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The Role of Human Factors in Home Health Care: Workshop Summary 12 Effects of Policy, Reimbursement, and Regulation on Home Health Care Peter A. Boling Human factors in home health care involve many stakeholders: those receiving care, families and friends, paid workers of various kinds and skill levels, employers, and communities in a broad sense, because tens of millions of individuals rely on home care each day. Despite excellent workers and advanced technology, people experience inconsistent quality, fragmented care, and poorly aligned payments. Home care remains a stepchild while health policy centers on hospitals and other facilities, physicians, pharmacies, and insurers. Despite a holistic culture, a large, dedicated workforce, and care valued by recipients, home care remains poorly understood, sometimes mistrusted, and abstract for many decision makers, and as currently organized it has limited proven ability to control overall costs. This all can change. THE LANDSCAPE OF HOME HEALTH CARE Societal Context, Costs, and Care Silos There is a growing sense of crisis. Medicare cost about $500 billion in 2009 and the Medicare Hospital Insurance fund balance will be zeroed in seven years. Without a plan to “bend the cost curve,” corrective options include reduced provider payments, reduced coverage, higher copayments, or taxes to raise revenues equal to about 4 percent of gross domestic product 10 years hence. The larger frame is over $2 trillion annually spent on health care, or one-sixth of the economy, impacting the nation’s ability to compete internationally. Nearing the brink, people debate about the num-
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The Role of Human Factors in Home Health Care: Workshop Summary bers of uninsured (45 million) or underinsured (80 million), public and private insurance options, regional cost variation, poor public health metrics, and financing for potential solutions while spending 30 percent more per capita than any other industrialized nation on health care. At $57 billion in 2007 including all payers, home care is only 3 percent of U.S. health care (National Association for Homecare & Hospice, 2009) (see Figure 12-1). And like health care generally, home care is organized into separately funded categories, called silos: home health agencies, hospices, medical equipment, home health aides, pharmacy managers, medical providers, and thousands of private bureaucracies. Two key referral sources, hospitals and nursing homes, are in fiscal and regulatory silos of their own. Thus, financing promotes discontinuous care. Rules that govern the care of people with heavy chronic illness burdens result in an uncoordinated, overly costly, and hazardous delivery system that is far from patient-centered and is known for its failings (Schoen et al., 2008) (see Figure 12-2). Some financing models, including Medicare Part C, offer opportunities to break down silos using financial risk. However, only 11.4 million people, or about a quarter of Medicare beneficiaries, are in such payment models (Henry J. Kaiser Family Foundation, 2009, 2010). And there are FIGURE 12-1 Personal health care expenditures, 2006. NOTE: SNF = skilled nursing facility. SOURCE: National Association for Homecare & Hospice (2009).
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The Role of Human Factors in Home Health Care: Workshop Summary FIGURE 12-2 Home care silos and payment sources. other concerns. Importantly, managed care enrollees are disproportionately healthy, and most high-cost seniors rely on standard Medicare benefits. Even in risk-bearing entities, integrated at-home care with a strong medical component is rare. Reasons for this lack of emphasis include the origins of managed care models in conventional settings and finance systems, competing corporate interests for the insurer, and lack of senior management familiarity with what advanced home care can provide. However, portable technologies and experiences with caring for sick patients in the community are now lighting new paths in which fully developed and integrated interdisciplinary home care teams, which include physicians and other medical providers, work together with other providers of care and community resources to produce better care at lower cost. Population Need for Home Care Individual needs for community-based care vary. Although it is simplified, and acknowledging that some patients fall into more than one of these categories, for the purposes of framing, I divide the general population into subsets based on typical care needs (see Figure 12-3). Their needs vary by
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The Role of Human Factors in Home Health Care: Workshop Summary group, as do the human factors impacts of policy, regulation, and available care options. Group A contains healthy, predominantly younger persons who are functional and independent but might be considered home care users if one includes public health measures deployed at home to promote healthy living, such as reminder systems to lose weight or stop smoking and web-based self-help tools for episodic illness (flu, ankle sprain, rash). Group B members are mobile and can readily visit physician offices but have chronic diseases, such as high blood pressure, diabetes, asthma, or sleep apnea. Home modification, diet, exercise, and monitoring are routinely used at home, and in-home care improves outcomes (Ogedegbe and Schoenthaler, 2006; Shelledy et al., 2009). Examples are blood pressure monitors (if accurate) (Akpolat et al., 2009), glucose monitors, peak flow meters, asthma action plans, machines for maintaining continuous positive airway pressure, air filters, and removal of mold-bearing items. Individuals use the Internet to send data to physicians from home or to receive medical advice. Broadly construed, they are home care users. Group C members either have conditions from birth, like cerebral palsy or other chronic conditions—which are often neurological or mus- FIGURE 12-3 The home care population and its typical care needs.
