Appendix D
Acronyms

AAMC Association of American Medical Colleges

ASCO American Society of Clinical Oncology

BNSF Burlington Northern Santa Fe Railroad

BSR Behavioral and Social Research Program

CFR Code of Federal Regulations

CLIA Clinical Laboratory Improvement Amendments

COI conflict of interest

DASL Data and Story Library

EEOC Equal Employment Opportunity Commission

ELSA English Longitudinal Study of Aging

FFPE formalin-fixed, paraffin-embedded tissue

FOIA Freedom of Information Act

GINA Genetic Information Nondiscrimination Act

GWASs genome-wide association studies

HDL high-density lipoprotein

HHS U.S. Department of Health and Human Services

HIPAA Health Insurance Portability and Accountability Act



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Appendix D Acronyms AAMC Association of American Medical Colleges ASCO American Society of Clinical Oncology BNSF Burlington Northern Santa Fe Railroad BSR Behavioral and Social Research Program CFR Code of Federal Regulations CLIA Clinical Laboratory Improvement Amendments COI conflict of interest DASL Data and Story Library EEOC Equal Employment Opportunity Commission ELSA English Longitudinal Study of Aging FFPE formalin-fixed, paraffin-embedded tissue FOIA Freedom of Information Act GINA Genetic Information Nondiscrimination Act GWASs genome-wide association studies HDL high-density lipoprotein HHS U.S. Department of Health and Human Services HIPAA Health Insurance Portability and Accountability Act 0

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0 CONDUCTING BIOSOCIAL SURVEYS HRS Health and Retirement Study ICPSR Inter-university Consortium for Political and Social Research IOM Institute of Medicine IP intellectual property IRB Institutional Review Board ISBER International Society for Biological and Environmental Repositories ISO International Organization for Standardization LBL Lawrence Berkeley Laboratory MiCDA Michigan Center on the Demography of Aging Data MTA material transfer agreement NCES National Center for Education Statistics NCHS National Center for Health Statistics NCI National Cancer Institute NHANES National Health and Nutrition Examination Survey NHGRI National Human Genome Research Institute NIA National Institute on Aging NICHD Eunice Kennedy Shriver National Institute of Child Health and Human Development NIH National Institutes of Health NORC National Opinion Research Center NRC National Research Council OBBR Office of Biorepositories and Biospecimen Research OECD Organisation for Economic Co-operation and Development OHRP Office of Human Research Protections (formerly OPRR) OPRR Office of Protection from Research Risks QA quality assurance QC quality control SDL statistical disclosure limitation SNP single nucleotide polymorphism SOP standard operating procedure SWAN Study of Women’s Health Across the Nation UNESCO United Nations Education, Scientific and Cultural Organization

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0 APPENDIX D UPS uninterruptible power supply VCU Virginia Commonwealth University WHO World Health Organization

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