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PAPERBACK price:$31.75 add to cart Rights & Permissions Free PDF Access Sign in to download PDF book and chapters Free Resources PDF SUMMARY Display this book on your site! Related Titles Protecting Participants and Facilitating Social and Behavioral Sciences Research Protecting Data Privacy in Health Services Research Other Related Titles Conducting Biosocial Surveys: Collecting, Storing, Accessing, and Protecting Biospecimens and Biodata (2010) Committee on National Statistics (CNSTAT) Committee on Population (CPOP) Citation Manager Export the bibliographic data for this book in your chosen format Web Search Builder Use this book's key terms to search within this book, across our collection, or across the Web. Skim This Chapter Skim this chapter and use this chapter's key terms to search within this book. Reference Finder Paste in your own text to find books that relate to your topic. Citation Manager . "Appendix D Acronyms." Conducting Biosocial Surveys: Collecting, Storing, Accessing, and Protecting Biospecimens and Biodata. Washington, DC: The National Academies Press, 2010. Please select a format: Page 105   E-mail Share on facebook Facebook Share on delicious Delicious Share on stumbleupon Stumble Share on twitter Twitter More Sharing ServicesMore The following HTML text is provided to enhance online readability. Many aspects of typography translate only awkwardly to HTML. Please use the page image as the authoritative form to ensure accuracy. Appendix D Acronyms AAMC Association of American Medical Colleges ASCO American Society of Clinical Oncology BNSF Burlington Northern Santa Fe Railroad BSR Behavioral and Social Research Program CFR Code of Federal Regulations CLIA Clinical Laboratory Improvement Amendments COI conflict of interest DASL Data and Story Library EEOC Equal Employment Opportunity Commission ELSA English Longitudinal Study of Aging FFPE formalin-fixed, paraffin-embedded tissue FOIA Freedom of Information Act GINA Genetic Information Nondiscrimination Act GWASs genome-wide association studies HDL high-density lipoprotein HHS U.S. Department of Health and Human Services HIPAA Health Insurance Portability and Accountability Act Page 105 Front Matter (R1-R12) Summary (1-6) 1 Introduction (7-18) 2 Collecting, Storing, Using, and Distributing Biospecimens (19-40) 3 Protecting Privacy and Conἀdentiality: Sharing Digital Representations of Biological and Social Data (41-54) 4 Informed Consent (55-72) 5 Findings, Conclusions, and Recommendations (73-86) References (87-92) Appendix A Agenda for the Workshop on Collecting, Storing, Protecting, and Accessing Biological Data Collected in Social Surveys (93-96) Appendix B Participants in the Workshop on Collecting, Storing, Protecting, and Accessing Biological Data Collected in Social Surveys (97-98) Appendix C Biographical Sketches of Panel Members and Staff (99-104) Appendix D Acronyms (105-108) COMMITTEE ON NATIONAL STATISTICS (109-110) COMMITTEE ON POPuLATION (111-112)

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OCR for page 105
Conducting Biosocial Surveys: Collecting, Storing, Accessing, and Protecting Biospecimens and Biodata Appendix D Acronyms AAMC Association of American Medical Colleges ASCO American Society of Clinical Oncology BNSF Burlington Northern Santa Fe Railroad BSR Behavioral and Social Research Program CFR Code of Federal Regulations CLIA Clinical Laboratory Improvement Amendments COI conflict of interest DASL Data and Story Library EEOC Equal Employment Opportunity Commission ELSA English Longitudinal Study of Aging FFPE formalin-fixed, paraffin-embedded tissue FOIA Freedom of Information Act GINA Genetic Information Nondiscrimination Act GWASs genome-wide association studies HDL high-density lipoprotein HHS U.S. Department of Health and Human Services HIPAA Health Insurance Portability and Accountability Act

OCR for page 106
Conducting Biosocial Surveys: Collecting, Storing, Accessing, and Protecting Biospecimens and Biodata HRS Health and Retirement Study ICPSR Inter-university Consortium for Political and Social Research IOM Institute of Medicine IP intellectual property IRB Institutional Review Board ISBER International Society for Biological and Environmental Repositories ISO International Organization for Standardization LBL Lawrence Berkeley Laboratory MiCDA Michigan Center on the Demography of Aging Data MTA material transfer agreement NCES National Center for Education Statistics NCHS National Center for Health Statistics NCI National Cancer Institute NHANES National Health and Nutrition Examination Survey NHGRI National Human Genome Research Institute NIA National Institute on Aging NICHD Eunice Kennedy Shriver National Institute of Child Health and Human Development NIH National Institutes of Health NORC National Opinion Research Center NRC National Research Council OBBR Office of Biorepositories and Biospecimen Research OECD Organisation for Economic Co-operation and Development OHRP Office of Human Research Protections (formerly OPRR) OPRR Office of Protection from Research Risks QA quality assurance QC quality control SDL statistical disclosure limitation SNP single nucleotide polymorphism SOP standard operating procedure SWAN Study of Women’s Health Across the Nation UNESCO United Nations Education, Scientific and Cultural Organization

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Conducting Biosocial Surveys: Collecting, Storing, Accessing, and Protecting Biospecimens and Biodata UPS uninterruptible power supply VCU Virginia Commonwealth University WHO World Health Organization

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