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The Role of Human Factors in Home Health Care: Workshop Summary culoskeletal and severely limit function but are not progressive—or disabling permanent injuries acquired in childhood or adult life. An example is paraplegia. With assistive technologies, many such individuals function independently, are infrequently ill, and are rarely hospitalized. Group C members use home care for support of activities of daily living (ADLs) and instrumental activities of daily living (IADLs), often in the form of medical devices plus personal assistance with bathing, dressing, and mobility. Group C members fall through cracks in insurance coverage or are harmed by bureaucracy used to control cost and fraud. For example, a 50-year-old quadriplegic man, free of wounds for decades, now has a deep, dangerous Stage 4 pressure wound that will take months to heal because of a 2-week administrative delay in replacing a damaged support surface. Group D members are generally older, frail, and functionally impaired but medically stable. Many have dementia or inborn cognitive impairment that requires supervision and standby help to prevent injury or to remain in the community. Also prevalent are advanced stages of disabling conditions, like arthritis or prior stroke, that mandate physical support each day from equipment and other persons. However, because these illnesses do not cause frequent acute medical crises, Group D individuals use limited skilled home care. Care plans do not change from month to month. Group D members have difficulty accessing office-based medical care because of immobility. However, in Group D money cannot be readily saved through case management, other than in a small subset whose eventual nursing home placement can be deferred by socially oriented caregiver support. Group D needs long-term home care. Third-party coverage is largely limited to those in poverty (Medicaid) or those who are affluent (long-term care insurance). Group E members of all ages are in postacute care, recovering from an acute episode like major surgery, acute illness, or trauma. Return to independence is expected, and baseline health is fairly good. Some may receive intravenous therapy at home or at work for a curable infection. Technically advanced home care may be extensive, but its use is temporary. Current Medicare and private insurance payment designs best suit the episodic needs of Group E. Group F includes most of the need for what typically comes to mind when thinking about home health care. Users vary in age from infants to very old adults, carry heavy chronic illness burden, often with end-stage organ system failure (heart, lung, liver, kidney, brain), have multiple concurrent conditions, and have significant persistent functional deficits, often three or more, and in many cases five or six, ADL deficits. In Group F, infants might be premature with resultant home ventilator dependence or a condition requiring artificial feeding. Imagine the mother, caring for three other children and a household, trying to manage these daily responsibilities and also bring such a technology-dependent child to
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The Role of Human Factors in Home Health Care: Workshop Summary the doctor’s office. Younger adults in Group F might have complications of childhood diabetes or cystic fibrosis. Older adults, however, make up the majority of Group F. They have a mix of diseases, with no one predominant. This mix is shaped by conditions that are most prevalent: stroke, vascular disease, emphysema, complicated diabetes, and more. The variety and complexity of conditions challenge clinicians and require diverse skills. Illness acuity and stability fluctuate. Individuals rapidly get sick enough to be hospitalized. Group F members move frequently between health care silos and have multiple changes in condition that require revised care plans and active, longitudinal coordination among providers. Errors are made in as many as half of the transitions between settings. Most of the 2 to 3 million Group F members deteriorate with time and die, with an average life expectancy of 3 to 4 years. Functional Dependency, Chronic Illness, and Service Use Activity limitation due to chronic conditions occurs in 7 percent of children and 42 percent of people ages 75 and over. ADL limitations (walking, transferring, bathing, dressing, eating, or toileting) increase with age, and severe deficits (three or more ADLs) occur in 1.9 million community-dwelling U.S. adults (see Table 12-1) (Centers for Disease Control and Prevention, 2009). Among community dwellers ages 65-74, the National Health Interview Survey revealed that 912,000 out of 17.4 million people (5 percent) cannot sit for 2 hours (are bedfast) (Centers for Disease Control and Prevention, 2009), and about 15 to 20 percent need help to walk. Such people often have difficulty leaving home for health care. These functional deficits are on the final common path, where the combination of severe illness and incapacity drive health care costs. Sorting the Medicare population by cost, the top 5 percent used 43 percent of resources, with average costs of $63,000 in 2002 (Holtz-Eakin, 2005). TABLE 12-1 Community-Dwelling Adults with Three or More ADL Deficits Age Group Percent with 3+ ADL Deficits Number of Persons Affected 18-44 0.2 276,000 45-54 0.5 228,000 55-64 0.9 272,000 65-74 1.6 299,000 75-84 3.2 439,000 85+ 9.7 378,000 NOTE: ADL = activities of daily living.
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The Role of Human Factors in Home Health Care: Workshop Summary Some were catastrophic cases, some fully recovered, and some died. Those who lived 5 years (the majority) were intermittently high-cost users from month to month. In 2005, the top 10 percent of Medicare beneficiaries used 63 percent of resources, with average annual costs in the top 10 percent bracket of $44,000 (Potetz and Cubanski, 2009). A similar pattern is seen in younger (Medicaid) and employer-based insured groups. Impaired physical function itself predicts high costs. In 2004, simply having three or more ADL deficits conveyed average costs of $32,000 per person (Medicare Beneficiary Survey) compared with $15,000 with one or two ADL deficits and $7,000 with no ADL deficits. Along with function, the presence of multimorbid conditions drives cost. People with five or more chronic conditions use two-thirds of the resources, receive far more prescriptions, see a multitude of doctors, and have exponentially more hospital stays, including many that are preventable (Goldfield et al., 2008). Cost-containment strategies based on a single disease or on a nurse care coordinator who is not a core health care team member are unlikely to succeed, as most recently shown in the failed Medicare Health Support demonstration (Linden and Adler-Milstein, 2008) and the Coordinated Care Demonstration (Brown et al., 2008). No published national analysis directly links ADL deficits, home health use, and overall costs at the individual level. However, because of the close link with hospital use, home care users probably do include most of the costliest beneficiaries. In Medicare Part A, for example, each year about 