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Suggested Citation:"Appendix C: Workshop Attendee List." Institute of Medicine. 2011. Patients Charting the Course: Citizen Engagement and the Learning Health System: Workshop Summary. Washington, DC: The National Academies Press. doi: 10.17226/12848.
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Appendix C


Workshop Attendee List

Madhu Agarwal

Department of Veterans Affairs

Rashmi Agarwal

Washington University in St. Louis

Jody Allen

Medco

Jennifer Alexander

Research Triangle Institute International

Shilpa Amin

Agency for Healthcare Research and Quality

Suresh Arya

National Institutes of Health

Allison Baer

American Society of Clinical Oncology

Mara Baer

BlueCross BlueShield Association

Michael Banyas

Health Resources and Services Administration

Bartley Barefoot

GlaxoSmithKline

Valerie Barton

Avalere Health

Rhonda Robinson Beale

OptumHealth Behavioral Solutions

Aman Bhandari

Office of Science and Technology Policy

Timothy Birner

sanofi-aventis

Suggested Citation:"Appendix C: Workshop Attendee List." Institute of Medicine. 2011. Patients Charting the Course: Citizen Engagement and the Learning Health System: Workshop Summary. Washington, DC: The National Academies Press. doi: 10.17226/12848.
×

Meryl Bloomrosen

American Medical Informatics Association

David Blumenthal

Office of the National Coordinator for Health IT

Douglas Boenning

Office of Science and Data Policy

Marilyn Sue Bogner

Institute for the Study of Human Error, LLC

Blair Bolles

AAA Technical Writing

Alice Bonner

Massachusetts Department of Public Health

J. Lyle Bootman

University of Arizona College of Pharmacy

Mary Jo Braid-Forbes

Braid-Forbes Health Research

Normandy Brangan

Centers for Medicare & Medicaid Services

Warren Brennan

SMA Info Partners, LLC

Steven Brotman

AdvaMed

Kathleen Buto

Johnson & Johnson

Daniel Campion

Outcome Inc.

Kristin Carman

American Institutes for Research

Linda Carter

Johnson & Johnson

Kee Chan

Boston University

Michael Chernew

Harvard University

Brenda Cleary

AARP

Alex Clyde

Medtronic Inc.

Vivian Coates

ECRI Institute

Perry Cohen

Parkinson Pipeline Project

Elaine Collier

National Center for Research Resources

Kathleen Connors de Laguna

Centers for Medicare & Medicaid Services

Richard Conroy

National Institutes of Health

James Conway

Institute for Healthcare Improvement

Suggested Citation:"Appendix C: Workshop Attendee List." Institute of Medicine. 2011. Patients Charting the Course: Citizen Engagement and the Learning Health System: Workshop Summary. Washington, DC: The National Academies Press. doi: 10.17226/12848.
×

Patrick Conway

Department of Health and Human Services

Hiliary Critchley

Hiliary Critchley Consulting, LLC

Sean Currigan

The American College of Obstetricians and Gynecologists

Helen Darling

National Business Group on Health

Carole DeSpain Magoffin

Health Quality Institutes of America

Patrice Desvigne-Nickens

National Heart, Lung, and Blood Institute

Don Detmer

University of Virginia

Deirdre DeVine

Evidence-based Practice Group

Christopher Dezii

Bristol-Myers Squibb Company

Louis Diamond

Thomson Reuters Healthcare

Michael Dinneen

Office of the Assistant Secretary ofDefense (Health Affairs)

John Dodd

Computer Sciences Corporation

Martey Dodoo

American Academy of Family Physicians

Katherine Doermann

American College of Cardiology

Bob Donnelly

Johnson & Johnson

Lynn Etheredge

George Washington University

Peter Fagan

Johns Hopkins HealthCare, LLC

Jeff Farkas

Medtronic Inc.

