/Lowland Lao X Malaysian 2042-0 X X X Thai 2046-1 X X X Black Thai X Western Lao X Black or African 2054-5 X American Black 2056-0 X X Xa African American 2058-6 X Xa African 2060-2 X Botswanan 2061-0 X X Djibouti X X Liberian 2063-6 X X X Namibian 2064-4 X X Nigerian 2065-1 X X X Fulani/Hausa X X Ibo/Igbo X X continued

OCR for page 183
1 RACE, ETHNICITY, AND LANGUAGE DATA TABLE E-1 Continued Kaiser Permanente CDC/HL7 Race Census Granular OMB Race and Hispanic and Ethnicity Massachusetts Ancestry Ethnicity Code Superseta Codesb Setc Ethnicity Category Granular Ethnicity Code Set 1.0 Tiv X Voruba X X Zairean 2066-9 X X Angolese X X Benin X X Burkina Faso X Burundi X X Cameroonian X X X Central African Republic X X Chad X Comoros X Congolese X X X Ivoirian/Cote d’Ivoire X X X Equatorial Guinea X X Eritrean X X X Gabon X X Gambian X X Ghanaian/Ghanian X X Guinea X X Guinea-Bissau X X Lesotho X X Libyan X X X Malawi X X Mali X X Mauritanian X X Mauritius X X Mozambique X X Reunion X Rwanda X X Sao Tome and Principe X Senegalese/Senegal X X Seychelles X Afrikaner X Natalian X Swazi X X Tanzanian X X X Togolese X X X Ugandan X X X Western Sahara X Zambian X X Zimbabwean X X Congo Brazzaville X Corsico Islander X Niger X Zulu X Tanganyikan X

OCR for page 183
19 APPENDIX E TABLE E-1 Continued Kaiser Permanente CDC/HL7 Race Census Granular OMB Race and Hispanic and Ethnicity Massachusetts Ancestry Ethnicity Code Superseta Codesb Setc Ethnicity Category Granular Ethnicity Code Set 1.0 Zanzibar Islander X Upper Voltan X Volta X African Islander X Central African X Eastern African X Western African X Agikuyu/Kikuyu X Akan X Amara/Amhara X Bantu X Mende X Oromo X Shona X Temne/Temme/Themne X Tigrinya/Tigray/Tigraway X Barbadian/Bajan 2068-5 X Dominica Islander 2070-1 X X Bermudan X Cayman Islander X U.S. Virgin Islander X X St Croix Islander X St John Islander X St Thomas Islander X French West Indies X Guadeloupe Islander X Cayenne X Xa Caribbean Islander Antiguan/Burbudan X Nevis Islander/ X X Kittitian/Nevisian Grenadian X X Vincent-Grenadine Islander X St Lucia Islander/ X X Saint Lucian Afro X Bahamian 2067-7 X X Jamaican 2072-7 X X X Xa Haitian 2071-9 X X Tobagoan 2073-5 X Ethiopian 2062-8 X X X Kenyan X X X Sierra Leonean X X Somali X X continued

OCR for page 183
190 RACE, ETHNICITY, AND LANGUAGE DATA TABLE E-1 Continued Kaiser Permanente CDC/HL7 Race Census Granular OMB Race and Hispanic and Ethnicity Massachusetts Ancestry Ethnicity Code Superseta Codesb Setc Ethnicity Category Granular Ethnicity Code Set 1.0 Native Hawaiian or 2076-8 X X Other Pacific Islander Polynesian 2078-4 X Kapingamarangan X Maori X X Native Hawaiian/Hawaiian 2079-2 X X Part Hawaiian X Samoan 2080-0 X X Tahitian 2081-8 X X Tongan 2082-6 X X Tokelauan 2083-4 X Micronesian 2085-9 X Other Pacific Islander 2500-7 X Guamanian or Chamorro X Guamanian 2087-5 X Chamorro 2088-3 X Mariana Islander 2089-1 Marshallese 2090-9 X Palauan 2091-7 X Carolinian 2092-5 X Kosraean 2093-3 X Pohnpeian/Ponapean 2094-1 X Saipanese 2095-8 X Kiribati/Kirabatese 2096-6 X Chuukese/Trukese 2097-4 X Yapese 2098-2 X Melanesian 2100-6 X Fijian 2101-4 X X Papua New Guinean 2102-2 New Guinean X Papuan X Solomon Islander 2103-0 X New Hebrides 2104-8 Australian X X Tasmanian X Australian Aborigine X New Zealander X X Cook Islander X Niuean X Nauruan X Tarawa Islander X Tinian Islander X New Caledonian X Vanuatuan X Chamolinian X