3 million people meet the homebound and skilled care criteria and receive skilled home health care at some point, totaling about 7 million discrete episodes each year. Summing up, there are 3-4 million relatively immobile people in U.S. communities who span all ages, are sick with multiple concurrent illnesses, and have intermittently high health care costs. Many are not terminally ill (i.e., will not die in 6 months or less) and do not qualify for hospice; these people regularly fall through the cracks of the formal care system. Finally, every discussion of home care must include unpaid family caregivers, who do most of the work. Caregiving falls to people who are not trained as clinicians yet are required to do technical clinical work along with basic daily care. Learned skills include intravenous therapy, tracheostomy and ventilator support, wound care, catheter changes, and medication oversight, work that in other care settings is restricted to licensed nurses. Most caregivers are women, their average duration exceeds 4 years, and they average 25 hours per week (Giovannetti et al., 2009). In this role, they lose time from work, lose employment, and develop health problems, with adverse economic consequences for worker and employer (Coe and Van Houten, 2009). Employers’ cost for full-time employees with caregiving roles is $17.1 billion ($2,441 per employee), and total cost to employers
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The Role of Human Factors in Home Health Care: Workshop Summary for full-time, employed caregivers is $33.6 billion (Metlife, 2006). This is a significant part of the human factors equation. Chapter 7 of this volume discusses informal caregivers in detail. FIVE SERIOUS PROBLEMS OF LONG-TERM HOME HEALTH CARE Problem 1: Human ADL Support, Medicaid, and Long-Term Care Coverage The lack of a consistent national policy on long-term care or of a systems approach to care at home is a major overarching problem for home care that daily affects paid providers, care recipients, and their families, who are trying to solve these problems. In patient Groups C and D, most paid home care is long-term care, financed through Medicaid or out of pocket. Medicare does not cover long-term care, and most U.S. citizens cannot afford or have not purchased long-term care insurance. This leaves no options for millions of older persons or for younger functionally impaired persons without property or income. It leaves professional care providers daily scrambling to help find resources from a polyglot of local charities and other programs that have inadequate scope, wax and wane, and are difficult to find. Care recipients who qualify for Medicaid and their families depend heavily on paid, unskilled caregivers who may be in the home from 4 to 16 hours per day for ADL support and standby assistance. Even when they can find work, low-income care recipients and family members avoid seeking employment (income) because they risk losing coverage for needed equipment, medication, and personal assistance. People even divorce to secure Medicaid coverage. Long-term care is not covered by most employer-based insurance. Moving across state lines to be near other family members who can help with care can be problematic, since state Medicaid benefits vary greatly. In addition, states cannot carry deficits and may abruptly reduce services when fiscally stressed, whereas federal programs like Medicare are more protected. Along with impacts on care recipients and families who need the services, health care providers and case managers spend many frustrating hours each week on securing coverage. Medicaid is often the key. Medicaid requires a comprehensive means test, with a threshold near the federal poverty level that varies from state to state. Medicaid approval and access to services depends on review of detailed information about personal finances and often takes months. Once coverage is approved, weeks more may pass before services start—which can be a long time during a sociomedical crisis. Coverage often lapses due to failure to receive or complete annual update forms, wrong addresses, changes in
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The Role of Human Factors in Home Health Care: Workshop Summary regulation, or small changes in household finances. All these policy and regulatory gaps affect both families and home care workers in terms of burden and care outcomes. Once coverage is in place, medical providers who have little training in or knowledge of long-term care are deluged with volumes of documents to review and sign for supplies, equipment, and services—such as identical forms every 6 months for diapers, disposable pads, or feedings. The paperwork, with the invisible rules behind it, is a de facto throttle on the system. The work, uncompensated and tedious, is an inefficient, ineffective way to manage resource use. Overburdened providers may sign papers to “clear the stack” without scrutiny or fail to sign important forms. The administrative burden derives from the limited financing of long-term care, which generates regulatory demands to document need and use. The lack of incentives for clinicians to engage in oversight has led to a dearth of qualified clinical managers who know what services are needed and what is superfluous or fraudulent. Because Medicaid long-term care financing is a key theme, it is important to consider the impact of state payment policy on care. States vary fivefold in Medicaid funding for community-based care, which averages 2.3 percent of gross state product (GSP): in 2004, the range was from less than 1 percent in the Dakotas and Nebraska to 4.1 percent in Massachusetts and 4.8 percent in New York. By contrast, nursing home care averaged 7.4 percent of GSP, ranging from 1.9 percent in Alaska and 3.2 percent in Nevada to 12.2 percent in Connecticut. New York and Massachusetts are also above average in nursing home spending, consistent with relatively generous Medicaid programs in those states (see http://www.kff.org/). Some argue that targeted and well-managed Medicaid community-based services meet needs more effectively (Kemper et al., 2008) and reduce state nursing home bills by more than the home care cost. However, state policy has evolved slowly, despite much expert concurrence with such concepts. The quality of home health aide and personal care also is a recognized national issue (Stone and Newcomer, 2009). There is minimal required training, and caregivers are paid near minimum wage. Commonly reported problems include rapid turnover and aides failing to appear, being rude, stealing, or doing poor work. Of the typical hourly cost of $18, half goes to agency overhead. Conversely, in many cases aides are trusted like family members; donate their own time, money and possessions to the household of the care recipient; and are invaluable. A new survey called Consumer Assessment of Healthcare Providers and Systems (CAHPS) for home and community-based care services has been created to systematically measure quality. The CAHPS program is a family of standardized surveys that ask consumers and patients to evaluate health care experiences, covering issues like provider communication skills and service accessibility.