Reuven Ferziger

Johnson & Johnson

Rosemarie Filart

National Institutes of Health

Michael Fordis

Bayor College of Medicine

Frank Fortier

American Academy of Physician Assistants

Renee Fox

University of Maryland School of

Medicine

Allan Frankel

Pascal Metrics

Angela Franklin

American College of Emergency

Physicians

Suggested Citation:"Appendix C: Workshop Attendee List." Institute of Medicine. 2011. Patients Charting the Course: Citizen Engagement and the Learning Health System: Workshop Summary. Washington, DC: The National Academies Press. doi: 10.17226/12848.
×

Susan Friedman

American Osteopathic Association

Charlene Frizzera

Centers for Medicare & Medicaid Services

Andrea Furia-Helms

Food and Drug Administration

Sandra Fusco-Walker

Centers for Medicare & Medicaid Services

Sherine Gabriel

Mayo Clinic

Jean Paul Gagnon

sanofi-aventis

Lynne Garner

Donaghue Foundation

Reed Gelzer

Advocates for Documentation Integrity and Compliance

Richard Gilfillan

Geisinger Health System

Cliff Goodman

The Lewin Group

Shefa Gordon

National Institutes of Health

Mark Gorman

National Coalition for Cancer Survivorship

Jennifer Graff

National Pharmaceutical Council

Tina Grande

Healthcare Leadership Council

Rachel Groman

American Association of Neurological Surgeons

Stuart Guterman

The Commonwealth Fund

Rosemarie Hakim

Centers for Medicare & Medicaid Services

Andrea Harabin

National Heart, Lung, and Blood Institute

Susan Hardy

Kaiser Permanent Mid Atlantic

John Haughton

DocSite

Allison Hawke

Dartmouth Medical School

Giselle Hicks

National Breast Cancer Coalition

Lindsey Hoggle

Health Project Partners, LLC

Mary Horlick

National Institute of Diabetes and Digestive and Kidney Diseases

Julianne Howell

Centers for Medicare & Medicaid Services

Craig Hunter

United BioSource Corp.

Suggested Citation:"Appendix C: Workshop Attendee List." Institute of Medicine. 2011. Patients Charting the Course: Citizen Engagement and the Learning Health System: Workshop Summary. Washington, DC: The National Academies Press. doi: 10.17226/12848.
×

Ferdinand Ibebuchi

Society of Health Policy Young Professionals

Belinda Ireland

BJC Healthcare

Jeff Jacobs

American Society for Clinical Pathology

Marcia Kean

Feinstein Kean Healthcare

James Knutson

Aircraft Gear Corporation

Murray Kopelow

Accreditation Council for Continuing Medical Education

Holly Korda

Altarum Institute

Joel Kupersmith

Veterans Health Administration

Hanns Kuttner

Hudson Institute

Arnold Kuzmack

Food and Drug Administration

Joseph Kvedar

Partners HealthCare

Joyce Lammert

Virginia Mason Medical Center

William Lang

American Association of Colleges of Pharmacy

Christopher Langston

The John A. Hartford Foundation

Rick Larue

University of Florida College of Medicine

Janet Leigh

The Robert Wood Johnson Foundation

Teresa Lee

AdvaMed

James Leonard

Kennell and Associates

Jeffrey Lerner

ECRI Institute

Hillary Lewis

University of Texas Health Science Center at Houston

Svetlana Lisanti

Bio-Medical Resources Group

George Lundberg

MedScape

Erin Mackay

Healthcare Leadership Council

Danica Marinac-Dabic

Food and Drug Administration

Norman Marks

Food and Drug Administration

Stephen Marmaras

Biotechnology Industry Organization

Suggested Citation:"Appendix C: Workshop Attendee List." Institute of Medicine. 2011. Patients Charting the Course: Citizen Engagement and the Learning Health System: Workshop Summary. Washington, DC: The National Academies Press. doi: 10.17226/12848.
×

John Martin

Premier Inc.

William Martin

National Institute of Environmental Health Sciences

Daniel Masys

Vanderbilt University

Kathleen McCormick

National Heart, Lung, and Blood Institute

Arthur Meltzer

Centers for Medicare & Medicaid Services

Susan Mende

Robert Wood Johnson Foundation

Todd Michael

sanofi-aventis

Pamela Milberg

National Coalition for Cancer Survivorship

Doriane Miller

New Health Partnerships

Nancy Miller

National Institutes of Health

Thomas Miller

American Enterprise Institute

Wilhelmine Miller

George Washington University

Carol Monaco

American Osteopathic Association

Marilyn Moon

American Institutes for Research

Hazel Moran

Eisai Inc.