OCR for page 183
191 APPENDIX E TABLE E-1 Continued Kaiser Permanente CDC/HL7 Race Census Granular OMB Race and Hispanic and Ethnicity Massachusetts Ancestry Ethnicity Code Superseta Codesb Setc Ethnicity Category Granular Ethnicity Code Set 1.0 White 2106-3 X X Anglo X Xa European 2108-9 X Central European X Southern European X English 2110-5 X X X British/Briton X X Channel Islander X Gibraltar X British Isles/ X X British Isles origin Xa Portuguese X X Cornish X Appalachian X Pennsylvania German X X Canadian X X Newfoundland X Nova Scotia X French Canadian X X Acadian/Cajun X X North American X French 2111-3 X X X Lorraine X Breton X Occitan X German 2112-1 X X X Bavaria X Berlin X Hamburg X Hannover X Hessian X Lubecker X Pomeranian X Saxon X Sudetenlander X Westphalian X East German X West German X Prussian X Irish 2113-9 X X X North Irish X Italian 2114-7 X X X Trieste X Abruzzi X Apulian X Basilicata X continued

OCR for page 183
192 RACE, ETHNICITY, AND LANGUAGE DATA TABLE E-1 Continued Kaiser Permanente CDC/HL7 Race Census Granular OMB Race and Hispanic and Ethnicity Massachusetts Ancestry Ethnicity Code Superseta Codesb Setc Ethnicity Category Granular Ethnicity Code Set 1.0 Calabrian X Amalfin X Friulian X Emilia Romagna X Rome X Ligurian X Lombardian X Marche X Molise X Neapolitan X Piedmontese X Puglia X Sardinian X Tuscany X Trentino X Umbrian X Valle Daost X Venetian X San Marino X Ladin X Sicilian X Herzegovinian X X X Polish/Pole 2115-4 X X X Kashubian X Scottish 2116-2 X X X Greek X X X Cretan X Cyclades X Basque X X French Basque X Spanish Basque 2146-9 X Azores Islander X Madeira Islander X Alsatian X X Andorran X Austrian X X Tirol X Belgian X X Walloon X Scotch Irish X X Flemish/Fleming X X Corsican X Cypriot X X Greek Cypriot X Turkish Cypriot X Danish/Dane X X Faeroe Islander X

OCR for page 183
19 APPENDIX E TABLE E-1 Continued Kaiser Permanente CDC/HL7 Race Census Granular OMB Race and Hispanic and Ethnicity Massachusetts Ancestry Ethnicity Code Superseta Codesb Setc Ethnicity Category Granular Ethnicity Code Set 1.0 Dutch X X Frisian X Norwegian X X Finnish/Finn X X Karelian X Icelander X X Lapp X Liechtensteiner X Luxemburger X X Maltese X X Manx X Monegasque X Swedish/Swede X X Aland Islander X Swiss X X Suisse X Switzer X Romansch X Suisse Romane X Welsh X X Scandinavian X X Celtic X X Northern European X Western European X Bukovina X Silesian X Galician X Xa Eastern European X Carpatho Rusyn X X Carpathian X Rusyn X Albanian X X X Azerbaijani X X X Azeri X Belorussian/Belarusian X X X Bosniak X X Bulgarian X X X Croatian/Croat X X X Czech X X X Moravian X Czechoslovakian X X Georgian X X X Estonian X X X Livonian X Hungarian X X Magyar X Latvian X X X continued

OCR for page 183
194 RACE, ETHNICITY, AND LANGUAGE DATA TABLE E-1 Continued Kaiser Permanente CDC/HL7 Race Census Granular OMB Race and Hispanic and Ethnicity Massachusetts Ancestry Ethnicity Code Superseta Codesb Setc Ethnicity Category Granular Ethnicity Code Set 1.0 Lithuanian X X X Macedonian X X X Montenegrin X X X Romanian X X X Moldavian X X X Bessarabian X Wallachian X Serbian X X X Slovak X X X Slovene X X X Sorbian/Wend X Ukrainian X X X Lemko X Bioko X Husel X Xa Russian X X Muscovite X Ruthenian X Cossack X Bohemian X Finno Ugrian X Mordovian X Voytak X Gruziia X Soviet Turkic X Volga X Kalmyk X North Caucasian X North Caucasian Turkic X Ossetian X Bashkir X Chuvash X Gagauz X Mesknetian X Tuvinian X Yakut X Soviet X X Tatar X Soviet Central Asia X Turkestani X Uzbeg/Uzbek X X Uzbekistani X Lebanese 2123-8 X X X Windish X Yugoslavian X X Slavic X X Tajik X Slavonian X