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The Role of Human Factors in Home Health Care: Workshop Summary Individual home care agreements are made by private individuals with other private individuals. With no agency overhead, these workers are paid more. Such arrangements are treasured by those who find reliable help and are difficult to count. Initiatives such as the Cash and Counseling Demonstration and Evaluation (Foster, Dale, and Brown, 2007), in which care recipients or families manage home care using public funds, have succeeded in improving quality and afford insight into the human factors dimensions of long-term care in the community (Foster, Dale, and Brown, 2007; Kemper, 2007; Wiener, 2007). Between CAHPS and creative new models like Cash and Counseling, plus the increasing affluence of baby boomers, the personal care component of home health care is moving forward, but it will have to contend with the increasing ratio of older persons needing care to younger persons available to deliver it and will increasingly depend on an international workforce. Problem 2: Assistive Technology and ADL Support A second core feature of long-term care at home is assistive technology, including durable medical equipment (DME). Financing is less problematic in this area than for personal care, since devices are funded by both Medicaid and Medicare Part B (with a 20 percent copayment for some). Equipment includes basic items, like wheelchairs, walkers, commodes, and hospital beds, and advanced items, like pneumatic patient lifts and powered personal vehicles (Brummel-Smith and Dangiolo, 2009). Key human factors principles include recognizing clinical need, selecting the right device for the person and care setting, training the user, and ensuring maintenance. Although a new era is on the horizon with technical capacity for “smart houses,” the nation is far from ready to disseminate this costly technology to the broad population in need. Financing approaches include rental (for high-cost devices), monthly fees, rent-to-own, and direct purchase. A Medicare issue arises under rent-to-own: when rental ends in ownership, service support often stops. Items wear out or break. Some repairs are covered; other items are replaced. Too often, bureaucratic delays have serious human clinical consequences. Historically, profits from high-end items have fed durable medical equipment providers’ bottom lines. These profits paid for customer services (trained support staff who deliver equipment and teach users) and charity care (forgiveness of unattainable copayments). With reduced Medicare payments, support services are shrinking. In most locations, competition and regulatory oversight still ensure new or newly refurbished equipment, but the quality of training and support is uncertain. Further Medicare cuts could weaken support because of the cost of expert respiratory and occupational therapists. Other human factors impacts include fear and risks associated
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The Role of Human Factors in Home Health Care: Workshop Summary with the equipment: some devices frighten users and families. Risk of injury or death comes with improper use, so training and support are important. Mandatory oversight of quality is provided by external accrediting bodies and Medicare program surveyors, but it is limited. Unfettered direct-to-consumer marketing for high-end durable medical equipment, like scooters and lift chairs, plus low-cost items, like moist heating pads that lack proven benefit but feel good, is another problem. Individuals are told “all you need is an order from your doctor” without knowledge of whether they meet coverage criteria. This puts physicians in an awkward position. Informing consumers may relieve unmet needs, yet marketing creates both overuse and inherent resistance among physicians to approve even the legitimate services that are lost in the background of overuse. Oversight of durable medical equipment is complex. Some is managed under contracts through Medicare Part A organizations, like hospices and nursing homes. This secondary arrangement was devised to prevent duplication and target services, but it complicates physicians’ and discharge coordinators’ roles and alters patient choice. Ordering durable medical equipment requires specialized knowledge. Regulations are opaque; a physician cannot see what is covered when doing paperwork. Overall, misdirected use of durable medical equipment is modest compared with excessive and redundant diagnostic tests and procedures performed by medical specialists and readily accepted by patients and payers. As technology advances, it will be increasingly vital to educate consumers about selecting the right device and about safe use. I recall recently talking with a young woman now caring for her ventilator-dependent 50-year-old mother at home. The daughter is bright and has learned a lot about highly technical clinical care in a short time. Yet she cannot cope with this challenge without substantial ongoing professional support. Problem 3: Inadequate Postacute Care Model for Complex Patients The transition from hospital to home and the immediate posthospital interval are vital. Unacceptable rates of serious errors are well documented, affecting perhaps half of cases: wrong medicines, no medicines, no follow-up plans, and little or no clinical information for postacute providers are common rather than exceptional (Boling, 2009). Postacute home health care is delivered by teams of nurses, therapists, aides, and social workers employed by home health agencies. The care plan is reconstructed at home with limited data. Physician involvement is minimal, making home care the only setting in which seriously ill individuals are cared for almost entirely without active physician input. Medicare Part A has the largest influence on this home care silo. Cost-based financing in the 1980s and 1990s was associated with exponential
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The Role of Human Factors in Home Health Care: Workshop Summary year ($1,500 per person) if adjusted to an enrolled population of 1,000 individuals. A recent randomized clinical trial of an at-home geriatric assessment and consultation program for low-income seniors in Indianapolis called GRACE showed marked improvement in clinical care. There was also a 40 percent reduction in hospital use during the second year of operation (Counsell et al., 2007) among higher risk participants, even though this was not a case management or primary care model and did not include urgent response capacity. In sum, comparing current usual home health care to office, hospital, or even nursing home settings, one finds a model that is largely missing one key ingredient: an active medical presence. Yet substantial evidence and common sense both suggest that combining medical care with other home health services will improve outcomes, will save money, and is preferred. Financial incentives are a key reason for this striking incongruity. As a matter of health policy, for the benefit of both users and providers, a new, integrated home care model is needed, free of the cost of bricks and mortar and empowered by portable technology. FUTURE POLICY DIRECTIONS In considering people with functional loss and advanced chronic illness (Groups C through F), there are two main policy priorities. One is a national policy for financing long-term care in support of activities of daily living that incorporates a broad vision with the home as the preferred locus and center for care. To achieve this, a systems approach must be employed, with careful consideration of the many contributing elements: living space design, technology applications of a variety of types, workforce development and training, financing mechanisms with incentives aligned to attain objectives, and community support services, like delivered food and other necessary amenities. The other priority is redesign of medical care for people who are frequent users of costly services, again using a broad conceptualization of what home care can deliver. This requires changes in both delivery systems and regulation and financing, with incentives aligned to produce desired results and the use of setting-specific quality measures, like those discussed earlier. Payment reform alone is inadequate, as managed care experiments have shown. Because home care has been a stepchild in health care policy, it is necessary to put new home care models into the spotlight—models that are patient-centered and focus on population needs—rather than starting with the needs of the health care system and its funding sources. The serious health problems of community-dwelling elderly persons cannot be addressed in silos or by managing one condition at a time.