Bob Morrow

Albert Einstein College of Medicine

Farzad Mostashari

Office of the National Coordinator for Health IT

Barbara Myklebust

George Washington University

Sonia Nagda

National Partnership for Women & Families

Cheryl Nelson

National Heart, Lung, and Blood Institute

Rachel Nelson

Office of the National Coordinator for Health IT

Nicole Newburg-Rinn

Health Resources and Services Administration

Lynnette Nilan

Department of Veterans Affairs

William Novelli

Georgetown University

Carolyn Padovano

Research Triangle Institute International

Suggested Citation:"Appendix C: Workshop Attendee List." Institute of Medicine. 2011. Patients Charting the Course: Citizen Engagement and the Learning Health System: Workshop Summary. Washington, DC: The National Academies Press. doi: 10.17226/12848.
×

Todd Park

Department of Health and Human Services

Michael Parkinson

Altarum Institute

Lee Partridge

National Partnership for Women & Families

Les Paul

National Pharmaceutical Council

Sarah Pitluck

Genentech

Suniti Ponkshe

Ponkshe Consulting Services

Winifred Quinn

AARP

Nicole Quon

Boehringer Ingelheim Pharmaceuticals Inc.

Sneha Rangarao

Center for Medical Technology Policy

Amy Razmus

Booz Allen Hamilton

Mary Lacey Reuther

BGR Group, LLC

Sarah Richardson

Avalere

Jhoanna Roa

Independent Clinical Research Associate

Murray Ross

Kaiser Permanente

Louis Rossiter

The College of William & Mary

Helena Rubinstein

Independent

Susan Samson

UCSF Breast SPORE Advocacy Core

Karen Sanders

American Psychiatric Association

Dennis Scanlon

The Pennsylvania State University

Jyme Schafer

Centers for Medicare & Medicaid Services

Karen Schoelles

ECRI Institute

Randy Schubring

Mayo Clinic

Jill Schulmann

Markle Foundation

Mary Jean Schumann

American Nurses Association

Sonia Sekhar

Center for American Progress

Karen Sepucha

Harvard University

Suggested Citation:"Appendix C: Workshop Attendee List." Institute of Medicine. 2011. Patients Charting the Course: Citizen Engagement and the Learning Health System: Workshop Summary. Washington, DC: The National Academies Press. doi: 10.17226/12848.
×

Belinda Seto

National Institute of Biomedical Imaging and Bioengineering

Megan Sheahan

American Pharmacists Association

Gail Shearer

Consultant

Samantha Shinberg

University of Delaware

Susan Shurin

National Heart, Lung, and Blood Institute

Sharon Siler

Avalere Health

Diane Simmons

Center for Information & Study of Clinical Research Participation

Isabella Sledge

Tides Medical

Karen Smith

AstraZeneca Pharmaceuticals

Mark Smith

California HealthCare Foundation

James Sorace

Department of Health and Human Services

Jason Spangler

Partnership for Prevention

Alan Spielman

Utilization Review Accreditation Commission

Donald Steinwachs

Johns Hopkins University Bloomberg School of Public Health

Susanne Stoiber

Stoiber Health Policy, LLC

Martha Sylvia

Johns Hopkins HealthCare

Paul Tang

Palo Alto Medical Foundation

Sharon Terry

Genetic Alliance

Nina Thomas

Eli Lilly & Company

Merianne Tiglao

Center for Medical Technology Policy

Barbara Tomar

American College of Emergency Physicians

Sylvia Trujillo

American Medical Association

Valerie Tully

Eli Lilly and Company

Dale Collins Vidal

Dartmouth Medical Center

Kevin Vigilante

Booz Allen Hamilton

Fran Visco

National Breast Cancer Coalition

Suggested Citation:"Appendix C: Workshop Attendee List." Institute of Medicine. 2011. Patients Charting the Course: Citizen Engagement and the Learning Health System: Workshop Summary. Washington, DC: The National Academies Press. doi: 10.17226/12848.
×