OCR for page 183
19 APPENDIX E TABLE E-1 Continued Kaiser Permanente CDC/HL7 Race Census Granular OMB Race and Hispanic and Ethnicity Massachusetts Ancestry Ethnicity Code Superseta Codesb Setc Ethnicity Category Granular Ethnicity Code Set 1.0 Middle Eastern or Xa 2118-8 North African Syrian 2125-3 X X X Baluchistan X Pathan/Pashtun X X Israeli 2127-9 X X X Algerian X X X Transjordan X Kurdish/Kurd X X Persian X North African X Alhucemas X Berber/Amazigh/ X X Imazighen Rio de Oro X Bahraini X Kuwaiti X X X Omani X X Qatar X X Saudi/Saudi Arabian X X X Muscat X Trucial States X Bedouin X Kuria Muria Islander X South Yemen X Aden X United Arab Emirates/ X X X Emirati Rom X Afghanistani/Afghan/ 2126-1 X X X Afghani Dutch West Indian X X Egyptian 2120-4 X X X Iranian 2121-2 X X X Iraqi 2122-0 X X X Jordanian X X X Armenian 2109-7 X X X Turkish/Turk X X Yemeni X X X Palestinian 2124-6 X X X Gaza Strip X West Bank X Syriac X X Assyrian 2119-6 X X X Chaldean X X Mideast X Arab/Arabic 2129-5 X X X continued

OCR for page 183
196 RACE, ETHNICITY, AND LANGUAGE DATA TABLE E-1 Continued Kaiser Permanente CDC/HL7 Race Census Granular OMB Race and Hispanic and Ethnicity Massachusetts Ancestry Ethnicity Code Superseta Codesb Setc Ethnicity Category Granular Ethnicity Code Set 1.0 American Indian or 1002-5 X Alaska Native American Indian 1004-1 X 553 additional 52 additional categories categories Alaska Native 1735-0 X Alaska Indian 1737-6 X 271 additional 7 additional categories categories No determinate OMB race classification Xa Brazilian X X Xa Cape Verdean X X Belizean X X X Guyanese X X X German from Russian X X Creole X X Xa American X X Madagascan 2052-9 X X Tunisian X X X Surinam X Trinidadian 2074-3 X X X West Indian 2075-0 X X X British Virgin Islander X British West Indian X X Moroccan X X X Xa Dominican 2069-3 X X South African X X Sudanese X X X Dinka X Nuer X Fur X Baggara X East Indian X X Eurasian X Hispanic or Latino 2135-2 Latin American X Latino X Hispanic X Californio X Tejano X Nuevo Mexicano X Spanish American X Spanish/Spaniard 2137-8 X X X Andalusian 2138-6 X Asturian 2139-4 X Castillian 2140-2 X Catalonian 2141-0 X

OCR for page 183
19 APPENDIX E TABLE E-1 Continued Kaiser Permanente CDC/HL7 Race Census Granular OMB Race and Hispanic and Ethnicity Massachusetts Ancestry Ethnicity Code Superseta Codesb Setc Ethnicity Category Granular Ethnicity Code Set 1.0 Belearic Islander 2142-8 X Gallego 2143-6 X Valencian 2144-4 X Canarian 2145-1 X Xa Salvadoran 2161-8 X X Xa Central American 2155-0 X Costa Rican 2156-8 X X X Nicaraguan 2159-2 X X X Panamanian 2160-0 X X X Canal Zone 2163-4 X Central American Indian 2162-6 X X X Xa Guatemalan 2157-6 X X Xa Honduran 2158-4 X X Xa Mexican 2148-5 X X La Raza 2152-7 X X Mexican American 2149-3 X X Mexicano 2150-1 X X Chicano 2151-9 X X Mexican American Indian 2153-5 X X X Mexican State X Xa South American 2165-9 X Argentinean/Argentine 2166-7 X X Bolivian 2167-5 X X Chilean 2168-3 X X Xa Colombian 2169-1 X X Ecuadorian 2170-9 X X Paraguayan 2171-7 X X Peruvian 2172-5 X X Uruguayan 2173-3 X X Venezuelan 2174-1 X X South American Indian 2175-8 X X X Criollo 2176-6 X Xa Puerto Rican 2180-8 X X Xa Cuban 2182-4 X X Xa Other ethnicity 2131-1 a T he Massachusetts Superset includes 31 ethnicity categories and additional “sub-ethnicities” that are not required for reporting but that an organization can collect, if useful. Acute care hospitals and health plans are required to report the basic OMB race categories along with the 31 granular ethnicity categories noted in this table with a footnote (a). b T he Census Ancestry codes do not roll up to the OMB race and Hispanic ethnicity categories. There are grouped into more broad categories based on geography: Western Europe, Eastern Europe and Soviet Union, Europe, Hispanic (including Spain), West Indies (except Hispanic), Central and South America (except Hispanic), sub-Saharan African, South Asia, Other Asia, Pacific, and North America (except Hispanic). c T he Kaiser Permanente list also includes “Jew/Jewish.”

OCR for page 183