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The Role of Human Factors in Home Health Care: Workshop Summary Certain systemic conditions (like vascular disease, either alone or with diabetes) underpin much of the most costly care but produce multiple ailing body systems: a person with coronary disease, peripheral vascular disease, ischemic stroke, chronic kidney disease, congestive heart failure, atrial fibrillation, peripheral neuropathy, visual impairment, and diabetes has many conditions. Most of these diagnoses involve vascular pathology, but the key to optimal management is a core team of advanced generalists who can concurrently treat all of the conditions, with help as needed from organ-specific specialists, rather than having each of several different specialized teams manage one condition, or “care by committee.” Going to the care recipient’s home is also the only way to really know what is going on in many such cases. Focusing on these costly, immobile individuals with enhanced, medically led, interdisciplinary care delivered in the home can reduce resource use by up to 50 percent while improving safety and satisfaction. Payment models must be addressed simultaneously. Seasoned administrators and noted analysts write about strategies to control runaway Medicare and Medicaid costs (Hsiao, 2007; Rosenthal, 2009; Wilensky, 2009). Options are few: fee-for-service, per-episode (short-term risk-bearing arrangement), capitation (longer-term risk-bearing arrangement that may include global or partial risk), salary with defined responsibilities (VA or staff model health maintenance organization), and gain-sharing based on predicted costs. Ultimately providers must be either placed at risk or rewarded differentially on the basis of desired outcomes. Quality must be part of the final formula, linking results to payment. Pay for performance is a way of modifying payment based on specific process measures. Gainsharing is a results-based form of pay for performance. For physicians, fee-for-service payment incentives foster high-volume service in efficient practice settings; they maximize encounters and procedures rather than care coordination and focused management of a few high-cost individuals. And fees for home visits and for care coordination are inadequate to generate sustained interest and growth. However, studies show that alternate modes of financing can attract physicians (Devlin, 2008). Risk-bearing strategies require capital reserves and large organizations. To date, many risk-bearing mechanisms were subverted by recruiting low-cost individuals. Risk-bearing arrangements for complex patients have either enrolled small numbers (PACE) or failed due to their care model. In any organization, unless senior management is committed to innovation, advanced home care is unlikely to evolve. Pay for performance in conventional financing models offers little incentive for the arduous case management work needed to improve patterns of use. Gain-sharing in conjunction with restructured care delivery systems remains largely untested.
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The Role of Human Factors in Home Health Care: Workshop Summary One new idea is Independence At Home (IAH), a gain-sharing strategy introduced in Congress in 2009 (H.R. 2560 and S. 1131) and included in the final health reform bill as Section 3024. It is based on using a technology-enhanced, medically led mobile team to care for small numbers (150 minimum) of high-risk Medicare beneficiaries. Leaving Medicare Parts A and B intact, IAH teams would share in savings from prevented hospitalizations, creating an incentive to work hard and to be responsive. Savings would be calculated based on predicted costs of the population served. IAH teams would follow vulnerable, medically complex, function-limited persons for years, probably for life in most cases, providing prompt access to holistic, comprehensive care, and a one-stop shop. IAH teams would gradually expand, “building out” the problems in the current system. PACE has shown that CMS can estimate cost at the individual level well enough for its sites to succeed despite small size and wide variance around mean per-person costs. With protections against inadequate service that include measures of satisfaction, easy voluntary withdrawal, and selected evidence-based chronic care process measures that are meaningful to patients with multimorbidity, IAH offers improved care plus cost savings. It is designed for low-cost, local start-up to speed implementation, without having large risk contracts or physical plants. Electronic health records are essential and expected to improve quality and safety and enhance efficiency, but they are also costly. IAH teams will invest in health information technology from the margins created by gain-sharing. It is difficult to precisely calculate potential cost savings from wide-scale adoption of an IAH model or others like it, which focus care on the people at greatest risk, aligning incentives while changing primary care delivery, but it can be estimated. Ranking Medicare beneficiaries by cost, in the top 10 percent (4 million people) the average 2009 cost is about $50,000. Reducing average cost 25 percent would save $50 billion per year. And the 4 million is also the number of persons in the center of the target using functional status as the primary selection criterion. A low-end estimate could be based on home health agency Part A rehospitalizations. Using the 29 percent national rate and 7 million episodes yields 2 million hospital admissions. A 25 percent improvement would avert 500,000 hospitalizations; if these averaged $15,000, Medicare savings would be $7.5 billion. This is a low estimate, as some at-risk persons are either not referred or are in and out of Part A care. The VA Home-Based Primary Care Program is another frame. In 2002 dollars, annual home care cost per person was $11,000 more after HBPC than before it. This was offset by reduced hospital costs ($11,000) and nursing home costs ($10,000). Total costs were lowered from $38,000 to $29,000 (24 percent). Adjusting for inflation at 5 percent and applying this math to 4 million Medicare beneficiaries who cost $50,000 each in 2009,