Patricia Wahl

BJC HealthCare

Amy Walker

Center for Biomedical Informatics & Information Technology

Lan-Hsiang Wang

National Heart, Lung, and Blood Institute

Susan Wang

Johns Hopkins Health System

Myrl Weinberg

National Health Council

Anne Weiss

The Robert Wood Johnson Foundation

Barbara Wells

National Heart, Lung, and Blood Institute

Dave Wong

Noblis

Kacey Wulff

National Institutes of Health

Imam Xierali

Robert Graham Center

Suggested Citation:"Appendix C: Workshop Attendee List." Institute of Medicine. 2011. Patients Charting the Course: Citizen Engagement and the Learning Health System: Workshop Summary. Washington, DC: The National Academies Press. doi: 10.17226/12848.
×

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Suggested Citation:"Appendix C: Workshop Attendee List." Institute of Medicine. 2011. Patients Charting the Course: Citizen Engagement and the Learning Health System: Workshop Summary. Washington, DC: The National Academies Press. doi: 10.17226/12848.
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Suggested Citation:"Appendix C: Workshop Attendee List." Institute of Medicine. 2011. Patients Charting the Course: Citizen Engagement and the Learning Health System: Workshop Summary. Washington, DC: The National Academies Press. doi: 10.17226/12848.
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Suggested Citation:"Appendix C: Workshop Attendee List." Institute of Medicine. 2011. Patients Charting the Course: Citizen Engagement and the Learning Health System: Workshop Summary. Washington, DC: The National Academies Press. doi: 10.17226/12848.
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Suggested Citation:"Appendix C: Workshop Attendee List." Institute of Medicine. 2011. Patients Charting the Course: Citizen Engagement and the Learning Health System: Workshop Summary. Washington, DC: The National Academies Press. doi: 10.17226/12848.
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Page 276
Suggested Citation:"Appendix C: Workshop Attendee List." Institute of Medicine. 2011. Patients Charting the Course: Citizen Engagement and the Learning Health System: Workshop Summary. Washington, DC: The National Academies Press. doi: 10.17226/12848.
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Page 277
Suggested Citation:"Appendix C: Workshop Attendee List." Institute of Medicine. 2011. Patients Charting the Course: Citizen Engagement and the Learning Health System: Workshop Summary. Washington, DC: The National Academies Press. doi: 10.17226/12848.
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Page 278
Suggested Citation:"Appendix C: Workshop Attendee List." Institute of Medicine. 2011. Patients Charting the Course: Citizen Engagement and the Learning Health System: Workshop Summary. Washington, DC: The National Academies Press. doi: 10.17226/12848.
×
Page 279
Suggested Citation:"Appendix C: Workshop Attendee List." Institute of Medicine. 2011. Patients Charting the Course: Citizen Engagement and the Learning Health System: Workshop Summary. Washington, DC: The National Academies Press. doi: 10.17226/12848.
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Page 280
Suggested Citation:"Appendix C: Workshop Attendee List." Institute of Medicine. 2011. Patients Charting the Course: Citizen Engagement and the Learning Health System: Workshop Summary. Washington, DC: The National Academies Press. doi: 10.17226/12848.
×
Page 281
Suggested Citation:"Appendix C: Workshop Attendee List." Institute of Medicine. 2011. Patients Charting the Course: Citizen Engagement and the Learning Health System: Workshop Summary. Washington, DC: The National Academies Press. doi: 10.17226/12848.
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Page 282
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As past, current, or future patients, the public should be the health care system's unwavering focus and serve as change agents in its care. Taking this into account, the quality of health care should be judged not only by whether clinical decisions are informed by the best available scientific evidence, but also by whether care is tailored to a patient's individual needs and perspectives. However, too often it is provider preference and convenience, rather than those of the patient, that drive what care is delivered. As part of its Learning Health System series of workshops, the Roundtable on Value & Science-Driven Health Care hosted a workshop to assess the prospects for improving health and lowering costs by advancing patient involvement in the elements of a learning health system.

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