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The Role of Human Factors in Home Health Care: Workshop Summary home care would cost $62 billion more but hospital and nursing home use would be $116 billion lower, saving $54 billion overall. To satisfy critics, it is important to address concerns about workforce and the impact of an IAH “carve-out” on other stakeholders and other new health care designs. The baby boom will change the shape of health care. If the current path continues, hospitals can anticipate more Medicare volume and the prospect of providing those services at a discounted rate relative to current payments, which are often at or below cost. Thus, hospitals should support IAH in order to focus on what they do best: advanced surgery, intensive care, and complex inpatient management using lots of high technology. Typical primary care physicians already coordinate care with 117 other practices (Pham et al., 2009), and they also have more than enough clients. Furthermore, the frail IAH population is not ideal for office practice, since these persons require more time during encounters and much more time between encounters. High-volume physician offices will always struggle to meet the needs of this complex and immobile population. Although a large enough office practice can structure a support system that will accommodate the care management requirements of this population, the physician owners or business managers must intentionally choose to set aside time to care for the immobile patients and the payment system must support that, or these patients will always be marginalized as they are now. None of the other health care reform options will achieve this, except for the most advanced medical homes, after many years of substantial investment. IAH can be viewed as a specialized patient-centered medical home (PCMH) without bricks and mortar. Taking a frail, sick older person out of bed and forcing them to travel to the physician’s office, often requiring a family member to take time off work to make sure key issues are addressed, does not seem patient-centered. An office-based PCMH strategy of using telemedicine and delegating direct care to professionals with less training, in lieu of physician care, would create a lower standard of care for some of the sickest persons in society. Finally, the PCMH financial model is inadequate to cover the extra care costs of this population. Specialty physicians likewise will have more than enough Medicare business and would not miss seeing the IAH population subset who require more time and bring more risk-benefit issues and more complex decisions to procedural care. Specialists face the same risk as hospitals—of working harder for lower rates unless ways can be found to target resources and lower overall Medicare costs. The accountable care organization (ACO) model is designed to compensate large health systems for care of a population that includes frail, complex cases. An IAH program would help an accountable care organization deliver care and control costs, just as it would for a Medicaid Advan-
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The Role of Human Factors in Home Health Care: Workshop Summary tage plan that serves large numbers of high-cost elders or a special needs program. An IAH program matches the financial needs of accountable care organizations and special needs programs. The question remains whether most such large entities will ever develop home-based care models. Historically, most have not done so. It is likely that varied approaches will emerge for managing patients with advanced chronic illness. Some will use more telemedicine, more smart technology, more specialized consultation by pharmacists, more fully developed interdisciplinary teams. Some will purchase additional social work, personal care, community care managers, and other support services. PROFESSIONAL WORKFORCE DEVELOPMENT AND OTHER POSSIBLE BARRIERS Critics of the home care model for advanced chronic illness care have focused on the lack of sufficient experienced medical providers (physicians, nurse practitioners, other advance practice nurses, physician assistants). Although rarely noticed, a few thousand medical providers nationally have focused their efforts on mobile medical care using Part B payments and contract roles. Care of 300 very sick older persons at home might require a team with two nurse practitioners, a physician, and a small staff. To reach 4 million patients under these assumptions would require 13,000 physicians and 26,000 nurse practitioners supported by a team. Much of the team exists in home care, except for the medical component. The question is: How long would it take to grow such a workforce? Consider hospital medicine, in which a “hospitalist” employed by the hospital assumes the responsibilities of attending physician and case manager for the duration of an in-patient’s stay. This rapidly growing field with 30,000 workers arose in a decade from only 500 in 1997 due to a reliable payment source (the hospital) and a defined clinical role that is appealing to young physicians. Hospitalists work hard, with defined schedules and strong infrastructure supports. One can imagine medical home care teams emerging quickly given suitable incentives and supports, particularly within the established framework of home health agencies. Young physicians are inherently altruistic. Many would welcome the challenge and personal rewards of this work, for which care recipients and families are very grateful. The IAH teams in turn will attract more talented nurses and other workers to the field. After 10 years, a successful gain-sharing model might contend with insufficient numbers of persons in usual care against which to calculate savings as well as statistical regression to the mean, which would impact estimated cost savings. Recalibration and possibly even a revised payment
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The Role of Human Factors in Home Health Care: Workshop Summary model would be needed. By then, the market and provider workforce would be ready for risk-based care for frail elders living in the community. The biggest barriers to effective change in home care will come from lack of vision, entrenched systems, and interests that seek to maintain current revenue streams, to their own detriment. Change must come, and early adopters will prosper. Horizontal and vertical integration must be expected, much as was predicted during the “failed” national experiment with for-profit managed care, which has worked best for people who are not ill. In order to meet the needs of the sickest individuals in the home, those delivering care need flexible and efficient designs while promoting high-quality care and proper rewards and allowing patients to move between settings, as suggested in Figure 12-4. Importantly, incentives are needed for members of an interdisciplinary home-based team to engage in the difficult aspects of this work for the members of Group F: FIGURE 12-4 Movement of at-risk persons between care settings. SOURCE: Reprinted from Boling (2009). With permission from Elsevier.
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The Role of Human Factors in Home Health Care: Workshop Summary Selecting appropriate persons for intensive team care; suitable candidates are much sicker than the average person seen by office physicians or home health. Making and implementing complex medical decisions for ongoing care of individuals with multiple active problems, often several problems that are unstable or meta-stable, and for which treating one impacts several others. Timely, effective response to urgent situations in complex patients. Interacting with hospitals and specialty physicians in complicated cases. Care coordination involving multiple services and multiple sources of support. Addressing unrealistic expectations of the care recipient and the family for what health care can deliver and compassionately making difficult decisions. Disentangling social from medical issues; a line must be drawn when people seek to use medical resources to address social needs that are sometimes limitless. Finding or creating community resources to solve complex problems. The complex scenarios in which advanced medical home care providers, care recipients, and their families find themselves remind one of surgery, played out in slow motion over years. Care recipients depend heavily on a trustworthy physician-led interdisciplinary team who will see them through their entire course of care. Serious consequences attach to ill-advised decisions. Care providers must know how to prepare, what to cut, what not to cut, and how to manage the recuperative period. It takes considerable knowledge, training, skill, and experience to do this well. And each case is a deeply personal human drama that leaves indelible lifelong memories in all who are involved. In summary, home care has an extensive workforce at varying levels of skill and has developed a much enhanced range of technical capability that is needed by people of all ages. By having a broad vision that has its foundation in population needs and a willingness to restructure health care so that it is intentionally organized around the home and in the community and is thus truly patient-centered, people can achieve greater user satisfaction, better outcomes, and lower cost. Care and support should be targeted and proportionate to need. Robust quality measures have been developed that are appropriate to home care models and can be used to ensure value-based purchasing. Much can be learned from other nations that have invested in community-based care as society moves forward. A systems-based approach with prominent consideration of human factors
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The Role of Human Factors in Home Health Care: Workshop Summary will be vital to the proposed and much-needed redesign of payment, regulation, and care delivery in the home. ABOUT THE AUTHOR Peter A. Boling is professor of medicine at Virginia Commonwealth University, where he heads geriatrics and is interim chair of general internal medicine, which includes geriatrics, ambulatory care, hospitalists, and women’s health, medical education, and research. He has a longstanding interest in health policy and has published and spoken widely on home care. REFERENCES Akpolat, T., Dilek, M., Aydogdu, T., Adibeli, Z., Erdem, D.G., and Erdem, E. (2009). Home sphygmomanometers: Validation vs. accuracy. Blood Pressure Monitoring, 14, 26-31. Beales, J.L., Edes, T. (2009). Veteran’s Affairs home based primary care. Clinics in Geriatric Medicine, 25(1), 149-154. Boling, P.A. (2009). Care transitions and home health care. Clinics in Geriatric Medicine, 25(1), 135-148. Boyd, C.M., Darer, J., Boult, C., Fried, L.P., Boult, L., and Wu, A.W. (2005). Clinical practice guidelines and quality of care for older adults with multiple co-morbid diseases: implications for pay-for-performance. Journal of the American Medical Association, 294(6), 716-724. Brown, R., Peikes, D., Chen, A., and Schore, J. (2008). 15-site randomized trial of coordinated care in Medicare FFS. Health Care Financing Review, 30(1), 1-25. Brummel-Smith, K., and Dangiolo, M. (2009). Assistive technologies in the home. Clinics in Geriatric Medicine, 25(1), 61-79. Centers for Disease Control and Prevention. (2008). Vital and health statistics series 10, Number 242: Summary health statistics for U.S. adults. National Health Interview Survey, 2008. Available: http://www.cdc.gov/nchs/data/series/sr_10/sr10_242.pdf [accessed September 2009]. Centers for Disease Control and Prevention. (2009). National Health Interview Survey, 2003-2007. Table 1: Frequency Distributions of Numbers of Limitations in Activities of ADL and IADL from 2003 to 2007. Available: http://www.cdc.gov/nchs/health_policy/ADL_IADL_tables.pdf [accessed September 2009]. Cheng, J., Montalto, M., and Leff, B. (2009). Hospital at Home. Clinics in Geriatric Medicine, 25(1), 79-82. Coe, N.B., and Van Houten, C.H. (2009). Caring for mom and neglecting yourself? The health effects of caring for an elderly parent. Health Economics, 18, 991-1,010. Coleman, E.A., Parry, C., Chalmers, S., and Min, S.J. (2006). The care transitions intervention: results of a randomized controlled trial. Archives of Internal Medicine, 166, 1,822-1,828. Counsell, S.R., Callahan, C.M., Clark, D.O., Tu, W., Buttar, A.B., Stump, T.E., and Ricketts, G.D. (2007). Geriatric care management for low-income seniors: A randomized controlled trial. Journal of the American Medical Association, 298(22), 2,623-2,633. Devlin, R.A. (2008). Do physician remuneration schemes matter? The case of Canadian family physicians. Journal of Health Economics, 27, 1,168-1,181.
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The Role of Human Factors in Home Health Care: Workshop Summary Foster, L., Dale, S.B., and Brown, R. (2007). How caregivers and workers fared in Cash and Counseling. Health Services Research, 42(1, Part II), 510-532. Giovannetti, E.R., Wolff, J.L., Frick, K.D., and Boult, C. (2009). Construct validity of the Work Productivity and Activity Impairment Questionnaire across informal caregivers of chronically ill older patients. Value in Health, 12(6), 1011-1017. Goldfield, N.I., McCullough, E.C., Hughes, J.S., Tang, A.M., Eastman, B., Rawlins, L.K., and Averill, R.F. (2008). Identifying potentially preventable readmissions. Health Care Financing Review, 30(1), 75-91. Henry J. Kaiser Family Foundation. (2009). Medicare Advantage. Website publication #2052-12. Available: http://www.kff.org/Medicare/upload/2052-12.pdf [accessed September 2009]. Holtz-Eakin, D. (2005). High-cost Medicare beneficiaries. Congressional Budget Office report to Congress. May. Available: http://www.cbo.gov/ftpdocs/63xx/doc 6322/05-03 [accessed September 2009]. Hsiao, W.C. (2007). Why is a systemic view of health financing necessary? More money is a necessary but insufficient condition for better health. Health Affairs, 26(4), 950-961. Institute for Health Policy and Clinical Practice. (2008). The Dartmouth atlas of health care. Available: http://www.dartmouthatlas.org/atlases/2008_Chronic_Care_Atlas.pdf [accessed September 2009]. Kane, R.L., Homyak, P., Bershadsky, B., Flood, S. (2006). Journal of Gerontology, 61A(7), 689-693. Keenan, P.S., Elliott, M.N., Cleary, P.D., Zavlavsky, A.M., and Landon, B.E. (2009). Quality assessments by sick and healthy beneficiaries in traditional Medicare and Medicare managed care. Medical Care, 47, 882-888. Kemper, P. (2007). Commentary: Social experimentation at its best: The Cash and Counseling demonstration and its implications. Health Services Research, 42(1, Part II), 577-586. Kemper, P., Weaver, F., Short, P.F., Shea, D., and Kang, H. (2008). Meeting the need for personal care among the elderly: Does Medicaid home care spending matter. Health Services Research, 44(1, Part II), 344-362. Kronick, R. (2009). Medicare and HMOs—the search for accountability. New England Journal of Medicine, 360(20), 2,048-2,050. Leff, B., Reider, L., Frick, K.D., Scharfstein, D.O., Boyd, C.M., Frey, K., Karm, L., and Boult, C. (2009). Guided care and the cost of complex healthcare: A preliminary report. American Journal of Managed Care, 15(8), 555-559. Linden, A., and Adler-Milstein, J. (2008). Medicare disease management in policy context. Health Care Financing Review, 29(3), 1-11. Murkofsky, R.L., and Alston, K. (2009). The past, present and future of skilled home health agency care. Clinics in Geriatric Medicine, 25(1), 1-18. National Association for Home Care & Hospice. (2009). Home care and hospice facts and stats. Available: http://www.nahc.org [accessed September 2009]. Naylor, M.D., Brooten, D., Campbell, R., Jacobsen, B.S., Mezey, M.D., Pauly, M.V., and Schwartz, J.S. (1999). Comprehensive discharge planning and home care follow-up of hospitalized elders. Journal of the American Medical Association, 281(7), 613-620. Ogedegbe, G., and Schoenthaler, A. (2006). A systematic review of the effects of home blood pressure monitoring on medication adherence. Journal of Clinical Hypertension, 8(3), 174-180. Pham, H.H., O’Malley, A.S., Back, P.B., Salontz-Martinez, C., and Schrag, D. (2009). Primary care physicians’ links to other physicians through Medicare patients: The scope of care coordination. Annals of Internal Medicine, 150, 236-242.
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The Role of Human Factors in Home Health Care: Workshop Summary Potetz, L., and Cubanski, J. (2009). A primer on Medicare financing (pages 1-22). Henry J Kaiser Family Foundation. July. Available: http://www.kff.org/medicare/7731.cfm [accessed September 2009]. Rosenthal, M.B. (2009). Beyond pay for performance—emerging models of provider-payment reform. New England Journal of Medicine, 359(12), 1,197-1,200. Schade, C.P., Esslinger, E., Anderson, D., Sun, Y., and Knowles, B. (2009). Impact of a national campaign on hospital readmissions in home care patients. International Journal for Quality in Health Care, 21(3), 176-182. Schoen, C., Osborn, R., How, S.K.H., Doty, M.M., and Peugh, J. (2008). In chronic condition: Experiences of patients with complex health care needs, in eight countries. Health Affairs, 28(1), w1-w16. Shelledy, C.D., Legrand, T.S., Gardner, D.D., and Peters, J.I. (2009). A randomized, controlled study to evaluate the role of an in-home disease management program provided by respiratory therapists in improving outcomes and reducing the cost of care. Journal of Asthma, 46, 194-201. Smith, K.L., Soriano, T.A., and Boal, J. (2007). Brief communication: National quality of care standards in home-based primary care. Annals of Internal Medicine, 146, 188-192. Stone, R., and Newcomer, R. (2009). Advances and issue in personal care. Clinics in Geriatric Medicine, 25(1), 35-60. Suter, P., Hennessey, B., Harrison, G., Fagan, M., Norman, B., and Suter, W.N. (2008). Home-based chronic care: An expanded integrative model for home care professionals. Home Healthcare Nurse, 26(4), 222-229. Wennberg, J.E., Fisher, E.S., Goodman, D.C., and Skinner, J.S. (2008). Tracking the care of patients with severe chronic illness: The Dartmouth atlas of health care. pp. 180. Available: http://www.dartmouthatlas.org/downloads/atlases/2008_Chronic_Care_Atlas.pdf [accessed May 2010]. Wiener, J.M. (2007). Commentary: Cash and Counseling in international context. Health Services Research, 42(1, Part II), 510-532. Wilensky, G.R. (2009). Reforming Medicare’s physician payment system. New England Journal of Medicine, 360(7), 653-655. Wolff, J.L., Meadow, A., Boyd, C.M., Weiss, C.O., and Leff, B. (in press). Physician evaluation and management of Medicare home health patients. Submitted to Medical Care. Zarabozo, C., and Harrison, S. (2009). Payment policy and the growth of Medicare Advantage. Health Affairs, 28(1), 55-67. Zhang, Y., Donohue, J.M., Lave, J.R., O’Donnell, G., and Newhouse, J.P. (2009). The effect of Medicare Part D on drug and medical spending. New England Journal of Medicine, 361, 52-61.
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